[Diabetes-talk] insulin pumps
Vincent Chaney
vgc732 at optonline.net
Thu Apr 9 04:45:17 UTC 2009
Kelly,
I have appended a forward I sent to the Diabetes-Talk back on March 6th. I
too am an Insulin Pump User for 10 years and have been working with the
series of Medtronic Minimed models from the 507 in Sept 1999 through the 712
today. I too have experienced each of the frustrations and situations that
have been shared regarding this matter of inaccessibility with the pump. I
even had the miss-fortune of changing my Basle setting when accidentally
going one level down too far in the menu when attempting to set a Normal
Bolus on the Minimed 508. The choice one below the Normal Bolus was to
change the Basle. I was going to take 1.3 units and instead raised my Basle
setting by that amount. I was very fortunate, the old Minimed models had a
noticeably distinguished click sound when delivering any insulin, unlike the
Minimed 712 which is a very soft sound. I had noticed the frequency of
clicks to be too often and needed to wake my wife who had earlier gone to
sleep. I was lucky my wife, with a strong magnifying glass as she is legally
blind, was able to reset my Basle setting. She then had to see what I had
already taken as part of the change in Basle and then administer the
remainder of the 1.3 bolus I was attempting to take.
I very much wish to participate in any testing you and the DDI Company will
be doing with us from the NFB DAN in regards to testing of your accessible
pump.
If my name rings a bell with you, my wife, Michele, worked with you last
year in bringing the "Prodigy Voice" to the NFB of New Jersey when you
introduced us to Jordan Benis and Tina Rockwell from "Advanced Diabetic
Solutions" of Atlanta, Georgia. They not only did a fantastic presentation
but interacted and supported our members in New Jersey at the state
conference in November 2008. They have continued their support afterwards in
New Jersey and here through my recommendations on the DAN Diabetes-Talk
group.
Vincent Chaney, NFBNJ Diabetes Division President ,
Co-chair Lead NJAGDU
----- Original Message -----
From: "Vincent Chaney" <vgc732 at optonline.net>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Wednesday, March 11, 2009 6:30 PM
Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
Chanelle,
I will have been on the pump for 10 years this September. My first
interaction with someone who was blind and using the pump was with Tom Ley
in the middle of a National Federation of the Blind Convention Exhibit Hall.
Tom spoke of the positiveness of using the pump and I totally agree of the
major improvement of control and the quality of life I have gotten with its
use.
Using the Medtronic 712 my button configuration appears different than what
Dave Anspach noted in his description, though the logic is the same to use
the bolus wizard. I prefer not to use the bolus wizard though as what we all
have to do is a memory game and if my sugars rise above 240 the wizard in
the Medtronic Minimed (Paradigm) 712 pump gives pop-up messages that have to
be okayed before continuing. The message involves a note to check for
Ketoacidosis and that a correction bolis may be required. In the 712, you
have to clear out the messages to continue with the bolus wizard. One other
quick point and if anyone has a question dealing with the duration of
insulin while using Humalog, please post any questions. The default time
setting in the bolus wizard does not match my body either. The hard set time
factor of 8 hours in the pump for the insulin that has been delivered is not
equal to my body's
duration of 4 hours. Quickly for everyone, the 712 pump is using 8 hours of
time when insulin is delivered and if I require to administer through the
wizard in less than 8 hours, the pump subtracts the amount it calculates to
be still active in my body. In this miss calculation, any pump calculation
after 4 hours is wrong for me. The pumps after the 712, which have included
the Minimed 715 and afterward, have an adjustable setting for the time
factor of the insulin activity.
Fortunately I'm very good with math an numbers and can calculate my bolus or
a square wave bolus accurately in my head and have done the job of the
wizard.
Please don't let this information scare anyone away from the pump if you're
considering to work with an insulin pump. Like any new thing we do, our
first step with a cane, the first time you walk following a dog guide, your
knowledge grows with every day of life.
Now to answer Chanelle's question on the square wave bolus, if I haven't
lost everyone (smile). What I do to figure how much insulin and how long is
a procedure I use. First I consider what type of protein or slow digestion
food I'm calculating for. If I eat chicken, turkey or fish, I know the
digestion rate is quicker than for beef and slower if for pork/ham. I
generally use a half unit per hour for beef and ham and a 0.4 unit for fish
and poultry. The amount and length of time is relative to the quantity I
have eaten. I usually take 2.5 units for 5 hours and sometimes 3 units for 6
hours. But with most models of control for each of us, this is my controls
and likely not to match anyone else. I'll also check my sugar at 2 and 4
hours to determine where I stand. If I'm at my 100 goal at 4 hours I'll also
check near the end of the square too if I may need to stop the square early
or when it is done if I need to continue for any longer.
As I have had diabetes for over 46 years, and have been advised to limit my
protein intake to the RDA amounts,
it is only in the meals with the added protein from meats or cheeses that I
include the square wave bolus with my delivery.
Vince,
Vincent Chaney, President
Diabetes Division of the National Federation of the Blind of New Jersey
----- Original Message -----
From: "Ed Bryant" <ebryant at socket.net>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Sent: Friday, March 06, 2009 2:42 PM
Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
Hi Chanelle,
WELCOME ABOARD! We all work together to provide each other support
and information.
I suggest you contact Tom Ley with your insulin pump questions. He
is totally blind and has been on a pump for several years. Tom lives in
Baltimore and you can reach him at: RiveraLey at Verizon.net.
Best Regards,
Ed Bryant
-----Original Message-----
From: diabetes-talk-bounces at nfbnet.org
[mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Chanelle Hill
Sent: Wednesday, March 04, 2009 10:44 AM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
Dear Vince,
Thanks for replying to my email. I am grateful for the many responses I have
received from the list. I am still using the 512 but would like to upgrade
to the 522. How do you get your pump to deliver a square bolis? I use the
easy bolis feature with the beeps, but I would like to use the other bolis
options--especially since they give a person even more control. Does the
square wave bolis have to do with insulin being delivered over the course of
a few hours? I am able to fill my pump on my own. I just have a sighted
friend double check that there are no bubbles in my reservoirs. I have been
on the pump since 2004, and I went to a diabetes center in 2007 where the
nurses were willing to teach me how to draw up insulin. Before that, I
thought filling reservoirs was impossible for a blind person.
Thanks for checking on the Clever Check meter. The lady from Homecare
Solutions with whom I spoke sounded vague about it. Thanks for the
information about Advanced Diabetic Solutions! I really need that now since
I haven't gotten anywhere with Homecare Solutions. If they have already
shipped out the Clever Check today as they said they would, I will report to
the list as to what it is like.
Chanelle
-----Original Message-----
From: diabetes-talk-bounces at nfbnet.org
[mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Vincent Chaney
Sent: Tuesday, March 03, 2009 9:10 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
Chanelle,
Welcome to the list...
I too am a pumper, an insulin pump user. I am using the Medtronic Minimed
712 but require my wife to fill it due to the inaccessible menu options.
Once it is filled I work with the beeps to deliver the "Normal" or "Squared"
bolis amounts as you probably do.
Regarding the "Clever Check", I performed a "Google" search on this and
found no indication it included any accessibility feature. The Blog I also
looked at noted it worked with only one button which could be used with a
talking machine but very unlikely. I would recommend you to contact one of
the many suppliers noted on this list who carry the "Prodigy Voice Test
Strips". The company I work with is "Advanced Diabetic Solutions" and just
received new strips about 10 days ago. Their Web Site is:
http://www.advanceddiabeticsolutions.net/
Their phone number is 1-888-377-6382. Tina Rockwell, Director of Patient
Services, is whom has helped me and the members from the Diabetes Division
of the NFBNJ.
Vince
----- Original Message -----
From: "Chanelle Hill" <chanellemh at gmail.com>
To: <diabetes-talk at nfbnet.org>
Sent: Tuesday, March 03, 2009 4:27 PM
Subject: [Diabetes-talk] questions from a fairly new list subscriber
Dear List Members,
I read an article about insulin pumps that someone from NFB wrote several
years ago, and so I thought I would join this list to see if anyone has had
improved accessibility with the pump and for other diabetes issues. I am a
Type I diabetic, and I have been using the Minimed Paradigm 512 insulin pump
and the Prodigy Voice meter. I know that NFB is heavily involved in
advocacy, but what has been done to inform insulin pump companies of the
need for more accessible pumps? Is there any way to become involved in
advocating for better accessibility? It would be wonderful to use the new
Minimed Continuous Glucose Monitoring system, but the meter needed to
calibrate the pump doesn't talk. It seems like that could easily be fixed
since there are already talking glucometers. I spoke with a rep from Minimed
about upgrading my pump and asked if Minimed was working on a pump that
would be more accessible. She thought that the company was, but no one has
gotten back to me.
It sounds like someone is having problems with the Prodigy Voice meter on
this list? After calling and waiting a few weeks to get some more strips, I
found out that Homecare Solutions is no longer carrying the strips for
Prodigy Voice and that they are carrying a new meter that is supposedly like
the Prodigy called the Clever Check. Have any of you heard of this new
meter? Hopefully it has all of the audible features and more accessible
software (that's almost too much to ask :-) ).
Finally my last question. I am checking out state rehabilitation centers in
Minnesota-one of which is Blind Inc. On the CD that SSB sent me containing a
BLIND cyber brochure, a class for diabetes management was mentioned. Do you
know if that is still taught? Apart from that, have any of you had
experience with the training programs at Blind Inc.?
Thanks in advance for answering my questions.
Chanelle
_______________________________________________
----- Original Message -----
From: "Kelly Massaro" <kellym at prodigymeter.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Wednesday, April 08, 2009 6:15 PM
Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
Dave.....
Correction....I meant obtain a pump at a reasonable cost .
Long day! BIG SMILE
Best Regards,
Kelly Massaro
Senior Marketing and Sales Account Representative
Diagnostic Devices
9300 Harris Corners Pkwy Suite 450
Charlotte NC 28269
Direct: 704-285-6425
Main: 800-366-5901
kellym at prodigymeter.com
www.prodigymeter.com
PRIVILEGED AND CONFIDENTIAL: The information contained in this
electronic message and any attachments are confidential property of the
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whom it was addressed and should not be used in any manner not
authorized by the sender. Any other interception, copying, accessing, or
disclosure of this information is prohibited. The sender takes no
responsibility for any unauthorized reliance on this information. If you
have received this message in error, please immediately notify the
sender and purge the message you received. Do not forward this message
without permission.
-----Original Message-----
From: diabetes-talk-bounces at nfbnet.org
[mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Kelly Massaro
Sent: Wednesday, April 08, 2009 6:05 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
Hello Dave,
DDI is working on making the pump accessible to all. With that being
said, I'm confident there will be something in place to help blind
diabetics obtain the meter at a reasonable cost. I'm not sure if this
will be obtained by a trade in program or not, but I will gladly ask for
you.
Following is a few of the features that DDI will incorporate into our
talking meter. Keep in mind; this is just a few....
Flip screen
Blue tooth
Specially mounted battery for easy installation
Special shape insulin cartridge
Texture buttons
Reverse Polarity screen
Computer programmable- screen magnifier and reading software
Double bolus capable
7 languages
Auto priming
Auto rewind
Self diagnostic check
I hope this helps.
I'm available to answer questions and have relayed all information to
our engineers and CEO. I'd welcome all interested to send me a bullet
point e-mail with some of the features you'd like to be incorporated in
a talking pump. I am creating a file and forwarding all information to
our CEO.
I hope you have a great evening.
Best Regards,
Kelly Massaro
Senior Marketing and Sales Account Representative
Diagnostic Devices
9300 Harris Corners Pkwy Suite 450
Charlotte NC 28269
Direct: 704-285-6425
Main: 800-366-5901
kellym at prodigymeter.com
www.prodigymeter.com
PRIVILEGED AND CONFIDENTIAL: The information contained in this
electronic message and any attachments are confidential property of the
sender. The information is intended only for the use of the person to
whom it was addressed and should not be used in any manner not
authorized by the sender. Any other interception, copying, accessing, or
disclosure of this information is prohibited. The sender takes no
responsibility for any unauthorized reliance on this information. If you
have received this message in error, please immediately notify the
sender and purge the message you received. Do not forward this message
without permission.
-----Original Message-----
From: diabetes-talk-bounces at nfbnet.org
[mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of David Anspach
Sent: Tuesday, April 07, 2009 10:00 PM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
Hi Kelly,
I continue to say that it is so awesome knowing that DDI is undertaking
the
project of creating an accessible insulin pump so seriously as to
consider
announcing it's eventual addition to the market of insulin pumps
currently
available. I truly enjoy the freedom and flexibility of having an
insulin
pump as it does free you from the daily need to inject insulin and am
hopeful that the new pump being created by DDI hits all of the marks we,
as
blind diabetics, will need to fully access the features and benefits a
pump
can bring to the management of diabetes. If there is ever anything I can
do
to help out, please don't ever hesitate to contact me.
One final note, how about a program wherein you can get a discount off
the
new DDI accessible pump if you should decide to trade in your current
pump
for a new DDI pump?
Just a thought <smile>.
Dave
-----Original Message-----
From: diabetes-talk-bounces at nfbnet.org
[mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Kelly Massaro
Sent: Tuesday, April 07, 2009 10:22 AM
To: Diabetes Talk for the Blind
Cc: Jerry Munden
Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
Hello Eileen and David,
I'd like to thank you both for your feedback regarding the pros and cons
of
pump usage as a blind diabetic. Additionally, thank you for expressing
your
desire to help us with the design of the talking insulin pump.
I have forwarded your feedback to our CEO and Vice President and will
contact you when and if they would like you to participate.
I'm excited about our new products in the pipeline. We have a lot more
to
come after the insulin pump, so I'll keep everyone posted!
Best Regards,
Kelly Massaro
Senior Marketing and Sales Account Representative Diagnostic Devices
9300
Harris Corners Pkwy Suite 450 Charlotte NC 28269
Direct: 704-285-6425
Main: 800-366-5901
kellym at prodigymeter.com
www.prodigymeter.com
PRIVILEGED AND CONFIDENTIAL: The information contained in this
electronic
message and any attachments are confidential property of the sender. The
information is intended only for the use of the person to whom it was
addressed and should not be used in any manner not authorized by the
sender.
Any other interception, copying, accessing, or disclosure of this
information is prohibited. The sender takes no responsibility for any
unauthorized reliance on this information. If you have received this
message
in error, please immediately notify the sender and purge the message you
received. Do not forward this message without permission.
-----Original Message-----
From: diabetes-talk-bounces at nfbnet.org
[mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani
Sent: Tuesday, April 07, 2009 10:14 AM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
David & Kelly:
first to Dave -- I want to thank you for your very honest critique of
using
your insulin pump as a blind diabetic! I'm tired of getting rave
reviews
about products from many in the blindness community about how wonderful
certain diabetic devices are while at the same time, totally neglecting
to
state the problems and challenges they have encountered. I am very glad
you
let the list know your experience with the pump. As you know, I have
been
wanting to switch to a pump, but have been hesitant because of the lack
of
accessibility built into them. Reading your message below, I am glad I
have
held off and not been pushed into it.
To Kelly -- Like David stated there was a mention a while back on this
list
about asking people for input into the development of a pump. I did at
that
time also contact the person looking for participants. If at all needed
I
am still more than willing to participate in any type of testing,
questionnaires or studies as a person who is blind and has never used a
pump, but is insulin dependant and administering one's own insulin
injections and BG testing without any sighted assistance.
Kelly, feel free to contact me if you or DI is looking for people to
facilitate this type of work.
Thank you both.
Eileen
----- Original Message -----
From: "David Anspach" <danspach at tampabay.rr.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Sent: Monday, April 06, 2009 8:50 PM
Subject: [SPAM] Re: [Diabetes-talk] insulin pumps
> Hello Kelly,
> As a long-time and perhaps long-suffering insulin pump user, this is
> definitely great news! I am a long-time Minimed Paradigm insulin pump
> user.
> While using a pump definitely has great advantages over taking insulin
via
> injection, it is nearly impossible as a blind diabetic to use a pump
> without
> someone to act as a sighted backup. Sure I can change out the pump
i.e.
> change the reservoir and tubing plus insert the canula into a new
site,
> but
> there is just no way that I can, as a blind diabetic, take full
advantage
> of
> all of the features of my pump. About all I can do is take a bolus
before
> each meal and any time I want to eat a snack. I've been a person in
the
> past
> who really would rather be in total control of my diabetes. But with
this
> pump, I'm afraid I simply cannot. I can't change the most simplest of
> things, such as my own basal rates, as I simply cannot access the
pump. I
> have to wait for someone who is familiar with my pump to come to my
house
> or
> my employer and help me adjust it then.
>
> It is probably the most frustrating thing I have ever faced as a blind
> diabetic. In fact, I have considered time and time again just throwing
my
> pump into the trash and going back to taking insulin via an injection.
I
> know that we here in the NFB have written about how using a pump as a
> blind
> person is possible. But I just go back to the same issue, you must
have
> someone sighted who can help you adjust the more complex settings on
your
> pump such as basal rates. I know there are some who have managed to do
> some
> of the more complex things such as setting a temporary basal rate, but
I
> honestly don't trust not being able to see the screen to ensure I have
> done
> the right thing or pressed the various buttons the correct amount of
times
> to get to the setting I want to change.
>
> Sometime ago, there was a call to anyone interested in taking part in
> helping develop an accessible insulin pump to respond via this very
e-mail
> list. At that time, the folks at DDI were going to be producing the
pump,
> as
> you have now shown in your message below. But, I volunteered and never
> really heard much more. So, are you actively seeking anyone who can
lend
> advice etc. to the development of such a pump? If so, then I am
definitely
> very interested in contributing in any way I can. I would love to have
the
> ability of at least offering my input into such a pump and its design.
>
> Thanks for reading my rather lengthy e-mail message :). If you would
like
> to
> talk with me further, please don't hesitate to write to me at:
> danspach at tampabay.rr.com
> Or at work via:
> DavidA at FreedomScientific.com
>
> Have a great evening,
>
> Dave
>
> -----Original Message-----
> From: diabetes-talk-bounces at nfbnet.org
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Kelly Massaro
> Sent: Monday, April 06, 2009 1:43 PM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] insulin pumps
>
> Currently there are no pumps on the market for the visually impaired
> however
> DDI has a talking insulin pump in the pipeline that should be released
> within a year.
>
> Best Regards,
>
> Kelly Massaro
> Senior Marketing and Sales Account Representative Diagnostic Devices
9300
> Harris Corners Pkwy Suite 450 Charlotte NC 28269
> Direct: 704-285-6425
> Main: 800-366-5901
> kellym at prodigymeter.com
> www.prodigymeter.com
>
>
> PRIVILEGED AND CONFIDENTIAL: The information contained in this
electronic
> message and any attachments are confidential property of the sender.
The
> information is intended only for the use of the person to whom it was
> addressed and should not be used in any manner not authorized by the
> sender.
> Any other interception, copying, accessing, or disclosure of this
> information is prohibited. The sender takes no responsibility for any
> unauthorized reliance on this information. If you have received this
> message
> in error, please immediately notify the sender and purge the message
you
> received. Do not forward this message without permission.
>
>
>
>
>
> -----Original Message-----
> From: diabetes-talk-bounces at nfbnet.org
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of cheryl
echevarria
> Sent: Monday, April 06, 2009 1:38 PM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] insulin pumps
>
> there aren't any.
>
> Cheryl Echevarria
> ----- Original Message -----
> From: catdancing<mailto:catdancing at sbcglobal.net>
> To: Diabetes Talk for the Blind<mailto:diabetes-talk at nfbnet.org>
> Sent: Monday, April 06, 2009 10:29 AM
> Subject: [Diabetes-talk] insulin pumps
>
>
> has anyone on here ever heard of an insulin pump for the visually
> impaired? if so could u let me know what it is and where to find it.
> a friend of mine also a type 1 said a place called ammis. com made
them
> but i couldn't find any such item on their web page.
> has anyone any ideas?
> Debbie
> _______________________________________________
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