[blindkid] questions in regards to acquiring an aid in

slemmonrn at spotlight-music.com slemmonrn at spotlight-music.com
Wed Apr 6 18:53:54 UTC 2011


Tina,

You can absolutely explore the option of a 1:1 aide for your child. It must
be written for in the IEP, explicity to be 1:1, 5x per week while school is
in session. Otherwise, a classroom aide can be used, but will not be solely
for your child. Stress safety. Provide a note/prescription from the
pediatrician, even though they can not demand medical records.  In our
state, the PCA is reimbursable through Medicaid for her direct services.

Stacy

Original Message:
-----------------
From:  blindkid-request at nfbnet.org
Date: Wed, 06 Apr 2011 12:00:19 -0500
To: blindkid at nfbnet.org
Subject: blindkid Digest, Vol 84, Issue 6


Send blindkid mailing list submissions to
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When replying, please edit your Subject line so it is more specific
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Today's Topics:

   1. Getting Ready for High School Tips (DrV)
   2. Seeking Braille Instructional Piano Music Book(s) of	Lessons (DrV)
   3. Re: Raised line drawing (Brandy W)
   4. Re: Getting Ready for High School Tips, plus some brag (Debby B)
   5. Re: Raised Line Drawing (Wendy Molle)
   6. (no subject) (Samantha Parker)
   7. Re: Raised line drawing (Jaquiss, Robert)
   8. Re: questions in regards to acquiring an aid in classroom
      (Tina Egle)
   9. Re: Raised Line Drawing (Brandy W)
  10. Re: Raised Line Drawing (T. J.)
  11. Re: questions in regards to acquiring an aid in classroom
      (Penny Duffy)
  12. Re: questions in regards to acquiring an aid in classroom
      (Kim Cunningham)
  13. Re: Getting Ready for High School Tips (Kim Cunningham)
  14. Re: questions in regards to acquiring an aid in classroom
      (Penny Duffy)
  15. Re: questions in regards to acquiring an aid in classroom
      (Elizabeth D)
  16. Re: questions in regards to acquiring an aid in classroom
      (Elizabeth D)
  17. Re: questions in regards to acquiring an aid in classroom
      (Penny Duffy)
  18. (no subject) (Eliza Ellett)


----------------------------------------------------------------------

Message: 1
Date: Tue, 5 Apr 2011 22:49:24 -0700
From: "DrV" <icdx at earthlink.net>
To: "NFBnet Blind Kid Mailing List,	\(for parents of blind children\)"
	<blindkid at nfbnet.org>
Subject: [blindkid] Getting Ready for High School Tips
Message-ID: <0B38A906E6434DDBABE9CFD72E1A1D16 at CSMC.EDU>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
	reply-type=response

Hi Jill & All,

Jill, I enjoyed your article "Suggestions for Working with Hannah". As the 
parent of an 8th grader, I am wondering (hoping) for words of wisdom for 
middle schoolers (& their parents) as far as transitioning to high school & 
how to approach the first year & beyond.

Any & all thoughts appreciated.

Sincerely,

Eric V


> ----- Original Message ----- 
> From: "Brad and Jill Weatherd" <snowedin at union-tel.com>
> To: <blindkid at nfbnet.org>
> Sent: Wednesday, September 24, 2008 11:33 AM
> Subject: [blindkid] Response to Erin re: pre-school tips
>
>
>> Hi Erin,
>> My daughter, Hannah, is now 15 years old...however, I remember what it 
>> was
>> like when she was entering pre-school and kindergarten.  With the help of
>> Marty Greiser, I wrote some suggestions to hand to her teachers when she 
>> was
>> small, so that they had some better ideas of how to include Hannah in
all 
>> of
>> the activities.  A link to this article on the NFB website is:
>> http://www.nfb.org/images/nfb/Publications/fr/fr18/Issue2/f180208.htm
>> I hope there is something there you can use!  Sometimes the teachers take
>> awhile to "get it", but just keep trying and modeling the way you want 
>> your
>> child to be treated.  It's great that you have found the NFB -- they
will 
>> be
>> an invaluable resource to you!  Jill
>>
>> -----Original Message-----
>> From: blindkid-bounces+snowedin=union-tel.com at nfbnet.org
>> [mailto:blindkid-bounces+snowedin=union-tel.com at nfbnet.org] On Behalf Of
>> blindkid-request at nfbnet.org
>> Sent: Wednesday, September 24, 2008 11:00 AM
>> To: blindkid at nfbnet.org
>> Subject: blindkid Digest, Vol 53, Issue 22
>>
>> Send blindkid mailing list submissions to
>> blindkid at nfbnet.org
>>
>> To subscribe or unsubscribe via the World Wide Web, visit
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> or, via email, send a message with subject or body 'help' to
>> blindkid-request at nfbnet.org
>>
>> You can reach the person managing the list at
>> blindkid-owner at nfbnet.org
>>
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of blindkid digest..."
>>
>>
>> Today's Topics:
>>
>>   1. Re: special seat on bus (Carol Castellano)
>>   2. Kindergarten Transition (Stacy Lemmon)
>>   3. Re: Kindergarten Transition (Debby B)
>>   4. Special Seat on the bus (Carlton Anne Cook Walker)
>>   5. Re: Kindergarten Transition (Doreen Franklin)
>>   6. Re: Kindergarten Transition (Carrie Gilmer)
>>   7. Re: Kindergarten Transition (Andy & Sally Thomas)
>>   8. Re: placement intepretation (Mike Freeman)
>>   9. Re: placement intepretation (DrV)
>>  10. Hurricane Ike (Kim Cunningham)
>>  11. Re: Hurricane Ike (Debby B)
>>  12. Re: Question about school placement (Erin Teply)
>>
>>
>> ----------------------------------------------------------------------
>>
>> Message: 1
>> Date: Tue, 23 Sep 2008 13:43:26 -0400
>> From: Carol Castellano <blindchildren at verizon.net>
>> Subject: Re: [blindkid] special seat on bus
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <200809231743.m8NHhcn02327 at www.nfbnet.org>
>> Content-Type: text/plain; charset="us-ascii"; format=flowed
>>
>> Hi Mark,
>>
>> The family does have a wheelchair, but it is apparently not the kind
>> that can be secured in the bus.  My understanding is that
>> someone--parent or bus driver--was lifting and carrying the girl onto
>> the bus and then someone--bus driver or school person--was lifting
>> her and carrying her off the bus and into the stroller at school.
>>
>> The school and/or bus people then told the family that this could no
>> longer be done and that the family had to purchase the kind of
>> wheelchair that could be secured in the bus.
>>
>> Carol
>>
>> At 01:08 AM 9/23/2008, you wrote:
>>>Hello Carol,
>>>
>>>are you saying that the bus driver and staff are carrying this student 
>>>into
>>>the school bus? If the student does not own a wheelchair it may be that 
>>>the
>>>district will provide such a chair and a bus with lift during school 
>>>hours.
>>>Worth looking in to?
>>>
>>>Mark Feliz
>>>
>>>
>>>Mark Feliz
>>>
>>>HAPPY DOTS BRAILLE SERVICES
>>>
>>>PRESIDENT, NATIONAL FEDERATION OF THE BLIND OF ARIZONA
>>>EAST VALLEY CHAPTER
>>>
>>>1038 WEST HILLVIEW STREET
>>>MESA, ARIZONA  85201
>>>
>>>VOICE: 480-890-8943
>>>FAX: 480-835-3036
>>>----- Original Message -----
>>>From: "Carol Castellano" <blindchildren at verizon.net>
>>>To: <blindkid at nfbnet.org>
>>>Sent: Monday, September 22, 2008 1:39 PM
>>>Subject: [blindkid] special seat on bus
>>>
>>>
>>> > Hi All,
>>> >
>>> > I just got a call from a parent of a 5-year-old who is a wheelchair
>>> > user.  The school told the parent that the family has to purchase a
>>> > special wheelchair or stroller that can be hooked into place on the
>>> > school bus.
>>> >
>>> > The school will no longer transport her on the bus because they say
>>> > neither they nor the bus driver are allowed to carry her into or out
>>> > of the bus, hence the need for the special chair.
>>> >
>>> > Does anyone know if the family is really responsible for this
>>> > purchase?  Right now they have to drive the girl to school
>>> > themselves.  When the dad goes to work, the mom has no car.  She also
>>> > has 3 other kids.  Help is needed!
>>> >
>>> > Thanks,
>>> > Carol
>>> >
>>> >
>>> > _______________________________________________
>>> > blindkid mailing list
>>> > blindkid at nfbnet.org
>>> > http://www.nfbnet.org/mailman/listinfo/blindkid
>>> > To unsubscribe, change your list options or get your account info for
>>> > blindkid:
>>> > http://www.nfbnet.org/mailman/options/blindkid/felizfamily5%40msn.com
>>> >
>>>
>>>_______________________________________________
>>>blindkid mailing list
>>>blindkid at nfbnet.org
>>>http://www.nfbnet.org/mailman/listinfo/blindkid
>>>To unsubscribe, change your list options or get your account info
>>>for blindkid:
>>>http://www.nfbnet.org/mailman/options/blindkid/blindchildren%40verizon.ne
t
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 2
>> Date: Tue, 23 Sep 2008 13:28:58 -0400
>> From: "Stacy Lemmon" <slemmonrn at spotlight-music.com>
>> Subject: [blindkid] Kindergarten Transition
>> To: <blindkid at nfbnet.org>
>> Message-ID: <001801c91da1$dd41ffc0$0401a8c0 at stacypc>
>> Content-Type: text/plain; charset="iso-8859-1"
>>
>> We are already preparing for Adison's transition to kindergarten for the
>> 2009-2010 school year. It seems no one can provide me answer to a 
>> question
>> about services...if we keep her in a non public school (she currently
>> attends a Catholic preschool and we would like to keep her there) who 
>> will
>> provide her vision services?
>>
>> Thanks!
>> Stacy
>>
>> ------------------------------
>>
>> Message: 3
>> Date: Tue, 23 Sep 2008 11:51:15 -0700 (PDT)
>> From: Debby B <bwbddl at yahoo.com>
>> Subject: Re: [blindkid] Kindergarten Transition
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <81235.9156.qm at web90505.mail.mud.yahoo.com>
>> Content-Type: text/plain; charset=us-ascii
>>
>> Stacy, I think this varies by state and by district. In Miami, FL, we
got 
>> NO
>> services in the private sector. I understand in the district we are now 
>> in
>> that you can, if you can get the providers to agree to do so.
>>
>> Debby
>> bwbddl at yahoo.com
>> www.nfbflorida.org/parents
>>
>>
>>
>> ----- Original Message ----
>> From: Stacy Lemmon <slemmonrn at spotlight-music.com>
>> To: blindkid at nfbnet.org
>> Sent: Tuesday, September 23, 2008 1:28:58 PM
>> Subject: [blindkid] Kindergarten Transition
>>
>> We are already preparing for Adison's transition to kindergarten for the
>> 2009-2010 school year. It seems no one can provide me answer to a 
>> question
>> about services...if we keep her in a non public school (she currently
>> attends a Catholic preschool and we would like to keep her there) who 
>> will
>> provide her vision services?
>>
>> Thanks!
>> Stacy
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/bwbddl%40yahoo.com
>>
>>
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 4
>> Date: Tue, 23 Sep 2008 15:41:23 -0400
>> From: "Carlton Anne Cook Walker" <PaPoBC at gmail.com>
>> Subject: [blindkid] Special Seat on the bus
>> To: blindkid at nfbnet.org
>> Message-ID:
>> <aa85e5850809231241i36a488f6k4be66951e0cc049 at mail.gmail.com>
>> Content-Type: text/plain; charset=ISO-8859-1
>>
>> Carol,
>>
>>
>> First, I apologize for the rambling nature of this note.  I have been
>> (still am) sick and am terribly behind, so my thought process is even
>> more "stream of consciousness" than usual.
>>
>>
>>
>> It seems to me that the root of the problem is a "one-size-fits-all"
>> mentality of the school -- when the IDEA requires INDIVIDUALIZATION..
>>
>>
>>
>> As an initial matter, please check whether the transportation services
>> are included in the child's IEP.  If they are, read no further.  The
>> school's failure to provide the transportation services is a violaton
>> of the IEP itself and can be addressed that way.  Additionally, the
>> parents' provision of transportation in the interim can be properly
>> billed and recompensed as "compensatory education," although the
>> amount involved may not be worth a due process claim.
>>
>>
>>
>> The parents need to get the school to put their ridiculous request IN
>> WRITING.  Then, take it to the NJ Department of Education (assuming
>> that they are at all worthwhile).
>>
>>
>> Here's the communication that SHOULD be happening with the school":
>>
>> School: OH, our school buses aren't able to accommodate THAT kind f
>> wheelchair.
>>
>> Family: Hmm, well, this IS the wheelchair that was prescribed for our
>> child.  You know, our vehicle IS able to transport her despite this
>> wheelchair.  We believe that MOST passenger vehicles can do so.
>> Please (1) advertise for bid for an individual -- properly bonded,
>> background checks, etc. -- to run the route to transport our child to
>> and from school or (2) provide whatever you need to transport her in
>> the school bus until such time as private transport is arranged.
>>
>>
>>
>> Also, if I were the parent, I would be logging my mileage and
>> presenting the school with a bill (using AT LEAST the IRS reimbursable
>> rate of $0.585/mile).
>>
>>
>> Additionally, I will reiterate that the parents NEED to demand the
>> transportation IN WRITING and have it refused INN WRITING.  I cannot
>> stress this point too much.   Remember, if it's not in writing, it
>> didn't happen.
>>
>>
>> Regarding the billing for transportation, it should begin no more than
>> three school days AFTER the parents' letter is delivered (preferably
>> by hand, with a copy thereof signed as received by a school official)
>> -- the parents' letter warning that they will provide free
>> transportation to the school for only three more days.  After that,
>> it's the school's responsibility and the school will be billed if they
>> do not provide said transportation.
>>
>>
>>
>> This all seems so very odd.  Did anything occur that precipitated this
>> issue?  Are there new personnel involved?
>>
>>
>>
>>
>> -- 
>> Carlton Anne Cook Walker
>> President, Pennsylvania Parents of Blind Children
>> 213 North First Street
>> McConnellsburg, PA 17233
>> Voice: 717-485-4529
>> Cell: 717-658-9894
>>
>>
>> ------------------------------
>>
>> Message: 5
>> Date: Tue, 23 Sep 2008 12:42:24 -0700 (PDT)
>> From: Doreen Franklin <theconelady at yahoo.com>
>> Subject: Re: [blindkid] Kindergarten Transition
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <856713.71181.qm at web54303.mail.re2.yahoo.com>
>> Content-Type: text/plain; charset=iso-8859-1
>>
>> Stacy
>> We are also in FL with Debby B -- we are a county north of her. As was
>> explained to me by the ESE department is that if in a private school,
>> services may be provided at a public school. School bd will transport 
>> BACK
>> from public to private but not from private to public. We are in the 
>> pre-K 3
>> program but I am trying to get answers for many things and cannot seem to
>> get too far.
>> ?
>> Good luck!
>> Doreen
>>
>>
>> --- On Tue, 9/23/08, Stacy Lemmon <slemmonrn at spotlight-music.com> wrote:
>>
>> From: Stacy Lemmon <slemmonrn at spotlight-music.com>
>> Subject: [blindkid] Kindergarten Transition
>> To: blindkid at nfbnet.org
>> Date: Tuesday, September 23, 2008, 1:28 PM
>>
>> We are already preparing for Adison's transition to kindergarten for the
>> 2009-2010 school year. It seems no one can provide me answer to a 
>> question
>> about
>> services...if we keep her in a non public school (she currently attends a
>> Catholic preschool and we would like to keep her there) who will provide 
>> her
>> vision services?
>>
>> Thanks!
>> Stacy
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/theconelady%40yahoo.com
>>
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 6
>> Date: Tue, 23 Sep 2008 15:46:13 -0500
>> From: "Carrie Gilmer" <carrie.gilmer at gmail.com>
>> Subject: Re: [blindkid] Kindergarten Transition
>> To: "'NFBnet Blind Kid Mailing List, \(for parents of blind
>> children\)'" <blindkid at nfbnet.org>
>> Message-ID: <48d9559d.2009360a.4cd2.045d at mx.google.com>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> The portions of IDEA that deal with children in private schools are
>> extensive and detailed and on the one hand complex in that they deal with
>> every detail and simple in it is all spelled out. I think you could have 
>> a
>> weekend course just on this position of the IDEA. I have only read it
>> briefly, not studied it. The Local Education Authority does have
>> responsibilities including FINDING children in its geographic area of
>> authority and ensuring the private entity is providing some service but 
>> if
>> the child is placed by choice of the parent the responsibilities do not 
>> go
>> far (as far as I understand it now). To really get all services you 
>> should
>> get at a public school you would have to have a determination by the LEA
>> that they could not provide and it would be in the IEP for the student to
>> attend (thus no longer parentally placed) in order to gain FAPE.
>>
>>
>>
>> Notice this portion for parentally placed children: 300.137 Equitable
>> Services determined.
>>
>> (a) No individual right to special education and related services. No
>> parentally placed private school child with a disability has an 
>> individual
>> right to receive some or all of the special education and related 
>> services
>> that the child would receive if enrolled in a public school.
>>
>>
>>
>> For everyone, but especially if you are going to consider private or home
>> schooling I recommend you go to www.wrightslaw.com
>> <http://www.wrightslaw.com/>  and buy their book Special Education Law. 
>> Or
>> go to the US department of Education website and call or write if you can
>> not find the IDEA online from them. It is a law and should be available 
>> to
>> the public at no cost, I have meant but have not taken or had time to go 
>> to
>> the Department online and try and find it. The book is nice because you 
>> have
>> it all there, but you should also be able to get a copy of IDEA for free.
>> (Carlton will be able to correct me if I am wrong-smile)
>>
>>
>>
>> If anyone is interested in finding out for us or knows speak up.
>>
>>
>>
>> Then I would say, as Mindy mentioned the other day-it is up to us to know
>> the details of the law because they either really don't know themselves 
>> or
>> they don't want us to know. It is empowering to know the law too. If 
>> reading
>> the law seems confusing to you, it is a lot easier to work at an issue
>> directly and with you having a copy of the law and another having a copy 
>> and
>> helping each other through the points of confusion. So I do recommend
>> everyone have a handy copy of the law of their own. The nice thing about 
>> the
>> book is that you can look in the index for problems-like private school 
>> and
>> it tells you which pages of the book cover those portions of the law. The
>> Free copy you would get from the government likely won't do that.
>>
>>
>>
>>
>>
>>
>>
>> Carrie Gilmer, President
>>
>> National Organization of Parents of Blind Children
>>
>> A Division of the National Federation of the Blind
>>
>> NFB National Center: 410-659-9314
>>
>> Home Phone: 763-784-8590
>>
>> carrie.gilmer at gmail.com
>>
>> www.nfb.org/nopbc
>>
>> -----Original Message-----
>> From: blindkid-bounces+carrie.gilmer=gmail.com at nfbnet.org
>> [mailto:blindkid-bounces+carrie.gilmer=gmail.com at nfbnet.org] On Behalf Of
>> Debby B
>> Sent: Tuesday, September 23, 2008 1:51 PM
>> To: NFBnet Blind Kid Mailing List,(for parents of blind children)
>> Subject: Re: [blindkid] Kindergarten Transition
>>
>>
>>
>> Stacy, I think this varies by state and by district. In Miami, FL, we
got 
>> NO
>> services in the private sector. I understand in the district we are now 
>> in
>> that you can, if you can get the providers to agree to do so.
>>
>>
>>
>> Debby
>>
>> bwbddl at yahoo.com
>>
>> www.nfbflorida.org/parents
>>
>>
>>
>>
>>
>>
>>
>> ----- Original Message ----
>>
>> From: Stacy Lemmon <slemmonrn at spotlight-music.com>
>>
>> To: blindkid at nfbnet.org
>>
>> Sent: Tuesday, September 23, 2008 1:28:58 PM
>>
>> Subject: [blindkid] Kindergarten Transition
>>
>>
>>
>> We are already preparing for Adison's transition to kindergarten for the
>> 2009-2010 school year. It seems no one can provide me answer to a 
>> question
>> about services...if we keep her in a non public school (she currently
>> attends a Catholic preschool and we would like to keep her there) who 
>> will
>> provide her vision services?
>>
>>
>>
>> Thanks!
>>
>> Stacy
>>
>> _______________________________________________
>>
>> blindkid mailing list
>>
>> blindkid at nfbnet.org
>>
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>>
>> http://www.nfbnet.org/mailman/options/blindkid/bwbddl%40yahoo.com
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> _______________________________________________
>>
>> blindkid mailing list
>>
>> blindkid at nfbnet.org
>>
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>>
>> http://www.nfbnet.org/mailman/options/blindkid/carrie.gilmer%40gmail.com
>>
>>
>>
>> ------------------------------
>>
>> Message: 7
>> Date: Tue, 23 Sep 2008 16:11:55 -0500
>> From: "Andy & Sally Thomas" <andysally at comcast.net>
>> Subject: Re: [blindkid] Kindergarten Transition
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <04C492072FD94A1A83DB04E3AF62061A at andysallyhome>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=original
>>
>> A good place to start on the Department of Education website is
>> http://idea.ed.gov/explore/home .  The full text of the law is on the
>> website but navigating through the menus provided by the Dept of Ed. is a
>> little friendlier.
>>
>> Here's the link to the law on the Wrightslaw website:
>> http://www.wrightslaw.com/idea/law.htm .  The entire code and regulations
>> are there and the format is a little cleaner than the Dept of Ed. 
>> website.
>>
>> In the Wrightslaw seminar, Pete Wright told us that the law was purposely
>> written in a vague manner in order to be able to get the legislation 
>> passed.
>>
>> There is room for interpretation.  That is where your negotiation skills
>> and/or the attorneys come in.  What seems cut and dried to you may not 
>> seem
>> that way to your school district.  Imagine my surprise when my school
>> district informed me that while they agree Braille is the primary 
>> learning
>> medium for my child, having Braille that is legible is not a requirement!
>> There is nothing specific in IDEA that states that educational materials
>> must be legible.
>>
>> Sally Thomas
>> ----- Original Message ----- 
>> From: "Carrie Gilmer" <carrie.gilmer at gmail.com>
>> To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'"
>> <blindkid at nfbnet.org>
>> Sent: Tuesday, September 23, 2008 3:46 PM
>> Subject: Re: [blindkid] Kindergarten Transition
>>
>>
>>> The portions of IDEA that deal with children in private schools are
>>> extensive and detailed and on the one hand complex in that they deal 
>>> with
>>> every detail and simple in it is all spelled out. I think you could
have 
>>> a
>>> weekend course just on this position of the IDEA. I have only read it
>>> briefly, not studied it. The Local Education Authority does have
>>> responsibilities including FINDING children in its geographic area of
>>> authority and ensuring the private entity is providing some service but 
>>> if
>>> the child is placed by choice of the parent the responsibilities do not 
>>> go
>>> far (as far as I understand it now). To really get all services you 
>>> should
>>> get at a public school you would have to have a determination by the LEA
>>> that they could not provide and it would be in the IEP for the student 
>>> to
>>> attend (thus no longer parentally placed) in order to gain FAPE.
>>>
>>>
>>>
>>> Notice this portion for parentally placed children: 300.137 Equitable
>>> Services determined.
>>>
>>> (a) No individual right to special education and related services. No
>>> parentally placed private school child with a disability has an 
>>> individual
>>> right to receive some or all of the special education and related 
>>> services
>>> that the child would receive if enrolled in a public school.
>>>
>>>
>>>
>>> For everyone, but especially if you are going to consider private or 
>>> home
>>> schooling I recommend you go to www.wrightslaw.com
>>> <http://www.wrightslaw.com/>  and buy their book Special Education Law. 
>>> Or
>>> go to the US department of Education website and call or write if you 
>>> can
>>> not find the IDEA online from them. It is a law and should be available 
>>> to
>>> the public at no cost, I have meant but have not taken or had time to go
>>> to
>>> the Department online and try and find it. The book is nice because you
>>> have
>>> it all there, but you should also be able to get a copy of IDEA for 
>>> free.
>>> (Carlton will be able to correct me if I am wrong-smile)
>>>
>>>
>>>
>>> If anyone is interested in finding out for us or knows speak up.
>>>
>>>
>>>
>>> Then I would say, as Mindy mentioned the other day-it is up to us to 
>>> know
>>> the details of the law because they either really don't know themselves 
>>> or
>>> they don't want us to know. It is empowering to know the law too. If
>>> reading
>>> the law seems confusing to you, it is a lot easier to work at an issue
>>> directly and with you having a copy of the law and another having a copy
>>> and
>>> helping each other through the points of confusion. So I do recommend
>>> everyone have a handy copy of the law of their own. The nice thing about
>>> the
>>> book is that you can look in the index for problems-like private school
>>> and
>>> it tells you which pages of the book cover those portions of the law. 
>>> The
>>> Free copy you would get from the government likely won't do that.
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>> Carrie Gilmer, President
>>>
>>> National Organization of Parents of Blind Children
>>>
>>> A Division of the National Federation of the Blind
>>>
>>> NFB National Center: 410-659-9314
>>>
>>> Home Phone: 763-784-8590
>>>
>>> carrie.gilmer at gmail.com
>>>
>>> www.nfb.org/nopbc
>>>
>>> -----Original Message-----
>>> From: blindkid-bounces+carrie.gilmer=gmail.com at nfbnet.org
>>> [mailto:blindkid-bounces+carrie.gilmer=gmail.com at nfbnet.org] On Behalf 
>>> Of
>>> Debby B
>>> Sent: Tuesday, September 23, 2008 1:51 PM
>>> To: NFBnet Blind Kid Mailing List,(for parents of blind children)
>>> Subject: Re: [blindkid] Kindergarten Transition
>>>
>>>
>>>
>>> Stacy, I think this varies by state and by district. In Miami, FL, we 
>>> got
>>> NO
>>> services in the private sector. I understand in the district we are now 
>>> in
>>> that you can, if you can get the providers to agree to do so.
>>>
>>>
>>>
>>> Debby
>>>
>>> bwbddl at yahoo.com
>>>
>>> www.nfbflorida.org/parents
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>> ----- Original Message ----
>>>
>>> From: Stacy Lemmon <slemmonrn at spotlight-music.com>
>>>
>>> To: blindkid at nfbnet.org
>>>
>>> Sent: Tuesday, September 23, 2008 1:28:58 PM
>>>
>>> Subject: [blindkid] Kindergarten Transition
>>>
>>>
>>>
>>> We are already preparing for Adison's transition to kindergarten for the
>>> 2009-2010 school year. It seems no one can provide me answer to a 
>>> question
>>> about services...if we keep her in a non public school (she currently
>>> attends a Catholic preschool and we would like to keep her there) who 
>>> will
>>> provide her vision services?
>>>
>>>
>>>
>>> Thanks!
>>>
>>> Stacy
>>>
>>> _______________________________________________
>>>
>>> blindkid mailing list
>>>
>>> blindkid at nfbnet.org
>>>
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>>
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>>
>>> http://www.nfbnet.org/mailman/options/blindkid/bwbddl%40yahoo.com
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>> _______________________________________________
>>>
>>> blindkid mailing list
>>>
>>> blindkid at nfbnet.org
>>>
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>>
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>>
>>> http://www.nfbnet.org/mailman/options/blindkid/carrie.gilmer%40gmail.com
>>>
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/andysally%40comcast.net
>>
>>
>>
----------------------------------------------------------------------------
>> ----
>>
>>
>>
>> No virus found in this incoming message.
>> Checked by AVG - http://www.avg.com
>> Version: 8.0.169 / Virus Database: 270.7.1/1686 - Release Date: 9/23/2008
>> 7:38 AM
>>
>>
>>
>> ------------------------------
>>
>> Message: 8
>> Date: Tue, 23 Sep 2008 17:56:15 -0700
>> From: "Mike Freeman" <k7uij at panix.com>
>> Subject: Re: [blindkid] placement intepretation
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <87B7D1B76ACD43E1BED81A21C83233F7 at owner96190708e>
>> Content-Type: text/plain; charset="iso-8859-1"
>>
>> Basically, I think you are correct. Except that the IEP governs all,
>> i.e., if it is decided by the team (including the parents) that a child
>> should attend a school other than his/her local school, as , for
>> example, a school for the blind and this is written into the IEP, that
>> governs things. Also, sometimes the LRE may not be the local school. All
>> depends upon that IEP.
>>
>> Mike
>>
>> ----- Original Message ----- 
>> From: "Carrie Gilmer" <carrie.gilmer at gmail.com>
>> To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'"
>> <blindkid at nfbnet.org>
>> Sent: Monday, September 22, 2008 7:59 AM
>> Subject: [blindkid] placement intepretation
>>
>>
>> Hello All,
>>
>> Maybe Carlton or another with legal background can give feedback-but my
>> interpretation from the law that seems reasonable is that there is a
>> presumption in the law that the child WILL BE placed wherever he/she
>> would
>> be placed if there was no blindness
>>
>> SO: if the child is placed elsewhere it must come from an eval with data
>> that shows an INDIVIDUAL NEED OF THE CHILD to be placed somewhere else
>> and
>> that is then incorporated by the team in to the IEP.
>>
>> Hope this helps.
>>
>>
>>
>>
>>
>> Carrie Gilmer, President
>>
>> National Organization of Parents of Blind Children
>>
>> A Division of the National Federation of the Blind
>>
>> NFB National Center: 410-659-9314
>>
>> Home Phone: 763-784-8590
>>
>> carrie.gilmer at gmail.com
>>
>> www.nfb.org/nopbc
>>
>>
>>
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/k7uij%40panix.com
>>
>>
>>
>> ------------------------------
>>
>> Message: 9
>> Date: Tue, 23 Sep 2008 22:08:02 -0700
>> From: "DrV" <icdx at earthlink.net>
>> Subject: Re: [blindkid] placement intepretation
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <006201c91e03$85e74070$6605a8c0 at CSMC.EDU>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=original
>>
>> It is my understanding that in California, it all depends on the LEA's
>> interpretation & goodwill.
>> They can elect to serve a child in the private school setting, but are 
>> not
>> obligated to do so.
>> LEA administration can have quite a turnover. Our LEA director has been 
>> the
>> same since the beginning, but there have been 6 or 8 (I lost count) "VI
>> principals" during that same time frame), so what is agreed upon now may
>> change with the change in guard so to speak.
>> This is thus a huge decision.
>> The church may be willing to contract TVI & O&M services.
>> The Braille part is critical too -> making sure all materials are 
>> Brailled &
>>
>> modified appropriately & in a timely fashion is a boat-load of work.
>> We thought about this too, but opted to go the public shcool route.
>> Good luck,
>> Eric V
>>
>>
>> ----- Original Message ----- 
>> From: "Mike Freeman" <k7uij at panix.com>
>> To: "NFBnet Blind Kid Mailing List,(for parents of blind children)"
>> <blindkid at nfbnet.org>
>> Sent: Tuesday, September 23, 2008 5:56 PM
>> Subject: Re: [blindkid] placement intepretation
>>
>>
>>> Basically, I think you are correct. Except that the IEP governs all,
>>> i.e., if it is decided by the team (including the parents) that a child
>>> should attend a school other than his/her local school, as , for
>>> example, a school for the blind and this is written into the IEP, that
>>> governs things. Also, sometimes the LRE may not be the local school. All
>>> depends upon that IEP.
>>>
>>> Mike
>>>
>>> ----- Original Message ----- 
>>> From: "Carrie Gilmer" <carrie.gilmer at gmail.com>
>>> To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'"
>>> <blindkid at nfbnet.org>
>>> Sent: Monday, September 22, 2008 7:59 AM
>>> Subject: [blindkid] placement intepretation
>>>
>>>
>>> Hello All,
>>>
>>> Maybe Carlton or another with legal background can give feedback-but my
>>> interpretation from the law that seems reasonable is that there is a
>>> presumption in the law that the child WILL BE placed wherever he/she
>>> would
>>> be placed if there was no blindness
>>>
>>> SO: if the child is placed elsewhere it must come from an eval with data
>>> that shows an INDIVIDUAL NEED OF THE CHILD to be placed somewhere else
>>> and
>>> that is then incorporated by the team in to the IEP.
>>>
>>> Hope this helps.
>>>
>>>
>>>
>>>
>>>
>>> Carrie Gilmer, President
>>>
>>> National Organization of Parents of Blind Children
>>>
>>> A Division of the National Federation of the Blind
>>>
>>> NFB National Center: 410-659-9314
>>>
>>> Home Phone: 763-784-8590
>>>
>>> carrie.gilmer at gmail.com
>>>
>>> www.nfb.org/nopbc
>>>
>>>
>>>
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/k7uij%40panix.com
>>>
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/icdx%40earthlink.net
>>
>>
>>
>> ------------------------------
>>
>> Message: 10
>> Date: Wed, 24 Sep 2008 04:55:04 -0700 (PDT)
>> From: Kim Cunningham <kim at gulfimagesphoto.com>
>> Subject: [blindkid] Hurricane Ike
>> To: Blindkid <blindkid at nfbnet.org>, Professionals in Blindness
>> Education <Pibe-division at nfbnet.org>
>> Message-ID: <255415.39294.qm at web602.biz.mail.mud.yahoo.com>
>> Content-Type: text/plain; charset=iso-8859-1
>>
>> I would like to ask everyone who knows any of our NFB family or friends 
>> who
>> live in the Houston area to please try to contact them or visit them. We
>> still have 541,000 people without power (also cable and internet). Our 
>> power
>> was just restored last night after 11 days! Hurricane Ike has caused a 
>> great
>> deal of destruction. The last I heard our city bus services were 
>> operating
>> only in limited areas. The city of Galveston has more than 40% of homes 
>> that
>> are uninhabitable. My daughter hasn't been to school since Sept. 11 and 
>> will
>> not be returning until the power is restored to her school (who knows 
>> when).
>>
>>  Thank you,
>>  Kim Cunningham
>>
>>
>>
>> ------------------------------
>>
>> Message: 11
>> Date: Wed, 24 Sep 2008 05:07:13 -0700 (PDT)
>> From: Debby B <bwbddl at yahoo.com>
>> Subject: Re: [blindkid] Hurricane Ike
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <932889.77443.qm at web90505.mail.mud.yahoo.com>
>> Content-Type: text/plain; charset=us-ascii
>>
>> Kim! So glad to hear you are back with power. I so remember those days 
>> (and
>> months) we went through after Hurricane Andrew. Ick! I, too, have been
>> wondering how our Houston/Galveston and surrounding areas are faring. Has
>> anyone heard from Laura Webber? And? And? So many folks affected.
>>
>> Debby
>> bwbddl at yahoo.com
>> www.nfbflorida.org/parents
>>
>>
>>
>> ----- Original Message ----
>> From: Kim Cunningham <kim at gulfimagesphoto.com>
>> To: Blindkid <blindkid at nfbnet.org>; Professionals in Blindness Education
>> <Pibe-division at nfbnet.org>
>> Sent: Wednesday, September 24, 2008 7:55:04 AM
>> Subject: [blindkid] Hurricane Ike
>>
>> I would like to ask everyone who knows any of our NFB family or friends 
>> who
>> live in the Houston area to please try to contact them or visit them. We
>> still have 541,000 people without power (also cable and internet). Our 
>> power
>> was just restored last night after 11 days! Hurricane Ike has caused a 
>> great
>> deal of destruction. The last I heard our city bus services were 
>> operating
>> only in limited areas. The city of Galveston has more than 40% of homes 
>> that
>> are uninhabitable. My daughter hasn't been to school since Sept. 11 and 
>> will
>> not be returning until the power is restored to her school (who knows 
>> when).
>>
>>  Thank you,
>>  Kim Cunningham
>>
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/bwbddl%40yahoo.com
>>
>>
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 12
>> Date: Wed, 24 Sep 2008 08:18:04 -0400
>> From: "Erin Teply" <eteply at cfl.rr.com>
>> Subject: Re: [blindkid] Question about school placement
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <021301c91e3f$98d37e60$6401a8c0 at DC24Q631>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=original
>>
>> I also have a 2 1/2 year old and live in Melbourne, FL (Brevard county). 
>> I
>> just met with someone from the school district that handles the 
>> transition
>> from early intervention to the school district.  We will have our first
>> meeting in a few months (my son turns 3 in Feb).  I am so new to this
>> process, but I believe this is where we start discussions of the IEP. 
>> After
>>
>> reading all these emails, I am overwhelmed and nervous that we won't get 
>> it
>> right!  I also am very concerned about what school he will go to.  My 5 
>> year
>>
>> old goes to a private school and I would love Max to go there, but yet he
>> needs to go to the school best for him, which very likely would not be 
>> this
>> school (they have very few special needs student, if any, Max would
>> definitely be the only blind student).  If anyone has good starting
>> information about IEPs, I would welcome it.
>>
>> On a slightly different note, my son has started in a preschool this 
>> year.
>> It is at a school where they maintain a 50/50 ratio of special needs
>> children to 'role model' (as they call it...) children.  While the 
>> teachers
>> are trying really hard, in my opinion simply don't 'get' how to work
with 
>> a
>> blind child yet, as Max is their first.  Myself, Max's vision therapist 
>> and
>> an early interventionist are all working with them so that Max can have a
>> better experience.  What I see a lot of is holding his hand and walking 
>> him
>> around the room (he isn't good enough with his cane yet, but can 
>> definitely
>> get around a classroom totally ok on his own!).  I also see Max just
>> standing there a lot (I'm sure listening intently and taking it all in, 
>> or
>> does he just not know what to do?).  I guess I'm just not sure what to 
>> do.
>> The EI (who is fantastic) and I may do an inservice for his teachers on
>> blind students, or I'm wondering if I simply need to spend more time in 
>> the
>> classroom until he gets acclimated better?  Any advice on how your
>> pre-schoolers did (those that did not attend a school for the blind) or 
>> what
>>
>> you did to help his/her teachers understand would be great.
>>
>> Thank you!
>> Erin
>>
>> ----- Original Message ----- 
>> From: "Kathy B" <burgawicki at yahoo.com>
>> To: "NFBnet Blind Kid Mailing List,(for parents of blind children)"
>> <blindkid at nfbnet.org>
>> Sent: Saturday, September 20, 2008 6:52 PM
>> Subject: Re: [blindkid] Question about school placement
>>
>>
>>> Doreen-
>>>
>>> Where abouts are you in FL.  I have a 2 1/2 yr  old in  Olando.
>>>
>>> Kathy
>>>
>>>
>>>
>>> ----- Original Message ----
>>> From: Doreen Franklin <theconelady at yahoo.com>
>>> To: blindkid at nfbnet.org
>>> Sent: Saturday, September 20, 2008 4:48:15 PM
>>> Subject: Re: [blindkid] Question about school placement
>>>
>>>
>>> Stephanie
>>> I am very interested in this question. I have asked this question of my
>>> ESE administrator and cannot get much of an answer. My daughter just
>>> turned 4 but because she misses the cut-off by 2 days, she is in a 3 yr
>>> old program (she was adopted from Guatemala and has been home for 2 yrs
>>> now).
>>>
>>> I have tried to pin them down to see if she can go to the "local"
>>> neighborhood school or to one of the 2 charter schools that will be open
>>> in 2 yrs or if she "has" to go to the school where vision has a TVI 
>>> there.
>>
>>> I have been told she will be evaluated at that time and the TVI's will
>>> "confer" with professionals (I believe that is how it was stated in an
>>> email) about her needs and where she will be placed; unsure who the 
>>> other
>>> "professionals" would be!
>>>
>>> To date, they are not even listening to me on her IEP goals for writing
>>> (her goals sound like they are for a 4 yr old going to kindergarten), 
>>> her
>>> O&M that I am trying for them to do as well as ESE teaching her Braille.
>>>
>>> The other source -- which is a GREAT one -- is www.wrightslaw.com --  
>>> Peter
>>
>>> Wright and his wife are EXCELLENT sources for the law. A friend and I 
>>> went
>>
>>> to a seminar with him and he knows his law inside and out. I believe 
>>> there
>>
>>> is a place to email or call to check on what the law exactly is for
>>> placement.  I know I will be tapping into it in 2 yrs.
>>>
>>> The other suggestion is to call a local "advocate" -- there are advocate
>>> groups that should be able to answer your questions. One advocate is
>>> "CILO" -- Council for Independent Living Options; I had one of their
>>> advocates at my other daughter's IEP meeting and she looks at things 
>>> from
>>> the law side and is more objective too.
>>>
>>> I agree with DrV on his outlook on not only the word "policy" but there
>>> may be wide discrepancies between counties and their outlook on "the 
>>> law"
>>> and how it is interpreted. We have been finding that out in a few of the
>>> disability seminars we have gone to. (We live in FL). A local advocate
>>> would be the best resource for this.
>>>
>>> Hope that helps and will give you some options.
>>> Doreen
>>>
>>>
>>>
>>> --- On Fri, 9/19/08, Kieszak, Stephanie (CDC/CCEHIP/NCEH) <sek7 at CDC.GOV>
>>> wrote:
>>>
>>> From: Kieszak, Stephanie (CDC/CCEHIP/NCEH) <sek7 at CDC.GOV>
>>> Subject: [blindkid] Question about school placement
>>> To: blindkid at nfbnet.org
>>> Date: Friday, September 19, 2008, 2:59 PM
>>>
>>> My daughter is currently mainstreamed in kindergarten in a public
>>> school. Her school only goes up to kindergarten so we have been looking
>>> at schools for her for next year.  I met with her TVI today about
>>> something else and she mentioned that our county has a policy of
>>> requiring kids who need more than 3 hours a week of TVI time to attend
>>> the elementary school that has a vision resource room. My husband and I
>>> had visited this school in the past and were not thrilled with it.  We
>>> are leaning towards the elementary school that her current school feeds
>>> into.  Ideally, we would like our daughter to be able to continue to
>>> work with her current TVI who has been with her since she started school
>>> at 3 years of age. My daughter is academically gifted and we want her to
>>> work with a TVI who we know will push her and challenge her.  She is a
>>> Braille reader and it's a given that she would need more than 3 hours a
>>> week of TVI time; she gets at least 5 hours a week now.  Can the county
>>> require that she attend a certain school based on the hours of TVI time
>>> required? My gut feeling is they cannot but I would appreciate specific
>>> links to language that I can present to the school/county.
>>> Thank you.
>>> Stephanie
>>>
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/theconelady%40yahoo.com
>>>
>>>
>>>
>>>
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/burgawicki%40yahoo.com
>>>
>>>
>>>
>>>
>>>
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/eteply%40cfl.rr.com
>>
>>
>>
>> ------------------------------
>>
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>
>>
>> End of blindkid Digest, Vol 53, Issue 22
>> ****************************************
>>
>>
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for 
>> blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/icdx%40earthlink.net
>




------------------------------

Message: 2
Date: Tue, 5 Apr 2011 23:10:34 -0700
From: "DrV" <icdx at earthlink.net>
To: "NFBnet Blind Kid Mailing List,	\(for parents of blind children\)"
	<blindkid at nfbnet.org>, 	"NFB of California List"
	<nfbc-info at nfbnet.org>
Subject: [blindkid] Seeking Braille Instructional Piano Music Book(s)
	of	Lessons
Message-ID: <152A7B7736424F46873299C62A6A13A8 at CSMC.EDU>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
	reply-type=response


Hi Everyone,

Our sons have been taking piano lessons for a number of years.

They learned their lessons initially by listening to the pieces being
played 
or the notes and symbols being told to them measure by measure.

Presently they have a great piano teacher, a jazz musician, who has them 
record the pieces on their Braille-note.

He is interested in teaching them the pieces in Braille.

Their teacher has read "Who's Afraid of Braille Music?" and "How to Read 
Braille Music An Introduction" by Bettye Krolick, but what he is looking
for 
is an instructional book of lessons, which will gradually teach them music 
Braille with actual pieces; just like in print, as in the Faber piano 
series.

We would appreciate any thoughts/insights.

Sincerely,

Eric & Rasa




------------------------------

Message: 3
Date: Wed, 6 Apr 2011 03:35:46 -0500
From: "Brandy W" <branlw at sbcglobal.net>
To: "'NFBnet Blind Kid Mailing List,	\(for parents of blind
	children\)'" <blindkid at nfbnet.org>
Subject: Re: [blindkid] Raised line drawing
Message-ID: <077f01cbf435$a4443a90$ecccafb0$@net>
Content-Type: text/plain;	charset="us-ascii"

How meaningless!!! I would say your best bet is a screen board and some
extra large crayons. This will produce raised lines when he draws.

The second drawing kit you mention does produce raised lines, and I've never
used the first.

You can also use other things for him to experience art activities without
doing something quite meaningless like drawing with scented markers. Ok they
are cool, but they aren't anything to make drawing more special.

Wicky sticks, play dough drawn in with a pencil, gluing things to paper, and
much more are far more likely to be enjoyed. Also the raised line coloring
books from NFb may be fun because then he will be coloring in some lines and
have a bit more guidance and feedback by feeling the wet marker in the
lines, or the crayon from the screen board filling in the outlines of the
pictures.

Good luck,

Bran



"Books are the quietest and most constant of friends; they are the most
accessible and wisest of counselors, and the most patient of teachers."
~Charles W. Eliot, 

Brandy Wojcik  Discovery Toys Educational Consultant and Team leader
(512) 689-5045
www.playtoachieve.com
Follow me on Face Book at
http://www.facebook.com/PlayToAchieve.DiscoveryToys 

Do you want to: *earn extra income?
*get toys for free?
*get sale updates on our award winning products that have never been
recalled?
Just ask!



-----Original Message-----
From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
Behalf Of Alison Stephens
Sent: Wednesday, April 06, 2011 12:58 AM
To: blindkid at nfbnet.org
Subject: [blindkid] Raised line drawing

My two year old, Nate, is totally blind and his teachers have been having
him draw with scented markers.  He seems to do okay with this, but obviously
the output is not interesting to him except for the slight residual smell.

I was thinking it would be nice for him to try some raised line drawings.
My young sighted kids enjoy doodling on a Fisher Price Doodle Pro, which
uses a magnetic pen to produce drawings that can be erased by swiping a bar
across the image.  I wish there was a similar product that created raised
lines that could be used in a similar casual way, and that was reusable, but
I don't think it exists.

Anyhow, I was researching possibilities.  At his age, I think making
indented drawings that have to be flipped over to reveal the raised lines is
too complicated for him.  I would like a product that produces a raised line
immediately.

I came across two possibilities, but I can't tell for sure if they produce a
raised line or an indented line.  One is the Draftsman Tactile Drawing Board
from APH:
http://shop.aph.org/webapp/wcs/stores/servlet/Product_DRAFTSMAN%20Tactile%20
Drawing%20Board_1-08857-00P_10001_11051

And the other is the Raised Line Drawing Kit:
http://www.maxiaids.com/products/1147/Raised-Line-Drawing-Kit.html

Does anybody know if these indeed produce raised lines, rather than
indented?  
Why is one much more expensive than the other?  Maybe different paper or
quality?  
Would they be appropriate for a two year old to use under adult supervision?

Any thoughts would be appreciated.

Thanks!
Alison
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
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.net




------------------------------

Message: 4
Date: Wed, 6 Apr 2011 03:43:55 -0700 (PDT)
From: Debby B <bwbddl at yahoo.com>
To: "NFBnet Blind Kid Mailing List,	\(for parents of blind children\)"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] Getting Ready for High School Tips, plus some
	brag
Message-ID: <233101.45896.qm at web112517.mail.gq1.yahoo.com>
Content-Type: text/plain; charset=us-ascii

Eric, Winona should talk to you guys since she's a new high schooler.
Although 
CA is so far ahead of FL, Vejas could probably still give her tips. I'll
have 
her contact him with her ideas.
 
The high school TVI has been wonderful to fully integrate Winona into the 
regular day, giving and encouraging independence on many, many levels. One
of 
the things that has helped is she allows Winona to email assignments to
teachers 
herself every evening, rather than waiting for the TVI to do so the next 
morning. No longer fearing reprisals from the TVI, Winona now talks to the 
teachers on her own when she has a problem, whether it be an assignment or
an 
accessibility issue. This has worked wonders on her self-esteem.

Moving to high school, and a different Braille teacher, has worked wonders
for 
Winona. She is flourishing this year! Top of her Algebra class! All As on
her 
report card, with one B which was an 89. I told her that extra credit might
come 
in handy, if only she'd done it. This TVI spent hours of her own time this 
summer learning how to run the music program from Dancing Dots so that
she'd be 
ready for Winona this year. She made a music staff and notes so that Winona
can 
tell tactually what they look like. If only we'd had her the last 4 years!!!

 Debby
bwbddl at yahoo.com


~"Kindness is a language which the deaf can hear and the blind can
read."~Mark 
Twain




________________________________
From: DrV <icdx at earthlink.net>
To: "NFBnet Blind Kid Mailing List, (for parents of blind children)" 
<blindkid at nfbnet.org>
Sent: Wed, April 6, 2011 1:49:24 AM
Subject: [blindkid] Getting Ready for High School Tips

Hi Jill & All,

Jill, I enjoyed your article "Suggestions for Working with Hannah". As the 
parent of an 8th grader, I am wondering (hoping) for words of wisdom for
middle 
schoolers (& their parents) as far as transitioning to high school & how to 
approach the first year & beyond.

Any & all thoughts appreciated.

Sincerely,

Eric V

------------------------------

Message: 5
Date: Wed, 06 Apr 2011 07:48:17 -0400
From: "Wendy Molle" <wmolle at schoharie.k12.ny.us>
To: <blindkid at nfbnet.org>
Subject: Re: [blindkid] Raised Line Drawing
Message-ID: <4D9C1AC10200003600007F3B at mail.schoharie.k12.ny.us>
Content-Type: text/plain; charset=US-ASCII

We use the Quick Draw paper with our blind kids here at school and they
seem to like it.  You can use those same scented markers or any markers
that are water-based.
Wendy Molle
Schoharie Elementary


------------------------------

Message: 6
Date: Wed, 6 Apr 2011 04:49:50 -0700 (PDT)
From: Samantha Parker <sparkaspirit at yahoo.com>
To: harrisp at FirstWeber.com, danisherriff at hotmail.com,
	rusticridgealpacas at yahoo.com, cpark872 at yahoo.com, kathytutton at att.net,
	anna.fehring at sentry.com, JPVANHAVERM at CSBSJU.EDU, blindkid at nfbnet.org,
	tritzfamily at wi-net.com
Subject: [blindkid] (no subject)
Message-ID: <977849.35796.qm at web37403.mail.mud.yahoo.com>
Content-Type: text/plain; charset=us-ascii

http://injebrassband.com.ne.kr/index002-21.html

------------------------------

Message: 7
Date: Wed, 6 Apr 2011 05:20:42 -0700
From: "Jaquiss, Robert" <RJaquiss at nfb.org>
To: "NFBnet Blind Kid Mailing List,	(for parents of blind children)"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] Raised line drawing
Message-ID:
	<15131457E4DA6B4EBD8776E13F2B3E10E15727CB at VA3DIAXVS751.RED001.local>
Content-Type: text/plain; charset="us-ascii"

Hello:

     I am not sure about the kit from Maxi-aids. The Draftsman does produce
raised lines. Be aware that the media for these kits is also a bit pricey.
Ascreen board and crayons should be fun for a two year old. Hope this helps.

Regards,

Robert


Robert Jaquiss
National Federation of the Blind 
200 East Wells Street at Jernigan Place
Baltimore, Maryland 21230 
Phone: 410-659-9314, ext. 2422

-----Original Message-----
From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
Behalf Of Alison Stephens
Sent: Wednesday, April 06, 2011 1:58 AM
To: blindkid at nfbnet.org
Subject: [blindkid] Raised line drawing

My two year old, Nate, is totally blind and his teachers have been having
him draw with scented markers.  He seems to do okay with this, but
obviously the output is not interesting to him except for the slight
residual smell.

I was thinking it would be nice for him to try some raised line drawings. 
My young sighted kids enjoy doodling on a Fisher Price Doodle Pro, which
uses a magnetic pen to produce drawings that can be erased by swiping a bar
across the image.  I wish there was a similar product that created raised
lines that could be used in a similar casual way, and that was reusable,
but I don't think it exists.

Anyhow, I was researching possibilities.  At his age, I think making
indented drawings that have to be flipped over to reveal the raised lines
is too complicated for him.  I would like a product that produces a raised
line immediately.

I came across two possibilities, but I can't tell for sure if they produce
a raised line or an indented line.  One is the Draftsman Tactile Drawing
Board from APH:
http://shop.aph.org/webapp/wcs/stores/servlet/Product_DRAFTSMAN%20Tactile%20
Drawing%20Board_1-08857-00P_10001_11051

And the other is the Raised Line Drawing Kit:
http://www.maxiaids.com/products/1147/Raised-Line-Drawing-Kit.html

Does anybody know if these indeed produce raised lines, rather than
indented?  
Why is one much more expensive than the other?  Maybe different paper or
quality?  
Would they be appropriate for a two year old to use under adult supervision?

Any thoughts would be appreciated.

Thanks!
Alison
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/rjaquiss%40nfb.org


------------------------------

Message: 8
Date: Wed, 6 Apr 2011 07:35:19 -0500 (CDT)
From: "Tina Egle" <tegle at oakton.edu>
To: "NFBnet Blind Kid Mailing List,	(for parents of blind children)"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
	classroom
Message-ID: <49861.68.51.127.125.1302093319.squirrel at borg.oakton.edu>
Content-Type: text/plain;charset=iso-8859-1

Hi all,


My son has Epilepsy which was diagnosed since he was 4 years old. 
Eventhough his seizures are under control via medications, we never know
when the sudden onset of seizures could occur when the efficacy of
medication could happen anytime. Plus his seizures are not noticeable,
sometimes he could just stand there in the middle of the hallway and be
dazed of like he was confused and did not seem to know where he was or
what he was doing.  He usually do not have grand mal type but rather petit
mal type of seizure with slight tremors or mild muscle twitches which
could go unnotice if all teachers and aides in the classroom are tied up
and busy with other blind or special need students, then he could
eventually fall down.  That is my main concern.  John Travolta's son died
while going to the bathroom alone in the middle of the night and his aid
was no where near him, and he died hitting his head to the tub while he
had seizure.


My question is that by Law, Can a parent ask for an individual aid who is
just for my son who does not have any other responsibility of other
students but just for him, 1:1 aid?  I have been requesting 1:1 aide since
he has been in school around 3 years of age and now he is 15 and we have
moved 3 times becuase all other school distracts had failed to provide an
appropriate education and finally we were able to prove to our recent
district that he needs to be in a vision school and he has been in that
program for 2 years and we have seen major improvement. But the district
is still unclear about 1:1 aid in the room.  I am undert  the impression
that a classroom aide is shared by many other students and 1:1 aid is what
my son needs just based upon his medical history.

Please let me know if by Law, Can I request 1:1 aid and have that written
in IEP?

Tina





------------------------------

Message: 9
Date: Wed, 6 Apr 2011 08:07:36 -0500
From: "Brandy W" <branlw at sbcglobal.net>
To: "'NFBnet Blind Kid Mailing List,	\(for parents of blind
	children\)'" <blindkid at nfbnet.org>
Subject: Re: [blindkid] Raised Line Drawing
Message-ID: <07f301cbf45b$999f3420$ccdd9c60$@net>
Content-Type: text/plain;	charset="us-ascii"

O yes I saw a sample of that once. Where can one get the paper? Bran 


"Books are the quietest and most constant of friends; they are the most
accessible and wisest of counselors, and the most patient of teachers."
~Charles W. Eliot, 

Brandy Wojcik  Discovery Toys Educational Consultant and Team leader
(512) 689-5045
www.playtoachieve.com
Follow me on Face Book at
http://www.facebook.com/PlayToAchieve.DiscoveryToys 

Do you want to: *earn extra income?
*get toys for free?
*get sale updates on our award winning products that have never been
recalled?
Just ask!



-----Original Message-----
From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
Behalf Of Wendy Molle
Sent: Wednesday, April 06, 2011 6:48 AM
To: blindkid at nfbnet.org
Subject: Re: [blindkid] Raised Line Drawing

We use the Quick Draw paper with our blind kids here at school and they seem
to like it.  You can use those same scented markers or any markers that are
water-based.
Wendy Molle
Schoharie Elementary
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/branlw%40sbcglobal
.net




------------------------------

Message: 10
Date: Wed, 6 Apr 2011 06:25:46 -0700 (PDT)
From: "T. J." <tjmaries at yahoo.com>
To: "NFBnet Blind Kid Mailing List,	\(for parents of blind children\)"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] Raised Line Drawing
Message-ID: <622159.2031.qm at web130108.mail.mud.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1

I think American Printing House for the blind sells this paper.

T. J.




________________________________
From: Brandy W <branlw at sbcglobal.net>
To: "NFBnet Blind Kid Mailing List, (for parents of blind children)" 
<blindkid at nfbnet.org>
Sent: Wed, April 6, 2011 6:07:36 AM
Subject: Re: [blindkid] Raised Line Drawing

O yes I saw a sample of that once. Where can one get the paper? Bran 


"Books are the quietest and most constant of friends; they are the most
accessible and wisest of counselors, and the most patient of teachers."
~Charles W. Eliot, 

Brandy Wojcik? Discovery Toys Educational Consultant and Team leader
(512) 689-5045
www.playtoachieve.com
Follow me on Face Book at
http://www.facebook.com/PlayToAchieve.DiscoveryToys 

Do you want to: *earn extra income?
*get toys for free?
*get sale updates on our award winning products that have never been
recalled?
Just ask!



-----Original Message-----
From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
Behalf Of Wendy Molle
Sent: Wednesday, April 06, 2011 6:48 AM
To: blindkid at nfbnet.org
Subject: Re: [blindkid] Raised Line Drawing

We use the Quick Draw paper with our blind kids here at school and they seem
to like it.? You can use those same scented markers or any markers that are
water-based.
Wendy Molle
Schoharie Elementary
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/branlw%40sbcglobal
.net


_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/tjmaries%40yahoo.c
om


------------------------------

Message: 11
Date: Wed, 6 Apr 2011 09:48:31 -0400
From: Penny Duffy <pennyduffy at gmail.com>
To: "NFBnet Blind Kid Mailing List,	(for parents of blind children)"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
	classroom
Message-ID: <BANLkTinbPekr3MO1sf9D8GinMCNEq9SdZQ at mail.gmail.com>
Content-Type: text/plain; charset=ISO-8859-1

You always have the right to request an aide.  If that means they will
prdovide one.......

Write up why you feel his educational experiance will. Be better with one.
On Apr 6, 2011 8:36 AM, "Tina Egle" <tegle at oakton.edu> wrote:
> Hi all,
>
>
> My son has Epilepsy which was diagnosed since he was 4 years old.
> Eventhough his seizures are under control via medications, we never know
> when the sudden onset of seizures could occur when the efficacy of
> medication could happen anytime. Plus his seizures are not noticeable,
> sometimes he could just stand there in the middle of the hallway and be
> dazed of like he was confused and did not seem to know where he was or
> what he was doing. He usually do not have grand mal type but rather petit
> mal type of seizure with slight tremors or mild muscle twitches which
> could go unnotice if all teachers and aides in the classroom are tied up
> and busy with other blind or special need students, then he could
> eventually fall down. That is my main concern. John Travolta's son died
> while going to the bathroom alone in the middle of the night and his aid
> was no where near him, and he died hitting his head to the tub while he
> had seizure.
>
>
> My question is that by Law, Can a parent ask for an individual aid who is
> just for my son who does not have any other responsibility of other
> students but just for him, 1:1 aid? I have been requesting 1:1 aide since
> he has been in school around 3 years of age and now he is 15 and we have
> moved 3 times becuase all other school distracts had failed to provide an
> appropriate education and finally we were able to prove to our recent
> district that he needs to be in a vision school and he has been in that
> program for 2 years and we have seen major improvement. But the district
> is still unclear about 1:1 aid in the room. I am undert the impression
> that a classroom aide is shared by many other students and 1:1 aid is what
> my son needs just based upon his medical history.
>
> Please let me know if by Law, Can I request 1:1 aid and have that written
> in IEP?
>
> Tina
>
>
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
blindkid:
>
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail
.com


------------------------------

Message: 12
Date: Wed, 6 Apr 2011 06:52:31 -0700 (PDT)
From: Kim Cunningham <kim at gulfimagesphoto.com>
To: " \(for parents of blind children\)NFBnet Blind Kid Mailing List"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
	classroom
Message-ID: <576224.37247.qm at web608.biz.mail.mud.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1

Tina,
My daughter was also diagnosed with seizure disorder (grand mal type)?when
she was 4 yrs. old. I must admit, I was more afraid of the seizure
diagnosis than the blindness diagnosis. I had a lot of fear about what
would happen if I weren't there when she had a seizure. Should I let her go
swimming? Should I let her ride her bike? Should I let her spend the night
with her friends? In the end, I discovered that if I stopped her from doing
all the things she enjoyed, then what kind of life would she have? She
never had an aide. The breakthough seizures she did have were at home. I
was so scared, but I let her go. 
John Travolta's sons death was tragic. These types of things happen all the
time. Part of life is the tradgey of death, which we can't stop, nor can we
dwell on it because then we forget to live. Do we even know if his nurse
was there, would she have been able to save his life? Did hitting his head
cause immediate death?
Even if your son has a 1 on 1 aid, she may not be right at his side when he
has a seizure and he could still fall. The good thing is there will always
be people around him to help while at school. It is my understanding that
people are able to detect "a feeling" when they are about to have a
seizure. Maybe you can start talking with him about listening to his body
and see if he can determine when he might be having a seizure. I was in the
grocery store a while back when I saw a woman sitting on the floor. She
told me she thought she was about to have a seizure. Of course, I sought
help for her at that time, but she didn't allow herself to fall. Your son
may or may not be able to tell. 
While we want to protect our children, we must give our children the room
to grow. I don't know how many nights I thought about "what could have
happened" to my typical boys. What if they wrecked on their motorcyle? What
if they got a head injury skateboarding? The "what-ifs" are never ending.
While I'm sure you could probably "fight" for an aide, maybe you should
think about whether you really want someone hovering over him all hours of
the day.?I hope my remarks don't make you upset. I only want to give you
another perspective.
Kim Cunningham

--- On Wed, 4/6/11, Tina Egle <tegle at oakton.edu> wrote:


From: Tina Egle <tegle at oakton.edu>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
classroom
To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
<blindkid at nfbnet.org>
Date: Wednesday, April 6, 2011, 7:35 AM


Hi all,


My son has Epilepsy which was diagnosed since he was 4 years old. 
Eventhough his seizures are under control via medications, we never know
when the sudden onset of seizures could occur when the efficacy of
medication could happen anytime. Plus his seizures are not noticeable,
sometimes he could just stand there in the middle of the hallway and be
dazed of like he was confused and did not seem to know where he was or
what he was doing.? He usually do not have grand mal type but rather petit
mal type of seizure with slight tremors or mild muscle twitches which
could go unnotice if all teachers and aides in the classroom are tied up
and busy with other blind or special need students, then he could
eventually fall down.? That is my main concern.? John Travolta's son died
while going to the bathroom alone in the middle of the night and his aid
was no where near him, and he died hitting his head to the tub while he
had seizure.


My question is that by Law, Can a parent ask for an individual aid who is
just for my son who does not have any other responsibility of other
students but just for him, 1:1 aid?? I have been requesting 1:1 aide since
he has been in school around 3 years of age and now he is 15 and we have
moved 3 times becuase all other school distracts had failed to provide an
appropriate education and finally we were able to prove to our recent
district that he needs to be in a vision school and he has been in that
program for 2 years and we have seen major improvement. But the district
is still unclear about 1:1 aid in the room.? I am undert? the impression
that a classroom aide is shared by many other students and 1:1 aid is what
my son needs just based upon his medical history.

Please let me know if by Law, Can I request 1:1 aid and have that written
in IEP?

Tina



_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/kim%40gulfimagesph
oto.com


------------------------------

Message: 13
Date: Wed, 6 Apr 2011 07:14:56 -0700 (PDT)
From: Kim Cunningham <kim at gulfimagesphoto.com>
To: " \(for parents of blind children\)NFBnet Blind Kid Mailing List"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] Getting Ready for High School Tips
Message-ID: <191842.67563.qm at web602.biz.mail.mud.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1

Dr. V,
Now is the time to start working harder on self-advocacy skills. My
daughter is in her first year of college and must handle EVERYTHING on her
own. She was a great advocate (or so we thought) while in high school.
Training him to work with his teachers on getting his work and turning in
his work, scheduling times to meet with his teachers, ordering his own
books or reading materials, doing his own technology repairs, ordering new
canes and tips, etc. all on his own will bring about self-confidence. Being
a "stay-at-home" mom, it's always easy to lend a hand. Backing-off was an
issue I had to work on!
While school is important, learning to navigate on his own, is a major
point to address. My daughter had never been to the doctor by herself until
the second week of college, and she got sick. She had never filled out the
huge stack of paperwork, nor was she aware of our family history of
disease. She didn't know how to ask for assistance in filling out the
paperwork either. She was scared, but I was hundreds of miles away, and she
had to do it on her own. Of course, she handled it, but I wish we would
have addressed it beforehand.
My daughter also said that she was never given the opportunity during O&M
lessons to travel alone. Her O&M instructor was ALWAYS there. I would
recommend having your son learn to travel by himself with gradual increases
in distance.?By his senior year, he should?be able?to call a cab, travel on
a bus, or find drivers on his own. While I'm sure you or your wife (as was
I) are able to be his "driver", it doesn't allow him to be independent and
realize he can do what he needs on his own. We don't have city bus services
and my daughter was never taken into the city to learn. This only happened
once she went to LCB. Actually most all of her independent travel skills
were learned at LCB. 
Just a couple points you may not have thought about.
Kim Cunningham

--- On Wed, 4/6/11, DrV <icdx at earthlink.net> wrote:


From: DrV <icdx at earthlink.net>
Subject: [blindkid] Getting Ready for High School Tips
To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
<blindkid at nfbnet.org>
Date: Wednesday, April 6, 2011, 12:49 AM


Hi Jill & All,

Jill, I enjoyed your article "Suggestions for Working with Hannah". As the
parent of an 8th grader, I am wondering (hoping) for words of wisdom for
middle schoolers (& their parents) as far as transitioning to high school &
how to approach the first year & beyond.

Any & all thoughts appreciated.

Sincerely,

Eric V


> ----- Original Message ----- From: "Brad and Jill Weatherd"
<snowedin at union-tel.com>
> To: <blindkid at nfbnet.org>
> Sent: Wednesday, September 24, 2008 11:33 AM
> Subject: [blindkid] Response to Erin re: pre-school tips
> 
> 
>> Hi Erin,
>> My daughter, Hannah, is now 15 years old...however, I remember what it
was
>> like when she was entering pre-school and kindergarten.? With the help of
>> Marty Greiser, I wrote some suggestions to hand to her teachers when she
was
>> small, so that they had some better ideas of how to include Hannah in
all of
>> the activities.? A link to this article on the NFB website is:
>> http://www.nfb.org/images/nfb/Publications/fr/fr18/Issue2/f180208.htm
>> I hope there is something there you can use!? Sometimes the teachers take
>> awhile to "get it", but just keep trying and modeling the way you want
your
>> child to be treated.? It's great that you have found the NFB -- they
will be
>> an invaluable resource to you!? Jill
>> 
>> -----Original Message-----
>> From: blindkid-bounces+snowedin=union-tel.com at nfbnet.org
>> [mailto:blindkid-bounces+snowedin=union-tel.com at nfbnet.org] On Behalf Of
>> blindkid-request at nfbnet.org
>> Sent: Wednesday, September 24, 2008 11:00 AM
>> To: blindkid at nfbnet.org
>> Subject: blindkid Digest, Vol 53, Issue 22
>> 
>> Send blindkid mailing list submissions to
>> blindkid at nfbnet.org
>> 
>> To subscribe or unsubscribe via the World Wide Web, visit
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> or, via email, send a message with subject or body 'help' to
>> blindkid-request at nfbnet.org
>> 
>> You can reach the person managing the list at
>> blindkid-owner at nfbnet.org
>> 
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of blindkid digest..."
>> 
>> 
>> Today's Topics:
>> 
>>???1. Re: special seat on bus (Carol Castellano)
>>???2. Kindergarten Transition (Stacy Lemmon)
>>???3. Re: Kindergarten Transition (Debby B)
>>???4. Special Seat on the bus (Carlton Anne Cook Walker)
>>???5. Re: Kindergarten Transition (Doreen Franklin)
>>???6. Re: Kindergarten Transition (Carrie Gilmer)
>>???7. Re: Kindergarten Transition (Andy & Sally Thomas)
>>???8. Re: placement intepretation (Mike Freeman)
>>???9. Re: placement intepretation (DrV)
>>? 10. Hurricane Ike (Kim Cunningham)
>>? 11. Re: Hurricane Ike (Debby B)
>>? 12. Re: Question about school placement (Erin Teply)
>> 
>> 
>> ----------------------------------------------------------------------
>> 
>> Message: 1
>> Date: Tue, 23 Sep 2008 13:43:26 -0400
>> From: Carol Castellano <blindchildren at verizon.net>
>> Subject: Re: [blindkid] special seat on bus
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <200809231743.m8NHhcn02327 at www.nfbnet.org>
>> Content-Type: text/plain; charset="us-ascii"; format=flowed
>> 
>> Hi Mark,
>> 
>> The family does have a wheelchair, but it is apparently not the kind
>> that can be secured in the bus.? My understanding is that
>> someone--parent or bus driver--was lifting and carrying the girl onto
>> the bus and then someone--bus driver or school person--was lifting
>> her and carrying her off the bus and into the stroller at school.
>> 
>> The school and/or bus people then told the family that this could no
>> longer be done and that the family had to purchase the kind of
>> wheelchair that could be secured in the bus.
>> 
>> Carol
>> 
>> At 01:08 AM 9/23/2008, you wrote:
>>> Hello Carol,
>>> 
>>> are you saying that the bus driver and staff are carrying this student
into
>>> the school bus? If the student does not own a wheelchair it may be that
the
>>> district will provide such a chair and a bus with lift during school
hours.
>>> Worth looking in to?
>>> 
>>> Mark Feliz
>>> 
>>> 
>>> Mark Feliz
>>> 
>>> HAPPY DOTS BRAILLE SERVICES
>>> 
>>> PRESIDENT, NATIONAL FEDERATION OF THE BLIND OF ARIZONA
>>> EAST VALLEY CHAPTER
>>> 
>>> 1038 WEST HILLVIEW STREET
>>> MESA, ARIZONA? 85201
>>> 
>>> VOICE: 480-890-8943
>>> FAX: 480-835-3036
>>> ----- Original Message -----
>>> From: "Carol Castellano" <blindchildren at verizon.net>
>>> To: <blindkid at nfbnet.org>
>>> Sent: Monday, September 22, 2008 1:39 PM
>>> Subject: [blindkid] special seat on bus
>>> 
>>> 
>>> > Hi All,
>>> >
>>> > I just got a call from a parent of a 5-year-old who is a wheelchair
>>> > user.? The school told the parent that the family has to purchase a
>>> > special wheelchair or stroller that can be hooked into place on the
>>> > school bus.
>>> >
>>> > The school will no longer transport her on the bus because they say
>>> > neither they nor the bus driver are allowed to carry her into or out
>>> > of the bus, hence the need for the special chair.
>>> >
>>> > Does anyone know if the family is really responsible for this
>>> > purchase?? Right now they have to drive the girl to school
>>> > themselves.? When the dad goes to work, the mom has no car.? She also
>>> > has 3 other kids.? Help is needed!
>>> >
>>> > Thanks,
>>> > Carol
>>> >
>>> >
>>> > _______________________________________________
>>> > blindkid mailing list
>>> > blindkid at nfbnet.org
>>> > http://www.nfbnet.org/mailman/listinfo/blindkid
>>> > To unsubscribe, change your list options or get your account info for
>>> > blindkid:
>>> > http://www.nfbnet.org/mailman/options/blindkid/felizfamily5%40msn.com
>>> >
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info
>>> for blindkid:
>>>
http://www.nfbnet.org/mailman/options/blindkid/blindchildren%40verizon.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 2
>> Date: Tue, 23 Sep 2008 13:28:58 -0400
>> From: "Stacy Lemmon" <slemmonrn at spotlight-music.com>
>> Subject: [blindkid] Kindergarten Transition
>> To: <blindkid at nfbnet.org>
>> Message-ID: <001801c91da1$dd41ffc0$0401a8c0 at stacypc>
>> Content-Type: text/plain; charset="iso-8859-1"
>> 
>> We are already preparing for Adison's transition to kindergarten for the
>> 2009-2010 school year. It seems no one can provide me answer to a
question
>> about services...if we keep her in a non public school (she currently
>> attends a Catholic preschool and we would like to keep her there) who
will
>> provide her vision services?
>> 
>> Thanks!
>> Stacy
>> 
>> ------------------------------
>> 
>> Message: 3
>> Date: Tue, 23 Sep 2008 11:51:15 -0700 (PDT)
>> From: Debby B <bwbddl at yahoo.com>
>> Subject: Re: [blindkid] Kindergarten Transition
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <81235.9156.qm at web90505.mail.mud.yahoo.com>
>> Content-Type: text/plain; charset=us-ascii
>> 
>> Stacy, I think this varies by state and by district. In Miami, FL, we
got NO
>> services in the private sector. I understand in the district we are now
in
>> that you can, if you can get the providers to agree to do so.
>> 
>> Debby
>> bwbddl at yahoo.com
>> www.nfbflorida.org/parents
>> 
>> 
>> 
>> ----- Original Message ----
>> From: Stacy Lemmon <slemmonrn at spotlight-music.com>
>> To: blindkid at nfbnet.org
>> Sent: Tuesday, September 23, 2008 1:28:58 PM
>> Subject: [blindkid] Kindergarten Transition
>> 
>> We are already preparing for Adison's transition to kindergarten for the
>> 2009-2010 school year. It seems no one can provide me answer to a
question
>> about services...if we keep her in a non public school (she currently
>> attends a Catholic preschool and we would like to keep her there) who
will
>> provide her vision services?
>> 
>> Thanks!
>> Stacy
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/bwbddl%40yahoo.com
>> 
>> 
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 4
>> Date: Tue, 23 Sep 2008 15:41:23 -0400
>> From: "Carlton Anne Cook Walker" <PaPoBC at gmail.com>
>> Subject: [blindkid] Special Seat on the bus
>> To: blindkid at nfbnet.org
>> Message-ID:
>> <aa85e5850809231241i36a488f6k4be66951e0cc049 at mail.gmail.com>
>> Content-Type: text/plain; charset=ISO-8859-1
>> 
>> Carol,
>> 
>> 
>> First, I apologize for the rambling nature of this note.? I have been
>> (still am) sick and am terribly behind, so my thought process is even
>> more "stream of consciousness" than usual.
>> 
>> 
>> 
>> It seems to me that the root of the problem is a "one-size-fits-all"
>> mentality of the school -- when the IDEA requires INDIVIDUALIZATION..
>> 
>> 
>> 
>> As an initial matter, please check whether the transportation services
>> are included in the child's IEP.? If they are, read no further.? The
>> school's failure to provide the transportation services is a violaton
>> of the IEP itself and can be addressed that way.? Additionally, the
>> parents' provision of transportation in the interim can be properly
>> billed and recompensed as "compensatory education," although the
>> amount involved may not be worth a due process claim.
>> 
>> 
>> 
>> The parents need to get the school to put their ridiculous request IN
>> WRITING.? Then, take it to the NJ Department of Education (assuming
>> that they are at all worthwhile).
>> 
>> 
>> Here's the communication that SHOULD be happening with the school":
>> 
>> School: OH, our school buses aren't able to accommodate THAT kind f
>> wheelchair.
>> 
>> Family: Hmm, well, this IS the wheelchair that was prescribed for our
>> child.? You know, our vehicle IS able to transport her despite this
>> wheelchair.? We believe that MOST passenger vehicles can do so.
>> Please (1) advertise for bid for an individual -- properly bonded,
>> background checks, etc. -- to run the route to transport our child to
>> and from school or (2) provide whatever you need to transport her in
>> the school bus until such time as private transport is arranged.
>> 
>> 
>> 
>> Also, if I were the parent, I would be logging my mileage and
>> presenting the school with a bill (using AT LEAST the IRS reimbursable
>> rate of $0.585/mile).
>> 
>> 
>> Additionally, I will reiterate that the parents NEED to demand the
>> transportation IN WRITING and have it refused INN WRITING.? I cannot
>> stress this point too much.???Remember, if it's not in writing, it
>> didn't happen.
>> 
>> 
>> Regarding the billing for transportation, it should begin no more than
>> three school days AFTER the parents' letter is delivered (preferably
>> by hand, with a copy thereof signed as received by a school official)
>> -- the parents' letter warning that they will provide free
>> transportation to the school for only three more days.? After that,
>> it's the school's responsibility and the school will be billed if they
>> do not provide said transportation.
>> 
>> 
>> 
>> This all seems so very odd.? Did anything occur that precipitated this
>> issue?? Are there new personnel involved?
>> 
>> 
>> 
>> 
>> -- Carlton Anne Cook Walker
>> President, Pennsylvania Parents of Blind Children
>> 213 North First Street
>> McConnellsburg, PA 17233
>> Voice: 717-485-4529
>> Cell: 717-658-9894
>> 
>> 
>> ------------------------------
>> 
>> Message: 5
>> Date: Tue, 23 Sep 2008 12:42:24 -0700 (PDT)
>> From: Doreen Franklin <theconelady at yahoo.com>
>> Subject: Re: [blindkid] Kindergarten Transition
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <856713.71181.qm at web54303.mail.re2.yahoo.com>
>> Content-Type: text/plain; charset=iso-8859-1
>> 
>> Stacy
>> We are also in FL with Debby B -- we are a county north of her. As was
>> explained to me by the ESE department is that if in a private school,
>> services may be provided at a public school. School bd will transport
BACK
>> from public to private but not from private to public. We are in the
pre-K 3
>> program but I am trying to get answers for many things and cannot seem to
>> get too far.
>> ?
>> Good luck!
>> Doreen
>> 
>> 
>> --- On Tue, 9/23/08, Stacy Lemmon <slemmonrn at spotlight-music.com> wrote:
>> 
>> From: Stacy Lemmon <slemmonrn at spotlight-music.com>
>> Subject: [blindkid] Kindergarten Transition
>> To: blindkid at nfbnet.org
>> Date: Tuesday, September 23, 2008, 1:28 PM
>> 
>> We are already preparing for Adison's transition to kindergarten for the
>> 2009-2010 school year. It seems no one can provide me answer to a
question
>> about
>> services...if we keep her in a non public school (she currently attends a
>> Catholic preschool and we would like to keep her there) who will provide
her
>> vision services?
>> 
>> Thanks!
>> Stacy
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/theconelady%40yahoo.com
>> 
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 6
>> Date: Tue, 23 Sep 2008 15:46:13 -0500
>> From: "Carrie Gilmer" <carrie.gilmer at gmail.com>
>> Subject: Re: [blindkid] Kindergarten Transition
>> To: "'NFBnet Blind Kid Mailing List, \(for parents of blind
>> children\)'" <blindkid at nfbnet.org>
>> Message-ID: <48d9559d.2009360a.4cd2.045d at mx.google.com>
>> Content-Type: text/plain; charset="us-ascii"
>> 
>> The portions of IDEA that deal with children in private schools are
>> extensive and detailed and on the one hand complex in that they deal with
>> every detail and simple in it is all spelled out. I think you could have
a
>> weekend course just on this position of the IDEA. I have only read it
>> briefly, not studied it. The Local Education Authority does have
>> responsibilities including FINDING children in its geographic area of
>> authority and ensuring the private entity is providing some service but
if
>> the child is placed by choice of the parent the responsibilities do not
go
>> far (as far as I understand it now). To really get all services you
should
>> get at a public school you would have to have a determination by the LEA
>> that they could not provide and it would be in the IEP for the student to
>> attend (thus no longer parentally placed) in order to gain FAPE.
>> 
>> 
>> 
>> Notice this portion for parentally placed children: 300.137 Equitable
>> Services determined.
>> 
>> (a) No individual right to special education and related services. No
>> parentally placed private school child with a disability has an
individual
>> right to receive some or all of the special education and related
services
>> that the child would receive if enrolled in a public school.
>> 
>> 
>> 
>> For everyone, but especially if you are going to consider private or home
>> schooling I recommend you go to www.wrightslaw.com
>> <http://www.wrightslaw.com/>? and buy their book Special Education Law.
Or
>> go to the US department of Education website and call or write if you can
>> not find the IDEA online from them. It is a law and should be available
to
>> the public at no cost, I have meant but have not taken or had time to go
to
>> the Department online and try and find it. The book is nice because you
have
>> it all there, but you should also be able to get a copy of IDEA for free.
>> (Carlton will be able to correct me if I am wrong-smile)
>> 
>> 
>> 
>> If anyone is interested in finding out for us or knows speak up.
>> 
>> 
>> 
>> Then I would say, as Mindy mentioned the other day-it is up to us to know
>> the details of the law because they either really don't know themselves
or
>> they don't want us to know. It is empowering to know the law too. If
reading
>> the law seems confusing to you, it is a lot easier to work at an issue
>> directly and with you having a copy of the law and another having a copy
and
>> helping each other through the points of confusion. So I do recommend
>> everyone have a handy copy of the law of their own. The nice thing about
the
>> book is that you can look in the index for problems-like private school
and
>> it tells you which pages of the book cover those portions of the law. The
>> Free copy you would get from the government likely won't do that.
>> 
>> 
>> 
>> 
>> 
>> 
>> 
>> Carrie Gilmer, President
>> 
>> National Organization of Parents of Blind Children
>> 
>> A Division of the National Federation of the Blind
>> 
>> NFB National Center: 410-659-9314
>> 
>> Home Phone: 763-784-8590
>> 
>> carrie.gilmer at gmail.com
>> 
>> www.nfb.org/nopbc
>> 
>> -----Original Message-----
>> From: blindkid-bounces+carrie.gilmer=gmail.com at nfbnet.org
>> [mailto:blindkid-bounces+carrie.gilmer=gmail.com at nfbnet.org] On Behalf Of
>> Debby B
>> Sent: Tuesday, September 23, 2008 1:51 PM
>> To: NFBnet Blind Kid Mailing List,(for parents of blind children)
>> Subject: Re: [blindkid] Kindergarten Transition
>> 
>> 
>> 
>> Stacy, I think this varies by state and by district. In Miami, FL, we
got NO
>> services in the private sector. I understand in the district we are now
in
>> that you can, if you can get the providers to agree to do so.
>> 
>> 
>> 
>> Debby
>> 
>> bwbddl at yahoo.com
>> 
>> www.nfbflorida.org/parents
>> 
>> 
>> 
>> 
>> 
>> 
>> 
>> ----- Original Message ----
>> 
>> From: Stacy Lemmon <slemmonrn at spotlight-music.com>
>> 
>> To: blindkid at nfbnet.org
>> 
>> Sent: Tuesday, September 23, 2008 1:28:58 PM
>> 
>> Subject: [blindkid] Kindergarten Transition
>> 
>> 
>> 
>> We are already preparing for Adison's transition to kindergarten for the
>> 2009-2010 school year. It seems no one can provide me answer to a
question
>> about services...if we keep her in a non public school (she currently
>> attends a Catholic preschool and we would like to keep her there) who
will
>> provide her vision services?
>> 
>> 
>> 
>> Thanks!
>> 
>> Stacy
>> 
>> _______________________________________________
>> 
>> blindkid mailing list
>> 
>> blindkid at nfbnet.org
>> 
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> 
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> 
>> http://www.nfbnet.org/mailman/options/blindkid/bwbddl%40yahoo.com
>> 
>> 
>> 
>> 
>> 
>> 
>> 
>> 
>> 
>> _______________________________________________
>> 
>> blindkid mailing list
>> 
>> blindkid at nfbnet.org
>> 
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> 
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> 
>> http://www.nfbnet.org/mailman/options/blindkid/carrie.gilmer%40gmail.com
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 7
>> Date: Tue, 23 Sep 2008 16:11:55 -0500
>> From: "Andy & Sally Thomas" <andysally at comcast.net>
>> Subject: Re: [blindkid] Kindergarten Transition
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <04C492072FD94A1A83DB04E3AF62061A at andysallyhome>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=original
>> 
>> A good place to start on the Department of Education website is
>> http://idea.ed.gov/explore/home .? The full text of the law is on the
>> website but navigating through the menus provided by the Dept of Ed. is a
>> little friendlier.
>> 
>> Here's the link to the law on the Wrightslaw website:
>> http://www.wrightslaw.com/idea/law.htm .? The entire code and regulations
>> are there and the format is a little cleaner than the Dept of Ed.
website.
>> 
>> In the Wrightslaw seminar, Pete Wright told us that the law was purposely
>> written in a vague manner in order to be able to get the legislation
passed.
>> 
>> There is room for interpretation.? That is where your negotiation skills
>> and/or the attorneys come in.? What seems cut and dried to you may not
seem
>> that way to your school district.? Imagine my surprise when my school
>> district informed me that while they agree Braille is the primary
learning
>> medium for my child, having Braille that is legible is not a requirement!
>> There is nothing specific in IDEA that states that educational materials
>> must be legible.
>> 
>> Sally Thomas
>> ----- Original Message ----- From: "Carrie Gilmer"
<carrie.gilmer at gmail.com>
>> To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'"
>> <blindkid at nfbnet.org>
>> Sent: Tuesday, September 23, 2008 3:46 PM
>> Subject: Re: [blindkid] Kindergarten Transition
>> 
>> 
>>> The portions of IDEA that deal with children in private schools are
>>> extensive and detailed and on the one hand complex in that they deal
with
>>> every detail and simple in it is all spelled out. I think you could
have a
>>> weekend course just on this position of the IDEA. I have only read it
>>> briefly, not studied it. The Local Education Authority does have
>>> responsibilities including FINDING children in its geographic area of
>>> authority and ensuring the private entity is providing some service but
if
>>> the child is placed by choice of the parent the responsibilities do not
go
>>> far (as far as I understand it now). To really get all services you
should
>>> get at a public school you would have to have a determination by the LEA
>>> that they could not provide and it would be in the IEP for the student
to
>>> attend (thus no longer parentally placed) in order to gain FAPE.
>>> 
>>> 
>>> 
>>> Notice this portion for parentally placed children: 300.137 Equitable
>>> Services determined.
>>> 
>>> (a) No individual right to special education and related services. No
>>> parentally placed private school child with a disability has an
individual
>>> right to receive some or all of the special education and related
services
>>> that the child would receive if enrolled in a public school.
>>> 
>>> 
>>> 
>>> For everyone, but especially if you are going to consider private or
home
>>> schooling I recommend you go to www.wrightslaw.com
>>> <http://www.wrightslaw.com/>? and buy their book Special Education Law.
Or
>>> go to the US department of Education website and call or write if you
can
>>> not find the IDEA online from them. It is a law and should be available
to
>>> the public at no cost, I have meant but have not taken or had time to go
>>> to
>>> the Department online and try and find it. The book is nice because you
>>> have
>>> it all there, but you should also be able to get a copy of IDEA for
free.
>>> (Carlton will be able to correct me if I am wrong-smile)
>>> 
>>> 
>>> 
>>> If anyone is interested in finding out for us or knows speak up.
>>> 
>>> 
>>> 
>>> Then I would say, as Mindy mentioned the other day-it is up to us to
know
>>> the details of the law because they either really don't know themselves
or
>>> they don't want us to know. It is empowering to know the law too. If
>>> reading
>>> the law seems confusing to you, it is a lot easier to work at an issue
>>> directly and with you having a copy of the law and another having a copy
>>> and
>>> helping each other through the points of confusion. So I do recommend
>>> everyone have a handy copy of the law of their own. The nice thing about
>>> the
>>> book is that you can look in the index for problems-like private school
>>> and
>>> it tells you which pages of the book cover those portions of the law.
The
>>> Free copy you would get from the government likely won't do that.
>>> 
>>> 
>>> 
>>> 
>>> 
>>> 
>>> 
>>> Carrie Gilmer, President
>>> 
>>> National Organization of Parents of Blind Children
>>> 
>>> A Division of the National Federation of the Blind
>>> 
>>> NFB National Center: 410-659-9314
>>> 
>>> Home Phone: 763-784-8590
>>> 
>>> carrie.gilmer at gmail.com
>>> 
>>> www.nfb.org/nopbc
>>> 
>>> -----Original Message-----
>>> From: blindkid-bounces+carrie.gilmer=gmail.com at nfbnet.org
>>> [mailto:blindkid-bounces+carrie.gilmer=gmail.com at nfbnet.org] On Behalf
Of
>>> Debby B
>>> Sent: Tuesday, September 23, 2008 1:51 PM
>>> To: NFBnet Blind Kid Mailing List,(for parents of blind children)
>>> Subject: Re: [blindkid] Kindergarten Transition
>>> 
>>> 
>>> 
>>> Stacy, I think this varies by state and by district. In Miami, FL, we
got
>>> NO
>>> services in the private sector. I understand in the district we are now
in
>>> that you can, if you can get the providers to agree to do so.
>>> 
>>> 
>>> 
>>> Debby
>>> 
>>> bwbddl at yahoo.com
>>> 
>>> www.nfbflorida.org/parents
>>> 
>>> 
>>> 
>>> 
>>> 
>>> 
>>> 
>>> ----- Original Message ----
>>> 
>>> From: Stacy Lemmon <slemmonrn at spotlight-music.com>
>>> 
>>> To: blindkid at nfbnet.org
>>> 
>>> Sent: Tuesday, September 23, 2008 1:28:58 PM
>>> 
>>> Subject: [blindkid] Kindergarten Transition
>>> 
>>> 
>>> 
>>> We are already preparing for Adison's transition to kindergarten for the
>>> 2009-2010 school year. It seems no one can provide me answer to a
question
>>> about services...if we keep her in a non public school (she currently
>>> attends a Catholic preschool and we would like to keep her there) who
will
>>> provide her vision services?
>>> 
>>> 
>>> 
>>> Thanks!
>>> 
>>> Stacy
>>> 
>>> _______________________________________________
>>> 
>>> blindkid mailing list
>>> 
>>> blindkid at nfbnet.org
>>> 
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> 
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> 
>>> http://www.nfbnet.org/mailman/options/blindkid/bwbddl%40yahoo.com
>>> 
>>> 
>>> 
>>> 
>>> 
>>> 
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> 
>>> blindkid mailing list
>>> 
>>> blindkid at nfbnet.org
>>> 
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> 
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> 
>>> http://www.nfbnet.org/mailman/options/blindkid/carrie.gilmer%40gmail.com
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/andysally%40comcast.net
>> 
>> 
>>
----------------------------------------------------------------------------
>> ----
>> 
>> 
>> 
>> No virus found in this incoming message.
>> Checked by AVG - http://www.avg.com
>> Version: 8.0.169 / Virus Database: 270.7.1/1686 - Release Date: 9/23/2008
>> 7:38 AM
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 8
>> Date: Tue, 23 Sep 2008 17:56:15 -0700
>> From: "Mike Freeman" <k7uij at panix.com>
>> Subject: Re: [blindkid] placement intepretation
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <87B7D1B76ACD43E1BED81A21C83233F7 at owner96190708e>
>> Content-Type: text/plain; charset="iso-8859-1"
>> 
>> Basically, I think you are correct. Except that the IEP governs all,
>> i.e., if it is decided by the team (including the parents) that a child
>> should attend a school other than his/her local school, as , for
>> example, a school for the blind and this is written into the IEP, that
>> governs things. Also, sometimes the LRE may not be the local school. All
>> depends upon that IEP.
>> 
>> Mike
>> 
>> ----- Original Message ----- From: "Carrie Gilmer"
<carrie.gilmer at gmail.com>
>> To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'"
>> <blindkid at nfbnet.org>
>> Sent: Monday, September 22, 2008 7:59 AM
>> Subject: [blindkid] placement intepretation
>> 
>> 
>> Hello All,
>> 
>> Maybe Carlton or another with legal background can give feedback-but my
>> interpretation from the law that seems reasonable is that there is a
>> presumption in the law that the child WILL BE placed wherever he/she
>> would
>> be placed if there was no blindness
>> 
>> SO: if the child is placed elsewhere it must come from an eval with data
>> that shows an INDIVIDUAL NEED OF THE CHILD to be placed somewhere else
>> and
>> that is then incorporated by the team in to the IEP.
>> 
>> Hope this helps.
>> 
>> 
>> 
>> 
>> 
>> Carrie Gilmer, President
>> 
>> National Organization of Parents of Blind Children
>> 
>> A Division of the National Federation of the Blind
>> 
>> NFB National Center: 410-659-9314
>> 
>> Home Phone: 763-784-8590
>> 
>> carrie.gilmer at gmail.com
>> 
>> www.nfb.org/nopbc
>> 
>> 
>> 
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/k7uij%40panix.com
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 9
>> Date: Tue, 23 Sep 2008 22:08:02 -0700
>> From: "DrV" <icdx at earthlink.net>
>> Subject: Re: [blindkid] placement intepretation
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <006201c91e03$85e74070$6605a8c0 at CSMC.EDU>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=original
>> 
>> It is my understanding that in California, it all depends on the LEA's
>> interpretation & goodwill.
>> They can elect to serve a child in the private school setting, but are
not
>> obligated to do so.
>> LEA administration can have quite a turnover. Our LEA director has been
the
>> same since the beginning, but there have been 6 or 8 (I lost count) "VI
>> principals" during that same time frame), so what is agreed upon now may
>> change with the change in guard so to speak.
>> This is thus a huge decision.
>> The church may be willing to contract TVI & O&M services.
>> The Braille part is critical too -> making sure all materials are
Brailled &
>> 
>> modified appropriately & in a timely fashion is a boat-load of work.
>> We thought about this too, but opted to go the public shcool route.
>> Good luck,
>> Eric V
>> 
>> 
>> ----- Original Message ----- From: "Mike Freeman" <k7uij at panix.com>
>> To: "NFBnet Blind Kid Mailing List,(for parents of blind children)"
>> <blindkid at nfbnet.org>
>> Sent: Tuesday, September 23, 2008 5:56 PM
>> Subject: Re: [blindkid] placement intepretation
>> 
>> 
>>> Basically, I think you are correct. Except that the IEP governs all,
>>> i.e., if it is decided by the team (including the parents) that a child
>>> should attend a school other than his/her local school, as , for
>>> example, a school for the blind and this is written into the IEP, that
>>> governs things. Also, sometimes the LRE may not be the local school. All
>>> depends upon that IEP.
>>> 
>>> Mike
>>> 
>>> ----- Original Message ----- From: "Carrie Gilmer"
<carrie.gilmer at gmail.com>
>>> To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'"
>>> <blindkid at nfbnet.org>
>>> Sent: Monday, September 22, 2008 7:59 AM
>>> Subject: [blindkid] placement intepretation
>>> 
>>> 
>>> Hello All,
>>> 
>>> Maybe Carlton or another with legal background can give feedback-but my
>>> interpretation from the law that seems reasonable is that there is a
>>> presumption in the law that the child WILL BE placed wherever he/she
>>> would
>>> be placed if there was no blindness
>>> 
>>> SO: if the child is placed elsewhere it must come from an eval with data
>>> that shows an INDIVIDUAL NEED OF THE CHILD to be placed somewhere else
>>> and
>>> that is then incorporated by the team in to the IEP.
>>> 
>>> Hope this helps.
>>> 
>>> 
>>> 
>>> 
>>> 
>>> Carrie Gilmer, President
>>> 
>>> National Organization of Parents of Blind Children
>>> 
>>> A Division of the National Federation of the Blind
>>> 
>>> NFB National Center: 410-659-9314
>>> 
>>> Home Phone: 763-784-8590
>>> 
>>> carrie.gilmer at gmail.com
>>> 
>>> www.nfb.org/nopbc
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/k7uij%40panix.com
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/icdx%40earthlink.net
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 10
>> Date: Wed, 24 Sep 2008 04:55:04 -0700 (PDT)
>> From: Kim Cunningham <kim at gulfimagesphoto.com>
>> Subject: [blindkid] Hurricane Ike
>> To: Blindkid <blindkid at nfbnet.org>, Professionals in Blindness
>> Education <Pibe-division at nfbnet.org>
>> Message-ID: <255415.39294.qm at web602.biz.mail.mud.yahoo.com>
>> Content-Type: text/plain; charset=iso-8859-1
>> 
>> I would like to ask everyone who knows any of our NFB family or friends
who
>> live in the Houston area to please try to contact them or visit them. We
>> still have 541,000 people without power (also cable and internet). Our
power
>> was just restored last night after 11 days! Hurricane Ike has caused a
great
>> deal of destruction. The last I heard our city bus services were
operating
>> only in limited areas. The city of Galveston has more than 40% of homes
that
>> are uninhabitable. My daughter hasn't been to school since Sept. 11 and
will
>> not be returning until the power is restored to her school (who knows
when).
>> 
>>? Thank you,
>>? Kim Cunningham
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 11
>> Date: Wed, 24 Sep 2008 05:07:13 -0700 (PDT)
>> From: Debby B <bwbddl at yahoo.com>
>> Subject: Re: [blindkid] Hurricane Ike
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <932889.77443.qm at web90505.mail.mud.yahoo.com>
>> Content-Type: text/plain; charset=us-ascii
>> 
>> Kim! So glad to hear you are back with power. I so remember those days
(and
>> months) we went through after Hurricane Andrew. Ick! I, too, have been
>> wondering how our Houston/Galveston and surrounding areas are faring. Has
>> anyone heard from Laura Webber? And? And? So many folks affected.
>> 
>> Debby
>> bwbddl at yahoo.com
>> www.nfbflorida.org/parents
>> 
>> 
>> 
>> ----- Original Message ----
>> From: Kim Cunningham <kim at gulfimagesphoto.com>
>> To: Blindkid <blindkid at nfbnet.org>; Professionals in Blindness Education
>> <Pibe-division at nfbnet.org>
>> Sent: Wednesday, September 24, 2008 7:55:04 AM
>> Subject: [blindkid] Hurricane Ike
>> 
>> I would like to ask everyone who knows any of our NFB family or friends
who
>> live in the Houston area to please try to contact them or visit them. We
>> still have 541,000 people without power (also cable and internet). Our
power
>> was just restored last night after 11 days! Hurricane Ike has caused a
great
>> deal of destruction. The last I heard our city bus services were
operating
>> only in limited areas. The city of Galveston has more than 40% of homes
that
>> are uninhabitable. My daughter hasn't been to school since Sept. 11 and
will
>> not be returning until the power is restored to her school (who knows
when).
>> 
>>? Thank you,
>>? Kim Cunningham
>> 
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/bwbddl%40yahoo.com
>> 
>> 
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 12
>> Date: Wed, 24 Sep 2008 08:18:04 -0400
>> From: "Erin Teply" <eteply at cfl.rr.com>
>> Subject: Re: [blindkid] Question about school placement
>> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
>> <blindkid at nfbnet.org>
>> Message-ID: <021301c91e3f$98d37e60$6401a8c0 at DC24Q631>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=original
>> 
>> I also have a 2 1/2 year old and live in Melbourne, FL (Brevard county).
I
>> just met with someone from the school district that handles the
transition
>> from early intervention to the school district.? We will have our first
>> meeting in a few months (my son turns 3 in Feb).? I am so new to this
>> process, but I believe this is where we start discussions of the IEP.
After
>> 
>> reading all these emails, I am overwhelmed and nervous that we won't get
it
>> right!? I also am very concerned about what school he will go to.? My 5
year
>> 
>> old goes to a private school and I would love Max to go there, but yet he
>> needs to go to the school best for him, which very likely would not be
this
>> school (they have very few special needs student, if any, Max would
>> definitely be the only blind student).? If anyone has good starting
>> information about IEPs, I would welcome it.
>> 
>> On a slightly different note, my son has started in a preschool this
year.
>> It is at a school where they maintain a 50/50 ratio of special needs
>> children to 'role model' (as they call it...) children.? While the
teachers
>> are trying really hard, in my opinion simply don't 'get' how to work
with a
>> blind child yet, as Max is their first.? Myself, Max's vision therapist
and
>> an early interventionist are all working with them so that Max can have a
>> better experience.? What I see a lot of is holding his hand and walking
him
>> around the room (he isn't good enough with his cane yet, but can
definitely
>> get around a classroom totally ok on his own!).? I also see Max just
>> standing there a lot (I'm sure listening intently and taking it all in,
or
>> does he just not know what to do?).? I guess I'm just not sure what to
do.
>> The EI (who is fantastic) and I may do an inservice for his teachers on
>> blind students, or I'm wondering if I simply need to spend more time in
the
>> classroom until he gets acclimated better?? Any advice on how your
>> pre-schoolers did (those that did not attend a school for the blind) or
what
>> 
>> you did to help his/her teachers understand would be great.
>> 
>> Thank you!
>> Erin
>> 
>> ----- Original Message ----- From: "Kathy B" <burgawicki at yahoo.com>
>> To: "NFBnet Blind Kid Mailing List,(for parents of blind children)"
>> <blindkid at nfbnet.org>
>> Sent: Saturday, September 20, 2008 6:52 PM
>> Subject: Re: [blindkid] Question about school placement
>> 
>> 
>>> Doreen-
>>> 
>>> Where abouts are you in FL.? I have a 2 1/2 yr? old in? Olando.
>>> 
>>> Kathy
>>> 
>>> 
>>> 
>>> ----- Original Message ----
>>> From: Doreen Franklin <theconelady at yahoo.com>
>>> To: blindkid at nfbnet.org
>>> Sent: Saturday, September 20, 2008 4:48:15 PM
>>> Subject: Re: [blindkid] Question about school placement
>>> 
>>> 
>>> Stephanie
>>> I am very interested in this question. I have asked this question of my
>>> ESE administrator and cannot get much of an answer. My daughter just
>>> turned 4 but because she misses the cut-off by 2 days, she is in a 3 yr
>>> old program (she was adopted from Guatemala and has been home for 2 yrs
>>> now).
>>> 
>>> I have tried to pin them down to see if she can go to the "local"
>>> neighborhood school or to one of the 2 charter schools that will be open
>>> in 2 yrs or if she "has" to go to the school where vision has a TVI
there.
>> 
>>> I have been told she will be evaluated at that time and the TVI's will
>>> "confer" with professionals (I believe that is how it was stated in an
>>> email) about her needs and where she will be placed; unsure who the
other
>>> "professionals" would be!
>>> 
>>> To date, they are not even listening to me on her IEP goals for writing
>>> (her goals sound like they are for a 4 yr old going to kindergarten),
her
>>> O&M that I am trying for them to do as well as ESE teaching her Braille.
>>> 
>>> The other source -- which is a GREAT one -- is www.wrightslaw.com --?
Peter
>> 
>>> Wright and his wife are EXCELLENT sources for the law. A friend and I
went
>> 
>>> to a seminar with him and he knows his law inside and out. I believe
there
>> 
>>> is a place to email or call to check on what the law exactly is for
>>> placement.? I know I will be tapping into it in 2 yrs.
>>> 
>>> The other suggestion is to call a local "advocate" -- there are advocate
>>> groups that should be able to answer your questions. One advocate is
>>> "CILO" -- Council for Independent Living Options; I had one of their
>>> advocates at my other daughter's IEP meeting and she looks at things
from
>>> the law side and is more objective too.
>>> 
>>> I agree with DrV on his outlook on not only the word "policy" but there
>>> may be wide discrepancies between counties and their outlook on "the
law"
>>> and how it is interpreted. We have been finding that out in a few of the
>>> disability seminars we have gone to. (We live in FL). A local advocate
>>> would be the best resource for this.
>>> 
>>> Hope that helps and will give you some options.
>>> Doreen
>>> 
>>> 
>>> 
>>> --- On Fri, 9/19/08, Kieszak, Stephanie (CDC/CCEHIP/NCEH) <sek7 at CDC.GOV>
>>> wrote:
>>> 
>>> From: Kieszak, Stephanie (CDC/CCEHIP/NCEH) <sek7 at CDC.GOV>
>>> Subject: [blindkid] Question about school placement
>>> To: blindkid at nfbnet.org
>>> Date: Friday, September 19, 2008, 2:59 PM
>>> 
>>> My daughter is currently mainstreamed in kindergarten in a public
>>> school. Her school only goes up to kindergarten so we have been looking
>>> at schools for her for next year.? I met with her TVI today about
>>> something else and she mentioned that our county has a policy of
>>> requiring kids who need more than 3 hours a week of TVI time to attend
>>> the elementary school that has a vision resource room. My husband and I
>>> had visited this school in the past and were not thrilled with it.? We
>>> are leaning towards the elementary school that her current school feeds
>>> into.? Ideally, we would like our daughter to be able to continue to
>>> work with her current TVI who has been with her since she started school
>>> at 3 years of age. My daughter is academically gifted and we want her to
>>> work with a TVI who we know will push her and challenge her.? She is a
>>> Braille reader and it's a given that she would need more than 3 hours a
>>> week of TVI time; she gets at least 5 hours a week now.? Can the county
>>> require that she attend a certain school based on the hours of TVI time
>>> required? My gut feeling is they cannot but I would appreciate specific
>>> links to language that I can present to the school/county.
>>> Thank you.
>>> Stephanie
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/theconelady%40yahoo.com
>>> 
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/burgawicki%40yahoo.com
>>> 
>>> 
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/blindkid
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>>> http://www.nfbnet.org/mailman/options/blindkid/eteply%40cfl.rr.com
>> 
>> 
>> 
>> ------------------------------
>> 
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> 
>> 
>> End of blindkid Digest, Vol 53, Issue 22
>> ****************************************
>> 
>> 
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blindkid
>> To unsubscribe, change your list options or get your account info for
blindkid:
>> http://www.nfbnet.org/mailman/options/blindkid/icdx%40earthlink.net
> 


_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/kim%40gulfimagesph
oto.com


------------------------------

Message: 14
Date: Wed, 6 Apr 2011 10:20:58 -0400
From: Penny Duffy <pennyduffy at gmail.com>
To: "NFBnet Blind Kid Mailing List,	(for parents of blind children)"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
	classroom
Message-ID: <BANLkTinKHsgXOdYGpDQC6X4gEOq3z9wYOQ at mail.gmail.com>
Content-Type: text/plain; charset=ISO-8859-1

I was responding with my phone when I started and got cut off.  Yes you can
request one.  If you have a valid reason they should provide one.  My
daughter has a 1 on 1 in the morning.  Its just very important that its in
your child's IEP so they can't cut the position.

On Wed, Apr 6, 2011 at 9:48 AM, Penny Duffy <pennyduffy at gmail.com> wrote:

> You always have the right to request an aide.  If that means they will
> prdovide one.......
>
> Write up why you feel his educational experiance will. Be better with one.
> On Apr 6, 2011 8:36 AM, "Tina Egle" <tegle at oakton.edu> wrote:
> > Hi all,
> >
> >
> > My son has Epilepsy which was diagnosed since he was 4 years old.
> > Eventhough his seizures are under control via medications, we never know
> > when the sudden onset of seizures could occur when the efficacy of
> > medication could happen anytime. Plus his seizures are not noticeable,
> > sometimes he could just stand there in the middle of the hallway and be
> > dazed of like he was confused and did not seem to know where he was or
> > what he was doing. He usually do not have grand mal type but rather
petit
> > mal type of seizure with slight tremors or mild muscle twitches which
> > could go unnotice if all teachers and aides in the classroom are tied up
> > and busy with other blind or special need students, then he could
> > eventually fall down. That is my main concern. John Travolta's son died
> > while going to the bathroom alone in the middle of the night and his aid
> > was no where near him, and he died hitting his head to the tub while he
> > had seizure.
> >
> >
> > My question is that by Law, Can a parent ask for an individual aid who
is
> > just for my son who does not have any other responsibility of other
> > students but just for him, 1:1 aid? I have been requesting 1:1 aide
since
> > he has been in school around 3 years of age and now he is 15 and we have
> > moved 3 times becuase all other school distracts had failed to provide
an
> > appropriate education and finally we were able to prove to our recent
> > district that he needs to be in a vision school and he has been in that
> > program for 2 years and we have seen major improvement. But the district
> > is still unclear about 1:1 aid in the room. I am undert the impression
> > that a classroom aide is shared by many other students and 1:1 aid is
> what
> > my son needs just based upon his medical history.
> >
> > Please let me know if by Law, Can I request 1:1 aid and have that
written
> > in IEP?
> >
> > Tina
> >
> >
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> blindkid:
> >
>
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail
.com
>



-- 
--Penny
----------
Adventures with Abby - visionfora.blogspot.com


------------------------------

Message: 15
Date: Wed, 6 Apr 2011 07:23:18 -0700 (PDT)
From: Elizabeth D <liz86_2004 at yahoo.com>
To: " \(for parents of blind children\)NFBnet Blind Kid Mailing List"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
	classroom
Message-ID: <602162.67465.qm at web30708.mail.mud.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1

Hi Tina,My daughter is 5 yr. old, almost 6 yr. & she doesn't have
seizures(that we know of yet), so I don't know if I will be much help. My
only thought, is that I saw a story recently on the news in Houston(we live
in Richmond, about 30-40 mi. away), that a family fought & won the right to
have a seizure dog in school with their son who had autism I think as
well(but I'm not 100% on that).?
The school didn't want to give an aid from what I understand, & this boys
dog is specially trained to detect when seizures are about to happen, or
right after they are, & has saved this boys life before. Anyway, just a
thought if something like that is available in your area & would be allowed
at school?
?The school tried to say it was a distraction/safety issue. The family won
saying their son's life was a safety concern, & that he had the right to be
educated with everyone else, & this was the assistance he needed to get
around safely(in my opinion the same as a guide dog or something, it's an
assistance animal of some kind), so the district ended up allowing it. I
don't know if that's possible where you are, or the cost involved, etc.
But, it's an option to consider if the district won't budge. Good luck!?
Take care, Liz JohnsonMother to Emily, 5 yr.?Blind since birth due to
ONH/SOD

--- On Wed, 4/6/11, Tina Egle <tegle at oakton.edu> wrote:

From: Tina Egle <tegle at oakton.edu>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
classroom
To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
<blindkid at nfbnet.org>
Date: Wednesday, April 6, 2011, 7:35 AM

Hi all,


My son has Epilepsy which was diagnosed since he was 4 years old. 
Eventhough his seizures are under control via medications, we never know
when the sudden onset of seizures could occur when the efficacy of
medication could happen anytime. Plus his seizures are not noticeable,
sometimes he could just stand there in the middle of the hallway and be
dazed of like he was confused and did not seem to know where he was or
what he was doing.? He usually do not have grand mal type but rather petit
mal type of seizure with slight tremors or mild muscle twitches which
could go unnotice if all teachers and aides in the classroom are tied up
and busy with other blind or special need students, then he could
eventually fall down.? That is my main concern.? John Travolta's son died
while going to the bathroom alone in the middle of the night and his aid
was no where near him, and he died hitting his head to the tub while he
had seizure.


My question is that by Law, Can a parent ask for an individual aid who is
just for my son who does not have any other responsibility of other
students but just for him, 1:1 aid?? I have been requesting 1:1 aide since
he has been in school around 3 years of age and now he is 15 and we have
moved 3 times becuase all other school distracts had failed to provide an
appropriate education and finally we were able to prove to our recent
district that he needs to be in a vision school and he has been in that
program for 2 years and we have seen major improvement. But the district
is still unclear about 1:1 aid in the room.? I am undert? the impression
that a classroom aide is shared by many other students and 1:1 aid is what
my son needs just based upon his medical history.

Please let me know if by Law, Can I request 1:1 aid and have that written
in IEP?

Tina



_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/liz86_2004%40yahoo
.com


------------------------------

Message: 16
Date: Wed, 6 Apr 2011 07:25:37 -0700 (PDT)
From: Elizabeth D <liz86_2004 at yahoo.com>
To: " \(for parents of blind children\)NFBnet Blind Kid Mailing List"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
	classroom
Message-ID: <895855.9706.qm at web30703.mail.mud.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1

Speaking of aids, I will be requesting one for my daughter in our next ARD.
Anyone else in Texas have success is getting one, or any pointers you could
give me? Thanks for suggestions! We are in Lamar ISD, I know sometimes
policies vary district to district.
-Liz JohnsonMom to Emily, 5 yr.Blind since birth due to ONH/SOD

--- On Wed, 4/6/11, Penny Duffy <pennyduffy at gmail.com> wrote:

From: Penny Duffy <pennyduffy at gmail.com>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
classroom
To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
<blindkid at nfbnet.org>
Date: Wednesday, April 6, 2011, 9:20 AM

I was responding with my phone when I started and got cut off.? Yes you can
request one.? If you have a valid reason they should provide one.? My
daughter has a 1 on 1 in the morning.? Its just very important that its in
your child's IEP so they can't cut the position.

On Wed, Apr 6, 2011 at 9:48 AM, Penny Duffy <pennyduffy at gmail.com> wrote:

> You always have the right to request an aide.? If that means they will
> prdovide one.......
>
> Write up why you feel his educational experiance will. Be better with one.
> On Apr 6, 2011 8:36 AM, "Tina Egle" <tegle at oakton.edu> wrote:
> > Hi all,
> >
> >
> > My son has Epilepsy which was diagnosed since he was 4 years old.
> > Eventhough his seizures are under control via medications, we never know
> > when the sudden onset of seizures could occur when the efficacy of
> > medication could happen anytime. Plus his seizures are not noticeable,
> > sometimes he could just stand there in the middle of the hallway and be
> > dazed of like he was confused and did not seem to know where he was or
> > what he was doing. He usually do not have grand mal type but rather
petit
> > mal type of seizure with slight tremors or mild muscle twitches which
> > could go unnotice if all teachers and aides in the classroom are tied up
> > and busy with other blind or special need students, then he could
> > eventually fall down. That is my main concern. John Travolta's son died
> > while going to the bathroom alone in the middle of the night and his aid
> > was no where near him, and he died hitting his head to the tub while he
> > had seizure.
> >
> >
> > My question is that by Law, Can a parent ask for an individual aid who
is
> > just for my son who does not have any other responsibility of other
> > students but just for him, 1:1 aid? I have been requesting 1:1 aide
since
> > he has been in school around 3 years of age and now he is 15 and we have
> > moved 3 times becuase all other school distracts had failed to provide
an
> > appropriate education and finally we were able to prove to our recent
> > district that he needs to be in a vision school and he has been in that
> > program for 2 years and we have seen major improvement. But the district
> > is still unclear about 1:1 aid in the room. I am undert the impression
> > that a classroom aide is shared by many other students and 1:1 aid is
> what
> > my son needs just based upon his medical history.
> >
> > Please let me know if by Law, Can I request 1:1 aid and have that
written
> > in IEP?
> >
> > Tina
> >
> >
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> blindkid:
> >
>
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail
.com
>



-- 
--Penny
----------
Adventures with Abby - visionfora.blogspot.com
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------------------------------

Message: 17
Date: Wed, 6 Apr 2011 10:39:40 -0400
From: Penny Duffy <pennyduffy at gmail.com>
To: "NFBnet Blind Kid Mailing List,	(for parents of blind children)"
	<blindkid at nfbnet.org>
Subject: Re: [blindkid] questions in regards to acquiring an aid in
	classroom
Message-ID: <BANLkTin20jHJrKNYD5GGHAxGZGTnr9NBCg at mail.gmail.com>
Content-Type: text/plain; charset=ISO-8859-1

With my daughter the school district just gave her one.  She suffered a
vision loss last summer (she is in first grade right now)  and they felt it
was required to give her what she needed.  She has just learned to read (in
braille) which is a huge deal.  The aide was necessary since the TVI is only
there an hour a day. The aid adapts the materials for her and some times on
the fly so she is able to be an active part of her classroom.

I dont' thinks she will need a 1 on 1 aide when she gets older (middle
school or high school) because she will need less 1 on 1 help. The key is to
make her independent and go to college but she really needs one right now.

Her aide i see as a teacher's aide for the TVI not the classroom teacher.
She does a lot of modifications for the my daughter and the TVI directs it.

I really can't express how excited I am that my daughter is a reader now.
 The aid has a lot do with it.  Its been a hard year for my daughter but i
am so greatful to her amazing TVI and her 1 on 1 aid.
-- 
--Penny
----------
Adventures with Abby - visionfora.blogspot.com
<http://visionfora.blogspot.com/>

> : "NFBnet Blind Kid Mailing List, (for parents of blind children)" <
> blindkid at nfbnet.org>
> Date: Wednesday, April 6, 2011, 9:20 AM
>
> I was responding with my phone when I started and got cut off.  Yes you
can
> request one.  If you have a valid reason they should provide one.  My
> daughter has a 1 on 1 in the morning.  Its just very important that its in
> your child's IEP so they can't cut the position.
>
> On Wed, Apr 6, 2011 at 9:48 AM, Penny Duffy <pennyduffy at gmail.com> wrote:
>
> > You always have the right to request an aide.  If that means they will
> > prdovide one.......
> >
> > Write up why you feel his educational experiance will. Be better with
> one.
> > On Apr 6, 2011 8:36 AM, "Tina Egle" <tegle at oakton.edu> wrote:
> > > Hi all,
> > >
> > >
> > > My son has Epilepsy which was diagnosed since he was 4 years old.
> > > Eventhough his seizures are under control via medications, we never
> know
> > > when the sudden onset of seizures could occur when the efficacy of
> > > medication could happen anytime. Plus his seizures are not noticeable,
> > > sometimes he could just stand there in the middle of the hallway and
be
> > > dazed of like he was confused and did not seem to know where he was or
> > > what he was doing. He usually do not have grand mal type but rather
> petit
> > > mal type of seizure with slight tremors or mild muscle twitches which
> > > could go unnotice if all teachers and aides in the classroom are tied
> up
> > > and busy with other blind or special need students, then he could
> > > eventually fall down. That is my main concern. John Travolta's son
died
> > > while going to the bathroom alone in the middle of the night and his
> aid
> > > was no where near him, and he died hitting his head to the tub while
he
> > > had seizure.
> > >
> > >
> > > My question is that by Law, Can a parent ask for an individual aid who
> is
> > > just for my son who does not have any other responsibility of other
> > > students but just for him, 1:1 aid? I have been requesting 1:1 aide
> since
> > > he has been in school around 3 years of age and now he is 15 and we
> have
> > > moved 3 times becuase all other school distracts had failed to provide
> an
> > > appropriate education and finally we were able to prove to our recent
> > > district that he needs to be in a vision school and he has been in
that
> > > program for 2 years and we have seen major improvement. But the
> district
> > > is still unclear about 1:1 aid in the room. I am undert the impression
> > > that a classroom aide is shared by many other students and 1:1 aid is
> > what
> > > my son needs just based upon his medical history.
> > >
> > > Please let me know if by Law, Can I request 1:1 aid and have that
> written
> > > in IEP?
> > >
> > > Tina
> > >
> > >
> > >
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > blindkid:
> > >
> >
>
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail
.com
> >
>
>
>
> --
> --Penny
> ----------
> Adventures with Abby - visionfora.blogspot.com
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindkid:
>
>
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/liz86_2004%40yahoo
.com
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindkid:
>
>
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail
.com
>


------------------------------

Message: 18
Date: Wed, 6 Apr 2011 09:08:40 -0700 (PDT)
From: Eliza Ellett <elizaellett at yahoo.com>
To: blindkid at nfbnet.org, ewhedlin at hotmail.com, jdglopez at sbcglobal.net,
	deafblind at tr.wou.edu, Worman at hadley.edu, sarakarp at yahoo.com,
	ottencarol at comcast.net, GBYS at choicesforparents.org,
	choicesforparents at yahoo.com
Subject: [blindkid] (no subject)
Message-ID: <595891.75208.qm at web59408.mail.ac4.yahoo.com>
Content-Type: text/plain; charset=us-ascii

http://giovannamurano.it/index002-21.html

------------------------------

_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org


End of blindkid Digest, Vol 84, Issue 6
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