<html xmlns:v="urn:schemas-microsoft-com:vml" xmlns:o="urn:schemas-microsoft-com:office:office" xmlns:w="urn:schemas-microsoft-com:office:word" xmlns:m="http://schemas.microsoft.com/office/2004/12/omml" xmlns="http://www.w3.org/TR/REC-html40"><head><meta http-equiv=Content-Type content="text/html; charset=utf-8"><meta name=Generator content="Microsoft Word 15 (filtered medium)"><!--[if !mso]><style>v\:* {behavior:url(#default#VML);}
o\:* {behavior:url(#default#VML);}
w\:* {behavior:url(#default#VML);}
.shape {behavior:url(#default#VML);}
</style><![endif]--><style><!--
/* Font Definitions */
@font-face
{font-family:"Cambria Math";
panose-1:2 4 5 3 5 4 6 3 2 4;}
@font-face
{font-family:Calibri;
panose-1:2 15 5 2 2 2 4 3 2 4;}
/* Style Definitions */
p.MsoNormal, li.MsoNormal, div.MsoNormal
{margin:0in;
font-size:11.0pt;
font-family:"Calibri",sans-serif;}
a:link, span.MsoHyperlink
{mso-style-priority:99;
color:#0563C1;
text-decoration:underline;}
span.EmailStyle20
{mso-style-type:personal-reply;
font-family:"Arial",sans-serif;
color:windowtext;
font-weight:normal;
font-style:normal;}
.MsoChpDefault
{mso-style-type:export-only;
font-size:10.0pt;}
@page WordSection1
{size:8.5in 11.0in;
margin:1.0in 1.0in 1.0in 1.0in;}
div.WordSection1
{page:WordSection1;}
--></style><!--[if gte mso 9]><xml>
<o:shapedefaults v:ext="edit" spidmax="1026" />
</xml><![endif]--><!--[if gte mso 9]><xml>
<o:shapelayout v:ext="edit">
<o:idmap v:ext="edit" data="1" />
</o:shapelayout></xml><![endif]--></head><body lang=EN-US link="#0563C1" vlink="#954F72" style='word-wrap:break-word'><div class=WordSection1><p class=MsoNormal><span style='font-family:"Arial",sans-serif'>FYI<o:p></o:p></span></p><p class=MsoNormal><span style='font-family:"Arial",sans-serif'><o:p> </o:p></span></p><div><p class=MsoNormal><span style='font-family:"Arial",sans-serif'>Best Regards,<o:p></o:p></span></p><p class=MsoNormal><span style='font-family:"Arial",sans-serif'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-family:"Arial",sans-serif'>Maryanne Melley<o:p></o:p></span></p><p class=MsoNormal><span style='font-family:"Arial",sans-serif'>President<o:p></o:p></span></p><p class=MsoNormal><span style='font-family:"Arial",sans-serif'>National Federation of the Blind of Connecticut<o:p></o:p></span></p><p class=MsoNormal><span style='font-family:"Arial",sans-serif'>860-212-5549<o:p></o:p></span></p><p class=MsoNormal><span style='font-family:"Arial",sans-serif'>maryanne.melley@gmail.com<o:p></o:p></span></p><p class=MsoNormal><span style='font-family:"Arial",sans-serif'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-family:"Arial",sans-serif'>Together with love, hope, and determination, we transform dreams into reality<o:p></o:p></span></p></div><p class=MsoNormal><span style='font-family:"Arial",sans-serif'><o:p> </o:p></span></p><div><div style='border:none;border-top:solid #E1E1E1 1.0pt;padding:3.0pt 0in 0in 0in'><p class=MsoNormal><b>From:</b> NFBNet-Members-List <nfbnet-members-list-bounces@nfbnet.org> <b>On Behalf Of </b>Blake, Lou Ann via NFBNet-Members-List<br><b>Sent:</b> Tuesday, December 14, 2021 9:06 AM<br><b>To:</b> 'nfbnet-members-list@nfbnet.org' <nfbnet-members-list@nfbnet.org><br><b>Subject:</b> [Nfbnet-members-list] Blind and low-vision adults needed for research study to learn about your experience with genetic counseling<o:p></o:p></p></div></div><p class=MsoNormal><o:p> </o:p></p><p class=MsoNormal style='mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:black'>The below research participant solicitation is being provided for informational purposes only. The National Federation of the Blind has no involvement in this research.</span><o:p></o:p></p><p class=MsoNormal style='mso-line-height-alt:11.75pt;background:white'><b><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'> </span></b><o:p></o:p></p><p class=MsoNormal style='mso-line-height-alt:11.75pt;background:white'><b><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>Have you ever had genetic counseling? We are looking to learn from you.</span></b><o:p></o:p></p><p class=MsoNormal style='mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>We are conducting interviews to better understand the genetic counseling experience of patients who are blind or low vision. Through this research, we’ll explore what educational methods are best for working with this patient population within the genetic counseling setting. Our hope is that this research betters the genetic counseling experience for patients who are blind or low vision, and promotes equitable genetic counseling.</span><o:p></o:p></p><p class=MsoNormal style='mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>Participants are asked to complete a 5-minute screening phone call and a 40 to 60-minute interview via Zoom about their genetic counseling experience. All participants will receive a $25 Amazon eGift Card.</span><o:p></o:p></p><p class=MsoNormal style='mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>Requirements for participation:</span><o:p></o:p></p><p style='mso-margin-top-alt:0in;margin-right:0in;margin-bottom:0in;margin-left:.5in;mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>· Identify as blind or low-vision, with limited or no usable sight</span><o:p></o:p></p><p style='mso-margin-top-alt:0in;margin-right:0in;margin-bottom:0in;margin-left:.5in;mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>· Received genetic counseling in-person, for any reason within the past 8 years</span><o:p></o:p></p><p style='mso-margin-top-alt:0in;margin-right:0in;margin-bottom:0in;margin-left:.5in;mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>· Over 18 years old</span><o:p></o:p></p><p style='mso-margin-top-alt:0in;margin-right:0in;margin-bottom:8.0pt;margin-left:.5in;mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>· Able to participate in an interview in English</span><o:p></o:p></p><p class=MsoNormal style='mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>Please reach out to Helen Dellas via email (</span><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:black'><a href="mailto:hdellas@brandeis.edu" target="_blank">hdellas@brandeis.edu</a></span><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>) if you think you meet these criteria and are interested. If comfortable doing so, leave your phone number and a good time of day to call so that we can reach out and schedule an interview.</span><o:p></o:p></p><p class=MsoNormal style='mso-line-height-alt:11.75pt;background:white'><span style='font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222'>This study has been approved by the Brandeis University Human Research Protection Program.</span><o:p></o:p></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Arial",sans-serif'> </span><o:p></o:p></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Arial",sans-serif'> </span><o:p></o:p></p><p class=MsoNormal><span style='font-size:12.0pt'>Lou Ann Blake, J.D.</span><o:p></o:p></p><p class=MsoNormal>Director of Research Programs, Blindness Initiatives<o:p></o:p></p><p class=MsoNormal><span style='font-size:12.0pt'>200 East Wells Street, Baltimore, MD 21230</span><o:p></o:p></p><p class=MsoNormal><span style='font-size:12.0pt'>(410) 659-9314, extension 2221 | <a href="mailto:lblake@nfb.org">lblake@nfb.org</a> </span><o:p></o:p></p><p class=MsoNormal> <o:p></o:p></p><p class=MsoNormal> <o:p></o:p></p><p class=MsoNormal><a href="https://nfb.org/"><span style='text-decoration:none'><img border=0 width=210 height=76 style='width:2.1833in;height:.7916in' id="_x0000_i1028" src="https://nfb.org/images/nfb/images/email/2/nfblogo.png" alt="National Federation of the Blind"></span></a><o:p></o:p></p><p class=MsoNormal> <o:p></o:p></p><p class=MsoNormal> <a href="http://www.facebook.com/nationalfederationoftheblind"><span style='text-decoration:none'><img border=0 width=24 height=24 style='width:.25in;height:.25in' id="_x0000_i1027" src="https://nfb.org/images/nfb/images/email/2/facebook.png" alt=Facebook></span></a> <a href="https://twitter.com/NFB_Voice"><span style='text-decoration:none'><img border=0 width=24 height=24 style='width:.25in;height:.25in' id="_x0000_i1026" src="https://nfb.org/images/nfb/images/email/2/twitter.png" alt=Twitter></span></a> <a href="https://www.youtube.com/NationsBlind"><span style='text-decoration:none'><img border=0 width=24 height=24 style='width:.25in;height:.25in' id="_x0000_i1025" src="https://nfb.org/images/nfb/images/email/2/youtube.png" alt=Youtube></span></a><o:p></o:p></p><p class=MsoNormal> <o:p></o:p></p><p class=MsoNormal><span style='font-size:12.0pt'>The National Federation of the Blind is a community of members and friends who believe in the hopes and dreams of the nation’s blind. Every day we work together to help blind people live the lives they want. </span><o:p></o:p></p><p class=MsoNormal> <o:p></o:p></p><p class=MsoNormal> <o:p></o:p></p></div></body></html>