[Diabetes-talk] What can we do?

Eileen Scrivani etscrivani at verizon.net
Wed Feb 11 00:01:33 UTC 2009


Sheryl:

I'm not saying to not send it to medical professionals, just that I think 
it's fair to have them pay for the subscription.  More than likely, they can 
even write it off as either a business expense or charitable contribution. 
And then to, if it was in a down-loadable version they could print it out or 
copy onto CD for those patients who would find it helpful.  I only raised 
the question because the negative amount quoted was so huge, and I am 
wondering how it got so out of control!

Eileen

----- Original Message ----- 
From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Tuesday, February 10, 2009 5:33 PM
Subject: Re: [Diabetes-talk] What can we do?


>I found out about DAN through the voice at my dialysis center, and that is 
>how I found out about the NFB, if they want more members, you have to have 
>it out there.
>
> Cheryl Echevarria
>
>
> ----- Original Message ----- 
> From: "Eileen Scrivani" <etscrivani at verizon.net>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Tuesday, February 10, 2009 1:10 PM
> Subject: Re: [Diabetes-talk] What can we do?
>
>
>> Debbie:
>>
>> This raises a few more questions.  I understand that people who are blind
>> are on limited incomes and may not be able to afford to pay for a
>> subscription to the Voice, but what about Doctor's, hospital's & other
>> medical professionals?  Certainly, they can afford to pay a subscription
>> fee.  Out of the circulation numbers, how many go to people who are blind
>> and may not be able to cover the cost of a subscription & how many go to
>> medical professionals?  Do doctor's give away services for free?  I think
>> not.
>>
>> And, why increase the cost of the publication with color pictures?  Isn't
>> the mag primarily for those who are blind?  Perhaps the focus has changed
>> somewhere along the line from presenting good information to the blind/vi
>> community to trying to attract sighted readers?
>>
>> Eileen
>>
>> ----- Original Message ----- 
>> From: "catdancing" <catdancing at sbcglobal.net>
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Sent: Tuesday, February 10, 2009 12:11 PM
>> Subject: Re: [Diabetes-talk] What can we do?
>>
>>
>> > this just seems to figure as far as diabetes and anything related to 
>> > the
>> > disease that doesn't bring in a lot of money to support the disease. 
>> > The
>> > Voice is a great magazine the reason it is being eliminated is because 
>> > it
>> > is helpful and no one in the medical field is making a huge profit from
>> > it.
>> > Debbie
>> > ----- Original Message ----- 
>> > From: "Elizabeth Lunt " <boo.lunt at verizon.net>
>> > To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> > Sent: Monday, February 09, 2009 4:49 PM
>> > Subject: Re: [Diabetes-talk] What can we do?
>> >
>> >
>> >> Hello All,
>> >> I feel I must finally write in here. The cost of the Voice of the
>> >> Diabetic
>> >> has not "skyrocketed" and I'm not sure where this information is 
>> >> coming
>> >> from. Even with the much-improved design and full color, the costs 
>> >> were
>> >> controlled, and money was coming in from ads and sponsorships. 
>> >> However,
>> >> it
>> >> simply costs a lot to print and ship so many copies -- our circulation
>> >> for
>> >> Voice of the Diabetic is over 300 thousand copies per quarter. It was
>> >> very
>> >> popular among readers and diabetes educators and demand was high.
>> >> Gathering
>> >> the information, selling advertisements and getting education grants, 
>> >> and
>> >> writing and editing the publication accounted for staff members' time, 
>> >> as
>> >> well as other diabetes advocacy activities such as pushing for 
>> >> accessible
>> >> diabetes technology. Dr. Maurer has made a decision to cut the entire
>> >> Diabetes Initiatives project, which included publishing Voice of the
>> >> Diabetic. He has said that some diabetes activities will be folded 
>> >> into
>> >> the
>> >> duties of existing staff at the NFB, but the rest of us have been let 
>> >> go.
>> >> We
>> >> did the best we could to present up-to-date, helpful and inspiring
>> >> information about both diabetes and coping with diabetes with limited 
>> >> or
>> >> no
>> >> vision. There will not be another issue of the magazine, because Dr.
>> >> Maurer
>> >> made his decision after the Winter issue went out, and he is folding 
>> >> the
>> >> project now, before another would have gone out in the spring.
>> >> Thank you for your support over the years. I have enjoyed working on 
>> >> this
>> >> publication. I hope you will get the full story, or try to, before
>> >> continuing this conversation with NFB leadership.
>> >> All the best,
>> >> Elizabeth Lunt
>> >> Editor, Voice of the Diabetic
>> >>
>> >> -----Original Message-----
>> >> From: diabetes-talk-bounces at nfbnet.org
>> >> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of 
>> >> Blindhands at aol.com
>> >> Sent: Monday, February 09, 2009 1:17 PM
>> >> To: diabetes-talk at nfbnet.org
>> >> Subject: [Diabetes-talk] What can we do?
>> >>
>> >> Diabetes is the number 1 cause of blindness in the USA.  It ranks up
>> >> there
>> >> throughout the world.  What can we do to stop or have them at least
>> >> consider
>> >> another  way of continuing the Voice of the Diabetic  publication.
>> >>
>> >> NFB is always asking us to contact our Senators and House of
>> >> Representative
>> >>
>> >> members, how about calling or emailing our President of NFB  to 
>> >> "Voice"
>> >> our
>> >> opinion and thoughts on this?
>> >>
>> >> The blind depend on word of mouth to learn about things, that is why 
>> >> we
>> >> are
>> >>
>> >> encouraged to talk about NFB to everyone blind and sighted.
>> >>
>> >> I understand that the cost of the publication has sky rocketed, but do 
>> >> we
>> >> need color photos and the new look of the Voice?  I am sure those are
>> >> some
>> >> of
>> >> the reasons that caused the price  to soar.
>> >>
>> >> I am disappointed with this decision.  I do know that there has been
>> >> concerns in the past years about the  money going  out for this
>> >> publication
>> >> and the
>> >> NFB covering the  cost.          the circulation of  this publication 
>> >> is
>> >> over
>> >> three hundred thousand .
>> >>
>> >> Mike, do you know if there will be a notice put into the Voice and 
>> >> will
>> >> there be a final Voice sent out or is it just over like that ?
>> >>
>> >> Joyce
>> >> **************A Good Credit Score is 700 or Above. See yours in just 2
>> >> easy
>> >> steps!
>> >> (http://pr.atwola.com/promoclk/100000075x1218550342x1201216770/aol?redir=htt
>> >> p://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=fe
>> >> bemailfooterNO62)
>> >> _______________________________________________
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>> >>
>> >>
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>> >
>> >
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