[blindkid] child with ONH

Kelley R imcollegebound2006 at hotmail.com
Sun Jul 31 20:28:04 UTC 2011


My daughter will be 3 next month and she has ONH. I have a blog about her at http://raisingablindangel.blogspot.com/ . We live in Utah

> From: gingerlocket at hotmail.com
> To: blindkid at nfbnet.org
> Date: Sun, 31 Jul 2011 13:25:28 -0400
> Subject: [blindkid] child with ONH/SOD
> 
> 
> 
> Hi Karen,
> My daughter, who is 10 yrs. has ONH/SOD, we are in NH, USA. Are you on the Focus Families group, and there is a facebook group too.
> I'm here to help, if I can!!
> Lucy
> 
>  
> 
> > From: blindkid-request at nfbnet.org
> > Subject: blindkid Digest, Vol 87, Issue 30
> > To: blindkid at nfbnet.org
> > Date: Sun, 31 Jul 2011 12:00:17 -0500
> > 
> > Send blindkid mailing list submissions to
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> > than "Re: Contents of blindkid digest..."
> > 
> > 
> > Today's Topics:
> > 
> >    1. Re: how do you teach a child to say yes? (Bonnie Lucas)
> >    2. Re: how do you teach a child to say yes? (Deborah Kent Stein)
> >    3. ANY KIDS ON THE LIST WITH ONH/SOD (karen muller)
> > 
> > 
> > ----------------------------------------------------------------------
> > 
> > Message: 1
> > Date: Sat, 30 Jul 2011 16:36:12 -0800
> > From: "Bonnie Lucas" <lucas.bonnie at gmail.com>
> > To: "'NFBnet Blind Kid Mailing List,	\(for parents of blind
> > 	children\)'" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> > Message-ID: <4e34a38c.e730440a.6092.261d at mx.google.com>
> > Content-Type: text/plain;	charset="us-ascii"
> > 
> > Wow that is such a cool example of having high expectations and helping a
> > child to make something important happen. Thank you so much for sharing!
> > Bonnie Lucas
> > -----Original Message-----
> > From: Alison Stephens [mailto:amspencer at yahoo.com] 
> > Sent: Saturday, July 30, 2011 5:48 AM
> > To: blindkid at nfbnet.org
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> > 
> > This sounds familiar.  A few months ago my son was not able to say yes
> > either.  He also would repeat the question if he wanted it, or rephrase it
> > appropriately as an answer, but could not say yes.
> > 
> > So, his TVI invented a ball game that jumpstarted the process of learning
> > this, which he can now do with no trouble.  She sat with legs outstretched
> > with Nate sitting in front of her, also facing forward and I sat opposite
> > about 4 feet away.  She helped Nate hold the ball on the floor in front of
> > him while she asked "Mommy, would you like the ball?"  then I would respond,
> > "Yes, please,"  then she would assist Nate in rolling the ball to me across
> > the floor.  Once I had the ball, it was my turn to ask, "Nate, would you
> > like the ball?"  The TVI would then suggest to Nate that he say "yes,
> > please."  He didn't say it initially, so she would say it for him, and then
> > I would immediately roll the ball.  We did this back and forth for about 45
> > minutes (was it that long?) and by the end of play he started catching on to
> > asking the "would you like the ball" and saying "yes, please,"  since play
> > would not proceed without the question or answer.  I suppose that it helped
> > that he liked the rolling ball game.
> > 
> > We played this game a few more times over a few weeks, and we also focused
> > on saying "yes, please" at other times during the day, and he got it.  The
> > game really seemed to get him started with it, though.
> > 
> > Hope that helps,
> > Alison
> > 
> > 
> > 
> > 
> > 
> > ------------------------------
> > 
> > Message: 2
> > Date: Sat, 30 Jul 2011 19:46:11 -0500
> > From: "Deborah Kent Stein" <dkent5817 at att.net>
> > To: "NFBnet Blind Kid Mailing List,	\(for parents of blind children\)"
> > 	<blindkid at nfbnet.org>
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> > Message-ID: <013701cc4f1b$3f6afff0$d70aa8c0 at Debbie>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > 	reply-type=original
> > 
> > 
> > 
> > In the Winter 2011 issue of Future Reflections there is an article by Mary 
> > McDonach called "You Can Say That Again" which includes a lot of practical 
> > ideas for dealing with echolalia and developing meaningful language.  If you 
> > don't have the hardcopy, you can find the magazine archived at www.nfb.org 
> > under publications.
> > 
> > Debbie
> > 
> > ----- Original Message ----- 
> > From: "Steve Heesen" <steveheesen at aol.com>
> > To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'" 
> > <blindkid at nfbnet.org>
> > Sent: Saturday, July 30, 2011 9:41 AM
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> > 
> > 
> > > Wow, what a great idea. It is amazing how much the kiddos can learn when 
> > > we
> > > make the process fun for them!
> > >
> > > Steve
> > >
> > > -----Original Message-----
> > > From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
> > > Behalf Of Alison Stephens
> > > Sent: Saturday, July 30, 2011 8:48 AM
> > > To: blindkid at nfbnet.org
> > > Subject: Re: [blindkid] how do you teach a child to say yes?
> > >
> > > This sounds familiar.  A few months ago my son was not able to say yes
> > > either.  He also would repeat the question if he wanted it, or rephrase it
> > > appropriately as an answer, but could not say yes.
> > >
> > > So, his TVI invented a ball game that jumpstarted the process of learning
> > > this, which he can now do with no trouble.  She sat with legs outstretched
> > > with Nate sitting in front of her, also facing forward and I sat opposite
> > > about 4 feet away.  She helped Nate hold the ball on the floor in front of
> > > him while she asked "Mommy, would you like the ball?"  then I would 
> > > respond,
> > > "Yes, please,"  then she would assist Nate in rolling the ball to me 
> > > across
> > > the floor.  Once I had the ball, it was my turn to ask, "Nate, would you
> > > like the ball?"  The TVI would then suggest to Nate that he say "yes,
> > > please."  He didn't say it initially, so she would say it for him, and 
> > > then
> > > I would immediately roll the ball.  We did this back and forth for about 
> > > 45
> > > minutes (was it that long?) and by the end of play he started catching on 
> > > to
> > > asking the "would you like the ball" and saying "yes, please,"  since play
> > > would not proceed without the question or answer.  I suppose that it 
> > > helped
> > > that he liked th  e rolling ball game.
> > >
> > > We played this game a few more times over a few weeks, and we also focused
> > > on saying "yes, please" at other times during the day, and he got it.  The
> > > game really seemed to get him started with it, though.
> > >
> > > Hope that helps,
> > > Alison
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > > http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/steveheesen%40aol.
> > > com
> > >
> > >
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
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> > > blindkid:
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> > 
> > 
> > 
> > 
> > ------------------------------
> > 
> > Message: 3
> > Date: Sun, 31 Jul 2011 07:02:40 +0100
> > From: "karen muller" <karenkzn at telkomsa.net>
> > To: "organisation for parents with blind kids" <blindkid at nfbnet.org>
> > Subject: [blindkid] ANY KIDS ON THE LIST WITH ONH/SOD
> > Message-ID: <4E34EFFF.000001.06100 at KAREN-PC>
> > Content-Type: text/plain; charset="iso-8859-1"
> > 
> > Hi everyone
> > 
> > I live in South AFrica. Are there any kids on the list born with ONH/SOD ?? 
> > Hoping to chat soon.
> > karen Muller
> > Waterfall  
> >  
> >  
> >  
> >  
> > -------Original Message-------
> >  
> > From: blindkid-request at nfbnet.org
> > Date: 07/30/11 20:10:37
> > To: blindkid at nfbnet.org
> > Subject: blindkid Digest, Vol 87, Issue 29
> >  
> > Send blindkid mailing list submissions to
> >   blindkid at nfbnet.org
> >  
> > To subscribe or unsubscribe via the World Wide Web, visit
> >   http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > or, via email, send a message with subject or body 'help' to
> >   blindkid-request at nfbnet.org
> >  
> > You can reach the person managing the list at
> >   blindkid-owner at nfbnet.org
> >  
> > When replying, please edit your Subject line so it is more specific
> > than "Re: Contents of blindkid digest..."
> >  
> >  
> > Today's Topics:
> >  
> >    1. Fwd: Rubin Museum Verbal Description and Touch tour:
> >       Thursday, August 18 (Carol Castellano)
> >  
> >  
> > ----------------------------------------------------------------------
> >  
> > Message: 1
> > Date: Sat, 30 Jul 2011 14:42:04 -0400
> > From: Carol Castellano <carol_castellano at verizon.net>
> > To: blindkid at nfbnet.org
> > Subject: [blindkid] Fwd: Rubin Museum Verbal Description and Touch
> >   tour: Thursday, August 18
> > Message-ID: <406393.39865.qm at smtp102.vzn.mail.bf1.yahoo.com>
> > Content-Type: text/plain; charset="iso-8859-1"; Format="flowed"
> >  
> > Hi Everyone,
> >  
> > Passing along info about what sounds like a very
> > interesting verbal & touch exhibit for people in the NYC area.
> >  
> > Carol
> >  
> > >Subject: Rubin Museum Verbal Description and Touch tour: Thursday, August
> > 18
> > >Thread-topic: Rubin Museum Verbal Description and Touch tour: Thursday,
> > >  August 18
> > >
> > >Hello all, I am delighted to invite you to
> > >explore our brand new exhibition, Pilgrimage and
> > >Faith: Buddhism, Christianity and Islam through
> > >touch and verbal description. A full description
> > >of this tour follows, please help us spread the
> > >word by forwarding to anyone who may be
> > >interested. Please let me know if you have any
> > >questions, and I hope to welcome you to the museum soon!
> > >Sincerely,
> > >Louise.
> > >
> > >VERBAL DESCRIPTION AND TOUCH TOUR
> > >Pilgrimage and Faith
> > >Thursday, August 18, 2011
> > >2:00?3:30 pm
> > >
> > >This tour will take visitors on a journey
> > >through the culture, history, religion, and art
> > >of the Himalayas. Using highly detailed verbal
> > >descriptions of works of art and touch objects,
> > >including sculptures, art materials, woodblocks,
> > >and ritual implements, museum guides help
> > >participants form visualizations of art in the museum?s collection.
> > >
> > >Reservations for this program are recommended as
> > >space is limited. Please contact the Group
> > >Reservations office at 212.620.5000 x345 or
> > ><mailto:reservations at rmanyc.org>reservations at rmanyc.org to secure your
> > place.
> > >
> > >
> > >[]
> > >
> > >
> > >
> > >
> > >
> > >
> >  
> > Carol Castellano
> > Director of Programs
> > National Organization of Parents of Blind Children
> > 973-377-0976
> > carol_castellano at verizon.net
> > www.nopbc.org
> > -------------- next part --------------
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> >  
> > ------------------------------
> >  
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> >  
> > End of blindkid Digest, Vol 87, Issue 29
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> > ------------------------------
> > 
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> > blindkid at nfbnet.org
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