[blindkid] (no subject)

Julie Yanez jyanez112 at gmail.com
Thu Aug 16 04:33:54 UTC 2012


I know this will all be new to me as well. I need baby steps. My brat is
very happy where she is, with all her friends. But I do want more for her.
Especially with childhood coming to a close and young adulthood around the
corner. As a mom to a blind child, it kills me on the small things that I
know she won't experience due to loss of sight. But not a day goes by where
she doesn't amaze me more then the day before.

I'd love to share this picture with you all of my pretty and I from last
week. Her first day of 5th grade:)
On Aug 15, 2012 7:16 PM, "Brandy W" <ballstobooks at gmail.com> wrote:

> I believe there are a few family camps, but honestly it wouldn't be the
> same. Every kid goes away for sleep away camp at some point, and although
> it
> is hard it really is a great growing experience. It would be best if you
> could find 1 good friend and they could both go to a camp together or
> something like that. You may be able to find a day camp, but it may involve
> you both traveling for a week.
>
>
>
> "To learn to read is to light a fire; every syllable that is spelled out is
> a spark."
> - Victor Hugo
>
> Brandy Wojcik  Discovery Toys Educational Consultant and Team leader
> (512) 689-5045
> www.playtoachieve.com
> Follow me on Face Book at
> http://www.facebook.com/PlayToAchieve.DiscoveryToys
>
> Read my new blog at www.playtoachieveballstobooks.wordpress.com
>
> Looking forward to helping you with your educational toy needs!
>
>
> -----Original Message-----
> From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
> Behalf Of Julie Yanez
> Sent: Wednesday, August 15, 2012 10:08 PM
> To: Blind Kid Mailing List, (for parents of blind children)
> Subject: Re: [blindkid] (no subject)
>
> Are there camps or retreats that are for parent as well? My brat won't be
> ok
> leaving me for more then a day. I wouldn't want her to go and feel like I
> left her or have her shut down since she's out of her element.
> On Aug 15, 2012 7:05 PM, "Sally Thomas" <seacknit at gmail.com> wrote:
>
> > Since blindness is such a low incidence disability, finding other
> > blind kids close by is tough in most places.  Finding blind kids that
> > your daughter "clicks" with is even tougher.  What worked best for us
> > was traveling to conferences and sending our son to camp/Buddy
> > Program.  At these places he met lots of blind kids.  He saw that some
> > of them had good training and were independent and he learned what it
> > means to not have good blindness skills but the best part has been
> > that he was able to choose among various kids the ones that he
> > "clicked" with.  It certainly is time consuming and expensive but it
> > worked best for us.  Now that he has a network of blind friends, he is
> > able to keep up with them on Skype, Facebook, etc.
> >
> > Sally Thomas
> >
> > On Thu, Aug 16, 2012 at 9:53 AM, Julie Yanez <jyanez112 at gmail.com>
> wrote:
> >
> > > Up until now, my focus has been on her and pushing her so she never
> > > felt behind. Thankfully she is a proud young lady. But along the way
> > > I didn't realize she was isolated from other blind children because
> > > of my want for her to feel "normal". She's no stranger to "being
> > > different". Her best friend is a heart transplant recipient and has
> > > several medical needs. The two vent to one another about "how much Dr
> appointments suck":).
> > > But now that she's pre-teen, I'm lost. As a parent I'm lost. It's
> > difficult
> > > to explain the changes in her body and understand what I'm gonna
> > > have to
> > do
> > > when "that time of mother nature" comes. I would love to be able to
> > > talk
> > to
> > > other moms and see what worked, what didn't ect. And let my daughter
> > > hear it from another blind woman of what she had to do to prepare.
> > > That
> > absolute
> > > last thing I ever want to do is enable her.
> > > So for me, its baby steps. Find other parents. Expose her to others
> > > kids like her and just hope its beneficial. I've never treated her
> impaired.
> > So
> > > as a result to that, she's very independent.
> > > I thank you all for the amazing advise. I've sent out emails, made
> > > calls and now I guess I just wait. Every group seems to be a link to
> > > this, link to that, follow this, register here. And yada yada. Very
> > > few actually person contacts.
> > > On Aug 15, 2012 6:25 PM, "Heather Field" <missheather at comcast.net>
> > wrote:
> > >
> > > > Hello Julie,
> > > > The most likely people to know about other blind children in your
> > > > area
> > > are
> > > > the teachers of blind students (tbs's). Have you tried asking them
> > > > to
> > > pass
> > > > your contact info on to other parents of same-age/grade blind
> > > > children
> > in
> > > > your area? Sometimes they are willing to help parents connect in
> > > > order
> > > for
> > > > their blind children to have blind friends. If they aren't willing
> > > > you
> > > may
> > > > also try your Special Education Director in the school district.
> > > Sometimes
> > > > they are willing to help.
> > > >
> > > > I applaud you for trying to organise time with other blind
> > > > children for your daughter. By and large sighted people hold to a
> > > > deficit model of blindness. I.E. that blind children/people are
> > > > "broken" sighted people because they have one less sense with which
> to
> interact with the world.
> > > It
> > > > is a rare sighted school friend who truly pursues an active, equal
> > > > and lively friendship with a blind child; it does happen but much
> > > > less than
> > > we
> > > > would hope.
> > > >
> > > > Spending time with other blind children, and competent blind
> > > > adults as well for that matter, can be highly beneficial in
> > > > helping your daughter
> > > to
> > > > reject the concept of herself as an incomplete, somehow less-able
> > person
> > > > because she's blind. As she meets and hears about blind people who
> > > > do
> > > all
> > > > the normal life things that everyone does -- blind or sighted --
> > > > then
> > it
> > > is
> > > > empowering and encouraging for her.
> > > >
> > > > If you have no luck with either of these suggestions please let us
> > > > know
> > > on
> > > > the list and we'll make some personal calls and see what we can do
> > > > for
> > > you.
> > > >
> > > > Warmest regards,
> > > > Heather field
> > > >
> > > > -----Original Message----- From: Julie Yanez
> > > > Sent: Wednesday, August 15, 2012 7:08 PM
> > > > To: Blind Kid Mailing List,(for parents of blind children)
> > > > Subject: Re: [blindkid] (no subject)
> > > >
> > > > A pen pal would be nice. But I would like for her to have come
> > > > kind of interaction or activity group. A break from braille and
> > > > just enjoy
> > being
> > > a
> > > > kiddo.
> > > > On Aug 15, 2012 4:59 PM, "Kayleigh Joiner" <kayleigh281 at yahoo.com>
> > > wrote:
> > > >
> > > >  Here is the link for the slate pals program:
> > > >> http://www.nfb.org/nopbc-**slate-pals<
> > > http://www.nfb.org/nopbc-slate-pals>
> > > >>
> > > >> On Wed, Aug 15, 2012 at 5:41 PM, Julie Yanez
> > > >> <jyanez112 at gmail.com>
> > > wrote:
> > > >>
> > > >> > We are in the inland empire area. Not far from Loma Linda
> > > >> > Children's Hospital. Most of the programs locally are for
> > > >> > adult. Not many kids
> > > with
> > > >> > impairments close or semi-close. Everything I seem to find in
> > > >> > LA
> > > based.
> > > >> > On Aug 15, 2012 3:34 PM, "Brandy W" <ballstobooks at gmail.com>
> wrote:
> > > >> >
> > > >> > > There is actually a slate pals program for just that. You
> > > >> > > could
> > > >> probably
> > > >> > > get
> > > >> > > a couple of same aged kids to write her. Also is there a
> > commission
> > > or
> > > >> > > parents of blind children in your area? Maybe a light house
> > > >> > > for
> > the
> > > >> > blind?
> > > >> > > I
> > > >> > > ask because all of these organizations often have activities
> > > >> > > for
> > > blind
> > > >> > > children.
> > > >> > >
> > > >> > > Bran
> > > >> > >
> > > >> > >
> > > >> > >
> > > >> > >
> > > >> > > "To learn to read is to light a fire; every syllable that is
> > spelled
> > > >> out
> > > >> > is
> > > >> > > a spark."
> > > >> > > - Victor Hugo
> > > >> > >
> > > >> > > Brandy Wojcik  Discovery Toys Educational Consultant and Team
> > leader
> > > >> > > (512) 689-5045
> > > >> > > www.playtoachieve.com
> > > >> > > Follow me on Face Book at
> > > >> > > http://www.facebook.com/**PlayToAchieve.DiscoveryToys<
> > > http://www.facebook.com/PlayToAchieve.DiscoveryToys>
> > > >> > >
> > > >> > > Read my new blog at
> > > >> > > www.playtoachieveballstobooks.**wordpress.com
> > <
> > > http://www.playtoachieveballstobooks.wordpress.com>
> > > >> > >
> > > >> > > Looking forward to helping you with your educational toy needs!
> > > >> > >
> > > >> > >
> > > >> > > -----Original Message-----
> > > >> > > From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces@**
> > > >> nfbnet.org <blindkid-bounces at nfbnet.org>]
> > > >> > On
> > > >> > > Behalf Of Julie Yanez
> > > >> > > Sent: Wednesday, August 15, 2012 6:11 PM
> > > >> > > To: Blind Kid Mailing List, (for parents of blind children)
> > > >> > > Subject: Re: [blindkid] (no subject)
> > > >> > >
> > > >> > > Darci,
> > > >> > > She's does. She's pretty fluent in braille, contracted and
> > > >> iuncontracted.
> > > >> > > That would be amazing. Nautica just entered 5th.
> > > >> > > On Aug 15, 2012 3:09 PM, "Darcirae Hooks"
> > > >> > > <draehooks at yahoo.com>
> > > >> wrote:
> > > >> > >
> > > >> > > > Does she read Braille? Caiden is going into 4th grade and
> > > >> > > > would
> > >
> > > >
> > > >> > write
> > > >> > > > letters in Braille.
> > > >> > > > Let me know.
> > > >> > > > Darci Hooks
> > > >> > > >
> > > >> > > > Sent from my iPhone
> > > >> > > >
> > > >> > > > On Aug 15, 2012, at 17:16, Julie Yanez
> > > >> > > > <jyanez112 at gmail.com>
> > > wrote:
> > > >> > > >
> > > >> > > > > I just found out about them a few days ago. But right now
> > > >> > > > > I
> > seem
> > > >> > > > > to
> > > >> > > > > be getting the run-a-round with emails and contacts.
> > Everything
> > > I
> > > >> > > > > get back
> > > >> > > > is
> > > >> > > > > "check out this site...", "call this #...". And nothing
> > > >> > > > > is
> > > getting
> > > >> > > > > me anywhere or to anyone that is helpful. It's becoming
> > > >> > > > > very discouraging
> > > >> > > > and
> > > >> > > > > frustrating that its so hard to contact a human being and
> > > >> > > > > not
> > an
> > > >> > > > > email or random # of someone that "will get back to me
> > > >> > > > > with
> > more
> > > >> > > information".
> > > >> > > > > On Aug 15, 2012 2:08 PM, "David Andrews"
> > > >> > > > > <dandrews at visi.com>
> > > >> wrote:
> > > >> > > > >
> > > >> > > > >>    You might want to join the nfb of California list,
> > > >> > > > >> and ask
> > > >> there:
> > > >> > > > >>
> > > >> > > > >>
> > http://www.nfbnet.org/mailman/****listinfo/nfbc-info_nfbnet.**
> > > >> org
> > > >> <http://www.nfbnet.org/mailman/**listinfo/nfbc-info_nfbnet.org><
> > > >> > > > http://www.nfbnet.org/mailman/**listinfo/nfbc-info_nfbnet.o
> > > >> > > > rg<
> > > http://www.nfbnet.org/mailman/listinfo/nfbc-info_nfbnet.org>
> > > >> >
> > > >> > > > >>
> > > >> > > > >> Dave
> > > >> > > > >>
> > > >> > > > >>
> > > >> > > > >> On 8/15/2012 2:28 PM, Julie Yanez wrote:
> > > >> > > > >>
> > > >> > > > >>> my daughter is in need of peers with visual implements.
> > She's
> > > 10
> > > >> > > > >>> and
> > > >> > > > is in
> > > >> > > > >>> 5th grade. She was born premee and suffered ROP amongst
> > other
> > > >> > issues.
> > > >> > > > We
> > > >> > > > >>> live in the inland empire area of so cal. She's never
> > > >> > > > >>> really
> > > >> > > > encountered
> > > >> > > > >>> anyone who is also blind. Does anyone know of any local
> > > >> > > > >>> or
> > > semi
> > > >> > > > >>> local groups?
> > > >> > > > >>>
> > > >> > > > >>> Thank you, Julie.
> > > >> > > > >>> ______________________________****_
> > > >> > > > >>>
> > > >> > > > >>
> > > >> > > > >>
> > > >> > > > >> ______________________________****_________________
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> > > ai>
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> > > >> > > > >
> > > >> > > > >>
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