[Blindtlk] Prosthetic eyes.

[Anjelina]

Hi Deanne:
I remember the terrible pain you are probably experiencing. I had both my 
eyes removed (at separate times) do to glaucoma.
1. The surgery wasn't horribly painful--nothing prescription pain killers 
couldn't take away. There was some discomfort for the first month.
2. I never had phantom pain in the eye but I still occasionally have phantom 
vision.
3. I am able to remove the outer shell part of the implant since the other 
part is inside the eye socket.
Wishing you the best

Anjelina
----- Original Message ----- 
From: "Deanna Lewis" <deannakay618 at yahoo.com>
To: "Blind Talk Mailing List" <blindtlk at nfbnet.org>
Sent: Tuesday, September 21, 2010 3:48 PM
Subject: [Blindtlk] Prosthetic eyes.


Hi guys,
I am intrigued to hear all these comments about prosthetic eyes. I have 
glaucoma and have had over 30 eye surgeries. My right eye is not doing too 
well. It causes me constant pain and sometimes the pain is unbearable. In 
that eye, I can only see light and dark. My doctor has suggested enucleation 
(removing the eye), but I have some questions.
1. How painful is the eye removal procedure?
2. Do you have phantom pain in the eye, even after it has been removed?
3. Can the implant and the prosthesis both be removed for cleaning? Or just 
the outer shell part?
I may have more questions, but those are the burning ones for right now, 
LOL. Thanks so much!
Deanna


--- On Tue, 9/21/10, Graves, Diane <dgraves at icrc.IN.gov> wrote:

From: Graves, Diane <dgraves at icrc.IN.gov>
Subject: Re: [Blindtlk] gross but what do I do?
To: "'Blind Talk Mailing List'" <blindtlk at nfbnet.org>
Date: Tuesday, September 21, 2010, 8:36 AM

Hi Julie,

>From what I am seeing here, we are all very different in what we experience 
>with our prosthesis. I am actually pretty surprised by the number of people 
>that we have. I have always felt pretty isolated, knowing only a couple of 
>people , besides myself, who have prosthesis. But I think everyone has a 
>different amount of buildup and discharge. I would wipe them with a damp 
>cloth each day or make sure to apply some water to them while in the 
>shower. But, if they still feel dry and scratchy or like they have excess 
>buildup, I would take them out and clean them. If they feel okay to you, 
>not dirty or scratchy, then they probably are fine. Experience will 
>eventually teach you what is right for you.


hth
Diane Graves
Civil Rights Specialist
Indiana Civil Rights Commission
Alternative Dispute Resolutions Unit
317-232-2647

"It is service that measures success."
George Washington Carver

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-----Original Message-----
From: blindtlk-bounces at nfbnet.org [mailto:blindtlk-bounces at nfbnet.org] On 
Behalf Of Julie J
Sent: Monday, September 20, 2010 10:11 PM
To: Blind Talk Mailing List
Subject: Re: [Blindtlk] gross but what do I do?

To all of you who have prosthetic eyes,

How often do you clean them? I just got mine last week and the Occularist
wasn't very helpful. He said that some people take it out daily for
cleaning, while others only take it out for their yearly visit with the
Occularist.

I don't have allergies. I do spend a fair amount of time outdoors, where it
is quite frequently windy and dusty. It does feel dry and scratchy
sometimes. I'm going to the eye doctor tomorrow, so I'll ask there, but if
he's as helpful as the Occularist...well I think you guys might have better
info. *smile*

TIA
Julie



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