[blindkid] Arianna's new battle

Susan Harper sueharper at firstchurchgriswold.org
Tue Apr 7 13:15:19 UTC 2009


Arianna is blessed to be part of such a caring family.  We will raise her up
in prayer.
Blessings,
Sue H.

On Tue, Apr 7, 2009 at 2:24 AM, janice jordan <jjordan_pa at yahoo.com> wrote:

> Some of you know that my little girl, Arianna, was born blind due to a rare
> disease of the bones (osteopetrosis) and she underwent a then
> experimental bone marrow transplant to prolong her precious life. June would
> mark her 7th anniversary of success. She has been a real trooper through it
> all. Well, today we received some not-so-good news during a routine
> ultra-sound. They found a large tumor on her left kidney. We have a surgical
> consult tomorrow and surgery scheduled for Wednesday to remove the tumor and
> the kidney.  You have all become like family to me, to us and I felt a need
> to share with the group. You all have helped me make some very important
> decisions regarding her schooling, her social interactions and her general
> well-being. Thank you all, for sharing with me and allowing me to make more
> informed decisions regarding Ari's life. I look forward to lots more wisdom
> and true-life experiences from you all.
>
> Janice and Ari
>
>
>
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