[Blindtlk] Having a Problem...

Thu Apr 28 06:37:51 UTC 2016

Evening, Kerri,

         Sounds like classic 24-hour! Used to have similar symptoms 
as a pre-teen before learning about what they are calling 24-hour and 
how maybe to control it some. When I say control all I'm talking 
about is moderate exercise, Melitonin or marijuana before bed so my 
brain knows to sleep. Those things work for me as I am unwilling to 
give up coffee! 08:51 PM 2/27/2016, Cindy Ray via blindtlk wrote:
>Well, first of all, there are a lot of reasons why people don't sleep.
>Second, my sleep doc suggested that right off and I said to her if that was
>the case I would probably have always had that problem. Of course I don't
>have that problem to that extent that you are describing. It doesn't matter
>what people think of the commercials; they are what they are. They don't
>just automatically put you on the medication. They talk to you about the
>problem and they would likely do a study and, far as I know, blood work. In
>my case they did not because I didn't have that kind of symptoms. Do you
>ever exercise? I am thinking that movement might help you some. It sounds as
>if you stay awake all night, sit around, watch TV, and then sleep. That's
>not a judgment and maybe I misunderstood what you said? You need to move
>around some I think. Also, you get a night's sleep during the day so there
>is no way you are going to sleep at night. Try to wean yourself by setting
>an alarm so you don't sleep that much. But really, I'd say go to the doctor
>and ask to have a sleep study. Sleep centas measure brain waves and
>breathing and a number of different things. Don't take the ads for Non-24
>into account. They are for marketing purposes, and as was stated elsewhere,
>an employer won't think much of you if you are sleeping when you should be
>working.
>
>Blessings, and good luck.
>Cindy
>
>
>-----Original Message-----
>From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Kerri
>Kosten via blindtlk
>Sent: Saturday, February 27, 2016 9:17 PM
>To: Blind Talk Mailing List <blindtlk at nfbnet.org>; Anjelina Cruz
><anjelinac26 at gmail.com>; Ed McDonald <ed at eioproductions.com>
>Cc: Kerri Kosten <kerrik2006 at gmail.com>
>Subject: [Blindtlk] Having a Problem...
>
>Hi Everyone:
>First, I am very very ashamed and embarrassed to admit this, so please no
>judgment for this message.
>I am really really struggling with wanting to sleep all day and staying
>awake all night. No matter what I try to do though, I can't seem to fight
>it.
>For example, on Wednesday, I woke up at 10 PM.
>I was wide awake the rest of the night. On Thursday morning at around
>8 AM, I got up and went to my couch to watch TV.
>At 10, I sat on the floor and listened to one of my favorite radio shows.
>At noon, I again went to my couch and put on the radio.
>At around 2, I began to become exhausted.
>When I try to fight it and stay awake I become increasingly exhausted until
>I get a headache.
>Unable to take it, I usually end up laying back down and falling asleep.
>Here is the thing though. Even if I manage to stay up all day when it is
>time to go to sleep I am still wide wide awake all night and don't get tired
>until like 1 or 2 the next day so have to try to fight the whole thing all
>over again.
>I can't sleep at all at night, but if I try to stay up during the day when
>the world is awake my body fights me with everything it has.
>But when it's night I am wide awake.
>This is happening every day and is making me feel really ashamed and
>depressed.
>I read the thread on Non 24-7. I am a member of the NFB.
>Like everyone else on this list, I hate those commercials on the radio. It
>makes me very very ashamed that I struggle to get through the day like those
>commercials say.
>I don't want to ruin any blind persons chances of employment because an
>employer hears those messages on the radio and believes them. I myself want
>to fit into the sighted world. My passion is sports, and so I've always
>wanted to do something with sports media. I want to show blind people can do
>things. I don't want to give off the message we can't even stay up during
>the day.
>I also feel ashamed because I can't really get a job or go to school or
>anything if I can't even stay up during the day. Sure I'm awake all night,
>but if I sleep all day I feel so depressed I slept through the day, I have
>no motivation to do anything.
>Even as I type this, I'm really upset. I fell asleep today at 1 PM. I am a
>huge sports fan and my favorite team had a game at 6 PM. I'll admit, I
>forgot to set an alarm for 6 PM to wake myself up. Anyway, I ended up waking
>up at 8:30 PM and missing the entire game. I found out my team won, but this
>is the first time I've ever missed an entire game.
>Today is also my Mother's birthday. When I was still awake this morning at
>around 11, I called her but she was out so didn't answer.
>She tried to call me back at 1:25 PM and I totally missed her call because I
>was asleep. I of course got to talk to her when I woke up but now I'll feel
>horrible the rest of the night because I have been asleep all day, and I
>missed the entire game.
>And I'll be wide awake all night and tomorrow I'll get exhausted at around 1
>PM again.
>And yet, when I determinedly try to fight this, my body battles me with
>everything it has until I give in.
>This is out of control!!
>Does anyone else struggle with this?
>Is there anything that works or do I have to go to the doctors and admit
>these stupid ads Vanda has on the radio are true at least for me?
>The world is already so much about sight...I don't want sleep to be about
>sight too!!
>How do others deal with these sleep issues?
>If I go to the doctors and say I get my nights and days mixed up will they
>automatically assume I have this non 24 thing and immediately contact Vanda
>no matter how much I protest?
>Is there any way to lessen the exhaustion or something enough to stay up the
>entire day so I can force my body to sleep at night?
>I don't know what to do...
>Thanks,
>Kerri
>
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