[blindkid] blindkid Digest, Vol 79, Issue 7

[Amber Hall]

Leslie,
My daughter had neuroblastoma when she was 10 mo. old, she has a little vision 
in her right eye. You could give the family my info if they'd like to talk. My 
email address is ahall238 at yahoo.com and my cell is 317-918-2173.
Thanks,
Amber Hall




________________________________
From: Leslie Ligon <atfirstsight at ligondesign.com>
To: blindkid at nfbnet.org
Sent: Mon, November 8, 2010 1:37:47 PM
Subject: Re: [blindkid] blindkid Digest, Vol 79, Issue 7

Rene, thank you very much for posting the original - the one I got shortly after 
we found out Ethan was going to be blind.

It's a powerful analogy and after having just talked last Wednesday to yet 
another *new* mom, I used my own to try and help her sort through terribly hard 
emotions of dealing with a child who's cancer treatment will more than likely 
cause complete blindness (neuroblastoma) without the necessarily resulting in 
completely eradicating the cancer.

I asked her to try hard not to think of blindness as a sighted person, i.e., 
loss of something, but instead, as a new perspective gained. That there are many 
fun things even a very sick blind child can enjoy doing while propped up in bed 
hours each day. And that making the decision to try and save their five-year-old 
son's life would never be a bad direction to go, regardless of any of the 
results.

On this woman's behalf, if any of you have gone through this particular or 
similar scenario and don't mind passing your information to her, please let me 
know. I'll get it to her.

Best,
Leslie
At First Sight...
The Original Braille Fashion Jewelry
http://www.BrailleJewelry.blogspot.com

Beautifully designed braille/print books for young readers:
http://www.BrailleInk.org


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