[Blindtlk] [blindtlk] transplants

[justin williams]

No mutations hear; I'm an X man.

-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Ineyda
Velasquez via blindtlk
Sent: Monday, November 10, 2014 11:17 PM
To: Arielle Silverman; Blind Talk Mailing List
Subject: Re: [Blindtlk] [blindtlk] transplants

I'd like to know my mutations too. :)

Sent from my iPhone

> On Nov 10, 2014, at 11:06 PM, Arielle Silverman via blindtlk
<blindtlk at nfbnet.org> wrote:
> 
> Yes. Lebers affects the retina so transplantation is not yet an 
> option. Some forms of Lebers are amenable to gene therapy treatment at 
> least in trial subjects who have a lot of usable vision. If you do a 
> search you will find a lot of info online about experimental gene 
> therapy. Personally I wouldn't go for any medical intervention that 
> hadn't passed out of the trial phase yet but that's just my opinion. I 
> went to one of the LCA conferences and though I was a biology major at 
> the time, I was bored to tears with the presentations. However, it can 
> be a good way to reach out and support families with younger children.
> Also, it is becoming common for Lebers folks to get genetic testing 
> done. I am not interested in treatment but am considering getting the 
> testing done because certain genetic variants are associated with 
> kidney complications and that might be something good for me to know 
> about before I start getting old. That said, nearly everyone I know 
> who has LCA-related kidney disease developed it in childhood, so if 
> you don't have issues now you probably won't get them.
> Arielle
> 
>> On 11/10/14, Larry Wayland via blindtlk <blindtlk at nfbnet.org> wrote:
>> You are right, the cornea is the only part of the eye that can be 
>> transplanted at this time.  However there are lens implants for those 
>> with cataracts.
>> Scientist are working on growing retinas with stem cells. If 
>> successful the retinas would be transplanted into the eye. I don't 
>> think there would be a rejection problem with this because the stem 
>> cells would come from the persons own body.  That is a long way off
though.
>> 
>> 
>> 
>> 
>> -----Original Message-----
>> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of 
>> Cindy Ray via blindtlk
>> Sent: Monday, November 10, 2014 3:01 PM
>> To: Ineyda Velasquez; Blind Talk Mailing List
>> Subject: Re: [Blindtlk] [blindtlk] transplants
>> 
>> The main transplant done I think is still the cornea, but I am sure 
>> someone can correct me if I would be wrong.
>> Cindy
>> 
>> On Nov 10, 2014, at 2:55 PM, Ineyda Velasquez via blindtlk 
>> <blindtlk at nfbnet.org> wrote:
>> 
>>> Hi,
>>> Someone asked me if I'd ever asked my eye doctor about getting a
>> transplant for the damaged parts of my eyes. Can that actually be 
>> done or does it depend on the condition you have? I have Leber's 
>> congenital amaurosis.
>>> 
>>> Ineyda
>>> 
>>> Sent from my iPhone
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> 
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