[Blindtlk] Prosthetic eyes.

Wed Sep 22 14:39:37 UTC 2010

I had my right eye removed September of 2009, and my left eye removed
July of 2010. I have no more pain whatsoever, and people constantly
comment on my eyes. My ocularist is very thorough, and he told me not
to take the prosthetics out to clean them unless they are bothering
me. If i have discharge build up, I wipe the prosthetics off with
water while they are still in my eye sockets. If you are having pain
that is making it difficult for you to function, I would not hesitate
to have the eye or eyes removed. I know that making the decision to
have an eye or eyes removed is not easy, but for me it has been worth
it. If i can answer any questions, please feel free to write to me or
ask on the list.
Kolby

On 9/22/10, Ray Foret Jr <rforetjr at comcast.net> wrote:
> That's quite right.  When I had my implant replaced back in 1998, I was in
> and out of the hospital in nothing less than about three or four hours.
>
>
> Sincerely,
> The Constantly Barefooted Ray!!!
>
> A Very Proud and Happy Mac User!!!
>
> E-Mail:
> rforetjr at comcast dot net
> Skype Name:
> barefootedray
>
> On Sep 22, 2010, at 7:07 AM, Graves, Diane wrote:
>
> WOW! They are really enucleating eyes as an outpatient surgery now? My
> goodness. They don't keep you in the hospital for much at all anymore.
>
>
> Diane Graves
> Civil Rights Specialist
> Indiana Civil Rights Commission
> Alternative Dispute Resolutions Unit
> 317-232-2647
>
> "It is service that measures success."
> George Washington Carver
>
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> -----Original Message-----
> From: blindtlk-bounces at nfbnet.org [mailto:blindtlk-bounces at nfbnet.org] On
> Behalf Of Julie J
> Sent: Tuesday, September 21, 2010 4:22 PM
> To: Blind Talk Mailing List
> Subject: Re: [Blindtlk] Prosthetic eyes.
>
> Deanna,
>
> The eye I just had removed also had only a bit of light perception left, but
> it was really whacking it a good one that finished it off. *smile*
>
> Anyway my experience was much pain barely controlled with narcotics before
> surgery, after surgery practically pain free after 3-4 days.  I have no
> phantom pain in the eye, but the eyelid and surrounding tissue most
> certainly do still react to pain.
>
> I've had loads of surgery too.  My main issue with surgery in the past has
> been the anesthetic, not the actual procedure.  This time they used Versed
> along with a local anesthetic, which worked amazingly well for me.  I think
> I was at the hospital for 4 or so hours total, including everything from the
> time I walked in the door, signing papers, preop, the surgery, recovery and
> after care instructions.  It was by far the easiest surgery I have ever had.
>
> I do have some occasional discomfort with the prosthetic, but I've only had
> it a week and I'm sure most of my problems are due to being new to it and
> still figuring out what works for me.
>
> I have a coral implant with donor sclera over it, which is not removable
> because my muscles are attached to it.  The prosthetic is like a huge
> contact lens thingy that fits in the front part of the eye.  It gives the
> eye the correct shape, color and helps the eyelid to open properly.  It is
> removable and is the piece that needs to be cleaned that we've been talking
> about.
>
> I know there are lots of different types of implants and prosthetics so my
> experience may be totally different from what you might experience. But I'm
> happy to share.  I wish I had thought to ask questions here about it before
> the surgery.  I was very nervous about the whole mess.
>
> Best of luck!
> Julie
>
>
>
>
>
> ----- Original Message -----
> From: "Deanna Lewis" <deannakay618 at yahoo.com>
> To: "Blind Talk Mailing List" <blindtlk at nfbnet.org>
> Sent: Tuesday, September 21, 2010 2:48 PM
> Subject: [Blindtlk] Prosthetic eyes.
>
>
> Hi guys,
> I am intrigued to hear all these comments about prosthetic eyes. I have
> glaucoma and have had over 30 eye surgeries. My right eye is not doing too
> well. It causes me constant pain and sometimes the pain is unbearable. In
> that eye, I can only see light and dark. My doctor has suggested enucleation
> (removing the eye), but I have some questions.
> 1. How painful is the eye removal procedure?
> 2. Do you have phantom pain in the eye, even after it has been removed?
> 3. Can the implant and the prosthesis both be removed for cleaning? Or just
> the outer shell part?
> I may have more questions, but those are the burning ones for right now,
> LOL. Thanks so much!
> Deanna
>
>
> --- On Tue, 9/21/10, Graves, Diane <dgraves at icrc.IN.gov> wrote:
>
> From: Graves, Diane <dgraves at icrc.IN.gov>
> Subject: Re: [Blindtlk] gross but what do I do?
> To: "'Blind Talk Mailing List'" <blindtlk at nfbnet.org>
> Date: Tuesday, September 21, 2010, 8:36 AM
>
> Hi Julie,
>
>> From what I am seeing here, we are all very different in what we
>> experience
>> with our prosthesis. I am actually pretty surprised by the number of
>> people
>> that we have. I have always felt pretty isolated, knowing only a couple of
>>
>> people , besides myself, who have prosthesis. But I think everyone has a
>> different amount of buildup and discharge. I would wipe them with a damp
>> cloth each day or make sure to apply some water to them while in the
>> shower. But, if they still feel dry and scratchy or like they have excess
>> buildup, I would take them out and clean them. If they feel okay to you,
>> not dirty or scratchy, then they probably are fine. Experience will
>> eventually teach you what is right for you.
>
>
> hth
> Diane Graves
> Civil Rights Specialist
> Indiana Civil Rights Commission
> Alternative Dispute Resolutions Unit
> 317-232-2647
>
> "It is service that measures success."
> George Washington Carver
>
> Confidentiality Notice: This E-mail transmission may contain confidential
> and/or legally privileged information intended only for the individual or
> entity(ies)
> named in the E-mail address. If you are not the intended recipient, be
> advised that any unauthorized disclosure, copying, distribution, or acting
> in reliance
> upon the contents of this E-mail is strictly prohibited. If you have
> received this E-mail transmission in error, please reply to sender to
> arrange for the return and proper delivery of the transmission.
> Subsequently, delete the message from your system immediately.
>
> -----Original Message-----
> From: blindtlk-bounces at nfbnet.org [mailto:blindtlk-bounces at nfbnet.org] On
> Behalf Of Julie J
> Sent: Monday, September 20, 2010 10:11 PM
> To: Blind Talk Mailing List
> Subject: Re: [Blindtlk] gross but what do I do?
>
> To all of you who have prosthetic eyes,
>
> How often do you clean them? I just got mine last week and the Occularist
> wasn't very helpful. He said that some people take it out daily for
> cleaning, while others only take it out for their yearly visit with the
> Occularist.
>
> I don't have allergies. I do spend a fair amount of time outdoors, where it
> is quite frequently windy and dusty. It does feel dry and scratchy
> sometimes. I'm going to the eye doctor tomorrow, so I'll ask there, but if
> he's as helpful as the Occularist...well I think you guys might have better
> info. *smile*
>
> TIA
> Julie
>
>
>
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