[blindkid] New member

[Carrie Gilmer]

I am the "another member" Lesley was in touch with this morning. Thank you.
We are very happy to welcome her and be of support here in Minnesota.

The second link for local contact that was provided was the same as the
first...but no need for it now anyway:). But Lesley you can sign up for the
magazine yourself through that link if you prefer.
 
 
Carrie Gilmer, President
Minnesota Organization of Parents of Blind Children

-----Original Message-----
From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
Behalf Of Carol Castellano
Sent: Wednesday, October 21, 2009 6:40 PM
To: NFBnet Blind Kid Mailing List,(for parents of blind children)
Subject: Re: [blindkid] New member

Well, I hope that "going public" doesn't feel strange for too 
long.  Most of us on this list are parents or other family members of 
blind and visually impaired kids.  Many blind adults and also teacher 
are on the list as well.  So you're definitely in friendly, 
understanding territory.

Here's the link to sign up for Future Reflections if you'd like:
http://www.nfb.org/nfb/Future_Reflections.asp?SnID=872669086

There is also an active parent chapter in your state.  Here's the 
link for that info:
http://www.nfb.org/nfb/Future_Reflections.asp?SnID=872669086

Carol

At 04:11 PM 10/21/2009, you wrote:
>Carol,
>  I didn't sign up for it yet. Another member just told me about it this
>morning. Besides the school & Kristy's doctors I never talked about or had
>any support with her at all. So this is new to me...kind of like "going
>public" I guess. It feels strange to me.
>Lesley
>
>On Wed, Oct 21, 2009 at 1:13 PM, Carol Castellano <
>carol_castellano at verizon.net> wrote:
>
> > Hi Lesley,
> >
> > I don't have any information on the eye test, but I wanted to welcome
you
> > to the list and to our organization.  I hope that we will be of
assistance
> > and support to you and your family.  Have you signed up to receive our
> > magazine Future Reflections?
> >
> > Best wishes,
> >
> > Carol
> >
> > Carol Castellano, President
> > National Organization of Parents of Blind Children
> > 973-377-0976
> > carol_castellano at verizon.net
> > www.nfb.org/nopbc
> >
> >
> >
> > At 08:31 AM 10/21/2009, you wrote:
> >
> >>  Hello,
> >> I am new to the group. I have a 13 year old daughter with Bardet-Biedl
> >> Syndrome. We live in MN. Kristy is legally blind. I have a question
> >> regarding tests that the eye doctor wants to do on her eyes due to her
> >> fast
> >> vision loss compared to last year. She has RP from the syndrome & we
were
> >> told by a different doctor last year not to allow any test to be done
on
> >> her
> >> eyes that a bright light is shined into them because it speeds up the
RP
> >> leading to faster deterioration of what vision she has left. Can anyone
> >> help
> >> with advise regarding this?
> >> Thanks
> >> Lesley
> >> _______________________________________________
> >> blindkid mailing list
> >> blindkid at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> blindkid:
> >>
> >> 
>
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/carol_castellano%4
0verizon.net
> >>
> >
> >
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> > 
>
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/lesleyfischer%40di
shmail.net
> >
>
>
>
>--
>http://oldeenglishbulldogges.webs.com
>_______________________________________________
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40verizon.net

Carol Castellano, President
National Organization of Parents of Blind Children
973-377-0976
carol_castellano at verizon.net
www.nfb.org/nopbc 



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