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<h2><b>Research Participation Request: Development of a Genetic
Counseling Tactile Aid</b></h2> <br><br>
The below research participant solicitation is being provided for
informational purposes only. The National Federation of the Blind has no
involvement in this research, but we believe that it may contribute to
our research mission.<br><br>
<br><br>
<h2><b>Research Title: Development of a Genetic Counseling Tactile
Aid</b></h2>Being conducted by: University of North Carolina,
Greensboro<br><br>
<h2><b>Purpose of the Study</b></h2>This study aims to develop and
evaluate a universally designed genetic counseling tactile aid by:
<br><br>
(a) identifying genetic counseling topics that people who are blind and
visually impaired believe would be most helpful to be represented in a
tactile aid, <br><br>
(b) examining personal characteristics, such as experience using tactile
aids and age of onset of vision loss, that may impact the desire, need or
effectiveness of a tactile aid, <br><br>
(c) creating a 3D-printed tactile aid based on the findings of the
preceding aims, and <br><br>
(d) evaluating the tactile aid through a focus group with individuals who
are blind and visually impaired. <br><br>
I am hoping to recruit participants through the National Federation of
the Blind for the survey. I hope to learn from participants their
features of blindness, experience with tactile aids, and what genetic
counseling concepts participants believe would be most helpful
represented in a tactile aid.<br><br>
<h2><b>Role of the Participants and Anticipated Length of the Study
</b></h2>Participants will complete an online survey that takes
approximately 10-15 minutes to complete. Survey participants can
volunteer to sign up for a follow-up focus group. Focus group
participants must be 18+ years of age, fluent in English, identify as
blind and visually impaired, and have transportation to Industries of the
Blind Greensboro. Focus group participants will attend a single, one-hour
focus group.<br><br>
<h2><b> <br><br>
<br>
Proposed Participant Compensation</b></h2>Yes, Survey participants are
eligible to enter a drawing for one of twenty-five $10 Amazon gift
cards<br><br>
<h2><b> <br><br>
<br>
Link or Instructions for Participants to Enter the Study </b></h2>Do you
ever wish your healthcare provider could explain visual concepts to you
better? <br><br>
Are you blind or visually impaired? We would love to hear from
you! <br><br>
Jillian Hughes, a student researcher at UNC Greensboro, is conducting a
research survey to help improve healthcare accessibility. Our goal is to
create a tactile aid to support genetics education in healthcare. We are
conducting a survey to gain input on the creation of a tactile aid.
<br><br>
Participants will be asked to complete a survey that takes approximately
10-15 minutes. All participants will have the opportunity to enter a
drawing to win one of twenty-five $10 Amazon gift cards <br><br>
Requirements for participation: <br><br>
-Identify as blind or visually impaired <br><br>
-18 years of age or older <br><br>
-Fluent in English <br><br>
Survey link:
<a href="https://uncg.qualtrics.com/jfe/form/SV_6rIkcpNueKkzaaa">
https://uncg.qualtrics.com/jfe/form/SV_6rIkcpNueKkzaaa</a> <br><br>
<h2><b> <br><br>
<br>
Contact the following individual with any questions </b></h2>Jillian
Hughes<br><br>
5083868055<br><br>
<a href="mailto:jehughes3@uncg.edu">jehughes3@uncg.edu</a> <br><br>
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