[blindkid] an update on Joey

[Barbara Hammel]

Tuesday, I am so sorry to hear this.  I have known a few children--during my 
childhood--who had this, too.
Take care.
Barbara




Writing free verse is like playing tennis with the net down.--Robert Frost
-----Original Message----- 
From: *2sday*
Sent: Thursday, April 18, 2013 11:06 AM
To: blindkid at nfbnet.org
Subject: [blindkid] an update on Joey

Hello everyone ...

   I just wanted to send out an update on our little Joey. We recently 
traveled from Cincinnati to Cleveland to get a second opinion from the 
Retina specialist there. When we saw him he reviewed Joey's records and told 
us that he was certain that Joey had Battens Disease. We had gone down this 
road before and thought we had this ruled out. Once back in Cincinnati we 
had some blood work done and got the results back two days ago. It breaks my 
heart to say that Joey does in fact have have Battens Disease. We will be 
getting the other kids tested soon as they have a chance to have this horrid 
disease as well.

I just want to thank you all for your emails and responses in the past. Our 
family really appreciates it!

If any of you are on Facebook and would like to follow our Journey dealing 
with Battens please like our page.

https://www.facebook.com/pages/Joeys-Journey/228150847322850?ref=tn_tnmn


Our goal is to raise awareness about Battens disease.


thank you,

Tuesday & Family
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