[blindkid] any suggestions welcome

[Barbara Hammel]

No. They don't scratch at their eyes but they do smack themselves in the 
head and hit their heads on or with things--toys, tables.

Paul used to do that when we first got them but conformers seem to have 
cured it, though we do revisit it mildly.  Right now the conformers are too 
small.  The new ones are in wax waiting for us to terrorize the ocularist 
with our fits and fights.
Barbara

Snow is God's way of reminding us that beauty can be found even in the 
coldest hearts.

--------------------------------------------------
From: "Tina Egle" <tegle at oakton.edu>
Sent: Friday, October 02, 2009 6:35 PM
To: "NFBnet Blind Kid Mailing List,(for parents of blind children)" 
<blindkid at nfbnet.org>
Subject: Re: [blindkid] any suggestions welcome

> Hi Barbara,
>
> My heart goes out to you.  I went thru the same with my son who is
> autistic , blind, epileptic and won't ever chew food, he swallow
> everything in bolus.  He went naked in front of people who are running and
> everwhere else that is public, he removed all socks, shoes, sandals, I
> kept putting them back on and he kept removing them and finally he laughed
> and laughed as if it turned into a fun game. So one day, I just let him be
> naked and I explained to people passing by the situation that he is a very
> special need child and he needed to break his habit today, and I am going
> to let him do it until he wants his clothes back on and it worked.  In the
> summer time he got too hot and in the winter time he got too cold.  He
> learned his own lesson his way, and he was never removing any clothing
> ever again.
>
> Now my new problem is that he scratches his eyes so much it has sunkened
> in so the socket look  so bad.  Any suggestions?  Do your twins do that
> too.  Mine stopped for a while and one month ago it started again and it
> is constantly scratching so he never got two hands free to do any tasks
> since one of his hands too busy pressing or scratching both eyes.
>
>
>
> Thanks and good luck,
>
> TINA Egel
>
>
> oes anyone have a solution for how to keep clothes on children who won't
>> leave them there?  Both twins are forever removing shirts, socks and
>> shoes.  While this is fine at home--we don't make them wear them--it is
>> not okay out in public.  I have tried masking taping the shirt at the
>> bottom but school removes it because they say it frustrates one to no 
>> end.
>>  As you know, they are both autistic so it could be a sensory thing, but
>> we haven't seen a preference to anything but naked.  We do know they 
>> don't
>> like buttons--those have been chewed off.
>> Which leads me to my other question.  Does anyone have any solutions for
>> compulsive chewers and suckers.  We have chewy tubes but they would still
>> rather suck the shirts.  Thankfully, they don't bite holes in the clothes
>> but they drench the whole front of the shirt.  I've pinned them in back
>> but the pins come undone--scary--and school has used rubber bands but if
>> they can't suck the top, they'll suck the middle or bottom.
>> Just a shoestring necklace hasn't worked either.  I thought maybe that
>> would satisfy the desire for cloth, but no!
>> Any suggestions are welcome.
>> Barbara
>>
>> Snow is God's way of reminding us that beauty can be found even in the
>> coldest hearts.
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>
>
>
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