[blindkid] congenital glaucoma help

[Rosina Solano]

Okay, please help me if you can. My oldest son has a severe case of congenital glaucoma.  He has had multiple surgeries.  Recently he has had issues with bleeding in his eye.  In the colored part.  He was on some drops but they have not been effective.  He does not have sight in this eye, but it is causing severe pain and light sensitivity in his other eye (limited vision).  The doctor is suggesting possibly removing part or all of the eye.  I am asking any or all of you that have been through this, what results you have had with this.  Is all or part of the eye better?  What are the pros and cons you have experienced with this.  My son is very nervous about the whole idea of losing part or all of his eye.  Understandably so.  We know that he does not have vision in it, but is there a problem with dryness of the socket if all is removed?  Or do the implants extrude if they only remove part?  Do you have pegged or non pegged implants if you have
 them? Basically I am trying to get all the information from kids who have actually gone through this.  My son is 11 and very worried, and yet he wants the pain gone as well.  We are very conflicted as the research we have done is very scary.  We would like to have some feedback from actual kids or patients. Has anyone gone through this?  Please help;Rosina