[blparent] Caring for child with type 1 diabetes

[Heather Collazo]

Donna,

Yes, of course. And if you can, include my husband in the email too. His address is cookingizzy at yahoo.com. I am so happy there is someone else out there. We feel kind of isolated.

Thank you,

Heather Collazo



Sent from my iPhone

> On Apr 27, 2019, at 11:39 AM, Donna via BlParent <blparent at nfbnet.org> wrote:
> 
> Heather,
> 
> Asking permission first...Can I write you using your private email address? I am blind & my hubby is sighted. We have a special needs son, who is diabetic & requires full care. My son was born with diabetes, so I have 15 years experience caring for a diabetic while blind. 
> 
> Donna 
>> 
>> Hello all,
>> 
>> My husband and I are looking for guidance for caring for a child with type 1 diabetes. My husband is blind and I am not; however, he is the primary caretaker of our children while I go to school. Our two year old was recently diagnosed with diabetes and we need to get creative when trying to find a way to do a lot of the daily tasks of diabetes management. My husband has had type 1 diabetes since he was 11 months old, so he knows what needs to be done. It is just difficult when trying to gauge how many carbohydrates our toddler eats at the meals that I am not home. Often the food ends up in her seat, on the floor, flung onto the walls or fed to the guide dog, because it seems like fun to a toddler. So while he can use measuring cups to figure out how much he gives her, it’s a challenge once she’s eaten to say exactly how much of it. So he is reticent to dose her insulin at a high enough dosage because it could be too much and she could have a severe low. Also, since we are new, our pediatric endocrinologist needs us to call in her daily blood sugars with carb counts, dosing of insulin, and report lows or highs and times. So far, I have been writing things down in a booklet, but my husband wants to take this on since I am tied up at school during the day and this needs to be done by noon every day. We have a marker board by the fridge where he can write things down, and I can transcribe into the booklet, but this isn’t going to work if he wants to be able to call the nurse and tell her. That is too much to remember. This is a unique situation, but I’m sure we aren’t the first ones to go through any of this. 
>> 
>> Best,
>> Heather
>> 
>> Sent from my iPhone
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