[Diabetes-talk] Fw: great article
Mike Freeman
k7uij at panix.com
Sat Dec 12 18:01:02 UTC 2009
----- Original Message -----
From: Patricia LaFrance-Wolf
Sent: Saturday, December 12, 2009 9:32 AM
Subject: [acb-diabetics] great article
Dr. Bill Polonsky, PhD, CDE, knows diabetes. Among other things, he has served as Chairman of the National Certification Board for Diabetes Educators, as
a Senior Psychologist at the Joslin Diabetes Center in Boston, and as an Instructor in Psychiatry at Harvard Medical School. He is the founder and president
of the Behavioral Diabetes Institute (BDI) in San Diego, California. He is also on Diabetes Health's Advisory Board.
A few years ago, Dr. Polonsky addressed the frustration people with diabetes feel when it comes to other people's reactions to their health. He developed
a very popular Diabetes Etiquette Card that helps express these feelings. It's not necessarily mean to be handed to another person, but more an acknowledgment
that we have all felt this way at one time or another and that it's all okay. Dr. Polonsky says that it might be time for you to try talking to the family
members who "only open their mouth to change feet" when it comes to your diabetes. They usually mean well but they probably just don't understand how it
is for you and how they can help you. You can let them gently and with empathy know what's it's like for you.
Here are Dr. Polonsky's 10 etiquette tips for people without diabetes, written from the perspective of someone with diabetes:
list of 10 items
. 1 - DON'T offer unsolicited advice about my eating or other aspects of diabetes. You may mean well, but giving advice about someone's personal habits,
especially when it is not requested, isn't very nice. Besides, many of the popularly held beliefs about diabetes ("you should just stop eating sugar")
are out of date or just plain wrong.
. 2 - DO realize and appreciate that diabetes is hard work. Diabetes management is a full-time job that I didn't apply for, didn't want, and can't quit.
It involves thinking about what, when, and how much I eat, while also factoring in
exercise
, medication, stress,
blood sugar
monitoring, and so much more - each and every day.
. 3 - DON'T tell me horror stories about your grandmother or other people with diabetes you have heard about. Diabetes is scary enough, and stories like
these are not reassuring! Besides, we now know that with good management, odds are good you can live a long, healthy, and happy life with diabetes.
. 4 - DO offer to join me in making healthy lifestyle changes. Not having to be alone with efforts to change, like starting an exercise program, is one
of the most powerful ways that you can be helpful. After all, healthy lifestyle changes can benefit everyone!
. 5 - DON'T look so horrified when I check my blood sugars or give myself an injection. It is not a lot of fun for me either. Checking blood sugars and
taking medications are things I must do to manage diabetes well. If I have to hide while I do so, it makes it much harder for me.
. 6 - DO ask how you might be helpful. If you want to be supportive, there may be lots of little things I would probably appreciate your help with. However,
what I really need may be very different than what you think I need, so please ask first.
. 7 - DON'T offer thoughtless reassurances. When you first learn about my diabetes, you may want to reassure me by saying things like, "Hey, it could be
worse; you could have cancer!" This won't make me feel better. And the implicit message seems to be that diabetes is no big deal. However, diabetes (like
cancer) IS a big deal.
. 8 - DO be supportive of my efforts for self-care. Help me set up an environment for success by supporting healthy food choices. Please honor my decision
to decline a particular food, even when you really want me to try it. You are most helpful when you are not being a source of unnecessary temptation.
. 9 - DON'T peek at or comment on my blood glucose numbers without asking me first. These numbers are private unless I choose to share them. It is normal
to have numbers that are sometimes too low or too high. Your unsolicited comments about these numbers can add to the disappointment, frustration, and anger
I already feel.
. 10 - DO offer your love and encouragement. As I work hard to manage diabetes successfully, sometimes just knowing that you care can be very helpful and
motivating.
list end
The Diabetes Etiquette Card is free. Here's three ways that you can get a copy of the card:
1. Download a
PDF copy
from the Diabetes Behavioral Institute's website.
2. Get a hard copy of the accordion-style card at no cost by contacting your local
Accu-Chek
representative. Roche Diabetes Care has licensed and printed the card and distributes them to healthcare professionals and to people with diabetes and
their loved ones.
3. Order it directly from BDI. To cover costs, they charge $1.00 per card plus shipping, and they only sell and ship orders of 50 cards or more. You can
call them at 858-336-8693 or email them at
info at behavioraldiabetes.org
Read Rachel Garlinghouse's recent article, "
Dear Medical Professional
" on how frustrating it can be for a person with diabetes to deal with their doctor.
Please post your comment below (be civil, now!) on other things you wish other people would understand about you and your diabetes.
* * *
Source:
Behavioral Diabetes Institute
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