[blparent] school teacher - not an issue

Wed Aug 24 16:28:32 UTC 2011

Nikki,
I also have RP diagnosed at the age of 2. My vision has deteriorated over 
the years and I'm now transitioning into using a cane.
The one thing that I am very grateful for is that I attended a blind school 
for 4th and 5th grades. I then learned braille, mobility, and other ways of 
being able to adapt to my changing vision.
I also attended a rehab center to learn how to cook with a blind fold on so 
that I could learn to adapt my abilities as my vision worsened.
I know what you are going through and the annoyance and frustration of 
trying to go between using vision and not.
If you've never received any training, I'd suggest it. It will help you in 
feeling more confident and will also help you to be able to talk with your 
dad or others about your abilities.
I didn't attend one of the training centers in another state. I attended our 
local center for just a few hours a day between working and going to school.
Pipi
----- Original Message ----- 
From: "Nikki" <daizies304 at comcast.net>
To: "NFBnet Blind Parents Mailing List" <blparent at nfbnet.org>
Sent: Tuesday, August 23, 2011 9:03 PM
Subject: Re: [blparent] school teacher - not an issue


>    No Amanda, I have not.
> Let me tell you why.
> I was diagnosed with RP at age 3.
> It is a progressive blindness.
> I was given chores to do around the house, as I grew up.
> So, I learned things by watching my mom or dad.
>
> As I got older though, my vision began deteriorating.
> So my dad modified the washer and dryer because I wanted to do my own 
> laundry, plus my dad shrunk some of my shirts, lol.
> I would vaccume, dust, have KP occasionally.
> I was only able to make simple things to eat, like, grilled cheese, mac 
> and cheese, soup, microwavable things.
> I used to make cookies with ease.
> Now, I have trouble cutting bread, spreading PB, jelly, or mayo on bread, 
> when it used to be not a problem.
> I have trouble with putting in and taking out cookie trays from the oven, 
> now, so I don't bake as much as I used to.
>
> Now, I can just hear my dad saying, "why do you feel like you have to do 
> that when you have me here to help you."
>
> Um, I couldn't say anything because my dad is quick, sometimes I feel... 
> um... can't think of the word, it's like I have be as quick or quicker 
> even to meet my son's wants and because I can't, it leaves me feeling not 
> worthless, but... that word...
>
> -----Original Message----- 
> From: Amanda Winkler
> Sent: Tuesday, August 23, 2011 5:23 PM
> To: NFBnet Blind Parents Mailing List
> Subject: Re: [blparent] school teacher - not an issue
>
> Nikki,
> In response to your dad pouring the glass of milk for you.  you might have
> said"Well I guess I'll have to clean up any mess I make and keep cleaning
> until I get it clean to your standards."  I am wondering have you ever 
> taken
> Independent Living Skills at a learning center for the blind before?
>
> Amanda
>
> --------------------------------------------------
> From: "Nikki" <daizies304 at comcast.net>
> Sent: Tuesday, August 23, 2011 2:59 PM
> To: "NFBnet Blind Parents Mailing List" <blparent at nfbnet.org>
> Subject: Re: [blparent] school teacher - not an issue
>
>>            Hi Debbie.
>> I feel as though I shouldn't have to prove my capabilities to my parents.
>> It is MY son, isn't it?
>> I shouldn't feel like I'm being controlled just because I live in their
>> house, you know?
>>
>> Rebecca.
>> I have a laptop and my parents respect my privacy, so no worries there.
>> If anything were to come up, you can be certain I'll make sure they hear
>> about it.
>> I am the youngest of 2. My older brother lives with his family.
>> As far as friends, I have a couple, but not going to talk to them about 
>> my
>> feelings.
>>
>> V, my son constantly reminds me and my parents that I'm the boss.
>> So, if he wants something and asks my mom, she tells him, "go ask your 
>> mom."
>> I'm the one in charge.
>>
>> As far as my dad doing everything, I'm ashamed and embarrassed.
>> I get frustrated when we're both in the kitchen, I get the milk and a 
>> glass.
>> In the midst of what he's doing, stops and takes these items from me and 
>> pours the glass for me.
>> Now, I'm able to do this myself and today, I told him, "what are you 
>> doing?
>> I can do this myself."
>> IDK what exactly he said, but I think he said,"I know." I asked him, 
>> "then why aren't you letting me do it myself?
>> His response told me he has little or no confidence in me. He said, "I 
>> just washed the counter. I don't want to clean it again."
>> Do you know what that does to someone's self esteem?
>>
>> So, it's not so much me letting him do everything. His stress he has, is 
>> brought on by himself.
>> I may need to fix some things with myself, but God and I are working on 
>> it.
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> -----Original Message----- 
>> From: Deborah Kent Stein
>> Sent: Tuesday, August 23, 2011 12:12 PM
>> To: NFBnet Blind Parents Mailing List
>> Subject: Re: [blparent] school teacher - not an issue
>>
>>
>>
>> Dear Nikki,
>>
>> Great news!  The more you take control, the more your folks are likely to
>> see how capable you are.
>>
>> Debbie
>>
>> ----- Original Message ----- 
>> From: "Nikki" <daizies304 at comcast.net>
>> To: <blparent at nfbnet.org>
>> Sent: Tuesday, August 23, 2011 10:03 AM
>> Subject: [blparent] school teacher - not an issue
>>
>>
>>> Just an update...
>>>
>>>        Hi all.
>>> I want to thank you all for the confidence boost.
>>> My dad, son, and I went to meet the teacher yesterday.
>>> I asked her if she could email me the handouts and I was very pleased to
>>> find out that she would be happy to do it for me.
>>> But my dad still requested the paper handouts for himself.
>>> IDK why, but it was rather upsetting that he feels he has to be 
>>> involved.
>>>
>>> Anyway, success!
>>> Oh and I’m going to pick my son up from school, give my dad a break, 
>>> lol.
>>>
>>> It’s confusing to me that my parents complain, mainly my dad, about 
>>> having
>>> to do everything, but when I take a stand, it back fires.
>>> Meaning, it’s hard for him to accept me being independent.
>>>
>>> Nikki
>>> _______________________________________________
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>>
>>
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>
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