[blindkid] ERG questions

Tue Aug 17 19:48:16 UTC 2010

I had the process when I was quite young and don't remember much.  It
was a long time ago.  Actually, I was the first child to have it done,
and one of the first people.  It was quite primitive compared to what
they have now.
It is rewarding to see so many children helped by the process.
Paul

"making the cross accessible"
Paul Weingartner
National Representative for the Blind
Director of
Center for the Blind of the Assemblies of God
P 417.831.1964   F 417.862.5120
www.blind.ag.org
www.blindonline.ag.org

-----Original Message-----
From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
On Behalf Of Marie
Sent: Tuesday, August 17, 2010 1:02 PM
To: Blindkid email
Subject: Re: [blindkid] ERG questions

Hmmm....Jack had an ERG awake and without straps. Wonder what the
difference is? I'll send a link to my erg post from my computer when I
am able to get to it.
Or you can enter ERG in the search box on my blog if you don't want to
wait...

Marie (mother of Jack born May 2005)
See glimpses of life with my determined son who is developing in his own
way at his own time at http://allaccesspasstojack.blogspot.com 
Sent from my Verizon Wireless BlackBerry

-----Original Message-----
From: "Lenora J. Marten" <bluegolfshoes at aol.com>
Sender: blindkid-bounces at nfbnet.org
Date: Tue, 17 Aug 2010 13:47:43 
To: <blindkid at nfbnet.org>
Reply-To: "NFBnet Blind Kid Mailing List,
	\(for parents of blind children\)" <blindkid at nfbnet.org>
Subject: Re: [blindkid] ERG questions

There are two types of ERG's. One where the anesthesia is used and the
more extensive ERG is done when the
child is awake. I do know that the doctor is able to determine much more
when the child is awake. They place
what looks like extra large hard contacts over each eye. In the middle
of the contact is a probe which is attached
to a wire which is attached to a machine. The reason they try using
anesthesia first is that the child cannot move 
during the test. When Eric had the extensive ERG done, he was strapped
to the table so tight that he couldn't 
possibly move anything. He was only 5 so they left a spot open on his
stomach big enough for me to rub it during
the test so he didn't freak out. He had an ERG done under anesthesia
when he was just a few months old, and 
that's when the Pediatric Neuro-Ophthalmologist incorrectly determined
that there was nothing wrong with him. 
I would recommend trying the anesthesia first as it is much less
traumatic. But if the results are undetermined,
I would ask for the more extensive ERG. 

Lenora 

-----Original Message-----
From: Doreen <doreenproverbs3 at bellsouth.net>
To: NFBnet Blind Kid Mailing List,(for parents of blind children)
<blindkid at nfbnet.org>; BVI-Parents at yahoogroups.com
Sent: Mon, Aug 16, 2010 5:46 pm
Subject: [blindkid] ERG questions

Hi, 
our 5yr old daughter is having an ERG done in a few weeks. Her pressures
were high when the ophthalmologist did the annual exam under anesthesia
but mainly her acuities have declined drastically without any "reason."
The doc was hoping to find some kind of an answer for the decline during
the exam under anesthesia but did not. (The docs did not "see" glaucoma
when comparing her photos of a year ago to this exam; they also found
that the macula, retina, optic nerves and drainage canals are good.) The
ophthalmologist is now ordering an ERG. I have gotten the information
from Bascom Palmer (where she goes for her ophthalmologist's exams) on
what will be done and have googled it also. (Pressures were: March 09 -
near 20/70, distance 20/100; Aug 09 - distance 20/160OD, 20/250 OS; July
2010 - 20/800 near, 20/400 distance. They also declined in Oct and Dec
2009 but she had been in school for the full day, then saw the
ophthalmologist which "could" have explained the decrease then. !
 The 20/800 and 20/400 are "not explainable" as it is summer time and
she was in the doc's office at about the same time as normal, so not
much fatigue due to having to do work in school). 

I am wondering if anyone's child has had this done and what your
experience has been. We are looking for any kind of information. She
will have to go under anesthesia again for the ERG (electroretinography)
and the doc may or may not be able to get intraocular pressures as well
as doing the ERG. 

Thank you .... your help is greatly appreciated! 
Doreen 

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