[Blindtlk] Question about SSI

Mon May 16 16:31:33 UTC 2016

I understand about this.  We have a counselor on our staff, sounds like the same eye condition.

Judy

-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Ericka via blindtlk
Sent: Monday, May 16, 2016 10:28 AM
To: Blind Talk Mailing List
Cc: Ericka
Subject: Re: [Blindtlk] Question about SSI

Very interesting. As a sidenote, I'm kind of jealous of those of you with a diagnosis. 40+ years later and UW Madison hospitals and clinics still hasn't a clue. I have I wear the retinas look like I've had oxygen at birth but didn't and wasn't even a preemie. Someone use the fancy term recently for it, but I don't remember what it was. It was the first time someone had given it a name besides congenital folds of the retina. I have some vision in one eye but as I've grown older it's become less and less useful. Social Security's never questioned me but once that I can recall. They sent me a form to fill out recently and I never had to see a doctor for them.

Ericka Short
"What is right is not always popular; what is popular is not always right."

 from my iPhone

> On May 16, 2016, at 10:13 AM, Jude DaShiell via blindtlk <blindtlk at nfbnet.org> wrote:
> 
> My eye condition is microthalmus and because of that I expect that's how my social security record got permanent blindness written on it.  For those that don't know, microthalmus is a prenatal condition in which the eyes never develop enough to see.  It's not known if this condition is genetic or caused by the environment the newborn lived in before becoming a newborn yet.
> 
>> On Mon, 16 May 2016, A Kelly via blindtlk wrote:
>> 
>> Date: Mon, 16 May 2016 08:59:32
>> From: A Kelly via blindtlk <blindtlk at nfbnet.org>
>> To: Blind Talk Mailing List <blindtlk at nfbnet.org>
>> Cc: A Kelly <gadgetgirlkelly at gmail.com>
>> Subject: Re: [Blindtlk] Question about SSI Yes, some Social Security 
>> offices in NY, do require an in-person visit by you.  They may also send you to a doctor of their choice to ensure you are blind.  When I asked why do they do this, I was told some people suffer temporary blindness and never report when their vision returns.  With that in mind, Social Security may ask you to come to their offices over the years until they are convinced your blindness is permanent.  Hope this helps.
>> 
>> Regards,
>> Gadget Girl
>> 
>> 
>>> On May 16, 2016, at 8:15 AM, Sami Osborne via blindtlk <blindtlk at nfbnet.org> wrote:
>>> 
>>> Hi all,
>>> 
>>> I'm having a rather frustrating issue with Social Security here in 
>>> NY, who are providing me my SSI benefits.  A few weeks ago, I 
>>> received a letter in the mail from Social Security telling me that I 
>>> need to show up in person at their office because they wanted to 
>>> prove that I'm actually blind even though I provided them with all 
>>> the documentation and was approved almost six months ago.  What 
>>> bothers me is that as I said, they asked me to show up in person at 
>>> their office.  My mom thought that we could just talk to them on the 
>>> phone, and she called and spoke with them (I couldn't because I'm at 
>>> my blindness training center for the week and only go home on 
>>> weekends).  My mom said that she even spoke with them two or three 
>>> times.  The first time they said that they would call me personally 
>>> at home to set up the appointment for showing up in person, but 
>>> obviously I wouldn't have been able to speak with them since I'm not 
>>> home during the week.  My mom gave them my cell phone num
> b
>> er, but they haven't called me that way either.  This is a very frustrating issue in my opinion.  I have asked other friends of mine at the training center that I'm at if they had to show up at their Social Security office six months after they were approved for SSI benefits, and they said no.  My mom thinks that it depends on the state, and that the reason they do that is probably because they want to make sure that you're not cheating in getting SSI (by the way, the people at the training center that I'm at come from all over the country).
>>> 
>>> So I'd like to know if you guys have gone through a similar experience, and if so, have you had to show up in person at the office or just talk with them on the phone?
>>> 
>>> Hope to hear from you soon, and for those of you who just finished with college, I hope you're enjoying the end as your semester!
>>> 
>>> Thanks,
>>> 
>>> Sami
>>> 
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