[Blindtlk] Responses of Medical Professionals.

[Michelle Medina]

Thank you Gloria! Lol.

Diane,
Ugh!! I can't believe that!

On 3/3/11, Graves, Diane <dgraves at icrc.in.gov> wrote:
> Hi Mary,
>
> When I was in school they used to take kids to the eye clinic at the
> university hospital here in town. My appointments  were pretty uninteresting
> and a colossal waste of times, as I had retinoblastoma, and had had a
> bilateral enucleation before I was of school age.
>
> At any rate, I recall a school mate/friend of mine who had Aniridia, which,
> as I understand it is an absence of an iris. On one of her visits to the
> clinic, she had a resident looking at her eyes, and then shouting excitedly
> to his buddy "Hey, "Joe" she's got aniridia!" After this, of course the
> other residents runs to check it out. She was pretty good humored at the
> time remarking, with laughter in her voice, "well I'm glad somebody's
> pleased about it."
>
> Diane Graves
> Civil Rights Specialist
> Indiana Civil Rights Commission
> Alternative Dispute Resolutions Unit
> 317-232-2647
>
> "It is service that measures success."
> George Washington Carver
>
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> -----Original Message-----
> From: blindtlk-bounces at nfbnet.org [mailto:blindtlk-bounces at nfbnet.org] On
> Behalf Of Mary Mc Gee
> Sent: Wednesday, March 02, 2011 4:11 PM
> To: 'Blind Talk Mailing List'
> Subject: Re: [Blindtlk] Responses of Medical Professionals.
>
> Dear Fellow Federationists;
>
>             I've read with interest all the posts about experiences at
> health care providers' offices.  I have some experiences I can throw into
> the mix.
>
>             First, I'll say that, because the cause of my blindness is
> albinism, I had a unique appearance that was impossible to hide when I was
> younger.  I was a student at the Iowa Braille and Sight Saving School for
> ten years and, during that time, I went to the University of Iowa for free
> eye care-at least "they" called it eye care.  It was more on the order of
> eye study because every med student, intern, and ophthalmology resident had
> to come examines the "albinotic eye" before I received any low vision
> glasses, etc. that would actually improve what little vision I have.  I felt
> like a zoo or circus animal on display because I was a condition rather than
> a person.  It hurt a lot and I'm not simply talking about all the lights
> shining in my eyes, but also the emotional pain it caused.
>
>             As an adult I've had some doctors who have been very nice and
> some who haven't.  The number of nice ones directly correlates with my
> various degrees-all doctors and staffs are nice now that I put "Attorney" on
> their intake forms.
>
>             But, when I first came to Des Moines in 1976, visited a
> neurologist because of migraine headaches.  He spent more time looking at my
> eyes than he did taking a history of the headaches.  I went to one doctor
> whose office staff handed the intake form to my driver too complete until I
> complained.  One time, when I went to an orthopedic surgeon's office for an
> expert consult to prepare for trial, I was greatly surprised that she spent
> fifteen minutes asking about my vision instead of my client's treatment.  I
> simply told her that, if she billed for those extra minutes, she wouldn't be
> paid, because I would deduct that amount of time from my bill back to the
> client.  She didn't argue and even apologized.
>
>             I'm fortunate that I currently have a sensitive, caring group of
> physicians.  I'll have to admit, though, that the trauma of the past plus my
> attorney's skepticism is quite hard to eliminate when I meet a new one.
>
>             The Iowa Department for the Blind has been doing a PR project
> with health care providers to educate them with the hope that fewer people
> will have unpleasant experiences when they need help.
>
>             I'd be interested in hearing if any of you, like me, were
> treated as a medical oddity at any time.
> Sincerely,
>
> Mary L. McGee
>
>
>
>
>
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>
>
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