[Blindtlk] Fwd: Seeking parents, advocates, and caregivers

Ericka dotwriter1 at gmail.com
Tue Dec 12 02:45:37 UTC 2017



Ericka Short
 from my iPhone 6+

Begin forwarded message:

> From: Disabled Parenting Project <info at disabledparenting.com>
> Date: December 11, 2017 at 11:14:58 AM CST
> To: <Dotwriter1 at gmail.com>
> Subject: Seeking parents, advocates, and caregivers
> Reply-To: Disabled Parenting Project <info at disabledparenting.com>
> 
> 
> 
> Exciting research opportunities for parents with disabilities, advocates, and family caregivers!
> The National Research Center for Parents with Disabilities and the Lurie Institute for Disability Policy have three research studies related to parents with disabilities. If you are interested in participating or receiving more information, please contact the person listed below.
> 
> Help Make Health Care Better for Mothers with Intellectual & Developmental Disabilities
> For Mothers:
> Sometimes people with intellectual or developmental disabilities aren't treated the same at the doctor, especially if they are pregnant. We want to make health care better for mothers with intellectual and developmental disabilities. We need help from mothers who have intellectual or developmental disabilities.
> If you are a mother with an intellectual or developmental disability, we want to talk to you!
> 
>  We would ask you questions about what it was like when you were pregnant and had your baby.
>  It takes about an hour to be interviewed.
>  We would come to you. If you live far away from us, we may interview you over the phone.
>  You would get $50 as a thank you.
> Your baby needs to be younger than 18 months old (1 and a half years old).
>  Remember, it's ALWAYS your choice to be involved in research. You don't have to do it.
> Watch a video about the study: https://www.youtube.com/watch?v=Xw0td6u0M5c
> 
> For Clinicians:
> If you are a clinician who has worked with women with intellectual and developmental disabilities through the pregnancy process, we want to talk to you! 
> 
> Want to share your story?
> Want to learn more?
> Email: erosen at brandeis.edu
> Call: (781) 736-3479
> If you are a Family Caregiver of a Mother with an Intellectual or Developmental Disability who has given Birth, the Lurie Institute for Disability Policy Wants to Talk to You!
> 
> If you are a family caregiver of a mother with an intellectual or developmental disability who has given birth within the past 5 years, the Lurie Institute for Disability Policy wants to talk with you about your perspectives experiences!
> 
> To volunteer, you must:
> • Be a family caregiver of a mother with an intellectual or
> developmental disability who has given birth within the past five
> years
> • Speak English or Spanish
> • Be 18 or older
> 
> To thank you for being interviewed, we will pay you a $50 gift card.
> 
> Interested? Please contact Robyn Powell at rpowell at brandeis.edu.
>  
> Have you Worked on Legislation in Your State to Protect the Rights of Parents with Disabilities? If Yes, the Lurie Institute for Disability Policy Wants to Talk to You!
> 
> If you are a legislator, legislative staff, advocate, attorney, or child welfare professional who has worked on state legislation to protect the rights of parents with disabilities and their children, the Lurie Institute for Disability Policy wants to talk with you about your experiences!
> 
> Findings from our study will inform the development of technical resources for advocates and legislator.
> 
> To volunteer, you must:
> 
> • Speak English
> • Be 18 or older
> • Have been involved with legislation related to parents with disabilities (this can include current involvement if legislation has not yet passed)
> • Be a legislator, legislative staff, advocate, attorney, or child welfare professional
> 
> Interested? Please contact Robyn Powell at rpowell at brandeis.edu
> 
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> 
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> Disabled Parenting Project
> 415 South Street, MS 035
> Waltham, MA 02453
> 
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