From b.butterfly at comcast.net  Wed Apr  8 16:16:41 2020
From: b.butterfly at comcast.net (Becky Frankeberger)
Date: Wed, 8 Apr 2020 09:16:41 -0700
Subject: [Blind-Rollers] manual wheelchair
Message-ID: <002801d60dc1$17696280$463c2780$@comcast.net>

Why is it so hard for companies to fit us with wheelchairs that fit us? 

 

Lauron I am going through the wheelchair blues, like you did several months
ago.

 

First of all, I am shocked I got approved for another manual wheelchair. The
first one they brought was for a kid. It was to narrow, the seat was weird,
tiny for a kid. The second one they brought was a dandy, but to high off the
ground and the delivery guy wouldn't fix the problem. Then as I started to
use it as is, I discovered the length of the seat was hitting me wrong. But
he did put on the seatbelt I paid for. I also liked on this chair the length
of the handles for breaks. So, they brought me yet a third. This one has
really cool tires. They look like to me they would go through anything,
possibly even snow. Certainly, gravel or wet surfaces.

But the seat is to narrow, and way to short.

 

Cushions, they also approved special cushions for my back, that I love, and
seat which I don't like how hard it is.

 

Forgot to tell you, according to their notes I am five foot six and a
hundred and eight pounds. Boy howdy would I love to be that tall and skinny.
We corrected that one.

 

The real repair guy is coming today, I hear. 

 

Becky      



From maureensmusic at comcast.net  Wed Apr  8 23:41:45 2020
From: maureensmusic at comcast.net (maureensmusic at comcast.net)
Date: Wed, 8 Apr 2020 18:41:45 -0500
Subject: [Blind-Rollers] manual wheelchair
In-Reply-To: <002801d60dc1$17696280$463c2780$@comcast.net>
References: <002801d60dc1$17696280$463c2780$@comcast.net>
Message-ID: <00a201d60dff$44829b40$cd87d1c0$@comcast.net>

Hi
I think it all has to do with doing anything out of the ordinary, I've been
after them to make a way so my chair would beep when I turn it on or off, my
old one did that and it was great because I always knew for sure that it was
off because it would beep.  When I got this chair I asked about it and they
told me that people in power chairs want as few noises as possible. I said
that being blind it's a safety concern because I don't know for sure I'm off
and I've had several times when I pushed off, thinking it was off only to
bump my joy stick and I was on.  Even though it's a safety issue they said
they won't modify it because if it breaks its too hard to fix anything
customized.
And I'm surprised that with covid 19 you're getting service now.
Maureen


-----Original Message-----
From: Blind-Rollers <blind-rollers-bounces at nfbnet.org> On Behalf Of Becky
Frankeberger via Blind-Rollers
Sent: Wednesday, April 8, 2020 11:17 AM
To: 'Blind wheelchair users list' <blind-rollers at nfbnet.org>
Cc: Becky Frankeberger <b.butterfly at comcast.net>
Subject: [Blind-Rollers] manual wheelchair

Why is it so hard for companies to fit us with wheelchairs that fit us? 

 

Lauron I am going through the wheelchair blues, like you did several months
ago.

 

First of all, I am shocked I got approved for another manual wheelchair. The
first one they brought was for a kid. It was to narrow, the seat was weird,
tiny for a kid. The second one they brought was a dandy, but to high off the
ground and the delivery guy wouldn't fix the problem. Then as I started to
use it as is, I discovered the length of the seat was hitting me wrong. But
he did put on the seatbelt I paid for. I also liked on this chair the length
of the handles for breaks. So, they brought me yet a third. This one has
really cool tires. They look like to me they would go through anything,
possibly even snow. Certainly, gravel or wet surfaces.

But the seat is to narrow, and way to short.

 

Cushions, they also approved special cushions for my back, that I love, and
seat which I don't like how hard it is.

 

Forgot to tell you, according to their notes I am five foot six and a
hundred and eight pounds. Boy howdy would I love to be that tall and skinny.
We corrected that one.

 

The real repair guy is coming today, I hear. 

 

Becky      

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Blind-Rollers at nfbnet.org
http://nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org
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From b.butterfly at comcast.net  Tue Apr 28 16:11:36 2020
From: b.butterfly at comcast.net (Becky Frankeberger)
Date: Tue, 28 Apr 2020 09:11:36 -0700
Subject: [Blind-Rollers] but pillow
Message-ID: <028b01d61d77$b1de06c0$159a1440$@comcast.net>

Now finally, this wheelchair is pretty good. Now what do you use as a butt
pillow? The first one was that hard foam pillow that was awful on my but,
legs, and lower back. I just couldn't get comfortable. I went back to my old
ten year old pillow. That one was a lighter foam with a jell top. This one
is pretty good. It is filled with air with round nubs that kind of massage
my poor but, giggle. I'll get the name if you all are interested. My
insurance paid like three hundred dollars. Yes it comes with a pump.

 

Again, what do you all use?

Becky proud renter of a mini-hemmy   



From scottish_lass at outlook.com  Tue Apr 28 23:42:57 2020
From: scottish_lass at outlook.com (Leah Campbell)
Date: Tue, 28 Apr 2020 23:42:57 +0000
Subject: [Blind-Rollers] but pillow
In-Reply-To: <028b01d61d77$b1de06c0$159a1440$@comcast.net>
References: <028b01d61d77$b1de06c0$159a1440$@comcast.net>
Message-ID: <SN6PR05MB54068D3BD12B96DC5FA7306C83AC0@SN6PR05MB5406.namprd05.prod.outlook.com>

I use a low profile air cushion by ROHO.

________________________________
From: Blind-Rollers <blind-rollers-bounces at nfbnet.org> on behalf of Becky Frankeberger via Blind-Rollers <blind-rollers at nfbnet.org>
Sent: Tuesday, April 28, 2020 11:11 AM
To: 'Blind wheelchair users list' <blind-rollers at nfbnet.org>
Cc: Becky Frankeberger <b.butterfly at comcast.net>
Subject: [Blind-Rollers] but pillow

Now finally, this wheelchair is pretty good. Now what do you use as a butt
pillow? The first one was that hard foam pillow that was awful on my but,
legs, and lower back. I just couldn't get comfortable. I went back to my old
ten year old pillow. That one was a lighter foam with a jell top. This one
is pretty good. It is filled with air with round nubs that kind of massage
my poor but, giggle. I'll get the name if you all are interested. My
insurance paid like three hundred dollars. Yes it comes with a pump.



Again, what do you all use?

Becky proud renter of a mini-hemmy

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From maureensmusic at comcast.net  Wed Apr 29 02:26:48 2020
From: maureensmusic at comcast.net (maureensmusic at comcast.net)
Date: Tue, 28 Apr 2020 21:26:48 -0500
Subject: [Blind-Rollers] but pillow
In-Reply-To: <SN6PR05MB54068D3BD12B96DC5FA7306C83AC0@SN6PR05MB5406.namprd05.prod.outlook.com>
References: <028b01d61d77$b1de06c0$159a1440$@comcast.net>
	<SN6PR05MB54068D3BD12B96DC5FA7306C83AC0@SN6PR05MB5406.namprd05.prod.outlook.com>
Message-ID: <001401d61dcd$a3126040$e93720c0$@comcast.net>

Hi
I have custom foam in my chair because I kept getting pressure sores. They
basically throw you a bean bag and so have a mold of your but and then with
but mapping to see darker colors for pressure areas they make a cushion.
Maureen


-----Original Message-----
From: Blind-Rollers <blind-rollers-bounces at nfbnet.org> On Behalf Of Leah
Campbell via Blind-Rollers
Sent: Tuesday, April 28, 2020 6:43 PM
To: Blind wheelchair users list <blind-rollers at nfbnet.org>
Cc: Leah Campbell <scottish_lass at outlook.com>
Subject: Re: [Blind-Rollers] but pillow

I use a low profile air cushion by ROHO.

________________________________
From: Blind-Rollers <blind-rollers-bounces at nfbnet.org> on behalf of Becky
Frankeberger via Blind-Rollers <blind-rollers at nfbnet.org>
Sent: Tuesday, April 28, 2020 11:11 AM
To: 'Blind wheelchair users list' <blind-rollers at nfbnet.org>
Cc: Becky Frankeberger <b.butterfly at comcast.net>
Subject: [Blind-Rollers] but pillow

Now finally, this wheelchair is pretty good. Now what do you use as a butt
pillow? The first one was that hard foam pillow that was awful on my but,
legs, and lower back. I just couldn't get comfortable. I went back to my old
ten year old pillow. That one was a lighter foam with a jell top. This one
is pretty good. It is filled with air with round nubs that kind of massage
my poor but, giggle. I'll get the name if you all are interested. My
insurance paid like three hundred dollars. Yes it comes with a pump.



Again, what do you all use?

Becky proud renter of a mini-hemmy

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36871760412237&amp;sdata=lc9lwG4PlGITxxPz%2FABuD2bZ0E%2BUg%2F448tzvoTGrb2g%3
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om&amp;data=02%7C01%7C%7C3cc4513dc67b433ea85c08d7eb8f02be%7C84df9e7fe9f640af
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From b.butterfly at comcast.net  Wed Apr 29 14:49:28 2020
From: b.butterfly at comcast.net (Becky Frankeberger)
Date: Wed, 29 Apr 2020 07:49:28 -0700
Subject: [Blind-Rollers] dreaming a little
Message-ID: <00be01d61e35$630573d0$29105b70$@comcast.net>

Since this wheelchair company is just being a pistol, the lady who is
handling my case is applying for a real measurement by an expert, and a
custom wheelchair from the insurance company.  Like the subject says, I am
dreaming a little, smile.

 

What would be in a custom wheelchair for you? Or what do you have special on
your chair to make your life better?

 

Are the tires with inner tubes, I guess they are called, really easier on
your body? 

 

Thank you for all your help.

Warmly, 

Becky    



From ejcole at fmail.co.uk  Wed Apr 29 15:05:21 2020
From: ejcole at fmail.co.uk (Erica Cole)
Date: Wed, 29 Apr 2020 16:05:21 +0100
Subject: [Blind-Rollers] dreaming a little
Message-ID: <20200429150523.37D0E3065EED@mailuser.nyi.internal>

Becky
I'm following this subject with interest. I bought my power-chair second-hand and use the seat that came with it. My manual chair has a specific cushion for me and it weighs an absolute ton!! It's not that great either though. 
 I've never looked into the differences between tyre types.  
Not cushion-related, but one feature I absolutely love is the ability to rotate my control box right out of the way were effectively turning it upside-down. This enables me tget it under desks and tables etc which wouldn't be possible without this feature. It's done through a bracket on the right-hand side of the chair and the control box is attached to an arm which fits into this bracket.  All I have to do is loosen a bolt slightly, adjust the box to how I need it and then do up the bolt again.

 
 

Erica Cole
Follow me on Twitter: @ladymunch 
Sent from my tablet: please excuse any typos 
On 29 Apr 2020 15:49, Becky Frankeberger via Blind-Rollers <blind-rollers at nfbnet.org> wrote:
>
> Since this wheelchair company is just being a pistol, the lady who is 
> handling my case is applying for a real measurement by an expert, and a 
> custom wheelchair from the insurance company.? Like the subject says, I am 
> dreaming a little, smile. 
>
>
>
> What would be in a custom wheelchair for you? Or what do you have special on 
> your chair to make your life better? 
>
>
>
> Are the tires with inner tubes, I guess they are called, really easier on 
> your body? 
>
>
>
> Thank you for all your help. 
>
> Warmly, 
>
> Becky??? 
>
> _______________________________________________ 
> Blind-Rollers mailing list 
> Blind-Rollers at nfbnet.org 
> http://nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org 
> To unsubscribe, change your list options or get your account info for Blind-Rollers: 
> http://nfbnet.org/mailman/options/blind-rollers_nfbnet.org/ejcole%40fmail.co.uk 


Erica Cole
Follow me on Twitter: @ladymunch 
Sent from my tablet: please excuse any typos 

From maureensmusic at comcast.net  Wed Apr 29 19:27:43 2020
From: maureensmusic at comcast.net (maureensmusic at comcast.net)
Date: Wed, 29 Apr 2020 14:27:43 -0500
Subject: [Blind-Rollers] dreaming a little
In-Reply-To: <00be01d61e35$630573d0$29105b70$@comcast.net>
References: <00be01d61e35$630573d0$29105b70$@comcast.net>
Message-ID: <009c01d61e5c$41c6cb20$c5546160$@comcast.net>

Hi Becky
> What would be in a custom wheelchair for you? Or what do you have special
on your chair to make your life better?>
Well I mentioned the custom seating, and like Erica I have what they call
the quad link, the joy stick/control box swings out to the right and so it
out of the way of tables and desks.
I have tilt which goes back far enough so I can lay down in my chair which I
do several times a day to prevent but stores.
Also I have attendant control so a sighted people can use the joy stick in
the back of my chair to drive when I can't because of pain, or its too many
people, etc. Those are some of the custom things I have on my chair.
My tires have always been air filled with inner tubes for adding more air,
but last time I tried to get that and they said they do not like to get them
for people any more because of the risk of flat tires. I was reluctant to
get the solid gel tires because I was afraid I'd feel every bump but that's
all I could get and they are fine, not bad at all but my chair has great
shocks and I think if you have that you are good with the solid gel tires.
Maureen


-----Original Message-----
From: Blind-Rollers <blind-rollers-bounces at nfbnet.org> On Behalf Of Becky
Frankeberger via Blind-Rollers
Sent: Wednesday, April 29, 2020 9:49 AM
To: 'Blind wheelchair users list' <blind-rollers at nfbnet.org>
Cc: Becky Frankeberger <b.butterfly at comcast.net>
Subject: [Blind-Rollers] dreaming a little

Since this wheelchair company is just being a pistol, the lady who is
handling my case is applying for a real measurement by an expert, and a
custom wheelchair from the insurance company.  Like the subject says, I am
dreaming a little, smile.

 

What would be in a custom wheelchair for you? Or what do you have special on
your chair to make your life better?

 

Are the tires with inner tubes, I guess they are called, really easier on
your body? 

 

Thank you for all your help.

Warmly, 

Becky    

_______________________________________________
Blind-Rollers mailing list
Blind-Rollers at nfbnet.org
http://nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org
To unsubscribe, change your list options or get your account info for
Blind-Rollers:
http://nfbnet.org/mailman/options/blind-rollers_nfbnet.org/maureensmusic%40c
omcast.net




From klr16333 at gmail.com  Wed Apr 29 20:56:49 2020
From: klr16333 at gmail.com (Katie Robinson)
Date: Wed, 29 Apr 2020 16:56:49 -0400
Subject: [Blind-Rollers] dreaming a little
In-Reply-To: <009c01d61e5c$41c6cb20$c5546160$@comcast.net>
References: <009c01d61e5c$41c6cb20$c5546160$@comcast.net>
Message-ID: <F15A756E-CFD2-459D-B580-5606B7527466@gmail.com>

So I like my custom chair because it fits my body perfectly. It?s more comfortable to sit in longer-term and easier for me to push because it?s my size. The standard hospital chair rental that you get is too wide and too tall for me and made my hips sit funny and was harder to push because the tires were further away from me. I have a nice gel cushion with cooling foam. It?s negotiable if the foam actually works or not but I like to think it does. 
Sent from my iPhone

> On Apr 29, 2020, at 3:32 PM, maureen Pranghofer via Blind-Rollers <blind-rollers at nfbnet.org> wrote:
> 
> ?Hi Becky
>> What would be in a custom wheelchair for you? Or what do you have special
> on your chair to make your life better?>
> Well I mentioned the custom seating, and like Erica I have what they call
> the quad link, the joy stick/control box swings out to the right and so it
> out of the way of tables and desks.
> I have tilt which goes back far enough so I can lay down in my chair which I
> do several times a day to prevent but stores.
> Also I have attendant control so a sighted people can use the joy stick in
> the back of my chair to drive when I can't because of pain, or its too many
> people, etc. Those are some of the custom things I have on my chair.
> My tires have always been air filled with inner tubes for adding more air,
> but last time I tried to get that and they said they do not like to get them
> for people any more because of the risk of flat tires. I was reluctant to
> get the solid gel tires because I was afraid I'd feel every bump but that's
> all I could get and they are fine, not bad at all but my chair has great
> shocks and I think if you have that you are good with the solid gel tires.
> Maureen
> 
> 
> -----Original Message-----
> From: Blind-Rollers <blind-rollers-bounces at nfbnet.org> On Behalf Of Becky
> Frankeberger via Blind-Rollers
> Sent: Wednesday, April 29, 2020 9:49 AM
> To: 'Blind wheelchair users list' <blind-rollers at nfbnet.org>
> Cc: Becky Frankeberger <b.butterfly at comcast.net>
> Subject: [Blind-Rollers] dreaming a little
> 
> Since this wheelchair company is just being a pistol, the lady who is
> handling my case is applying for a real measurement by an expert, and a
> custom wheelchair from the insurance company.  Like the subject says, I am
> dreaming a little, smile.
> 
> 
> 
> What would be in a custom wheelchair for you? Or what do you have special on
> your chair to make your life better?
> 
> 
> 
> Are the tires with inner tubes, I guess they are called, really easier on
> your body? 
> 
> 
> 
> Thank you for all your help.
> 
> Warmly, 
> 
> Becky    
> 
> _______________________________________________
> Blind-Rollers mailing list
> Blind-Rollers at nfbnet.org
> http://nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Blind-Rollers:
> http://nfbnet.org/mailman/options/blind-rollers_nfbnet.org/maureensmusic%40c
> omcast.net
> 
> 
> _______________________________________________
> Blind-Rollers mailing list
> Blind-Rollers at nfbnet.org
> http://nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org
> To unsubscribe, change your list options or get your account info for Blind-Rollers:
> http://nfbnet.org/mailman/options/blind-rollers_nfbnet.org/klr16333%40gmail.com