[Blindtlk] Prosthetic eyes.

Tue Sep 21 20:06:22 UTC 2010

Hi Deanna.  In answer to 1, I had enough pain that I had to ask for a pain 
shot once, but I had both eyes done at once.  I also had a flaming upset 
stomach after my particular surgery but not everybody does.  In answer to 
2, I got no fantom pains, although the eye muscles themselves were sore if 
I tried to do the opening motion for a while but that goes away and it 
wasn't a steady thing, only when I exerted the muscles.  In answer to 3, 
you just remove the eye shell, the implant cannot be removed because it is 
wrapped in the socket tissue which is sewn together around it on the day 
of surgery.  And, to make the term perfectly clear, enucleation means 
total removal of the eye.  One thing I got to do was to actually hold and 
examine a prosthetic eye a few weeks before the surgery and when I did, I 
instantly understood the principal of how it sat in the socket and rode on 
the implant.  My implants are made of silicone which I believe is a term 
for medical rubber or something similar but I guess they're making them 
out of different stuff now.  They leave your eyelids and lashes totally 
intact.

Bob Smith

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From:
Deanna Lewis <deannakay618 at yahoo.com>
To:
Blind Talk Mailing List <blindtlk at nfbnet.org>
Date:
09/21/2010 03:49 PM
Subject:
[Blindtlk] Prosthetic eyes.

Hi guys,
I am intrigued to hear all these comments about prosthetic eyes. I have 
glaucoma and have had over 30 eye surgeries. My right eye is not doing too 
well. It causes me constant pain and sometimes the pain is unbearable. In 
that eye, I can only see light and dark. My doctor has suggested 
enucleation (removing the eye), but I have some questions.
1. How painful is the eye removal procedure?
2. Do you have phantom pain in the eye, even after it has been removed?
3. Can the implant and the prosthesis both be removed for cleaning? Or 
just the outer shell part?
I may have more questions, but those are the burning ones for right now, 
LOL. Thanks so much!
Deanna

--- On Tue, 9/21/10, Graves, Diane <dgraves at icrc.IN.gov> wrote:

From: Graves, Diane <dgraves at icrc.IN.gov>
Subject: Re: [Blindtlk] gross but what do I do?
To: "'Blind Talk Mailing List'" <blindtlk at nfbnet.org>
Date: Tuesday, September 21, 2010, 8:36 AM

Hi Julie,

>From what I am seeing here, we are all very different in what we 
experience with our prosthesis. I am actually pretty surprised by the 
number of people that we have. I have always felt pretty isolated, knowing 
only a couple of people , besides myself, who have prosthesis. But I think 
everyone has a different amount of buildup and discharge. I would wipe 
them with a damp cloth each day or make sure to apply some water to them 
while in the shower. But, if they still feel dry and scratchy or like they 
have excess buildup, I would take them out and clean them.   If they feel 
okay to you, not dirty or scratchy, then they probably are fine. 
Experience will eventually teach you what is right for you.

hth
Diane Graves
Civil Rights Specialist
Indiana Civil Rights Commission
Alternative Dispute Resolutions Unit
317-232-2647

"It is service that measures success."
George Washington Carver

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-----Original Message-----
From: blindtlk-bounces at nfbnet.org [mailto:blindtlk-bounces at nfbnet.org] On 
Behalf Of Julie J
Sent: Monday, September 20, 2010 10:11 PM
To: Blind Talk Mailing List
Subject: Re: [Blindtlk] gross but what do I do?

To all of you who have prosthetic eyes,

How often do you clean them?  I just got mine last week and the Occularist 

wasn't very helpful.  He said that some people take it out daily for 
cleaning, while others only take it out for their yearly visit with the 
Occularist.

I don't have allergies.  I do spend a fair amount of time outdoors, where 
it 
is quite frequently windy and dusty. It does feel dry and scratchy 
sometimes.  I'm going to the eye doctor tomorrow, so I'll ask there, but 
if 
he's as helpful as the Occularist...well I think you guys might have 
better 
info. *smile*

TIA
Julie

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