[Blindtlk] [blindtlk] transplants

Wed Nov 12 23:35:50 UTC 2014

There are some things that people who never could see before can never
actually learn because of the development of the brain.

Cindy

-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Carly
Mihalakis via blindtlk
Sent: Wednesday, November 12, 2014 5:13 PM
To: justin williams; Blind Talk Mailing List; 'Bryan Schulz'; 'Blind Talk
Mailing List'
Subject: Re: [Blindtlk] [blindtlk] transplants

Afternoon, "'Bryan, and everyone,

How could it not be? I mean, you gotta learn how to negosiate this 
world I mean reallly basic stuff, like identifying colors?
No thank you!
Carjustin williams via blindtlk wrote:
>Newly sighted may become a disability; you would have ot learn everything
>all over again right?
>
>-----Original Message-----
>From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Bryan
>Schulz via blindtlk
>Sent: Monday, November 10, 2014 7:06 PM
>To: Cheryl Echevarria; Blind Talk Mailing List
>Subject: Re: [Blindtlk] [blindtlk] transplants
>
>hi,
>
>Please check your facts before posting.
>there is a huge difference in taking a 3-wheel motorcycle for a spin
>compared to reacting to a christmas tree and travelling 240mph in six
>seconds or less!
>Bryan Schulz
>
>
>----- Original Message -----
>From: "Cheryl Echevarria via blindtlk" <blindtlk at nfbnet.org>
>To: "'Ineyda Velasquez'" <ivelasquez774 at gmail.com>; "'Blind Talk Mailing
>List'" <blindtlk at nfbnet.org>
>Sent: Monday, November 10, 2014 3:27 PM
>Subject: Re: [Blindtlk] [blindtlk] transplants
>
>
> > No Cornea transplants are different from eye transplants, Cornea's
> > only fix is there are cornea issues, they normally don't fix if you
> > are totally blind or almost totally blind.
> >
> > Other transplants, you have to make sure your heart is in good
> > condition, they need to monitor blood pressure, diabetes, make sure no
> > cancer, you need to also go for colonoscopy, bone density tests,
> > because transplant meds, elevate blood pressure, blood sugar, can
> > cause cancer, can increase early bone problems within the body.
> >
> > If you are looking for a fix to bring sight to yourself and others
> > with that kind of surgery, I believe it is still in the planning and
> > testing stages, but it could be out there in other countries, but the
> > main thing is that we know what both sides of the coin are.
> >
> > We have members like Art Schrieber who is a person who was a
> > correspondent, who toured with the Beatles, he was sighted until late
> > in life and woke on one morning blind, who is learning what it means
> > to be blind. We have Dan Parker, who lost his sight while in a car
> > race, he hasn't given up since he is blind now, and is still racing
> > the race cars, and learning braille and other blind skills.
> >
> > Even myself and others who have lost their sight as we got older from
> > either illness or accident and not born blind, who have come through
> > it with friends and family, and the National Federation of the Blind,
> > some of us are luckier than others, where they live, but when there is
> > a will there is a way of things. Not saying that anyone on this list
> > is not trying their hardest to "Life the live the want" independently
> > as they can do what they want.
> >
> > In my case, when people say to me in that poor blind person kind of
> > tone, I tell them well you know what God saved my life. I can either
> > be blind or be dead while waiting for a kidney while I was on dialysis
> > at the same time, and god sent me a kidney. So the rest may not be
> > easier for me as a blind person, believe me it isn't, but it puts
> > things in a different prospective, that live is too short, and we need
> > to try our best while we are here in this world.
> >
> > Sincerely,
> >
> >
> > Cheryl Echevarria, Vice President
> > National Federation of the Blind, Greater Long Island Chapter A proud
> > chapter of the National Federation of the Blind of New York State
> > 631-236-5138
> > cherylandmaxx at hotmail.com
> > "Live the Life You Want"
> >
> > The National Federation of the Blind knows that blindness is not the
> > characteristic that defines you or your future. Every day we raise the
> > expectations of blind people, because low expectations create
> > obstacles between blind people and our dreams. You can have the life
> > you want; blindness is not what holds you back.
> >
> >
> > Cheryl Echevarria is also the owner of Echevarria Travel
> > www.echevarriatravel.com; 631-456-5394 or
> > reservations at echevarriatravel.com and  has partnered with Braille
> > Smith. www.braillesmith.com for all her braille needs.  Gail Smith is
> > the Secretary of the NFB of Alabama
> >
> >
> >
> >
> > -----Original Message-----
> > From: Ineyda Velasquez [mailto:ivelasquez774 at gmail.com]
> > Sent: Monday, November 10, 2014 4:17 PM
> > To: Cheryl Echevarria
> > Subject: Re: [Blindtlk] [blindtlk] transplants
> >
> > And that's why I don't know if I'd want the cornial transplant. I'd
> > have to take the meds and deal with possible rejection for it right?
> > Or are they different? What qualifies someone for one?
> >
> > Sent from my iPhone
> >
> >> On Nov 10, 2014, at 4:05 PM, Cheryl Echevarria
> >> <cherylandmaxx at hotmail.com>
> > wrote:
> >>
> >> President Carl Jacobsen, from the NFB of NY has Lebers.
> >>
> >> Maybe reach out to him and discuss the eye diseases.
> >>
> >> For myself who is a transplant survivor of a kidney, even though they
> >> are different organs of the body, they still have to go through the
> >> same testing and health issues, make sure you are well enough for
> >> your body as a whole to receive a foreign organ.
> >>
> >> The other thing is and we have had these discussions at our chapter,
> >> the NFB of Greater Long Island, which I am the Vice President of, is
> >> that for someone who may have been born without sight or limited
> >> sight, that having something you never had would be a learning
> >> experience.
> >>
> >> From learning how to read, learning how to write. People think that
> >> oh wow if I had a transplant than everything would be better for me.
> >> It might make it worse.
> >>
> >> Example: you have been blind your whole life, you are 40 years old
> >> and you are offered this eye transplant that will give you sight.
> >>
> >> Some of the things to think about.
> >>
> >> 1. I need to take transplant medications the rest of my life.
> >> 2. What is the transplant doesn't work or your body rejects it, I
> >> deal
> > with
> >> this on a daily bases.   It is not a cure transplant, it is a
treatment.
> >> They are not like cornea transplants
> >> 3. Let's say you can see now what, sometimes your sight is distorted
> >> and may not be able to see more than just a little bit.
> >> Or if it is a lot, they you will need to go back to school, and learn
> >> to read, write, do math, science, learn money, banking, grocery
shopping.
> > Etc.
> >>
> >> 4. You would need someone to help in these areas, maybe even more
> >> than someone who is blind.
> >>
> >> The medical profession is always thinking about how to fix things,
> >> not to deal with things, in life.
> >>
> >> When they can't they feel like they have failed.
> >>
> >>
> >> Cheryl Echevarria, Vice President
> >> National Federation of the Blind, Greater Long Island Chapter A proud
> >> chapter of the National Federation of the Blind of New York State
> >> 631-236-5138
> >> cherylandmaxx at hotmail.com
> >> "Live the Life You Want"
> >>
> >> The National Federation of the Blind knows that blindness is not the
> >> characteristic that defines you or your future. Every day we raise
> >> the expectations of blind people, because low expectations create
> >> obstacles between blind people and our dreams. You can have the life
> >> you want; blindness is not what holds you back.
> >>
> >>
> >> Cheryl Echevarria is also the owner of Echevarria Travel
> >> www.echevarriatravel.com; 631-456-5394 or
> >> reservations at echevarriatravel.com and  has partnered with Braille
> >> Smith. www.braillesmith.com for all her braille needs.  Gail Smith is
> >> the Secretary of the NFB of Alabama
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >> -----Original Message-----
> >> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of
> >> Ineyda Velasquez via blindtlk
> >> Sent: Monday, November 10, 2014 3:56 PM
> >> To: Blind Talk Mailing List
> >> Subject: [Blindtlk] [blindtlk] transplants
> >>
> >> Hi,
> >> Someone asked me if I'd ever asked my eye doctor about getting a
> >> transplant for the damaged parts of my eyes. Can that actually be
> >> done or does it depend on the condition you have? I have Leber's
> >> congenital
> > amaurosis.
> >>
> >> Ineyda
> >>
> >> Sent from my iPhone
> >> _______________________________________________
> >> blindtlk mailing list
> >> blindtlk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> blindtlk:
> >> http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/cherylandmaxx%4
> >> 0
> >> hotmai
> >> l.com
> >
> > _______________________________________________
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> > obal.net
>
>
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