[blindkid] Thoughts?

[dhammelia at aol.com]

Both our twins 8 years old wave their hands in front of their faces.  Somewhat less than they did a few years ago.  Jesse who is the non verbal twin rocks on his head especially when he does not feel good.  We just found out Jesse has the H pylori bacteria in his stomach (the bacteria that causes ulcers) so hopefully antibiotics will make him feel better.





-----Original Message-----
From: Marie <empwrn at bellsouth.net>
Sent: Tue, Jul 27, 2010 9:30 am
Subject: [blindkid] Thoughts?


Hey guys, just thought I'd ask if maybe some of you or your kiddos do this stuff 
r whatever thoughts you might have on the reason behind it.
First, a little background...Jack is 5 years old (end of May). He was born with 
pert syndrome. He has been diagnosed with optic nerve atrophy. No one knows for 
ure what caused the optic nerve atrophy but they think it may have been caused 
y chronic slightly elevated increased intracranial pressure. He is believed to 
lso have cortical visual impairment. He has a VP shunt and still also a fairly 
arge soft spot on the right side of his head (and it is soft). He has an 
xpressive speech delay. He does appear to understand everything but he is not 
ble to express all his thoughts verbally so we can't really ask him what's 
oing on.
So here's the stuff:
1. Waves his hand in front of his face as if he is trying to look at his 
ingers.
2. He has a preference for using only one hand/arm at a time. He rarely will use 
wo hands together to accomplish a task. I don't notice a preference of one 
and/arm over the other. It's just that he would rather use only one. We have to 
rompt him to use two hands.
3. Bobs his head up and down quickly as if he gets some stimulation out of it. 
4. Rubs his head on the carpet.
5. Constantly doing "yoga"--the downward dog position.
Marie (mother of Jack born May 2005)
ee glimpses of life with my determined son who is developing in his own way at 
is own time at http://allaccesspasstojack.blogspot.com 
ent from my Verizon Wireless BlackBerry
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