[blindkid] question about possible symptoms

[Mark Feliz]

Hi Lynda,

I have typically seen Isaac's symptoms in students' having visual
migraines or a drop in their ocular pressure. Right around age 14,
with all those wacky body changes, sometimes visual migraines show up
for a time. However, if there is a drop in eye pressure then there is
a risk of a retinal detachment. Your glaucoma doctor is, I am sure,
watching for this. Sounds like you are doing all you should be. Hang
in there.
Mark Feliz

On 4/3/13, Cynthia Davis <cdfiets at gmail.com> wrote:
> Oh, Lynda, I'm so sorry to learn that Isaac is having these episodes.  Being
> 14 is hard enough on kids (and moms!) that this is not a very pleasant
> intrusion onto the entire scene.  It certainly sounds as though you are
> tapping all the resources, and the NFB listserv is surely one of the best
> out there.
>
> That said, I'll mention that Jack (coloboma, nystagmus, esotropia) has
> episodes of sudden pain and blacking out or darkening of the vision.  In his
> case, the doctors first have to rule out a detached retina.  But, in the
> absence of that, thank God, they have only been able to suggest it could be
> ophthalmic migraines.  This has happened every few months for a couple of
> years, and this is all we have come up with so far.
>
> I hope Isaac's condition is temporary and reverses.   I know you are
> well-connected medically.  Please keep us informed.
>
> Much love to you and your family,
> Cynthia Davis
>
>
>
> On Apr 3, 2013, at 11:50 AM, Lynda Zwinger wrote:
>
>> thanks, Julie--Yes, he's being monitored by his glaucoma specialist, and
>> he's the first doctor we called.  He's going to find us someone who will
>> do
>> an ultrasound of the eye area to see if something else is going on as
>> well.
>>
>> Lynda
>>
>> On Wed, Apr 3, 2013 at 9:52 AM, Julie Yanez <jyanez112 at gmail.com> wrote:
>>
>>> Has the pressure been measured? With my daughter, when her eye pressure
>>> rises, she gets headaches and dizziness as well.
>>> On Apr 3, 2013 9:50 AM, "Lynda Zwinger" <lyndaz918 at gmail.com> wrote:
>>>
>>>> Good morning everyone,
>>>>
>>>> I'm writing to ask if anyone recognizes some symptoms my son has been
>>>> having.  We do have him lined up with three doctors (and counting,
>>>> lol),
>>>> but parents have always been my "go-to" when I need to start figuring
>>>> things out.
>>>>
>>>> My 14-year old (yikes! how did that happen?) son's blindness is of
>>> unknown
>>>> origin, though we do know he has glaucoma (he's taking drops for it).
>>>> He
>>>> has significant corneal scarring (also unknown origin) and some
>>>> physical
>>>> anomalies in the part of the eyes that his doctors have been able to
>>>> look
>>>> at (the scarring is an obstruction).
>>>>
>>>> He's had two episodes now, very brief ones a couple of weeks apart, of:
>>>> sharp pain in one eye (his "good" one which has a little sight)
>>> accompanied
>>>> by a very brief blackout of vision (like when you stand up too suddenly
>>>> sometimes--but he hasn't been changing positions in either episode),
>>>> and
>>>> mild dizziness. No headache.
>>>>
>>>> I'm not one to worry over every little thing, and this may be one of
>>> those,
>>>> but it's twice now, so I'm on the scent.
>>>>
>>>> Is this kind of thing familiar to anyone?
>>>>
>>>> thanks very much,
>>>> Lynda
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