[Blindtlk] Having a Problem...

[Larry Wayland]

Karri:
First of all, a problem can't be fixed by trying to hide it. 
You may or may not have "non 24".  You might want to see your doctor and ask
for a sleep study to find out what is going on.  
For all the people who are having problems with sleep and having trouble
staying awake during the day while at work, don't you think your co-workers
notice?  What kind of example is that. I would rather find the problem,
address it, be awake and alert during the day.
See your doctor and have a sleep study done.  
Larry


-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Kerri
Kosten via blindtlk
Sent: Saturday, February 27, 2016 9:17 PM
To: Blind Talk Mailing List; Anjelina Cruz; Ed McDonald
Cc: Kerri Kosten
Subject: [Blindtlk] Having a Problem...

Hi Everyone:
First, I am very very ashamed and embarrassed to admit this, so please no
judgment for this message.
I am really really struggling with wanting to sleep all day and staying
awake all night. No matter what I try to do though, I can't seem to fight
it.
For example, on Wednesday, I woke up at 10 PM.
I was wide awake the rest of the night. On Thursday morning at around
8 AM, I got up and went to my couch to watch TV.
At 10, I sat on the floor and listened to one of my favorite radio shows.
At noon, I again went to my couch and put on the radio.
At around 2, I began to become exhausted.
When I try to fight it and stay awake I become increasingly exhausted until
I get a headache.
Unable to take it, I usually end up laying back down and falling asleep.
Here is the thing though. Even if I manage to stay up all day when it is
time to go to sleep I am still wide wide awake all night and don't get tired
until like 1 or 2 the next day so have to try to fight the whole thing all
over again.
I can't sleep at all at night, but if I try to stay up during the day when
the world is awake my body fights me with everything it has.
But when it's night I am wide awake.
This is happening every day and is making me feel really ashamed and
depressed.
I read the thread on Non 24-7. I am a member of the NFB.
Like everyone else on this list, I hate those commercials on the radio. It
makes me very very ashamed that I struggle to get through the day like those
commercials say.
I don't want to ruin any blind persons chances of employment because an
employer hears those messages on the radio and believes them. I myself want
to fit into the sighted world. My passion is sports, and so I've always
wanted to do something with sports media. I want to show blind people can do
things. I don't want to give off the message we can't even stay up during
the day.
I also feel ashamed because I can't really get a job or go to school or
anything if I can't even stay up during the day. Sure I'm awake all night,
but if I sleep all day I feel so depressed I slept through the day, I have
no motivation to do anything.
Even as I type this, I'm really upset. I fell asleep today at 1 PM. I am a
huge sports fan and my favorite team had a game at 6 PM. I'll admit, I
forgot to set an alarm for 6 PM to wake myself up. Anyway, I ended up waking
up at 8:30 PM and missing the entire game. I found out my team won, but this
is the first time I've ever missed an entire game.
Today is also my Mother's birthday. When I was still awake this morning at
around 11, I called her but she was out so didn't answer.
She tried to call me back at 1:25 PM and I totally missed her call because I
was asleep. I of course got to talk to her when I woke up but now I'll feel
horrible the rest of the night because I have been asleep all day, and I
missed the entire game.
And I'll be wide awake all night and tomorrow I'll get exhausted at around 1
PM again.
And yet, when I determinedly try to fight this, my body battles me with
everything it has until I give in.
This is out of control!!
Does anyone else struggle with this?
Is there anything that works or do I have to go to the doctors and admit
these stupid ads Vanda has on the radio are true at least for me?
The world is already so much about sight...I don't want sleep to be about
sight too!!
How do others deal with these sleep issues?
If I go to the doctors and say I get my nights and days mixed up will they
automatically assume I have this non 24 thing and immediately contact Vanda
no matter how much I protest?
Is there any way to lessen the exhaustion or something enough to stay up the
entire day so I can force my body to sleep at night?
I don't know what to do...
Thanks,
Kerri

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