[Blindtlk] Having a Problem...

Cindy Ray cindyray at gmail.com
Thu Apr 28 10:57:22 UTC 2016 

The message you are responding to was from February. Since then she wrote
and said she had found a solution to the sleep problem and would tell us one
day soon.
Cindy


-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Anna via
blindtlk
Sent: Thursday, April 28, 2016 2:29 AM
To: Blind Talk Mailing List <blindtlk at nfbnet.org>
Cc: annajee82 at gmail.com
Subject: Re: [Blindtlk] Having a Problem...

Many many people, blind and sighted have serious sleeping problems!!!
I agree with what others said that exercising would be good.  Take a walk,
late afternoon sun is helpful for the brain's cycles... Even if you cannot
see light I think it may still help.  Don't exercise in the evening.  What
are you eating and drinking?  Those choices can affect sleep.  Staying home
all day often makes me tired.  Be out of your house as much as you can
during the day.  That should help a lot, I would think.  Melatonin an hour
before bed is good.  Also teas or essential oils could help.  Routine helps.
Lastly, I will say that doctors can't do anything if you protest to it.
Doctors don't know it all, And you are the patient so you have to dictate
your healthcare.  I have no idea if you have non-24.  But I would try some
of these suggestions if I were you, before making that assumption.
Good luck!

Anna E Givens


> On Apr 28, 2016, at 12:37 AM, Carly Mihalakis via blindtlk
<blindtlk at nfbnet.org> wrote:
> 
> Evening, Kerri,
> 
>        Sounds like classic 24-hour! Used to have similar symptoms as a
pre-teen before learning about what they are calling 24-hour and how maybe
to control it some. When I say control all I'm talking about is moderate
exercise, Melitonin or marijuana before bed so my brain knows to sleep.
Those things work for me as I am unwilling to give up coffee! 08:51 PM
2/27/2016, Cindy Ray via blindtlk wrote:
>> Well, first of all, there are a lot of reasons why people don't sleep.
>> Second, my sleep doc suggested that right off and I said to her if 
>> that was the case I would probably have always had that problem. Of 
>> course I don't have that problem to that extent that you are 
>> describing. It doesn't matter what people think of the commercials; 
>> they are what they are. They don't just automatically put you on the 
>> medication. They talk to you about the problem and they would likely 
>> do a study and, far as I know, blood work. In my case they did not 
>> because I didn't have that kind of symptoms. Do you ever exercise? I 
>> am thinking that movement might help you some. It sounds as if you 
>> stay awake all night, sit around, watch TV, and then sleep. That's 
>> not a judgment and maybe I misunderstood what you said? You need to 
>> move around some I think. Also, you get a night's sleep during the 
>> day so there is no way you are going to sleep at night. Try to wean 
>> yourself by setting an alarm so you don't sleep that much. But 
>> really, I'd say go to the doctor and ask to have a sleep study. Sleep 
>> centas measure brain waves and breathing and a number of different 
>> things. Don't take the ads for Non-24 into account. They are for 
>> marketing purposes, and as was stated elsewhere, an employer won't think
much of you if you are sleeping when you should be working.
>> 
>> Blessings, and good luck.
>> Cindy
>> 
>> 
>> -----Original Message-----
>> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of 
>> Kerri Kosten via blindtlk
>> Sent: Saturday, February 27, 2016 9:17 PM
>> To: Blind Talk Mailing List <blindtlk at nfbnet.org>; Anjelina Cruz 
>> <anjelinac26 at gmail.com>; Ed McDonald <ed at eioproductions.com>
>> Cc: Kerri Kosten <kerrik2006 at gmail.com>
>> Subject: [Blindtlk] Having a Problem...
>> 
>> Hi Everyone:
>> First, I am very very ashamed and embarrassed to admit this, so 
>> please no judgment for this message.
>> I am really really struggling with wanting to sleep all day and 
>> staying awake all night. No matter what I try to do though, I can't 
>> seem to fight it.
>> For example, on Wednesday, I woke up at 10 PM.
>> I was wide awake the rest of the night. On Thursday morning at around
>> 8 AM, I got up and went to my couch to watch TV.
>> At 10, I sat on the floor and listened to one of my favorite radio shows.
>> At noon, I again went to my couch and put on the radio.
>> At around 2, I began to become exhausted.
>> When I try to fight it and stay awake I become increasingly exhausted 
>> until I get a headache.
>> Unable to take it, I usually end up laying back down and falling asleep.
>> Here is the thing though. Even if I manage to stay up all day when it 
>> is time to go to sleep I am still wide wide awake all night and don't 
>> get tired until like 1 or 2 the next day so have to try to fight the 
>> whole thing all over again.
>> I can't sleep at all at night, but if I try to stay up during the day 
>> when the world is awake my body fights me with everything it has.
>> But when it's night I am wide awake.
>> This is happening every day and is making me feel really ashamed and 
>> depressed.
>> I read the thread on Non 24-7. I am a member of the NFB.
>> Like everyone else on this list, I hate those commercials on the 
>> radio. It makes me very very ashamed that I struggle to get through 
>> the day like those commercials say.
>> I don't want to ruin any blind persons chances of employment because 
>> an employer hears those messages on the radio and believes them. I 
>> myself want to fit into the sighted world. My passion is sports, and 
>> so I've always wanted to do something with sports media. I want to 
>> show blind people can do things. I don't want to give off the message 
>> we can't even stay up during the day.
>> I also feel ashamed because I can't really get a job or go to school 
>> or anything if I can't even stay up during the day. Sure I'm awake 
>> all night, but if I sleep all day I feel so depressed I slept through 
>> the day, I have no motivation to do anything.
>> Even as I type this, I'm really upset. I fell asleep today at 1 PM. I 
>> am a huge sports fan and my favorite team had a game at 6 PM. I'll 
>> admit, I forgot to set an alarm for 6 PM to wake myself up. Anyway, I 
>> ended up waking up at 8:30 PM and missing the entire game. I found 
>> out my team won, but this is the first time I've ever missed an entire
game.
>> Today is also my Mother's birthday. When I was still awake this 
>> morning at around 11, I called her but she was out so didn't answer.
>> She tried to call me back at 1:25 PM and I totally missed her call 
>> because I was asleep. I of course got to talk to her when I woke up 
>> but now I'll feel horrible the rest of the night because I have been 
>> asleep all day, and I missed the entire game.
>> And I'll be wide awake all night and tomorrow I'll get exhausted at 
>> around 1 PM again.
>> And yet, when I determinedly try to fight this, my body battles me 
>> with everything it has until I give in.
>> This is out of control!!
>> Does anyone else struggle with this?
>> Is there anything that works or do I have to go to the doctors and 
>> admit these stupid ads Vanda has on the radio are true at least for me?
>> The world is already so much about sight...I don't want sleep to be 
>> about sight too!!
>> How do others deal with these sleep issues?
>> If I go to the doctors and say I get my nights and days mixed up will 
>> they automatically assume I have this non 24 thing and immediately 
>> contact Vanda no matter how much I protest?
>> Is there any way to lessen the exhaustion or something enough to stay 
>> up the entire day so I can force my body to sleep at night?
>> I don't know what to do...
>> Thanks,
>> Kerri
>> 
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> 
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