[blindkid] blindkid Digest, Vol 123, Issue 9
Penny Duffy
pennyduffy at gmail.com
Sun Jul 13 00:20:14 UTC 2014
I wrote a more detailed message to you directly but please know I am sorry
you felt hurt over anything that happened in the past.
YOU ARE WELCOME in the NOPBC.
-Penny Duffy
NOPBC National Board Member and President of the NH Parents of Blind
Children.
On Sat, Jul 12, 2014 at 7:01 PM, Lalena Fayre via blindkid <
blindkid at nfbnet.org> wrote:
> First I have to admit, I'm struggling with how to reply to individual
> messages that posted on this list. So any tips on how to do that is great!
>
> At first I was going to let most of the well-intended messages slide by. I
> didn't want to explain in detail why many of the suggestions and thoughts
> are just wrong. Worse some of the responses were just so inaccurate about
> how the national organization responds. But with Barbara's response in
> particular (and many of you who sent me private messages) I just have to
> respond more.
>
> So my son has no visual acuity. He is totally blind. He was adopted at the
> age of 5. At that time he had a development level of a 3-6 month old
> children. We knew of his blindness and due to my ex being blind, our
> experience in NFB, my ex working at CCB, attending multiple conventions,
> etc, I had few fears of his blindness and didn't have the misconception
> that blindness would hold him back in any way.
>
> I agree that for some families it is very possible for a school district to
> discriminate against blind children and even more so against multiple
> handicap children who are also blind. This hasn't been the case with my
> son. He is in a Braille enriched environment. I wouldn't allow him to be
> otherwise. I wanted my son to "play" with the Perkins brailler. I wanted
> him to use the old Library of Congress tape recorders. I wanted him to have
> a cane. So I am not going to jump on the NFB bandwagon that of course the
> educational system is against blind children and keeping them illiterate.
> And honestly that has nothing at all to do with my original post.
>
> My post is about the programs of the NOPBC and the NFB. My post is about
> the shadow the MAJORITY of multiple handicap blind children are kept in by
> the very advocacy group that should be shining a light on them. As multiple
> people have stated, the MAJORITY of blind children now have multiple
> handicaps yet as I said the majority of programs, conference seminars,
> conference child care, etc. is geared toward fully functioning blind
> children. I'm not saying that there is no benefit to the general seminars.
> But I can't tell you how frustrating it is to sit in a seminar about your
> child going to college, or increasing age appropriate independent travel,
> etc.. I might as well sit there and cry feeling as if no one understands
> what it's like to have an 11 year old who is developmentally 3. Where are
> seminars on long-term care for your child? Finding places where your
> heavily disabled child can have independence? Things along those lines.
>
> And I hear the response - the NOPBC is a volunteer group, start your own
> group, start your own activities, etc. But talk about victim blaming. I
> throw my hands up in exasperation because how in the world can I find time
> to do that when I need to provide 24-hour care for my child? How can I
> start another branch of NOPBC when I'm dealing with life as a parent to a
> 11 year old who is developmentally 3?
>
> I love my son and I advocate for my son like no one's business. I have
> barked up many trees and been the squeakiest wheel possible, and it's
> worked. There are strides that have been made but the social isolation is
> what kills me the most. It is that need to belong and feel as if I have
> people in my corner who understand what it's like on a daily basis.
>
> I don't want the stares or the "tsk tsk" response when I ask for 1:1
> assistance for my son to participate in activities to the best of his
> ability. I don't want someone to tell me that I should have my son in a
> quiet corner when he needs it but basically be ignored the rest of the
> time. I don't want the stares when I go to a NFB or NOPBC convention. I
> don't want my son to be looked down upon because he isn't a fully
> independent blind child. I don't want to hear the gasps when I ask if he
> can have 1:1 supervision and hand-over-hand assistance. I don't want to be
> lectured as if it's my attitude or lack of Foundation philosophy that is
> the problem. I don't want to be treated as if I'm just another "sighty"
> parent who doesn't understand blindness and thinks that blind people should
> be coddled.
>
> All of these things are wrong. Totally wrong. But based upon past
> experience and reading the organization's materials, the problem isn't that
> there is a blind spot (forgive the pun) in the organization, it's that
> there is a problem with me.
>
> I feel empowered that I'm not alone. That I'm not the only parent of a
> multi-disable blind child who has felt this scorn. And I don't think the
> solution is to just leave and make your own organization, I think the
> solution is for the national office to focus on issues of multiple
> disabilities and blindness.
>
> I'm sure I've angered some of you. Seemed like a ranting lunatic but well,
> I'm human and I hope that my rant might just dislodge this notion that I'm
> not educated on philosophy, unaware that this is a volunteer organization,
> or haven't read enough books yet.
>
> Peace and love.
>
>
> On Thu, Jul 10, 2014 at 5:00 AM, <blindkid-request at nfbnet.org> wrote:
>
> > Send blindkid mailing list submissions to
> > blindkid at nfbnet.org
> >
> > To subscribe or unsubscribe via the World Wide Web, visit
> > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > or, via email, send a message with subject or body 'help' to
> > blindkid-request at nfbnet.org
> >
> > You can reach the person managing the list at
> > blindkid-owner at nfbnet.org
> >
> > When replying, please edit your Subject line so it is more specific
> > than "Re: Contents of blindkid digest..."
> >
> >
> > Today's Topics:
> >
> > 1. Re: More than just blindness (Bernadette Jacobs)
> > 2. Re: More than just blindness (Barbara Hammel)
> > 3. Re: More than just blindness (Penny Duffy)
> > 4. Re: More than just blindness (Robert Jaquiss)
> > 5. Re: More than just blindness (Bernadette Jacobs)
> > 6. Re: More than just blindness (Barbara HAMMEL)
> >
> >
> > ----------------------------------------------------------------------
> >
> > Message: 1
> > Date: Wed, 09 Jul 2014 09:46:04 -0400
> > From: Bernadette Jacobs <bernienfb75 at gmail.com>
> > To: Ashley Bramlett <bookwormahb at earthlink.net>, "Blind Kid Mailing
> > List, \(for parents of blind children\)" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] More than just blindness
> > Message-ID: <53BD479C.4080904 at gmail.com>
> > Content-Type: text/plain; charset=ISO-8859-1; format=flowed
> >
> > Dear Blind Parent!!!
> >
> > I have no idea who you are. But if only you knew how I feel your
> > pain!!! I feel your pain to the very depth of my very soul!!! Can't
> > very well keep myself a secret though. Everyone here who knows me is
> > going to know who's the culprit for these words here, so I might just as
> > well let it all out now!!
> >
> > My husband and I, too, have a blind, autistic, non-verbal son with
> > multiple delays whom we adopted from China. We also have an
> > eleven-year-old daughter who was adopted from Thailand. Seeing this
> > post, I simply can't hold back any longer. The world waits in line for
> > whenever it's their turn to take our daughter for an an afternoon, day,
> > weekend, week, or whatever. Yet, when we bring both our children
> > somewhere, she's welcome with open arms. As for our son, nobody ever
> > breathes a word. But, the implication speaks louder than words ever
> > will. I can pick out the people, in fact. "Too bad we can't find some
> > place for the family dog..." Believe me, Darling. Nobody knows your
> > pain better than my husband and I. It's never what they say, because
> > they try as hard as they might to be discrete. Believe me!! It's what
> > they don't say Darling!! Hurts your heart. Huh??? I don't wish this
> > hurt on my worst enemy Darling!! Believe me, I don't!! Between a group
> > of us, we "thought" we had everything sewed up with a very competent
> > caregiver who, I'm sure, tried to lovingly care for our son and there
> > was an episode which took place at our state convention and when my
> > husband and I both inquired, people in charge, refused to give us any
> > information. I didn't feel I was out of place trying to find out what
> > happened. After all, I'm only his mother??? When I inquired the day
> > after state convention was over, there was only a lame effort to sweep
> > it under the rug with a "TEXT." This upset me even worse. From that
> > moment on, I spent the rest of the day writing a letter which I have in
> > the bowels of my computer which I never yet sent out. Yes, it's a
> > resignation letter from our state NOPC board. I never sent it out yet.
> > But, might as well now.
> >
> > I have another very, very good friend who keeps telling me she'll never
> > come to any activities because she's so afraid of the very same things
> > we've encountered here. She keeps telling me, "I just don't know how
> > you do it... I couldn't bear that hurt in my heart for my son. I
> > couldn't stand my heart being crushed like that. How do you do it???"
> > Truth is, Darling, there some days I truly do feel absolutely crushed.
> > Yes, my only cleansing is to cry. Believe me!! Because if anyone wants
> > to participate and be in the middle of activity it's him. If only you
> > could see him jump up and down with that huge round grin across that
> > little round face and hear that infectious belly-laugh!! Squealing,
> > laughing, jumping up and down? The whole scenario is absolutely
> > infectiously unforgetable!! What a perfect picture!! Guess ya have to
> > be there to get it. But believe me. It's there. We have one friend
> > who sat next to him, the last morning of our state convention and he
> > spent almost the entire time kissing her hands because he knows how much
> > she just loves him. And he loves her that much and more. It was
> > absolutely priceless.
> >
> > Whoever you are, you're most welcome to write me "offlist" and we can
> > engage in further dialog. It just warms my heart to know that my
> > husband and I are not alone. If only you knew!!
> >
> > Bernie
> > On 7/7/2014 2:07 AM, Ashley Bramlett via blindkid wrote:
> > > Lalena,
> > > I've been lurking a little while and will intro myself soon after most
> > > of the list get back from convention.
> > > I'm actually the child; grown now and career exploring, and my parents
> > > are sighted.
> > >
> > >
> > > I agree with you. There are not enough resources for addressing the
> > > needs of multiple disabled kids and yes the NFB focusses on bright
> > > normal developing kids. But many blind kids have multiple disabilities.
> > >
> > > You raise some concerns which I'm sure others deal with. So your kid
> > > is completely blind? like no vision even of close up objects?
> > > How far delayed is he? how old? Where do you live? is bay area ca?
> > >
> > > What are the issues with braille reading? Perhaps with more info
> > > someone may be able to help.
> > >
> > > I've seen those communication devices with pictures. Will he ever
> > > speak with intervention, or is this permanent?
> > > Does your TVI not have ideas? I mean, surely she or he has encountered
> > > nonverbal blind kids before.
> > > Maybe he can hold up objects to communicate to start with. For
> > > instance, toy food can mean hungry and a common bathroom object like a
> > > towel can mean needs to go to the bathroom.
> > >
> > > I'll also write off list with some more thoughts.
> > >
> > > Ashley
> > > -----Original Message----- From: Lalena Fayre via blindkid
> > > Sent: Monday, June 30, 2014 10:19 AM
> > > To: blindkid at nfbnet.org
> > > Subject: [blindkid] More than just blindness
> > >
> > > As I read through my latest issue of Future Reflections, I was struck
> > > with
> > > a further sense of isolation. The same holds true when I read this
> > > listserv
> > > and review the agenda of the upcoming national conference.
> > >
> > > My son is totally blind with multiple other disabilities - nonverbal
> and
> > > global developmental delays that impact every area. I'm fortunate to
> > > have a
> > > good foundation and understanding of blindness education. But when you
> > > add
> > > the other issues to the blindness, one is struck with how much
> blindness
> > > complicates things. For example, typical adaptive communication
> > > devices are
> > > vision based. Another, pre-Braille work is important but after 3 years
> of
> > > it and no significant progress made, you are forced to deal with
> > > functional
> > > skill development which the therapist don't know how to do with a blind
> > > child, let allow a blind cognitively delayed child.
> > >
> > > I turn to the NFB for support and resources, yet publications are full
> of
> > > typically developed children who happen to be blind. I call my local
> > > organizations here in the bay area (which I know are inline with NFB
> > > philosophy) looking for social opportunities for my son, but he can't
> > > participate because of his developmental delays.
> > >
> > > At the end of the day I'm left wondering......am I the only parent of a
> > > child with multiple disabilities, developmental delays, AND blindness?
> > > Are
> > > the majority of blind child typically developed? And where do I turn
> > > for a
> > > network of parents who may understand?
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bookwormahb%40earthlink.net
> > >
> > >
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
> > >
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 2
> > Date: Wed, 9 Jul 2014 09:01:48 -0500
> > From: "Barbara Hammel" <poetlori8 at msn.com>
> > To: "Bernadette Jacobs" <bernienfb75 at gmail.com>, "Blind Kid Mailing
> > List, \(for parents of blind children\)" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] More than just blindness
> > Message-ID: <SNT148-DS7B33297FE31F99A4FF55BEB0F0 at phx.gbl>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=response
> >
> > Bernie, you make me want to cry. You have aptly worded the same
> feelings I
> > have. Imagine the only time you feel like a "normal" parent is when your
> > kids are the only ones in the hotel pool and you and your husband are in
> > the
> > hot tub watching them jump around and spin around and laugh with no one
> > there to ignore them or goo on the sympathy. Everyone is afraid of your
> > child(ren) like they are monsters or something.
> > Barbara
> >
> >
> >
> >
> > Writing free verse is like playing tennis with the net down.--Robert
> Frost
> > -----Original Message-----
> > From: Bernadette Jacobs via blindkid
> > Sent: Wednesday, July 09, 2014 8:46 AM
> > To: Ashley Bramlett ; Blind Kid Mailing List,(for parents of blind
> > children)
> > Subject: Re: [blindkid] More than just blindness
> >
> > Dear Blind Parent!!!
> >
> > I have no idea who you are. But if only you knew how I feel your
> > pain!!! I feel your pain to the very depth of my very soul!!! Can't
> > very well keep myself a secret though. Everyone here who knows me is
> > going to know who's the culprit for these words here, so I might just as
> > well let it all out now!!
> >
> > My husband and I, too, have a blind, autistic, non-verbal son with
> > multiple delays whom we adopted from China. We also have an
> > eleven-year-old daughter who was adopted from Thailand. Seeing this
> > post, I simply can't hold back any longer. The world waits in line for
> > whenever it's their turn to take our daughter for an an afternoon, day,
> > weekend, week, or whatever. Yet, when we bring both our children
> > somewhere, she's welcome with open arms. As for our son, nobody ever
> > breathes a word. But, the implication speaks louder than words ever
> > will. I can pick out the people, in fact. "Too bad we can't find some
> > place for the family dog..." Believe me, Darling. Nobody knows your
> > pain better than my husband and I. It's never what they say, because
> > they try as hard as they might to be discrete. Believe me!! It's what
> > they don't say Darling!! Hurts your heart. Huh??? I don't wish this
> > hurt on my worst enemy Darling!! Believe me, I don't!! Between a group
> > of us, we "thought" we had everything sewed up with a very competent
> > caregiver who, I'm sure, tried to lovingly care for our son and there
> > was an episode which took place at our state convention and when my
> > husband and I both inquired, people in charge, refused to give us any
> > information. I didn't feel I was out of place trying to find out what
> > happened. After all, I'm only his mother??? When I inquired the day
> > after state convention was over, there was only a lame effort to sweep
> > it under the rug with a "TEXT." This upset me even worse. From that
> > moment on, I spent the rest of the day writing a letter which I have in
> > the bowels of my computer which I never yet sent out. Yes, it's a
> > resignation letter from our state NOPC board. I never sent it out yet.
> > But, might as well now.
> >
> > I have another very, very good friend who keeps telling me she'll never
> > come to any activities because she's so afraid of the very same things
> > we've encountered here. She keeps telling me, "I just don't know how
> > you do it... I couldn't bear that hurt in my heart for my son. I
> > couldn't stand my heart being crushed like that. How do you do it???"
> > Truth is, Darling, there some days I truly do feel absolutely crushed.
> > Yes, my only cleansing is to cry. Believe me!! Because if anyone wants
> > to participate and be in the middle of activity it's him. If only you
> > could see him jump up and down with that huge round grin across that
> > little round face and hear that infectious belly-laugh!! Squealing,
> > laughing, jumping up and down? The whole scenario is absolutely
> > infectiously unforgetable!! What a perfect picture!! Guess ya have to
> > be there to get it. But believe me. It's there. We have one friend
> > who sat next to him, the last morning of our state convention and he
> > spent almost the entire time kissing her hands because he knows how much
> > she just loves him. And he loves her that much and more. It was
> > absolutely priceless.
> >
> > Whoever you are, you're most welcome to write me "offlist" and we can
> > engage in further dialog. It just warms my heart to know that my
> > husband and I are not alone. If only you knew!!
> >
> > Bernie
> > On 7/7/2014 2:07 AM, Ashley Bramlett via blindkid wrote:
> > > Lalena,
> > > I've been lurking a little while and will intro myself soon after most
> of
> > > the list get back from convention.
> > > I'm actually the child; grown now and career exploring, and my parents
> > are
> > > sighted.
> > >
> > >
> > > I agree with you. There are not enough resources for addressing the
> needs
> > > of multiple disabled kids and yes the NFB focusses on bright normal
> > > developing kids. But many blind kids have multiple disabilities.
> > >
> > > You raise some concerns which I'm sure others deal with. So your kid is
> > > completely blind? like no vision even of close up objects?
> > > How far delayed is he? how old? Where do you live? is bay area ca?
> > >
> > > What are the issues with braille reading? Perhaps with more info
> someone
> > > may be able to help.
> > >
> > > I've seen those communication devices with pictures. Will he ever speak
> > > with intervention, or is this permanent?
> > > Does your TVI not have ideas? I mean, surely she or he has encountered
> > > nonverbal blind kids before.
> > > Maybe he can hold up objects to communicate to start with. For
> instance,
> > > toy food can mean hungry and a common bathroom object like a towel can
> > > mean needs to go to the bathroom.
> > >
> > > I'll also write off list with some more thoughts.
> > >
> > > Ashley
> > > -----Original Message----- From: Lalena Fayre via blindkid
> > > Sent: Monday, June 30, 2014 10:19 AM
> > > To: blindkid at nfbnet.org
> > > Subject: [blindkid] More than just blindness
> > >
> > > As I read through my latest issue of Future Reflections, I was struck
> > with
> > > a further sense of isolation. The same holds true when I read this
> > > listserv
> > > and review the agenda of the upcoming national conference.
> > >
> > > My son is totally blind with multiple other disabilities - nonverbal
> and
> > > global developmental delays that impact every area. I'm fortunate to
> have
> > > a
> > > good foundation and understanding of blindness education. But when you
> > add
> > > the other issues to the blindness, one is struck with how much
> blindness
> > > complicates things. For example, typical adaptive communication devices
> > > are
> > > vision based. Another, pre-Braille work is important but after 3 years
> of
> > > it and no significant progress made, you are forced to deal with
> > > functional
> > > skill development which the therapist don't know how to do with a blind
> > > child, let allow a blind cognitively delayed child.
> > >
> > > I turn to the NFB for support and resources, yet publications are full
> of
> > > typically developed children who happen to be blind. I call my local
> > > organizations here in the bay area (which I know are inline with NFB
> > > philosophy) looking for social opportunities for my son, but he can't
> > > participate because of his developmental delays.
> > >
> > > At the end of the day I'm left wondering......am I the only parent of a
> > > child with multiple disabilities, developmental delays, AND blindness?
> > Are
> > > the majority of blind child typically developed? And where do I turn
> for
> > a
> > > network of parents who may understand?
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bookwormahb%40earthlink.net
> > >
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
> >
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/poetlori8%40msn.com
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 3
> > Date: Wed, 9 Jul 2014 14:48:50 -0400
> > From: Penny Duffy <pennyduffy at gmail.com>
> > To: Lalena Fayre <lalenas at gmail.com>, "Blind Kid Mailing List, (for
> > parents of blind children)" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] More than just blindness
> > Message-ID:
> > <CABb_=
> > QeBK9g5cfasfgb7T5p62p06heqcM5SmnrrJ8+fxgZkBbQ at mail.gmail.com>
> > Content-Type: text/plain; charset=UTF-8
> >
> > Lelena,
> >
> > I read through what you said. If i missed anything please let me know.
> > Many of the parents i assist in my state experiance more than one
> > disability not just blindness. I believe strongly that these children
> > heavily discriminated against in educational settings. Very few
> educators
> > feel a child with more than one disability including blindness should be
> > taught braille at all which is extremely wrong considering they would
> never
> > say the same thing about a child with non blindness related
> disabilities.
> > Its an understanding that literacy is important to all.
> >
> > The NOPBC always works hard at trying to build program that will benefit
> > all kinds of different kids and different learners. I hope you never feel
> > we are are not trying to serve your needs.
> >
> > Below is the NOPBC works shops from this years conference. there was two
> > workshops which were geared directly for parents of children with
> multiple
> > disabilities. I would challenge that ALL the rest of the workshops
> would
> > benefit parents with children with multiple disabilities. also. including
> > the college one. The NOPBC programming is primarily our parent
> conference
> > and we sponsor Future Reflections which regularly feature stores about
> all
> > kids of different kids.
> >
> > Also if you are talking about NFB direct programming like the great STEM
> > programs I am sure Natalie Shaheen, Director of Education at the NFB
> > Jernigan Institute would love to hear some ideas. I happen to know this
> > area is VERY important to her.
> > Let me know if I can be have anymore help. I am very passionate in this
> > area.
> > -Penny Duffy
> >
> > --
> >
> > Independence in the Classroom
> > Tools, tips, and techniques for setting up the classroom and training the
> > student for independent functioning. Instructor: Jackie Anderson, Teacher
> > of Blind Students
> >
> > Independent Movement & Travel for Children with Additional Disabilities
> > Working toward maximum independence and self-determination for the child
> > with additional disabilities. Instructor: Denise Mackenstadt, NOMC
> >
> > Low Vision Toolbox
> > Useful items for low vision students and how to determine the most
> > efficient method for the task. Instructor: TBA
> >
> > First Steps
> > Exploration and independent movement and travel in early childhood.
> > Instructor: Mary Jo Hartle, NOMC, Teacher of Blind Students
> >
> > Accessible Technology
> > Using accessible technology for meaningful participation in school, at
> > home, and in the community. Instructor: Eric Guillory, Director, Youth
> > Services, LA Center for the Blind
> >
> > Independence Skills at Home & in the Community
> > Teaching and supporting the development of independence skills for full
> > participation in home and community life. Instructor: Mary Jo Hartle,
> NOMC,
> > TBS
> >
> > Hands Off!
> > Honoring the child's right to personal space and control over his/her
> body.
> > Instructor: Carlton Walker, Teacher of Blind Students, President, NOPBC
> >
> > Independent Movement & Travel for the School-Age Student
> > High expectations, real-life goals, and how to achieve them in the area
> of
> > independent movement and travel. Instructor: TBA
> >
> > Tactile Graphics?The Good, the Bad, & the Ugly
> > The basics of creating a good tactile graphic that will really work for
> the
> > blind child. Instructor: Carol Castellano, Director of Programs, NOPBC
> >
> > I Get Around
> > Getting around independently when you do not drive. Instructors: Pam
> Allen,
> > Director, LA Center for the Blind; Roland Allen, NOMC
> >
> > Low Vision Technology
> > >From low tech to high tech, learn about the many options for the low
> > vision
> > student. Instructor: Janet Bernhardt, Owner, Low Vision, Etc.
> >
> > Saying It My Way
> > Encouraging communication, learning, and play in children with
> > communication needs. Instructor: Natalie Shaheen, Director of Education,
> > NFB Jernigan Institute
> >
> > Social Skills for the School-Age Child
> > Encouraging appropriate social interaction and play. Instructor: Sheena
> > Manuel, Outreach Specialist, Professional Development and Research
> > Institute on Blindness
> >
> > How to Set Up a Saturday School
> > Empowering families to learn and teach the skills of independence.
> > Instructor: Jackie Anderson, Teacher of Blind Students
> >
> > College Checklist: Is Your Blind Child Ready? Are YOU Ready?
> > Preparing for heading off to college?what parents and students need to
> > know, with a special visit from one of "the roommates from hell."
> > Instructors: Kim Cunningham, second vice president, NOPBC; Kayleigh
> Joiner,
> > Student; Arielle Silverman, Fellow, University of WA; Debbie Kent Stein,
> > Editor, Future Reflections
> >
> > Unified English Braille (UEB)
> > It's new. It's coming. What is it, how will the transition be made, and
> > what will it mean to your child? Instructor: Casey Robertson, Teacher of
> > Blind Students
> >
> > IEP Basics for Parents of Blind/VI Students
> > The sections of the IEP, essential assessments, how assessment
> information
> > is used, how to be an active and effective participant. Instructor:
> Carlton
> > Walker, Attorney, Teacher of Blind Students
> >
> > IEP Development and Legal Process Overview
> > Do's & Don'ts for the IEP meeting; preparing for possible mediation, due
> > process, appeal, etc; overview of the legal process; how to prepare for a
> > due process hearing so you don't have to have one! Instructor: Carlton
> > Walker, Attorney, Teacher of Blind Students
> >
> >
> > Spanish Language Session
> > This session will cover a range of subjects of interest to parents of
> blind
> > children. Instructor: Conchita Hernandez, Special Educator
> >
> >
> > On Mon, Jun 30, 2014 at 10:19 AM, Lalena Fayre via blindkid <
> > blindkid at nfbnet.org> wrote:
> >
> > > As I read through my latest issue of Future Reflections, I was struck
> > with
> > > a further sense of isolation. The same holds true when I read this
> > listserv
> > > and review the agenda of the upcoming national conference.
> > >
> > > My son is totally blind with multiple other disabilities - nonverbal
> and
> > > global developmental delays that impact every area. I'm fortunate to
> > have a
> > > good foundation and understanding of blindness education. But when you
> > add
> > > the other issues to the blindness, one is struck with how much
> blindness
> > > complicates things. For example, typical adaptive communication devices
> > are
> > > vision based. Another, pre-Braille work is important but after 3 years
> of
> > > it and no significant progress made, you are forced to deal with
> > functional
> > > skill development which the therapist don't know how to do with a blind
> > > child, let allow a blind cognitively delayed child.
> > >
> > > I turn to the NFB for support and resources, yet publications are full
> of
> > > typically developed children who happen to be blind. I call my local
> > > organizations here in the bay area (which I know are inline with NFB
> > > philosophy) looking for social opportunities for my son, but he can't
> > > participate because of his developmental delays.
> > >
> > > At the end of the day I'm left wondering......am I the only parent of a
> > > child with multiple disabilities, developmental delays, AND blindness?
> > Are
> > > the majority of blind child typically developed? And where do I turn
> for
> > a
> > > network of parents who may understand?
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> > >
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail.com
> > >
> >
> >
> > ------------------------------
> >
> > Message: 4
> > Date: Wed, 9 Jul 2014 16:26:43 -0700
> > From: "Robert Jaquiss" <rjaquiss at earthlink.net>
> > To: "'Penny Duffy'" <pennyduffy at gmail.com>, "'Blind Kid Mailing List,
> > \(for parents of blind children\)'" <blindkid at nfbnet.org>,
> > "'Lalena
> > Fayre'" <lalenas at gmail.com>
> > Subject: Re: [blindkid] More than just blindness
> > Message-ID: <000201cf9bcd$3f19cc50$bd4d64f0$@earthlink.net>
> > Content-Type: text/plain; charset="UTF-8"
> >
> > Hello:
> >
> > I thought I would pass on this link for the Active Learning
> > Foundation in case it is useful:
> > http://www.lilliworks.org/
> > The Active Learning Foundation (ALF) promotes the work of Dr. Lilli
> > Nielsen. Four of her books are available from BookShare. The materials
> > developed by Dr. Nielsen are specifically intended for use with
> > multihandicapped blind children.
> >
> > Some years ago, I knew a lady who made tactile versions of Bliss
> > Symbolics. The system allows a person to communicate their wants or needs
> > by selecting a "symbol" from a board. The symbols consist of ovals,
> > circles, squares, hearts etc. Each of the shapes is movified by gluing
> > something to the surface. There are for instance shapes for requesting
> > people. Each shape has something on it to indicate the particular person
> of
> > interest.
> >
> > There is also intelitools which can be produced using tactile
> > overlays. Hope this is useful.
> >
> > Regards,
> >
> > Robert
> >
> > Robert Jaquiss
> > Tactile Graphics Solutions LLC.
> > Email: rjaquiss at earthlink.net
> > *** Specializing in computerized production of tactile graphics, ALT
> > development, technology assessments, product evaluations and web site
> > certification. ***
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 5
> > Date: Wed, 09 Jul 2014 19:39:40 -0400
> > From: Bernadette Jacobs <bernienfb75 at gmail.com>
> > To: Penny Duffy <pennyduffy at gmail.com>, "Blind Kid Mailing List,
> > \(for
> > parents of blind children\)" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] More than just blindness
> > Message-ID: <53BDD2BC.9080502 at gmail.com>
> > Content-Type: text/plain; charset=UTF-8; format=flowed
> >
> > God Bless you Penny. Ya just don't get it do ya Darling? All the books
> > in the world and all the human instruction can be a wonderful thing?
> > But Honey, I ask you. What about these kids who actually exist? When
> > we bring our children with these multiple handicaps/issues along with us
> > because they're actually part of our families, The activities and
> > childcare that are provided for the families is Okay for the typical
> > children. But what about these children with other issues are left to
> > fall through the cracks? But, that's Okay? Hmmm.
> >
> > As for Natalie, I can't think of a dearer lady. I have the utmost
> > respect for her experteese and advice. I feel it such an honor and
> > privilege to know her and call her a very dear friend to me and my
> > husband. She's spent time with David and has struck up a nice little
> > friendship with David. She is one very caring lady and she's one of the
> > hardest, profficient people I know. As for Carlton Walker, she's
> > another very bright, dear lady. Her daughter and our daughter have also
> > struck up a good friendship. But, as Barbara has said, where David is
> > concerned, David appears to scare the tar out of the rest of the world.
> > That's putting it nicely. But this, does at times, forces me to
> > consider when and where we go as a family and sometimes, I do stay back
> > and let Bill take Virginia. For, sometimes, I just don't think my heart
> > can stand anymore hurt. Some days I can let it roll off. But there are
> > others, I simply can't. After all, I might actually be human and have
> > feelings too? And they're not in a book or in some training???
> >
> > Bernie
> > On 7/9/2014 2:48 PM, Penny Duffy via blindkid wrote:
> > > Lelena,
> > >
> > > I read through what you said. If i missed anything please let me know.
> > > Many of the parents i assist in my state experiance more than one
> > > disability not just blindness. I believe strongly that these children
> > > heavily discriminated against in educational settings. Very few
> > educators
> > > feel a child with more than one disability including blindness should
> be
> > > taught braille at all which is extremely wrong considering they would
> > never
> > > say the same thing about a child with non blindness related
> > disabilities.
> > > Its an understanding that literacy is important to all.
> > >
> > > The NOPBC always works hard at trying to build program that will
> benefit
> > > all kinds of different kids and different learners. I hope you never
> feel
> > > we are are not trying to serve your needs.
> > >
> > > Below is the NOPBC works shops from this years conference. there was
> two
> > > workshops which were geared directly for parents of children with
> > multiple
> > > disabilities. I would challenge that ALL the rest of the workshops
> > would
> > > benefit parents with children with multiple disabilities. also.
> including
> > > the college one. The NOPBC programming is primarily our parent
> > conference
> > > and we sponsor Future Reflections which regularly feature stores about
> > all
> > > kids of different kids.
> > >
> > > Also if you are talking about NFB direct programming like the great
> > STEM
> > > programs I am sure Natalie Shaheen, Director of Education at the NFB
> > > Jernigan Institute would love to hear some ideas. I happen to know
> this
> > > area is VERY important to her.
> > > Let me know if I can be have anymore help. I am very passionate in
> this
> > > area.
> > > -Penny Duffy
> > >
> > > --
> > >
> > > Independence in the Classroom
> > > Tools, tips, and techniques for setting up the classroom and training
> the
> > > student for independent functioning. Instructor: Jackie Anderson,
> Teacher
> > > of Blind Students
> > >
> > > Independent Movement & Travel for Children with Additional Disabilities
> > > Working toward maximum independence and self-determination for the
> child
> > > with additional disabilities. Instructor: Denise Mackenstadt, NOMC
> > >
> > > Low Vision Toolbox
> > > Useful items for low vision students and how to determine the most
> > > efficient method for the task. Instructor: TBA
> > >
> > > First Steps
> > > Exploration and independent movement and travel in early childhood.
> > > Instructor: Mary Jo Hartle, NOMC, Teacher of Blind Students
> > >
> > > Accessible Technology
> > > Using accessible technology for meaningful participation in school, at
> > > home, and in the community. Instructor: Eric Guillory, Director, Youth
> > > Services, LA Center for the Blind
> > >
> > > Independence Skills at Home & in the Community
> > > Teaching and supporting the development of independence skills for full
> > > participation in home and community life. Instructor: Mary Jo Hartle,
> > NOMC,
> > > TBS
> > >
> > > Hands Off!
> > > Honoring the child's right to personal space and control over his/her
> > body.
> > > Instructor: Carlton Walker, Teacher of Blind Students, President, NOPBC
> > >
> > > Independent Movement & Travel for the School-Age Student
> > > High expectations, real-life goals, and how to achieve them in the area
> > of
> > > independent movement and travel. Instructor: TBA
> > >
> > > Tactile Graphics?The Good, the Bad, & the Ugly
> > > The basics of creating a good tactile graphic that will really work for
> > the
> > > blind child. Instructor: Carol Castellano, Director of Programs, NOPBC
> > >
> > > I Get Around
> > > Getting around independently when you do not drive. Instructors: Pam
> > Allen,
> > > Director, LA Center for the Blind; Roland Allen, NOMC
> > >
> > > Low Vision Technology
> > > From low tech to high tech, learn about the many options for the low
> > vision
> > > student. Instructor: Janet Bernhardt, Owner, Low Vision, Etc.
> > >
> > > Saying It My Way
> > > Encouraging communication, learning, and play in children with
> > > communication needs. Instructor: Natalie Shaheen, Director of
> Education,
> > > NFB Jernigan Institute
> > >
> > > Social Skills for the School-Age Child
> > > Encouraging appropriate social interaction and play. Instructor: Sheena
> > > Manuel, Outreach Specialist, Professional Development and Research
> > > Institute on Blindness
> > >
> > > How to Set Up a Saturday School
> > > Empowering families to learn and teach the skills of independence.
> > > Instructor: Jackie Anderson, Teacher of Blind Students
> > >
> > > College Checklist: Is Your Blind Child Ready? Are YOU Ready?
> > > Preparing for heading off to college?what parents and students need to
> > > know, with a special visit from one of "the roommates from hell."
> > > Instructors: Kim Cunningham, second vice president, NOPBC; Kayleigh
> > Joiner,
> > > Student; Arielle Silverman, Fellow, University of WA; Debbie Kent
> Stein,
> > > Editor, Future Reflections
> > >
> > > Unified English Braille (UEB)
> > > It's new. It's coming. What is it, how will the transition be made, and
> > > what will it mean to your child? Instructor: Casey Robertson, Teacher
> of
> > > Blind Students
> > >
> > > IEP Basics for Parents of Blind/VI Students
> > > The sections of the IEP, essential assessments, how assessment
> > information
> > > is used, how to be an active and effective participant. Instructor:
> > Carlton
> > > Walker, Attorney, Teacher of Blind Students
> > >
> > > IEP Development and Legal Process Overview
> > > Do's & Don'ts for the IEP meeting; preparing for possible mediation,
> due
> > > process, appeal, etc; overview of the legal process; how to prepare
> for a
> > > due process hearing so you don't have to have one! Instructor: Carlton
> > > Walker, Attorney, Teacher of Blind Students
> > >
> > >
> > > Spanish Language Session
> > > This session will cover a range of subjects of interest to parents of
> > blind
> > > children. Instructor: Conchita Hernandez, Special Educator
> > >
> > >
> > > On Mon, Jun 30, 2014 at 10:19 AM, Lalena Fayre via blindkid <
> > > blindkid at nfbnet.org> wrote:
> > >
> > >> As I read through my latest issue of Future Reflections, I was struck
> > with
> > >> a further sense of isolation. The same holds true when I read this
> > listserv
> > >> and review the agenda of the upcoming national conference.
> > >>
> > >> My son is totally blind with multiple other disabilities - nonverbal
> and
> > >> global developmental delays that impact every area. I'm fortunate to
> > have a
> > >> good foundation and understanding of blindness education. But when you
> > add
> > >> the other issues to the blindness, one is struck with how much
> blindness
> > >> complicates things. For example, typical adaptive communication
> devices
> > are
> > >> vision based. Another, pre-Braille work is important but after 3 years
> > of
> > >> it and no significant progress made, you are forced to deal with
> > functional
> > >> skill development which the therapist don't know how to do with a
> blind
> > >> child, let allow a blind cognitively delayed child.
> > >>
> > >> I turn to the NFB for support and resources, yet publications are full
> > of
> > >> typically developed children who happen to be blind. I call my local
> > >> organizations here in the bay area (which I know are inline with NFB
> > >> philosophy) looking for social opportunities for my son, but he can't
> > >> participate because of his developmental delays.
> > >>
> > >> At the end of the day I'm left wondering......am I the only parent of
> a
> > >> child with multiple disabilities, developmental delays, AND blindness?
> > Are
> > >> the majority of blind child typically developed? And where do I turn
> > for a
> > >> network of parents who may understand?
> > >> _______________________________________________
> > >> blindkid mailing list
> > >> blindkid at nfbnet.org
> > >> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >> To unsubscribe, change your list options or get your account info for
> > >> blindkid:
> > >>
> > >>
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail.com
> > >>
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > blindkid:
> > >
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 6
> > Date: Wed, 9 Jul 2014 18:53:55 -0500
> > From: Barbara HAMMEL <poetlori8 at msn.com>
> > To: Bernadette Jacobs <bernienfb75 at gmail.com>, "Blind Kid Mailing
> > List, (for parents of blind children)" <blindkid at nfbnet.org
> >
> > Subject: Re: [blindkid] More than just blindness
> > Message-ID: <SNT407-EAS162535AB58E67A24690ABECEB0F0 at phx.gbl>
> > Content-Type: text/plain; charset="utf-8"
> >
> > I have a thought and wonder who to present it to. I'd even be willing to
> > be a worker full-time. My thought is, could we have a room in child-care
> > just for the Pauls, Jesses and Davids of the world? A room where the
> > parents don't have to worry about how many toys will be eaten or chairs
> > tipped over. A room where spinning in circles or rocking on your head all
> > day is okay. Aroom where a tantrum isn't going to clear the room and
> leave
> > the rest of the kids crying. A room where no activities really need to be
> > planned because the kids won't want to do them any way.
> > Barbara
> >
> > Sent from my iPhone
> >
> > > On Jul 9, 2014, at 6:40 PM, "Bernadette Jacobs via blindkid" <
> > blindkid at nfbnet.org> wrote:
> > >
> > > God Bless you Penny. Ya just don't get it do ya Darling? All the
> books
> > in the world and all the human instruction can be a wonderful thing? But
> > Honey, I ask you. What about these kids who actually exist? When we
> bring
> > our children with these multiple handicaps/issues along with us because
> > they're actually part of our families, The activities and childcare that
> > are provided for the families is Okay for the typical children. But what
> > about these children with other issues are left to fall through the
> cracks?
> > But, that's Okay? Hmmm.
> > >
> > > As for Natalie, I can't think of a dearer lady. I have the utmost
> > respect for her experteese and advice. I feel it such an honor and
> > privilege to know her and call her a very dear friend to me and my
> husband.
> > She's spent time with David and has struck up a nice little friendship
> > with David. She is one very caring lady and she's one of the hardest,
> > profficient people I know. As for Carlton Walker, she's another very
> > bright, dear lady. Her daughter and our daughter have also struck up a
> > good friendship. But, as Barbara has said, where David is concerned,
> David
> > appears to scare the tar out of the rest of the world. That's putting it
> > nicely. But this, does at times, forces me to consider when and where we
> > go as a family and sometimes, I do stay back and let Bill take Virginia.
> > For, sometimes, I just don't think my heart can stand anymore hurt.
> Some
> > days I can let it roll off. But there are others, I simply can't. After
> > all, I might actually be human and have feelings too? And they're not
> in a
> > book or in some training???
> > >
> > > Bernie
> > >> On 7/9/2014 2:48 PM, Penny Duffy via blindkid wrote:
> > >> Lelena,
> > >>
> > >> I read through what you said. If i missed anything please let me know.
> > >> Many of the parents i assist in my state experiance more than one
> > >> disability not just blindness. I believe strongly that these children
> > >> heavily discriminated against in educational settings. Very few
> > educators
> > >> feel a child with more than one disability including blindness should
> be
> > >> taught braille at all which is extremely wrong considering they would
> > never
> > >> say the same thing about a child with non blindness related
> > disabilities.
> > >> Its an understanding that literacy is important to all.
> > >>
> > >> The NOPBC always works hard at trying to build program that will
> benefit
> > >> all kinds of different kids and different learners. I hope you never
> > feel
> > >> we are are not trying to serve your needs.
> > >>
> > >> Below is the NOPBC works shops from this years conference. there was
> > two
> > >> workshops which were geared directly for parents of children with
> > multiple
> > >> disabilities. I would challenge that ALL the rest of the workshops
> > would
> > >> benefit parents with children with multiple disabilities. also.
> > including
> > >> the college one. The NOPBC programming is primarily our parent
> > conference
> > >> and we sponsor Future Reflections which regularly feature stores
> about
> > all
> > >> kids of different kids.
> > >>
> > >> Also if you are talking about NFB direct programming like the great
> > STEM
> > >> programs I am sure Natalie Shaheen, Director of Education at the NFB
> > >> Jernigan Institute would love to hear some ideas. I happen to know
> this
> > >> area is VERY important to her.
> > >> Let me know if I can be have anymore help. I am very passionate in
> this
> > >> area.
> > >> -Penny Duffy
> > >>
> > >> --
> > >>
> > >> Independence in the Classroom
> > >> Tools, tips, and techniques for setting up the classroom and training
> > the
> > >> student for independent functioning. Instructor: Jackie Anderson,
> > Teacher
> > >> of Blind Students
> > >>
> > >> Independent Movement & Travel for Children with Additional
> Disabilities
> > >> Working toward maximum independence and self-determination for the
> child
> > >> with additional disabilities. Instructor: Denise Mackenstadt, NOMC
> > >>
> > >> Low Vision Toolbox
> > >> Useful items for low vision students and how to determine the most
> > >> efficient method for the task. Instructor: TBA
> > >>
> > >> First Steps
> > >> Exploration and independent movement and travel in early childhood.
> > >> Instructor: Mary Jo Hartle, NOMC, Teacher of Blind Students
> > >>
> > >> Accessible Technology
> > >> Using accessible technology for meaningful participation in school, at
> > >> home, and in the community. Instructor: Eric Guillory, Director, Youth
> > >> Services, LA Center for the Blind
> > >>
> > >> Independence Skills at Home & in the Community
> > >> Teaching and supporting the development of independence skills for
> full
> > >> participation in home and community life. Instructor: Mary Jo Hartle,
> > NOMC,
> > >> TBS
> > >>
> > >> Hands Off!
> > >> Honoring the child's right to personal space and control over his/her
> > body.
> > >> Instructor: Carlton Walker, Teacher of Blind Students, President,
> NOPBC
> > >>
> > >> Independent Movement & Travel for the School-Age Student
> > >> High expectations, real-life goals, and how to achieve them in the
> area
> > of
> > >> independent movement and travel. Instructor: TBA
> > >>
> > >> Tactile Graphics?The Good, the Bad, & the Ugly
> > >> The basics of creating a good tactile graphic that will really work
> for
> > the
> > >> blind child. Instructor: Carol Castellano, Director of Programs, NOPBC
> > >>
> > >> I Get Around
> > >> Getting around independently when you do not drive. Instructors: Pam
> > Allen,
> > >> Director, LA Center for the Blind; Roland Allen, NOMC
> > >>
> > >> Low Vision Technology
> > >> From low tech to high tech, learn about the many options for the low
> > vision
> > >> student. Instructor: Janet Bernhardt, Owner, Low Vision, Etc.
> > >>
> > >> Saying It My Way
> > >> Encouraging communication, learning, and play in children with
> > >> communication needs. Instructor: Natalie Shaheen, Director of
> Education,
> > >> NFB Jernigan Institute
> > >>
> > >> Social Skills for the School-Age Child
> > >> Encouraging appropriate social interaction and play. Instructor:
> Sheena
> > >> Manuel, Outreach Specialist, Professional Development and Research
> > >> Institute on Blindness
> > >>
> > >> How to Set Up a Saturday School
> > >> Empowering families to learn and teach the skills of independence.
> > >> Instructor: Jackie Anderson, Teacher of Blind Students
> > >>
> > >> College Checklist: Is Your Blind Child Ready? Are YOU Ready?
> > >> Preparing for heading off to college?what parents and students need to
> > >> know, with a special visit from one of "the roommates from hell."
> > >> Instructors: Kim Cunningham, second vice president, NOPBC; Kayleigh
> > Joiner,
> > >> Student; Arielle Silverman, Fellow, University of WA; Debbie Kent
> Stein,
> > >> Editor, Future Reflections
> > >>
> > >> Unified English Braille (UEB)
> > >> It's new. It's coming. What is it, how will the transition be made,
> and
> > >> what will it mean to your child? Instructor: Casey Robertson, Teacher
> of
> > >> Blind Students
> > >>
> > >> IEP Basics for Parents of Blind/VI Students
> > >> The sections of the IEP, essential assessments, how assessment
> > information
> > >> is used, how to be an active and effective participant. Instructor:
> > Carlton
> > >> Walker, Attorney, Teacher of Blind Students
> > >>
> > >> IEP Development and Legal Process Overview
> > >> Do's & Don'ts for the IEP meeting; preparing for possible mediation,
> due
> > >> process, appeal, etc; overview of the legal process; how to prepare
> for
> > a
> > >> due process hearing so you don't have to have one! Instructor: Carlton
> > >> Walker, Attorney, Teacher of Blind Students
> > >>
> > >>
> > >> Spanish Language Session
> > >> This session will cover a range of subjects of interest to parents of
> > blind
> > >> children. Instructor: Conchita Hernandez, Special Educator
> > >>
> > >>
> > >> On Mon, Jun 30, 2014 at 10:19 AM, Lalena Fayre via blindkid <
> > >> blindkid at nfbnet.org> wrote:
> > >>
> > >>> As I read through my latest issue of Future Reflections, I was struck
> > with
> > >>> a further sense of isolation. The same holds true when I read this
> > listserv
> > >>> and review the agenda of the upcoming national conference.
> > >>>
> > >>> My son is totally blind with multiple other disabilities - nonverbal
> > and
> > >>> global developmental delays that impact every area. I'm fortunate to
> > have a
> > >>> good foundation and understanding of blindness education. But when
> you
> > add
> > >>> the other issues to the blindness, one is struck with how much
> > blindness
> > >>> complicates things. For example, typical adaptive communication
> > devices are
> > >>> vision based. Another, pre-Braille work is important but after 3
> years
> > of
> > >>> it and no significant progress made, you are forced to deal with
> > functional
> > >>> skill development which the therapist don't know how to do with a
> blind
> > >>> child, let allow a blind cognitively delayed child.
> > >>>
> > >>> I turn to the NFB for support and resources, yet publications are
> full
> > of
> > >>> typically developed children who happen to be blind. I call my local
> > >>> organizations here in the bay area (which I know are inline with NFB
> > >>> philosophy) looking for social opportunities for my son, but he can't
> > >>> participate because of his developmental delays.
> > >>>
> > >>> At the end of the day I'm left wondering......am I the only parent
> of a
> > >>> child with multiple disabilities, developmental delays, AND
> blindness?
> > Are
> > >>> the majority of blind child typically developed? And where do I turn
> > for a
> > >>> network of parents who may understand?
> > >>> _______________________________________________
> > >>> blindkid mailing list
> > >>> blindkid at nfbnet.org
> > >>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >>> To unsubscribe, change your list options or get your account info for
> > >>> blindkid:
> > >>>
> > >>>
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail.com
> > >> _______________________________________________
> > >> blindkid mailing list
> > >> blindkid at nfbnet.org
> > >> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >> To unsubscribe, change your list options or get your account info for
> > blindkid:
> > >>
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
> > >
> > >
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > blindkid:
> > >
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/poetlori8%40msn.com
> >
> > ------------------------------
> >
> > Subject: Digest Footer
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> >
> >
> > ------------------------------
> >
> > End of blindkid Digest, Vol 123, Issue 9
> > ****************************************
> >
> _______________________________________________
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