[Diabetes-talk] talking insulin pump remote: Pump Mate

Sat Apr 10 14:09:34 UTC 2010

Chanelle:

We need to know everything out there on anything from accessible meters and 
pumps, to new meds and other things.

I had wanted to post things from the ADA itself on here when there is a call 
to congress and dlife  but I was told not to.  Maybe next time I will not 
listen and just post it.

Cheryl Echevarria
Independent Travel Consultant
C10-10646

http://Echevarriatravel.com
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Affiliated as an Independent Contractor with Montrose Travel CST-1018299-10

----- Original Message ----- 
From: "Chanelle Hill" <chanellemh at gmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Saturday, April 10, 2010 9:59 AM
Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate

> Dear Mike,
> Don't worry; I am not going to flame you. I don't know if the pump-mate is
> ready for prime time as you say. I just happened to stumble upon the 
> website
> yesterday, got really excited, contacted the developers, and posted to the
> list. Maybe I am jumping ahead of things, but the developers encouraged me
> to contact Minimed and to inform others.
> You may be right that we are small in number and may not be heeded by
> Minimed; however, it only takes a few minutes to write Medtronic or call. 
> If
> we let friends, family, and healthcare workers know, they may even be
> willing to contact Medtronic on our behalf if they have had knowledge of
> what it is like for someone who is blind to use an insulin pump.
> I am ignorant concerning the technology bill of rights. How exactly will
> this help to make insulin pumps accessible? Would Medtronic and other
> companies be ordered to make their products accessible once the bill is
> passed? Would it not be better to get Medtronic's willing compliance if we
> ever could? If this bill is the answer, how do we get our representatives 
> to
> pass it? In terms of the general population, we are also a small part.
> I am not trying to criticize you. Any information you may have for me to
> educate myself about the Technology Bill of Rights or how it would pertain
> to diabetes would be greatly appreciated.
>
> Chanelle
> ----- Original Message ----- 
> From: "Mike Freeman" <k7uij at panix.com>
> To: <diabetes-talk at nfbnet.org>
> Sent: Friday, April 09, 2010 9:32 PM
> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
>
>
> > Chanelle:
> >
> > I am in contact with Access Solutions concerning this pump remote but
> > didn't think this was ready for prime time yet. I have informed NFB
> > President Dr. Marc Maurer of this possibility.
> >
> > I am virtually certain that I will get flamed for what I shall say next
> > and I mean no disrespect to you in saying it. But in my opinion, we can
> > write to Medtronics MiniMed till we're blue in the face and absolutely
> > nothing will come of it. Why? Because there aren't enough of us to make 
> > it
> > worthwhile for the company to make the investment to manufacture the 
> > pump
> > remote and secure FDA 510(k) cergification for it which would mean that
> > the company would have to certify the remote's accuracy and would take 
> > on
> > the risk of liability for flaws.
> >
> > However, this is not the end of the road. I have spoken with John Pare,
> > Director of NFB Strategic Initiatives and he believes that diabetes
> > equipment including BG meters and insulin pumps would be covered (the
> > Technology Bill of Rights for the Blind, HR-4533, introduced into 
> > Congress
> > this year. So we need to work like mad to get our representatives to 
> > sign
> > on to this legislation as cosponsors.
> >
> > Mike Freeman, President
> > Diabetes Action Network
> > National Federation of the Blind
> >
> >
> > ----- Original Message -----
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Date: Friday, Apr 9, 2010 12:27:55
> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >>
> >>
> >> Dear list,
> >> I don't know if this information has been posted yet, but it is super
> >> excited. A talking remote is being made for the insulin pump. The 
> >> remote
> >> is being made by a company called Access Solutions www.axsol.com. I 
> >> just
> >> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >> had diabetes for 40 years and was frustrated by the lack of a talking
> >> insulin pump and the fact that there was no interest in producing one 
> >> by
> >> insulin pump companies. The website for the Pump Mate is
> >> www.pump-mate.com
> >> James is trying to get Medtronic Minimed's cooperation and support in
> >> developing and producing the Pump Mate. It would be great if those who
> >> are interested could contact Minimed to express interest in the pump 
> >> mate
> >> and desire that Minimed would help to market and produce it.
> >> With the Pump Mate, it is possible to program basal rates, use the 
> >> Bolis
> >> Wizzard, and hear test results from the meters that Minimed has
> >> specifically designed to transfer data to and from the insulin pump. 
> >> This
> >> has amazing potential since the Pump Mate could someday be used in
> >> conjunction with the continuous glucose monitoring system.
> >> I have pasted James's contact information below, and I am sending him a
> >> carbon copy of this message in case he would like to join the list or
> >> provide feedback.
> >>
> >> Access Solutions
> >> james at axsol.com
> >> sales: (916) 481-3559
> >>
> >> Chanelle
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >
> > _______________________________________________
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> >
>
>
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