[blindkid] prosthetic eye

[Samantha Parker]

Thanks for all the insights.  Beverly has a rare case of the back of the eye being normal and healthy, and the front slowly deteriorating.  She actually has much larger eyes than normal that bulge out.  Her face is close to adult size and her eye sockets measured normal adult size.  Her seeing eye is not "pretty" but it's what she's got.  I do not think she would be able to wear anything over the top of it.  Her removed eye has been replaced by a solid round piece that the muscles have been reattached to. She also has a clear over-sized contact lens in place over that while she heals.  What we are wondering is if we need to get the actual painted lens or can we go without...

--- On Thu, 7/29/10, rholloway at gopbc.org <rholloway at gopbc.org> wrote:

From: rholloway at gopbc.org <rholloway at gopbc.org>
Subject: Re: [blindkid] prosthetic eye
To: "NFBnet Blind Kid Mailing List, (for parents of blind children)" <blindkid at nfbnet.org>
Date: Thursday, July 29, 2010, 3:10 PM

Many children like yours (and our daughter) are indeed able to go days, weeks, or sometimes even months with them in, however some children (and adults) have to take them out at night. 

It depends on how the person tolerates them. Discuss with your occularist (however that is spelled). Those sensitive to long wearing may have issues if they are not removed at night...
Sent on the Sprint® Now Network from my BlackBerry®

-----Original Message-----
From: SUSAN POLANSKY <sepolansky at verizon.net>
Sender: blindkid-bounces at nfbnet.org
Date: Thu, 29 Jul 2010 12:45:52 
To: NFBnet Blind Kid Mailing List,\(for parents of blind children\)<blindkid at nfbnet.org>
Reply-To: "NFBnet Blind Kid Mailing List,
    \(for parents of blind children\)" <blindkid at nfbnet.org>
Subject: Re: [blindkid] prosthetic eye

My son was born with bilateral anopthalmia, he has had prosthetics his entire 
life. We know several youth who have had one eye removed and wear a 
prosthetis in one side and a shell in the other so both sides appear the 
same. It will probably be a battle at first but it should not be a daily 
battle. The shell and or prosthetic do not need to be removed daily. My 
son removes his once every 2 to 3 weeks to wash and re-insert, some do it more 
often some less. 
 Susan T. Polansky 




________________________________
From: Samantha Parker <sparkaspirit at yahoo.com>
To: blindkid at nfbnet.org
Sent: Thu, July 29, 2010 11:13:15 AM
Subject: [blindkid] prosthetic eye

Hello,
My 5 1/2 year old just had her right eye removed.  The doctors have assumed we 
would want to get a prosthetic eye but we have been discussing the pros and cons 
and are wondering what others have done.  Her other eye is not "normal" looking 
either.  And we have other daily battles including oral eating...we are not sure 
as to whether a prosthetic is a necessary battle...

Thanks!
Blessings,
Sam




      
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