[blindkid] New member
LESLEY FISCHER
lesleyfischer at dishmail.net
Wed Oct 21 12:31:48 UTC 2009
Hello,
I am new to the group. I have a 13 year old daughter with Bardet-Biedl
Syndrome. We live in MN. Kristy is legally blind. I have a question
regarding tests that the eye doctor wants to do on her eyes due to her fast
vision loss compared to last year. She has RP from the syndrome & we were
told by a different doctor last year not to allow any test to be done on her
eyes that a bright light is shined into them because it speeds up the RP
leading to faster deterioration of what vision she has left. Can anyone help
with advise regarding this?
Thanks
Lesley
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