[Blindtlk] {Spam?} RE: Is it my duty? was Non 24, Sleep Problems, and how our blindness weighs in

Wed Jan 13 18:16:26 UTC 2016

Agreed. Moreover, such phrases as "clinically proven" are never defined. We
are never told whether pluscebo-controlled, double-blind studies have been
carried out and what the results of said studies are. And when hearing
testimony about the efficacy of products such as weight-loss regimens, we
are never told what long-term (i.e., five years later) results are, I
suspect because they aren't nearly as positive as the ad purveyors would
like.

And have you ever wondered why those hockers of books and CDs purporting to
provide advice to "beat the market" are doing their things? After all, if
they were doing all that well, they wouldn't need to hock their books/CDs!

If something's too good to be true, it's probably a scam.

Mike freeman

-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Judy Jones
via blindtlk
Sent: Tuesday, January 12, 2016 4:21 PM
To: Blind Talk Mailing List
Cc: Judy Jones
Subject: Re: [Blindtlk] Is it my duty? was Non 24, Sleep Problems, and how
our blindness weighs in

How do we really know that the doctor and patient aren't fictitious anyway. 
These people are trying to sell a product.  Just because we're supposed to
be hearing doctor and patient voices does not mean we really are.

Judy

-----Original Message-----
From: Arielle Silverman via blindtlk
Sent: Tuesday, January 12, 2016 3:39 PM
To: Blind Talk Mailing List
Cc: Arielle Silverman
Subject: Re: [Blindtlk] Is it my duty? was Non 24, Sleep Problems, and how
our blindness weighs in

Yes. It was a nice combo of ableism and sexism, with a side of
confidentiality breach.
Arielle

On 1/12/16, justin williams via blindtlk <blindtlk at nfbnet.org> wrote:
> He sure did; when I saw that, I was in shock.  A doctor is not 
> supposed to tell anyone about their client unless the person has 
> signed for their info to be released.
>  Justin
>
> -----Original Message-----
> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of 
> Ericka via blindtlk
> Sent: Tuesday, January 12, 2016 2:51 PM
> To: Blind Talk Mailing List <blindtlk at nfbnet.org>
> Cc: Ericka <dotwriter1 at gmail.com>
> Subject: Re: [Blindtlk] Is it my duty? was Non 24, Sleep Problems, and 
> how our blindness weighs in
>
> I think the doctor actually broke the confidentiality laws by telling 
> her that she needs to take care of him and make him do something. Any 
> good doctor would talk to the patient and find out why they're not 
> making the choice to do so. The doctor couldn't solve the 
> transportation or touchscreen problem but he should know the truth 
> from the patient not assuming. I'm guessing there's more reasons why 
> the girlfriend was dropped than this.
>
> Ericka Short
> "Friends are like flowers in the garden of life"
>
> Sent from my iPhone
>
>> On Jan 11, 2016, at 9:33 PM, Cindy Ray via blindtlk 
>> <blindtlk at nfbnet.org>
> wrote:
>>
>> Blind or sighted, it is not anybody's "wifely duty" to make a guy
> exercise.
>> If you would want to, fine. Otherwise, none of the doc's business. If 
>> the doctor had something to say about it, it would necessarily be to 
>> the person who wasn't exercising. People have told me I needed to 
>> make my husband eat less, exercise, whatever. I said he is an adult.
>>
>>
>> -----Original Message-----
>> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Mark 
>> Tardif via blindtlk
>> Sent: Monday, January 11, 2016 8:03 PM
>> To: S L Johnson <SLJohnson25 at comcast.net>; Blind Talk Mailing List 
>> <blindtlk at nfbnet.org>
>> Cc: Mark Tardif <markspark at roadrunner.com>
>> Subject: Re: [Blindtlk] Non 24, Sleep Problems, and how our blindness 
>> weighs in
>>
>> Pardon me, but it sounds like your complex really sucks when 
>> considering the needs of tenants.  I am lucky enough to have bought a 
>> treadmill which I keep in my apartment, and the person who sold it to 
>> me worked with me and developed tactile cues on the numbers and other
> buttons I would likely use.
>> By the way, Sandra and the rest of us, this leads to another problem 
>> with uneducated so-called medical professionals who incidentally 
>> don't appear to live in the real world that we inhabit.  My former 
>> girlfriend and I were living together and had the same so-called 
>> doctor and I found out from my friend that the doctor had told her I 
>> was "recalcitrient" about exercise and that my girlfriend should "do 
>> her wifely duty" in getting me to exercise more.  This, without 
>> knowing that I worked fulltime and that getting to a gymn regularly 
>> was difficult because transportation in our town really sucked, and 
>> that once I got there I would likely have to wrestle with touch 
>> screen equipment.  This was kind of the last straw with her and I 
>> quickly found a real doctor, but I really was tempted to go after 
>> this witch-bitch for what I perceived as ethical violations.  But it 
>> seemed
> easier to just find another doctor.
>>
>>
>>
>> Mark Tardif
>> Nuclear arms will not hold you.
>> -----Original Message-----
>> From: S L Johnson via blindtlk
>> Sent: Monday, January 11, 2016 8:29 PM
>> To: Blind Talk Mailing List
>> Cc: S L Johnson
>> Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness 
>> weighs in
>>
>> Bob,
>>
>> I suppose a good exercise program could help regulate sleep.  You 
>> were very lucky to have been exposed to physical activity.  I know I 
>> was not given the chance once I lost all my vision.  I fought at 
>> least I could do gymnastics and other things that could be done 
>> without sight but, my public school refused.  After high school, I 
>> was not given access to the gym at my college.  As many other blind 
>> adults, I cannot
> afford a gym membership.
>> Even if we do go to a gym, most of the equipment have touch screens 
>> and are not accessible to the blind.  I live in a senior citizen 
>> housing development.  We have an exercise room in the clubhouse.
>> Although when I rented my house, I paid for the key card to allow me 
>> to enter, I have not been able to operate any of the equipment.  The 
>> instructions are in a big large print notebook for the low vision 
>> seniors and the equipment is all touch screens.  I've tried to talk 
>> to management and the owners but they say they do not have any way to 
>> give any access to anyone with no vision.  Oh, by the way, all the 
>> house numbers and signs are in huge print and that is supposed to 
>> meet accessibility requirements.  What about someone like me who is 
>> totally blind?  There are not any tactile landmarks even allowing me 
>> to know where I am in a maze of twisting winding sidewalks with no 
>> regular corners or street crossings.  They even refused to obtain a 
>> talking sign so I could find the crosswalk leading to the clubhouse.  
>> So, now people can stop wondering why so many blind people don't get 
>> enough exercise.  Now to bring this back to sleep disorders, I know 
>> that a good
> exercise program might help better regulate sleep but, it just isn't 
> possible for most of us.
>> Sandra
>>
>>
>> -----Original Message-----
>> From: Bob Hachey via blindtlk
>> Sent: Monday, January 11, 2016 8:00 PM
>> To: 'Blind Talk Mailing List'
>> Cc: Bob Hachey
>> Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness 
>> weighs in
>>
>> Hello Chaim,
>> I hear you loud and clear about how badly the medical profession is 
>> in need of educating when it come to dealing with us blind folks.
>> That is a shame about no gym class for something like two years of 
>> school. I was very fortunate living in Reading Massachusetts. Our 
>> public school gym teachers were very good about including me in gym 
>> classes. When the class did things like Soccer, I lifted weights and 
>> ran the ttrakc with a student volunteer. IN flag football, I played 
>> center, though it was hard to get the hang of blocking an opponent.
>> They put sounders on the basketball hoops and I tried using a beep 
>> basketball but I had trouble trying to get the hang of both sounds at 
>> once
> and tracking the ball.
>> I did calesthenics, gymnastics and wrestiling along with the group.
>> WE must be ever vigilant so as to ensure that all of our brothers and 
>> sisters get proper physical education.
>> Bob Hachey
>>
>>
>> -----Original Message-----
>> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Chaim B.
>> Segal via blindtlk
>> Sent: Monday, January 11, 2016 6:54 PM
>> To: blindtlk at nfbnet.org
>> Cc: Chaim B. Segal
>> Subject: [Blindtlk] Non 24, Sleep Problems, and how our blindness 
>> weighs in
>>
>> Hi Folks:
>>
>> I have not posted on this list in a great number of months, as work 
>> duties circumvented my opportunity to read as many messages from 
>> listserves as before. I decided to start receiving mail from these 
>> nfbnet.org lists again, because I think there is pertinent 
>> information out there I should be aware of. Even if I end up running 
>> behind on
> digests, better to be informed.
>>
>> When I think of the Non 24 issue, something entirely different comes 
>> to mind. As was stated on this list a few days ago, many sighted 
>> people also have sleep-related difficulties, which have nothing to do 
>> with blindness. My own father, bless his memory, lost a job in his 
>> later days because he kept falling asleep. Falling asleep on the job 
>> was the last straw which caused my release from my previous job, but 
>> that was largely caused by stress on account of a new order of
> rules-entirely different subject.
>>
>> A good number of years ago, my older blind brother was diagnosed with 
>> sleep apnea. To make a long story short, his doctor-ordered sleep 
>> study led to his being prescribed a C-pap. Parenthetically, he was 
>> extremely overweight, which may have been part of the cause of the 
>> sleep
> apnea.
>>
>> I have been married, thank-God for six years and counting. Early on, 
>> I discovered that my wife had an extremely serious problem with 
>> narcolepsy. I don't want to make myself a laughing stock, but I'll 
>> say that she and I are not exactly thin. I will spare unnecessary detail.
>> I discovered on my own that she had serious trouble breathing 
>> throughout the night, and was often awaken by her gasping for air in 
>> her sleep. Recalling these symptoms from my older brother, I took it 
>> upon myself to engineer her getting a referral for a sleep study.
>> Turned out, she also had sleep apnea. Like my brother, she uses a 
>> C-pap, and has much more energy during the day. The sleep doctor (who 
>> just retired) nearly insisted that she try Non 24. She and I were 
>> adamant that this was not a matter of interest. Like a number of 
>> unfortunate sighted folks out there, the guy was under the impression 
>> that blind people cannot really move comfortably beyond their own 
>> space. He was, in fact, surprised to find out how many  blind couples 
>> exist.  I am glad we had the opportunity to set him straight. It 
>> bothers me that there is not a mandatory course in disability 
>> awareness for doctors and nurses in medical and nursing school. I 
>> think that anybody entering the medical field who may, at any point 
>> in
> their career, treat a disabled person be notified concerning 
> appropriate personal etiquette in dealing with us.
>>
>> I know that some of us bld do exercise and try to watch what we eat.
>> Sadly, a number of blind people don't. There are a number of reasons 
>> for this, including in some cases fear among gym staff that we will 
>> get hurt on their equipment, or their insurance does not allow it. My 
>> oldest (sighted) brother pointed out that with a number of us not 
>> being able to see our own body profile in the mirror, we don't 
>> realize how unhealthy we look in comparison to other people around 
>> us. While he may have a valid point, my argument to him is that from 
>> what I have heard, the majority of the US population is indeed 
>> overweight. Be that as it may, you don't have to be overweight to 
>> have sleep apnea. Maybe, a number of blind and sighted people alike 
>> have sleep apnea, but are not being treated for it. Maybe a number of 
>> blind and sighted people are not getting adequate exercise throughout 
>> the day and are not eating
> right. Maybe, there are many factors involved.
>>
>> I think that before doctors prescribe this "antidote", they ought to 
>> take a person's daily factors into account. I also think that gyms, 
>> spas, and the like, should be encouraged to run specials which 
>> encourage blind and disabled folks to come and work out. I'll take it 
>> a step further. For those blind people who attend regular mainstream 
>> school classes, there should be a law which demands that any physical 
>> fitness instructor in a public institution be given the means to 
>> include a blind or disabled student along with the rest of the class.
>>
>> On this note, I'll add one more comment. From mid way through my 
>> seventh grade year through my freshman year, I received no gym 
>> instruction in my local public school. Indeed, one reason I decided 
>> to attend the Ohio State School For The Blind for high school was 
>> that I was told physical instruction was taught there. During my 
>> sophomore year there, they did some repairs on their gymnasium and 
>> there was a big ribbon-cutting ceremony. We had been swimming in 
>> their pool in place of gym instruction. What happened after the big 
>> fanfare? Some well-meaning folks decided that we had to have a 
>> similar experience as sighted folks. So, they decided to teach us how 
>> to hit a tennis ball with a tennis racket. It flopped! As soon as we 
>> were shown how to do it and commanded to do so, the teacher(s) had to 
>> go show another blind person the same thing. So, A would shove the 
>> ball out of his hand with the racket, and have nothing to do until it 
>> could be retrieved. I felt it was a complete waste. And, as  Mr. 
>> Robert Mills, one of the  best o&m instructors in the country said, 
>> "This is a blind school! You students are blind! They have a g d big 
>> beautiful gym! They should use it
> for what it is supposed to be used for!"
>>
>> Anyway, I'll be back tomorrow or next day on an entirely different
> subject.
>>
>> Chaim
>>
>> Chaim B. Segal
>> Contact Marketing Representative
>> Sinclair Community College
>> Dayton, Ohio
>>
>> Every Man, woman, every boy and girl, Let your love light shine, make 
>> a better world.
>>
>> Daryl Hall And John Oates
>>
>> Sent from my Braille Sense U2 Mini
>>
>> _______________________________________________
>> blindtlk mailing list
>> blindtlk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> blindtlk:
>> http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/bhachey%40veriz
>> o
>> n.net
>>
>>
>> _______________________________________________
>> blindtlk mailing list
>> blindtlk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> blindtlk:
>>
>
http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/sljohnson25%40comcast.
>> net
>>
>>
>>
>> _______________________________________________
>> blindtlk mailing list
>> blindtlk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> blindtlk:
>> http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/markspark%40roa
>> d
>> runner
>> .com
>>
>>
>> -----
>> No virus found in this message.
>> Checked by AVG - www.avg.com
>> Version: 2015.0.6176 / Virus Database: 4489/11380 - Release Date:
>> 01/11/16
>>
>>
>> _______________________________________________
>> blindtlk mailing list
>> blindtlk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> blindtlk:
>> http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/cindyray%40gmai
>> l
>> .com
>>
>>
>> _______________________________________________
>> blindtlk mailing list
>> blindtlk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
> blindtlk:
>> http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/dotwriter1%40gm
>> a
>> il.com
>
> _______________________________________________
> blindtlk mailing list
> blindtlk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindtlk:
> http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/justin.williams2
> %40gma
> il.com
>
>
> _______________________________________________
> blindtlk mailing list
> blindtlk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindtlk:
> http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/arielle71%40gmai
> l.com
>

_______________________________________________
blindtlk mailing list
blindtlk at nfbnet.org
http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindtlk:
http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/sonshines59%40gmail.co
m 

_______________________________________________
blindtlk mailing list
blindtlk at nfbnet.org
http://nfbnet.org/mailman/listinfo/blindtlk_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindtlk:
http://nfbnet.org/mailman/options/blindtlk_nfbnet.org/k7uij%40panix.com