[Blindtlk] [blindtlk] transplants

Tue Nov 11 00:06:03 UTC 2014

hi,

Please check your facts before posting.
there is a huge difference in taking a 3-wheel motorcycle for a spin 
compared to reacting to a christmas tree and travelling 240mph in six 
seconds or less!
Bryan Schulz

----- Original Message ----- 
From: "Cheryl Echevarria via blindtlk" <blindtlk at nfbnet.org>
To: "'Ineyda Velasquez'" <ivelasquez774 at gmail.com>; "'Blind Talk Mailing 
List'" <blindtlk at nfbnet.org>
Sent: Monday, November 10, 2014 3:27 PM
Subject: Re: [Blindtlk] [blindtlk] transplants

> No Cornea transplants are different from eye transplants, Cornea's only 
> fix
> is there are cornea issues, they normally don't fix if you are totally 
> blind
> or almost totally blind.
>
> Other transplants, you have to make sure your heart is in good condition,
> they need to monitor blood pressure, diabetes, make sure no cancer, you 
> need
> to also go for colonoscopy, bone density tests, because transplant meds,
> elevate blood pressure, blood sugar, can cause cancer, can increase early
> bone problems within the body.
>
> If you are looking for a fix to bring sight to yourself and others with 
> that
> kind of surgery, I believe it is still in the planning and testing stages,
> but it could be out there in other countries, but the main thing is that 
> we
> know what both sides of the coin are.
>
> We have members like Art Schrieber who is a person who was a 
> correspondent,
> who toured with the Beatles, he was sighted until late in life and woke on
> one morning blind, who is learning what it means to be blind. We have Dan
> Parker, who lost his sight while in a car race, he hasn't given up since 
> he
> is blind now, and is still racing the race cars, and learning braille and
> other blind skills.
>
> Even myself and others who have lost their sight as we got older from 
> either
> illness or accident and not born blind, who have come through it with
> friends and family, and the National Federation of the Blind, some of us 
> are
> luckier than others, where they live, but when there is a will there is a
> way of things. Not saying that anyone on this list is not trying their
> hardest to "Life the live the want" independently as they can do what they
> want.
>
> In my case, when people say to me in that poor blind person kind of tone, 
> I
> tell them well you know what God saved my life. I can either be blind or 
> be
> dead while waiting for a kidney while I was on dialysis at the same time,
> and god sent me a kidney. So the rest may not be easier for me as a blind
> person, believe me it isn't, but it puts things in a different 
> prospective,
> that live is too short, and we need to try our best while we are here in
> this world.
>
> Sincerely,
>
>
> Cheryl Echevarria, Vice President
> National Federation of the Blind, Greater Long Island Chapter
> A proud chapter of the National Federation of the Blind of New York State
> 631-236-5138
> cherylandmaxx at hotmail.com
> "Live the Life You Want"
>
> The National Federation of the Blind knows that blindness is not the
> characteristic that defines you or your future. Every day we raise the
> expectations of blind people, because low expectations create obstacles
> between blind people and our dreams. You can have the life you want;
> blindness is not what holds you back.
>
>
> Cheryl Echevarria is also the owner of Echevarria Travel
> www.echevarriatravel.com; 631-456-5394 or 
> reservations at echevarriatravel.com
> and  has partnered with Braille Smith. www.braillesmith.com for all her
> braille needs.  Gail Smith is the Secretary of the NFB of Alabama
>
>
>
>
> -----Original Message-----
> From: Ineyda Velasquez [mailto:ivelasquez774 at gmail.com]
> Sent: Monday, November 10, 2014 4:17 PM
> To: Cheryl Echevarria
> Subject: Re: [Blindtlk] [blindtlk] transplants
>
> And that's why I don't know if I'd want the cornial transplant. I'd have 
> to
> take the meds and deal with possible rejection for it right? Or are they
> different? What qualifies someone for one?
>
> Sent from my iPhone
>
>> On Nov 10, 2014, at 4:05 PM, Cheryl Echevarria 
>> <cherylandmaxx at hotmail.com>
> wrote:
>>
>> President Carl Jacobsen, from the NFB of NY has Lebers.
>>
>> Maybe reach out to him and discuss the eye diseases.
>>
>> For myself who is a transplant survivor of a kidney, even though they
>> are different organs of the body, they still have to go through the
>> same testing and health issues, make sure you are well enough for your
>> body as a whole to receive a foreign organ.
>>
>> The other thing is and we have had these discussions at our chapter,
>> the NFB of Greater Long Island, which I am the Vice President of, is
>> that for someone who may have been born without sight or limited
>> sight, that having something you never had would be a learning 
>> experience.
>>
>> From learning how to read, learning how to write. People think that oh
>> wow if I had a transplant than everything would be better for me. It
>> might make it worse.
>>
>> Example: you have been blind your whole life, you are 40 years old and
>> you are offered this eye transplant that will give you sight.
>>
>> Some of the things to think about.
>>
>> 1. I need to take transplant medications the rest of my life.
>> 2. What is the transplant doesn't work or your body rejects it, I deal
> with
>> this on a daily bases.   It is not a cure transplant, it is a treatment.
>> They are not like cornea transplants
>> 3. Let's say you can see now what, sometimes your sight is distorted
>> and may not be able to see more than just a little bit.
>> Or if it is a lot, they you will need to go back to school, and learn
>> to read, write, do math, science, learn money, banking, grocery shopping.
> Etc.
>>
>> 4. You would need someone to help in these areas, maybe even more than
>> someone who is blind.
>>
>> The medical profession is always thinking about how to fix things, not
>> to deal with things, in life.
>>
>> When they can't they feel like they have failed.
>>
>>
>> Cheryl Echevarria, Vice President
>> National Federation of the Blind, Greater Long Island Chapter A proud
>> chapter of the National Federation of the Blind of New York State
>> 631-236-5138
>> cherylandmaxx at hotmail.com
>> "Live the Life You Want"
>>
>> The National Federation of the Blind knows that blindness is not the
>> characteristic that defines you or your future. Every day we raise the
>> expectations of blind people, because low expectations create
>> obstacles between blind people and our dreams. You can have the life
>> you want; blindness is not what holds you back.
>>
>>
>> Cheryl Echevarria is also the owner of Echevarria Travel
>> www.echevarriatravel.com; 631-456-5394 or
>> reservations at echevarriatravel.com and  has partnered with Braille
>> Smith. www.braillesmith.com for all her braille needs.  Gail Smith is
>> the Secretary of the NFB of Alabama
>>
>>
>>
>>
>>
>>
>>
>>
>> -----Original Message-----
>> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of
>> Ineyda Velasquez via blindtlk
>> Sent: Monday, November 10, 2014 3:56 PM
>> To: Blind Talk Mailing List
>> Subject: [Blindtlk] [blindtlk] transplants
>>
>> Hi,
>> Someone asked me if I'd ever asked my eye doctor about getting a
>> transplant for the damaged parts of my eyes. Can that actually be done
>> or does it depend on the condition you have? I have Leber's congenital
> amaurosis.
>>
>> Ineyda
>>
>> Sent from my iPhone
>> _______________________________________________
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>
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