[BlindTlk] frustrating home situation

Judy Jones sonshines59 at gmail.com
Thu Nov 19 18:33:51 UTC 2020


The mistake many made then, and still do today, is pushing print if kids have even a little vision, not counting up the cost to them once they hit the heavy homework years.

In general, school districts use the lazy and legally non-valid and indefensible excuse that braille is more expensive, too expensive, too bulky, etc.

Parents have to insist, for the sake of their kids.


Learn from the play book of www.nopbc.org.

Judy

-----Original Message-----
From: BlindTlk <blindtlk-bounces at nfbnet.org> On Behalf Of Ericka via BlindTlk
Sent: Thursday, November 19, 2020 9:58 AM
To: Blind Talk Mailing List <blindtlk at nfbnet.org>
Cc: Ericka <dotwriter1 at gmail.com>
Subject: Re: [BlindTlk] frustrating home situation

I was always jealous of the totals I went to summer camp with. Had I known braille, I wouldn’t have been in trouble reading late into the night. Flashlights and later talking book cassettes gave me away. Math would have been easier. Giving presenations in high school too. Less back aches. 

Too bad school  staff didn’t see it my way. 

Ericka Nelson

> On Nov 18, 2020, at 11:58 AM, Pamela Dominguez via BlindTlk <blindtlk at nfbnet.org> wrote:
> 
> It's good to know that.  Braille needs to be alive and well.  Pam.
> 
> -----Original Message----- From: Judy Jones via BlindTlk
> Sent: Wednesday, November 18, 2020 12:15 PM
> To: 'Blind Talk Mailing List'
> Cc: Judy Jones
> Subject: Re: [BlindTlk] frustrating home situation
> 
> Very well put, but there are, thankfully kids going into those fields, with braille.
> 
> Judy
> 
> 
> -----Original Message-----
> From: BlindTlk <blindtlk-bounces at nfbnet.org> On Behalf Of Jude 
> DaShiell via BlindTlk
> Sent: Wednesday, November 18, 2020 8:47 AM
> To: Madison Martin via BlindTlk <blindtlk at nfbnet.org>
> Cc: Jude DaShiell <jdashiel at panix.com>
> Subject: Re: [BlindTlk] frustrating home situation
> 
> This is why the blind kids aren't going to be going anywhere near stem careers or even legal careers.  In both if you can't make your notes in random accessible media that is silent while you read you're sunk.
> 
>> On Tue, 17 Nov 2020, Madison Martin via BlindTlk wrote:
>> 
>> Date: Tue, 17 Nov 2020 23:55:41
>> From: Madison Martin via BlindTlk <blindtlk at nfbnet.org>
>> To: 'Blind Talk Mailing List' <blindtlk at nfbnet.org>
>> Cc: maddymartin at mymts.net
>> Subject: Re: [BlindTlk] frustrating home situation
>> 
>> I seriously wonder whether many if any blind kids even learn Braille anymore, given how much technology there is now.
>> 
>> -----Original Message-----
>> From: BlindTlk <blindtlk-bounces at nfbnet.org> On Behalf Of Judy Jones 
>> via BlindTlk
>> Sent: November 17, 2020 8:14 PM
>> To: 'Blind Talk Mailing List' <blindtlk at nfbnet.org>
>> Cc: Judy Jones <sonshines59 at gmail.com>
>> Subject: Re: [BlindTlk] frustrating home situation
>> 
>> It's a travesty how braille is treated in some circles.
>> 
>> Judy
>> 
>> 
>> -----Original Message-----
>> From: BlindTlk <blindtlk-bounces at nfbnet.org> On Behalf Of Jess Trask 
>> via BlindTlk
>> Sent: Tuesday, November 17, 2020 6:03 PM
>> To: Blind Talk Mailing List <blindtlk at nfbnet.org>
>> Cc: Jess Trask <jessandellie101611 at gmail.com>
>> Subject: Re: [BlindTlk] frustrating home situation
>> 
>> Ericka,
>> I was in public school from age 3 to 18.
>> I went to four or five different schools from age 3 to 11 1984 to1992.Them moved to Park City Utah where I attended middle school and my first two years of high school from August  of 1992 to June 1997, Them moved to West Valley City Utah from 1997 to 1999 my Junior and Senior Years of high school. I like your your husband didn?t qualify to learn Braille during the regular school years.However, I had the pleasure of learning when I attended a summer specifically designed for blind and visually impaired students. Then, when I was 20 almost 21 years old I attended both a college prep program that was two years to late for me then I attended a adjustment to blindness training program. Both of these program were/ still are run by the Utah Services for the Blind and Visually Impaired or Adult rehab services.
>> 
>> On Tue, Nov 17, 2020 at 7:56 PM Ericka via BlindTlk <blindtlk at nfbnet.org> wroteMy parents didn?t either. That?s why other blind folks why people on this lisr are so crucial. CNIB has members that can help family ad well as you. A local NFB member was helping me with some thech until she moved. I so appreciative that! I don?t know tech andmy family including my husband don?t know braille.  Sometimes the angels are hiding. Remember that. Pursue answers and you?ll eventually find them. Had I not brought my need for help up and kept asking Stacy wouldn?t have helped me. I couldn?t read enough of the braille manual to do it myself.
>> 
>> >
>> > Ericka Nelson
>> >
>> > > On Nov 17, 2020, at 6:39 PM, Madison Martin via BlindTlk <
>> > blindtlk at nfbnet.org> wrote:
>> > >
>> > > I don't have contact with any of my school friends, I didn't 
>> > > have many
>> > to begin with. I could contact some of my family, but they don't 
>> > know how to teach a blind person.
>> > >
>> > > -----Original Message-----
>> > > From: BlindTlk <blindtlk-bounces at nfbnet.org> On Behalf Of Ericka 
>> > > via
>> > BlindTlk
>> > > Sent: November 17, 2020 6:32 PM
>> > > To: Blind Talk Mailing List <blindtlk at nfbnet.org>
>> > > Cc: Ericka <dotwriter1 at gmail.com>
>> > > Subject: Re: [BlindTlk] frustrating home situation
>> > >
>> > > Contact them instead of assuming. Unless you have magic powers you.
>> > Can?t read minds. If rhings are. So awful then the further away you 
>> > are the better. Many filks go to training centers very far from 
>> > family so nobody can interfer. Not suggesting anything here. Do you 
>> > have a school friend who?s on their own that you could live with?
>> > >
>> > > Make 3 lists: long range goals on one (futur), mid-term (can be
>> > accomplished in 6 to 12 months), and short term which are something 
>> > that you can do in the next 2 to 3 months to change your situation.
>> > Breaking it down always makes a problem easier. I think what?s 
>> > going on here is that you?re so damn frustrated and I apologize for 
>> > language, that your brain shut off and problem-solving skills you 
>> > may have had before went out the window. This allows you to dream 
>> > in small bites. And you can do that hiding in your own bedroom!
>> > >
>> > > Ericka Nelson
>> > >
>> > >> On Nov 17, 2020, at 4:54 PM, Madison Martin via BlindTlk <
>> > blindtlk at nfbnet.org> wrote:
>> > >>
>> > >> None that are close to us. They're probably too busy with their 
>> > >> own
>> > lives to help, many of them have kids of their own.
>> > >>
>> > >> -----Original Message-----
>> > >> From: BlindTlk <blindtlk-bounces at nfbnet.org> On Behalf Of Ericka 
>> > >> via BlindTlk
>> > >> Sent: November 17, 2020 4:44 PM
>> > >> To: Blind Talk Mailing List <blindtlk at nfbnet.org>
>> > >> Cc: Ericka <dotwriter1 at gmail.com>
>> > >> Subject: Re: [BlindTlk] frustrating home situation
>> > >>
>> > >> My community in rural WI didn?t either so I moved to a bigger
>> > community. If you can?t get help from parents what about other 
>> > family like grandparents or aunties? Maybe you could live with them 
>> > until you can get some services contacted and practice with people 
>> > who may be more receptive to your steps to independence.
>> > >>
>> > >>
>> > >> We really do care but can?t fix the situation, that?s your Ljob?
>> > >> right
>> > now.
>> > >>
>> > >> Ericka Nelson
>> > >>
>> > >>
>> > >>
>> > >>
>> > >>>> On Nov 17, 2020, at 3:20 PM, Madison Martin via BlindTlk <
>> > blindtlk at nfbnet.org> wrote:
>> > >>>
>> > >>> I get driven everywhere, not that I go many places. The main 
>> > >>> place I go is to the barn where I ride, it's in the country, so 
>> > >>> a bus or paratransit wouldn't take me there.
>> > >>>
>> > >>> -----Original Message-----
>> > >>> From: BlindTlk <blindtlk-bounces at nfbnet.org> On Behalf Of Judy 
>> > >>> Jones via BlindTlk
>> > >>> Sent: November 16, 2020 5:27 PM
>> > >>> To: 'Blind Talk Mailing List' <blindtlk at nfbnet.org>
>> > >>> Cc: Judy Jones <sonshines59 at gmail.com>
>> > >>> Subject: Re: [BlindTlk] frustrating home situation
>> > >>>
>> > >>> Hi, Madison,
>> > >>>
>> > >>> On a list like this that isn't specific, I don't see any 
>> > >>> problem in venting, myself.  Of course it would be up to the list owner.
>> > >>>
>> > >>> My very general answer is:  When you are out on your own, most 
>> > >>> of this will probably square itself out, and the issues that 
>> > >>> seem so great now will solve themselves, or be non-issues.
>> > >>>
>> > >>> Now, for the specifics.  When I remember being your age, a long 
>> > >>> time ago hahaha, I was very anxious to be on my own, not 
>> > >>> because I didn't love my folks, but because I was ready.
>> > >>>
>> > >>> I was in school in another town, so that automatically had me 
>> > >>> out taking care of myself, buying what I wanted, managing my money.
>> > >>>
>> > >>> At that time, I wasn't working, and mom and dad helped me out 
>> > >>> each month with some money.  I had worked in the summertimes, 
>> > >>> but not
>> > during college.
>> > >>>
>> > >>> I loved going home on the weekends, but it's strange, once 
>> > >>> you've really been out on your own, it's never the same going back.
>> > >>>
>> > >>> It was always nice to visit catch up, enjoy that protective 
>> > >>> environment with mom and dad, but always good to leave the nest > >>> again.
>> > >>>
>> > >>> I visited the nest less and less, since I got a teaching job 
>> > >>> straight out of college in another state, then married and moved > >>> across country.
>> > >>>
>> > >>> You haven't left the nest yet, and you are an adult, and sounds 
>> > >>> like wanting to spread your wings a bit.
>> > >>>
>> > >>> You need work in order to fund that, but until you do have a 
>> > >>> job, just curious, do you do your own shopping?
>> > >>>
>> > >>> Do you take bus or Para to go visit friends, shopping, go to a 
>> > >>> movie, whatever you like to do?
>> > >>>
>> > >>> I'm thinking that if you are doing things by yourself more and 
>> > >>> more, your parents are bound to see your independence, and will 
>> > >>> maybe work
>> > into letting go.
>> > >>>
>> > >>> I know about that, I'm a mom, and one has to work at that as a mom.
>> > >>>
>> > >>> My folks did that very well, but am not saying it is easy for a 
>> > >>> parent to do this.
>> > >>>
>> > >>> Can you discuss an allowance from your folks, if you are not 
>> > >>> already getting one, then budgeting it for things you want and 
>> > >>> trips you want
>> > to take?
>> > >>>
>> > >>> Judy
>> > >>>
>> > >>>
>> > >>> -----Original Message-----
>> > >>> From: BlindTlk <blindtlk-bounces at nfbnet.org> On Behalf Of 
>> > >>> Madison Martin via BlindTlk
>> > >>> Sent: Monday, November 16, 2020 3:01 PM
>> > >>> To: blindtlk at nfbnet.org
>> > >>> Cc: maddymartin at mymts.net
>> > >>> Subject: [BlindTlk] frustrating home situation
>> > >>>
>> > >>> Hi all,
>> > >>> Hope this is okay to talk about hear, I just really need to vent.
>> > >>> I forgot to say that Dad and I went out for super on Saturday 
>> > >>> to get away from the craziness. Plus I don't eat pizza. 
>> > >>> Makayla's biggest issue is that her and Mom are too much a 
>> > >>> like, so they're always at each other and she thinks that Mom 
>> > >>> is always mad at her when she isn't. Dad takes anti-depressant 
>> > >>> meds, but I think he watches and reads way too much news. I 
>> > >>> also think he drinks way too much coffie and alcohol, and he also needs to lose > >>> weight.
>> > >>> Makayla also likes to nag me about stuff that Mom and Dad don't 
>> > >>> bug me about, I already have two parents I don't want or need a 
>> > >>> third. I'm an adult so I think I should be allowed to make my 
>> > >>> own decisions and not get told what to do. Mom also loves to be 
>> > >>> in control all the time which is very annoying. None of us are 
>> > >>> very good at talking about and sharing our feelings, if we were 
>> > >>> a normal family then we could talk about this stuff, but we aren't.
>> > >>> I know that a therapist can't necessarily
>> > solve our problems, but hopefully they could give us ways to cope.
>> > Mom is the one that needs the most help, but we know that she wouldn't > go or talk.
>> > >>> I don't know that Mom would ever join us, and I don't know if 
>> > >>> Makayla even wants to go. I'd consider it, but only if we found 
>> > >>> the right
>> > therapist.
>> > >>> There are many I'm sure, but they're not all the same. I'd love 
>> > >>> to move out, but I don't think I want to live by myself. I used 
>> > >>> to think that Dad and I should go live together, but now I'm 
>> > >>> not so sure. I already told you about his issues, and he also 
>> > >>> nags me about stuff mainly personal hygiene stuff, mainly showiering.
>> > >>> I don't go anywhere so I really don't care how I look or if I smell.
>> > >>> Plus the less we shower the less water we use, and the less 
>> > >>> product we have to buy. As an adult, should I not be allowed to 
>> > >>> make my own decsions even when it comes to personal hygiene?
>> > >>> Sometimes I feel like I'm treated more like a kid then the adult > >>> that I am and should be allowed to be.
>> > >>> Makayla would probably just yell at me, she wouldn't actually 
>> > >>> teach me how to do something. She quite often just says "If you 
>> > >>> want something then why not just learn to do it yourself." She 
>> > >>> also bugs me about stuff and tells me what to do too. She's 
>> > >>> also gotten really bad at just taking things without asking, 
>> > >>> mainly food. Sometimes someone buys something for themselves or 
>> > >>> for someone else (that's not her), but she just sees things and 
>> > >>> assumes she can eat or use them, when she can't always. If 
>> > >>> she'd just ask then chances are she could eat some of or use 
>> > >>> some of whatever it is, but she doesn't. Dad does
>> > this too, not as much though. We made fudge a few months ago, and 
>> > she ate a few pieces without asking. It had to be kept in the 
>> > fridge so Mom would cut up a few pieces and put them out to warm up a bit.
>> > >>> Now if we make it again she's not allowed to have any because 
>> > >>> she didn't ask the first time, she blew it. What's fair is fair.
>> > >>> Plus the last few times she's made stuff she hasn't asked me if 
>> > >>> I'd like any,
>> > not that I would unless it's plain.
>> > >>> It's just annoying when Mom or Dad buys me something and then I 
>> > >>> don't really get any because she's eaten it. Dad says I'm going 
>> > >>> to have to start hiding stuff in my room, which would be weird, 
>> > >>> if it gets to that then I think we have a real problem on our hands.
>> > >>> Plus she's good at noticing/finding things that Mom has tried 
>> > >>> to hide, in
>> > particular chocolate.
>> > >>> Mom isn't always good at sharing either, but I just ask and if 
>> > >>> she says no then I don't touch it. We might have to start 
>> > >>> putting our names on things, which Makayla did yesterday, when 
>> > >>> she got this macaronie dinner from Sobeys, which I didn't get.
>> > >>> If she wants her own then that's fine, but I like them too, so 
>> > >>> I should've gotten one
>> > too.
>> > >>> I've learned that if someone gets something for me, whether 
>> > >>> it's a dinner or snack stuff I have to eat it right away or 
>> > >>> else there might not be any/one left when I really want 
>> > >>> it/some.  She yells at me when we're doing dishes because 
>> > >>> apparently I don't dry them right. Now I
>> > just wait for her to finish washing and then I dry.
>> > >>> I've tried talking to Mom, but that didn't really work/help. 
>> > >>> She thought that I was talking about some particular time or 
>> > >>> decision that I want to make, but I was just talking about in 
>> > >>> general. I still collect animal figurenes, and she has this 
>> > >>> weird thing that if it's too close to my birthday or Christmas 
>> > >>> then I can't buy anything, even though when I'm looking at 
>> > >>> stuff it usually over a month until either event. I do it 
>> > >>> because I worry that she won't like the look of the figurine 
>> > >>> that I'm asking for so she won't buy it for me, regardless of 
>> > >>> how much I want it. Like last Christmas I asked for this 
>> > >>> particular husky, well she didn't buy it for me because she 
>> > >>> said that she didn't like it's face, it was too pointy, but the
>> > >>> 2 that she got me looked way more like wolves then huskies. 
>> > >>> It's my money, should I not be allowed to spend it when and how I want?
>> > >>> Any thoughts/suggestions? Like I said, I just really needed to 
>> > >>> vent, so if no one answers then that's fine. Thanks for letting 
>> > >>> me do it
>> > anyway.
>> > >>> Madison
>> > >>>
>> > >>>
>> > >>> _______________________________________________
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>> > >>> BlindTlk at nfbnet.org
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>> > >>> m
>> > >>>
>> > >>>
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