[blparent] breastfeeding help

Sat Apr 14 02:20:49 UTC 2012

Hi Erin and list,
Cheyenne is seen by cardiologists every few months. She has done remarkable for all that was wrong with her.
I am mainly giving her formula because of her heart and of all the calories she burns daily.
I hope she doesn't have anymore surgeries....
She is certainly a miracle!
Sabrina

Sent from my iPhone

On Apr 13, 2012, at 6:59 PM, "Erin Rumer" <erinrumer at gmail.com> wrote:

> Wow, Sabrina it sounds like you and your daughter have been through a lot in
> the past several months.  Coo dose to you for sticking it out and giving her
> all the breast milk you can.  Especially with her heart condition that
> breast milk will be just what she needs.  After reading your whole story it
> makes sense why your daughter would have nipple confusion.  I would keep
> talking with lactation specialists about this issue and if the sucking is
> just too hard for your daughter to do then having your milk via bottle works
> great as well.  I don't know how easily your milk flows but you could try
> doing some gentle massage of your breasts before trying to nurse and that
> might help your milk flow easier for your daughter, thus encouraging her to
> stay latched longer.  Will your daughter need more surgeries in the future?
> I'll be praying for her and that her toughest trials are behind her.
> 
> Blessings,
> 
> Erin
> 
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
> Behalf Of sabrina Giles
> Sent: Friday, April 13, 2012 3:47 PM
> To: 'Blind Parents Mailing List'
> Subject: Re: [blparent] breastfeeding help
> 
> Hey Erin,
> Wow thanks so much for your message, it was verry encouraging.
> Let me give you some background on Cheyenne, as what you said about nipple
> confusion might be true.
> When she was first born on a newborn bisit the midwives that were with me
> through my pregnancy and delivery noticed she had a  heart murmur.  They
> told me that some babies have one, so to not give it much  thought, so I
> didn't. Well, at two weeks of age, she had another visit from the same
> midwives, and the murmur got worse.... so I decided it was time to get her
> checked out.
> I had been having trouble getting her insurance  Established and so wasn't
> able to get her seen by a pediatrician as soon as I would have liked.
> Consequently, it was all a case of bad timing, because, that very day on her
> two week Birthday, she coded in a grocery parking lot.
> She was rushed  via ambulance to the hospital, where we found out she had
> five things wrong with her heart.  She had 3 large holes in her heart, and
> enlarged  heart, and a  narrowing of her aortic arch So, at  3 weeks of age
> she had open heart surgery.  After her surgery nursing was too exhausting
> for her, and so she was put on a feeding tube which consisted of my breast
> milk along with a little bit of formula.
> After her tube was removed a few months later, she began taking bottle and
> the fortified breast milk.  So, its been a step by step process for us.  She
> didn't really start nursing very well, until like 3 months ago.
> So, that's a little more about my precious little one.
> 
> ..-----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
> Behalf Of Erin Rumer
> Sent: Friday, April 13, 2012 5:24 PM
> To: 'Blind Parents Mailing List'
> Subject: Re: [blparent] breastfeeding help
> 
> Hello Sabrina,
> 
> Since your little girl is still so young I'd encourage you to continue
> nursing her as much as possible but if you can't after really giving it a
> while, pumping and giving her the formula in bottles as her nutritional
> fluid intake is key.  This also may just be a phase and you'd hate to stop
> nursing and find that she wants to nurse normally again next week or so.  It
> could be that she's just board or distracted with other things going on
> around you so try stepping away with her and make nursing special mommy-baby
> bonding time where it's just you and her and no other stimulation.  Sing
> songs and talk quietly to her during this time and she will more than likely
> love this time and look forward to it very much.  Since you are feeding with
> bottles a decent amount it could also just be that she's having a bit of
> nipple confusion and-or just being kind of lazy on the breast since it takes
> more work for her to get the milk out.  This sucking stimulates proper
> development of the jaw and pallet and prevents ear infections amongst many
> other benefits, so I encourage you to continue nursing as long as you can
> with your daughter.  At least try to get her to a year if you can because
> even though she's eating solids now, she needs lots of fluid and your milk
> will be best for that.  The breast milk also aids in digestion of those
> solids your daughter's eating and she'll have less bouts of constipation
> than if she wasn't drinking your breast milk at all.  Just remember that
> once you stop nursing you can't start up again so make the most of it.
> 
> Best to you and please keep us posted with how it's going.
> 
> Erin
> 
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
> Behalf Of sabrina Giles
> Sent: Friday, April 13, 2012 2:08 PM
> To: 'Blind Parents Mailing List'
> Subject: [blparent] breastfeeding help
> 
> Hi everyone,
> 
> So, this question is for those of y'all who have nursed.  I have noticed
> since Cheyenne has been on solids she hasn't had much interest in nursing.
> She'll latch on, and after like ten seconds she'll stop nursing.  I've
> started pumping my milk and giving it in bottles for some feedings and
> formula for others when I don't pump enough to satisfy her.
> 
> How can I stop producing milk altogether?  It would seem to me that as long
> as I pump I will keep producing milk.. But like I said that is my only
> choice since she seems to not be interested in nursing .
> 
> Any suggestions?
> 
> Thankis,
> 
> Sabrina
> 
> 
> 
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