[Blind-rollers] my second post

Wed Nov 11 18:19:36 UTC 2015

Good for you. I think people think I am just playing! My mama always
calls me lazy! I thought about doing that but I don't have my
measurements. Sometimes my legs feel weak and I feel lightheaded and
weak after a short amount of activity and sometimes not. I can never
tell until I start moving and/or standing. Lately it's been alright
and I have been able to manage shopping for 2 hours straight without
crashing to sleep after, but I have to sit and rest soon as I can once
I am home. Other times I have experienced numbness in my feet and
after an hour or less of physical movement like walking I crash for
hours. Recently, there has been sudden sharp pains in my legs and feet
like if somebody has taken a scraper or scapula on the inside of them
and they cramp up especially if I am sitting with my legs folded for
awhile and try to reposition. I haven't even gotten to mentioning
those things to my medical professional yet trying to address other
issues like supposed thyroid problems and ongoing high blood pressure.
They need my Medicare card and it keeps disappearing in the mail and
never actually reaches my hand!So I've resigned myself to just
collapsing probably one day, and then maybe all my medicalities will
be addressed properly and they'll figure out what I need and
Medicaid/Medicare will come through for me. Shame it has to be that
way though!

On 7/19/15, Maureen Pranghofer via Blind-rollers
<blind-rollers at nfbnet.org> wrote:
> Hi Lauren
> I love the Bible verses on the bottom of your letter.  I'd love to talk with
>
> you as I've been a blind chair user for years, call me 763-522-2501.
> Maureen
>
>
> -----Original Message-----
> From: Lauren Merryfield via Blind-rollers
> Sent: Saturday, July 18, 2015 10:19 AM
> To: blind-rollers at nfbnet.org
> Cc: Lauren Merryfield
> Subject: [Blind-rollers] my second post
>
> Hi,
>
> I took a look at the archives and this is a slower list than some. Maybe
> I'll shake it up a bit, haha. And yes, there are some people on here whose
> names I recognize. Wow.
>
>
>
> I have quite a bit of frustration under my belt regarding people who don't
> understand that I cannot walk as fast as they do. I cannot stand as long as
> they do. Sometimes when I say I'm going to go somewhere or do something I
> have to cancel due to lower stamina issues that they don't have. I have
> sometimes been regarded as lazy rather than being understood. I cannot keep
> up with the Joneses and don't know that I even want to.
>
>
>
> I was very new at using a chair at convention. Back in 2007, right before
> my
> husband passed on, I broke my left ankle and was hospitalized for way
> longer
> than I needed. They wouldn't let me go home. Anyway I was in a chair
> exactly
> like the blue one I have now. I used it for around 8 weeks. I did fine at
> home but I could not leave due to a set of stairs. So when I got cabin
> fever, I rolled up and down the hallway outside of my apt. Since then, I've
> gotten apts that are ground-level. The problem with that is that someone
> else likes ground level apts and upsets my kitties-fleas!
>
>
>
> People at convention were mostly friendly about my using my chair but
> sometimes it felt like the social world was all above me and I didn't have
> as many people talking to me as I would have if I were on my feet. I wonder
> how you manage that issue. People had major problems getting through the
> aisles of chairs in our delegation with my chair at the end of one row. One
> person did say "that chair is in the way" and someone said "it makes it a
> lot harder to get through with that chair there. What about sitting over
> next to the wall." I told him I wanted to sit with everybody, not be
> separated. But otherwise, people were okay about it as far as I know. Lots
> of canes got caught in it, but thank goodness, I didn't roll over any dogs.
>
>
>
> Sometimes I walked, in the exhibit hall, pulling my chair behind me. It was
> a nice place to put my too-heavy bag. When I got tired, I could sit down,
> which was good. It took me the whole afternoon to go through the exhibit
> hall because I kept getting lost and I kept needing to sit down and rest.
>
>
>
> My original wheelchair was black and had a canvas-type material on it. On
> my
> flight from DFW to Orlando the airline people broke my new chair. I filed a
> claim and they issued me a loaner, which is the one I now have. It is a
> better chair than the one I had gotten. (My Dr. said that even if I ordered
> a chair through Medicare I'd have to pay a lot for it so I bought one on
> eBay.)
>
>
>
> Well, enough rambling for now.
>
> Thanks
>
> Lauren
>
> Blessings in Jesus' name
>
> Philippians 4:6-7
>
> "Do not be anxious about anything, but in every situation, by prayer and
> petition, with thanksgiving,
>
> present your requests to God. And the peace of God, which transcends all
> understanding, will guard your hearts and your minds in Christ Jesus."
>
> My digital evangelism blog is at:
>
> W w w . ask in Jesus name . o r g
>
> My book, in audio format, is at:
>
> W w w . audible . c o m
>
> Cats Are Terrifically Superb:
>
> W w w . catlInes . c o m
>
> (take the spaces out to go to the above links)
>
>
>
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-- 
Danielle

Email: singingmywayin at gmail.com