[blparent] [Bulk] Re: preg, ultrasound, etc. (all in one msg)

[Brandy W]

That is so cool!!! What a wonderful thing for you too as we know that 
parents aren't always support of us in groups like that. Maybe it will be a 
life long friendship for your families. I'm also the oldest of 4 kids and 
the only 1 to have it.

Love reading of your adventures together!

Bran



"When we treat children's play as seriously as it deserves, we are helping 
them feel the joy that's to be found in the creative spirit. It's the things 
we play with and the people who help us play that make a great difference in 
our lives."
- Fred Rogers

Brandy Wojcik
Discovery Toys Educational Consultant and Team Leader
www.playtoachieve.com
(512) 689-5045

Looking for team members nation wide!
----- Original Message ----- 
From: "Erin Rumer" <erinrumer at gmail.com>
To: "'NFBnet Blind Parents Mailing List'" <blparent at nfbnet.org>
Sent: Monday, August 15, 2011 3:59 PM
Subject: [Bulk] Re: [blparent] preg, ultrasound, etc. (all in one msg)


> Yes, I'm from a family of 4 kids and I'm the only one with LCA.  However, 
> I
> do know of several people where some of their siblings and a parent has it
> along with some other relatives outside of the immediate family.  It's 
> funny
> how genetics work.  It just all depends on what type of genes they are 
> along
> with who are carriers.  I'm a firm believer that everything happens for a
> reason so it really doesn't matter if a child turns out to be blind or 
> just
> a carrier as long as they have all the love and support they need in life
> just like all children need.
>
> I was super touched the other day because Dawson and I were at our breast
> feeding support group that we go to on Thursdays and a mom came in with 
> her
> 16 month old son who has downs syndrome.  Dawson and this little boy began
> to play right away and share toys.  The mom excitedly pulled her camera 
> out
> and said that Dawson was the very first baby to get the chance to play
> one-on-one with her son because he's been recovering from multiple 
> surgeries
> for so long.  I was so honored that my son could be that little guy's 
> first
> play mate and it touched me even more to see how much in love this mom was
> with her baby and he with her.  I wish all those parents out there that 
> get
> caught up with stupid stuff like hair color and comparing all their baby's
> mile-stones with the babies around them could see what I saw the other day
> and get a reality check on what's really important.
>
> Erin
>
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
> Behalf Of Deborah Kent Stein
> Sent: Monday, August 15, 2011 11:56 AM
> To: NFBnet Blind Parents Mailing List
> Subject: Re: [blparent] preg, ultrasound, etc (all in one msg)
>
>
>
> About LCA, my brother and I both have it and it hasn't turned up anywhere
> else in the family.  It is an autosomal recessive condition, which means
> that both parents have to be carriers and then there is a 1 in 4 chance 
> that
> a child will be affected.  To my knowledge there is still not a prenatal
> test to detect whether a fetus will have the condition.  There are about a
> dozen retinal conditions that are all called LCA, and the genes for 
> several
> of them have been identified.
>
> Debbie
>
> ----- Original Message -----
> From: "jan wright" <jan.wrightfamily5 at gmail.com>
> To: "blparent" <blparent at nfbnet.org>
> Sent: Monday, August 15, 2011 1:40 PM
> Subject: Re: [blparent] preg, ultrasound, etc (all in one msg)
>
>
>> Thanks to all who wished congrats. i am counting down weeks/days.
>> Hi jill,
>> Thanks and I had not heard of the name Hilmi. I'll ask my dh. i wonder
>> if it is a nickname or full name.
>> i like Samandar and Taj. But, DH does not.
>> Yakub or Yaqub is not bad.
>> We still have Zariyaan. (pronounced like Zahr- ee - on).
>> Erin, It is quite strange because my DH and his sister both have LCA,
>> but no one else in his family has ever had it. He has two other sibs
>> that do not have it and a whole slew of cousins, etc.
>> I guess that means that our child will be a carrier. Honestly, DH
>> didn't know much about his disease. The doctors did not tell him much
>> -- just tried to cure him; which obviously didn't happen. I don't
>> think that he actually "knew the exact name of his eye disease until
>> he saw doctors from the USA. But, i could be wrong. What i do know is
>> that he knew very little about his eye disease.  I read that it was
>> uncommon for a child to have it unless both people are carriers. i
>> don't think that i am. But, honestly, i don't know much more about it
>> and was reluctant to do the genetic counseling thing because; well, it
>> already seemed like they were leaning to the "you might want to
>> terminate," and i just didn't need that stress.
>> Cravings:
>> It is strange that you mention hard Boiled eggs:
>> mine is Hard boiled eggs and ice cream right after.
>> or peanutbutter and cream cheese sandwiches.
>>
>> V: from what i heard, the placenta doesn't move, right?
>> so, the baby just has to move, right?   The placenta is between me and
>> baby. i don't know, the tech didn't mention possible complications,
>> but maybe she would leave that up to the doctor.????
>>
>> Carriers: the hard thing is that you can't try them for 1-2 hours to
>> see if they are going to hurt your back. And, you will have to put a
>> 10lb of sugar or something in the carrier to simulate a baby before
>> buying.
>> (smile)
>>
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