[blindkid] Hello

[Barbara Hammel]

My suggestion would be to try a form of Lilli's little room for her.  Make 
the space she plays in small.  If she feels more comfortable in a playpen, 
put her there and give her lots of toys that make noise.  Figure out a way 
to hang things from the sides or over the top of it.  Anything in any way so 
that however she moves she'll contact something that will crinkle or rattle 
or jingle or play music.  If you don't have a playpen, just use a big box or 
some of those plastic play areas that you can adjust the size by how many 
panels you use.
When we brought our twins home from China at almost 3 years, one of them 
loved to be in a car seat box because it was a close place and his toys 
couldn't get away from him.
If you try this idea, it should make her want to move because it makes 
something happen if she does.
Good luck.
Let your mother's intuition rule here.  If you think the therapists you have 
now aren't working for your child, try someone else.
Barbara




Let every nation know whether it wishes us well or ill, that we shall pay 
any price, bear any burden, meet any hardship, support any friend, oppose 
any foe, in order to assure the survival and the success of liberty.--John 
F. Kennedy
-----Original Message----- 
From: Sarah Dallis
Sent: Thursday, December 29, 2011 8:12 PM
To: blindkid at nfbnet.org
Subject: [blindkid] Hello

Hi. My daughter, Ellie, is almost 16 months old and completely blind. She
had a VEP two months ago and it came back inconclusive. She may have had
her eyes closed or she's completely blind with no light perception. It
helps me to go ahead and think she's completely blind, I'd rather have the
surprise then to have to lose an expectation, if that makes any sense.
Anyway, she has other health issues (septo-optic dysplasia, optic nerve
hypoplasia, hypo-pit, diabetes insipidus, so on and so forth). Those are
all back seat drivers to her vision in the sense of development.

She doesn't walk, crawl, or stand. She likes laying on her tummy but more
for sleep so we're working on her pushing up and reaching for things. She
can roll.

My husband and I are both active duty Air Force so she goes to daycare
about 10 hours a day. I'm having problems with my confidence in her daycare
and therapists. I'm debating on whether or not I should switch my
daughter's OT and PT. She is always unhappy and crying during therapy. They
force her hands and body into positions and make her stay there or do
something. She's not quite 16 months and her PT session lasts 45 minutes.
What do you all think? She also receives feeding therapy but she's showing
more progress withth at then she is with OT or PT.

In my signature block the second link is to Ellie's blog if you want to
read more about her. Thanks for your time and I look forward to hearing
from you all!
-- 

Sarah Dallis

Pampered Chef Consultant

Order 24/7 Online: http://www.pamperedchef.biz/sarahdallis

Mom to Ellie: http://elliesgrace.blogspot.com
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