[Diabetes-talk] Fw: Insulin pen study at the NFB Convention

[Vincent Chaney]

To All DAN Attending 2009 National Convention,

The last time I had spoken with Ann Williams and confirmed this evening, she 
is still looking to the DAN to assist her in her study. When I joined the 
study group, Ann was about half way to her goal of 40 people. If you are 
blind and diabetic for more than a year and would be willing to give Ann 
some time, she needs us to help her. Ann and her team are willing to adjust 
the time to meet with our timings at the convention. This study will aid any 
of us who wish to use the Insulin Pen as there has not been a study yet 
involving blind and Visually Impaired persons who use the Insulin Pen. I 
hope we will do our best to help Ann. I am not an Insulin Pen user but a 10 
year pumper. I know this research would help many of us as blind diabetics 
who may wish to use an Insulin Pen and may have some resistance by the 
medical profession who reference the statement as to not advisable to be 
used by a visually impaired patient. I know this would be a forward progress 
for anyone with a visual impairment to be able to use the Insulin Pen as 
their choice in the future. Having listened to Ann's appearance on the TV 
show she had been on over the Internet, she noted this study would be the 
type of documentation necessary to remove the negative reference of not to 
be used by a blind client.

The URL for Ann S. Williams study is: 
http://www.case.edu/magazine/breakingnews/diabetes.html


I have copied Ann's contact information and a brief portion of the text to 
participate in the study:


Diabetes Study to Test Use of Insulin Pens by Visually Impaired: 
Post-doctoral fellow and nurse diabetes educator Ann Williams, PhD, RN, who 
self-diagnosed her diabetes in 1991, explores how those who are both 
diabetic and visually-impaired cope with the disease.

Are
you willing to participate in this study?
Or do you have further questions about this study? If so, please contact the 
researcher:

Ann S. Williams,
PhD, RN, CDE

Email: ann.s.williams at case.edu

Case Western
Reserve University

Cleveland,
Ohio 44106

Phone: 216-368-1704
Vince
Vincent Chaney, NFBNJ Diabetes Division President ,
Co-chair Lead NJAGDU

----- Original Message ----- 
From: "Ann Williams" <clevelandann at sbcglobal.net>
To: <diabetes-talk at nfbnet.org>
Sent: Friday, February 20, 2009 4:31 PM
Subject: [Diabetes-talk] Insulin pen study at the NFB Convention






If
you are attending the 2009 NFB Convention and you have had diabetes for more
than one year, you are invited to participate in a research study about the
accuracy of dosing with an insulin pen after receiving detailed
instructions. For this study, I need to
recruit 40 blind people with diabetes and 40 sighted people with diabetes.

The
study will involve the following steps:

Before
     the convention, I will call you and ask you several questions to make 
sure
     you meet the requirements of the study.At
     the convention, you will need to sign an informed consent form.You
     will be given an appointment time to come to the study room. All blind 
people in this study will listen
     to a recording of audio instructions in the use of an insulin pen, and
     sighted people in this study will look at visual instructions. Everyone 
will have a chance to handle a
     pen and pen supplies, and may take as much time with the instructions,
     pens, and supplies as they wish, until they feel confident that they 
know
     how to use the pen. Each
     person will be asked deliver ten specific doses of insulin into an
     injection ball – a rubber ball commonly used to teach insulin 
injections.A
     research assistant will weigh the injection ball immediately before and
     immediately after delivery of the insulin, to find out exactly how much
     insulin was delivered. The
     assistant will keep a record of all doses delivered.

Please note:
If you participate in this study, you will not inject insulin into
yourself. You will only learn how to use
a pen and inject doses into an injection ball.

You
will receive no direct benefits for participating in the study.

As
a way of thanking you for your time and participation in the feasibility 
study,
you will receive a $10 gift certificate for WalMart after you complete steps
1-5 outlined above. If you do not
complete steps 1-5, you will not receive the gift card.

You
may decide that you do not want to participate in this study for any reason 
at
all, and you do not need to explain your reason. This would not affect you 
negatively in any
way. In particular, your decision would
not affect your relationship with the NFB, with Case Western Reserve
University, or with the researcher, Ann Williams.

Are
you willing to participate in this study?
Or do you have further questions about this study? If so, please contact the 
researcher:

Ann S. Williams,
PhD, RN, CDE

Email: ann.s.williams at case.edu

Case Western
Reserve University

Cleveland,
Ohio 44106

Phone: 216-368-1704



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