[Blindtlk] [blindtlk] transplants

[Holly Scott-Gardner]

There is nothing that can be done for LCA. It affects photo receptors in 
the retina, therefore potential treatments include gene therapy. 
However, that is still only at the trial stage, if they're even still 
being conducted. I'm going to be honest and say it will be years before 
anyone with LCA is cured. Mainly because there are over 15 different 
genes that cause it, and all have slightly different affects. I have LCA 
and kerotoconus, and even though I could get treatment for the latter it 
is pointless because my vision is so bad from having LCA anyways it 
wouldn't restore it.

I hope this answers your questions.

There is a conference held every 2 years in the US for families affected 
by LCA, I imagine attendance is mainly from families with younger 
children but they do have many doctors who are conducting research 
attending as well to speak there.


On 10/11/2014 20:55, Ineyda Velasquez via blindtlk wrote:
> Hi,
> Someone asked me if I'd ever asked my eye doctor about getting a transplant for the damaged parts of my eyes. Can that actually be done or does it depend on the condition you have? I have Leber's congenital amaurosis.
>
> Ineyda
>
> Sent from my iPhone
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