[Diabetes-talk] talking insulin pump remote: Pump Mate

Sat Apr 10 14:22:02 UTC 2010

I was agreeing with you not jumping on you.

I said we need to know everything out there.

I am sorry if it came across wrong please read again.

No worries.

Cheryl Echevarria
Independent Travel Consultant
C10-10646

http://Echevarriatravel.com
1-866-580-5574

http://blog.echevarriatravel.com
Reservations at echevarriatravel.com
Affiliated as an Independent Contractor with Montrose Travel CST-1018299-10

----- Original Message ----- 
From: "Chanelle Hill" <chanellemh at gmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Saturday, April 10, 2010 10:12 AM
Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate

> Dear Cheryl,
> I am sorry if I have offended anyone on this list. That was certainly not 
> my
> intent. Nor was it my intent to put down medical companies or the
> government.
>
> Chanelle
> ----- Original Message ----- 
> From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Saturday, April 10, 2010 9:09 AM
> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
>
>
> > Chanelle:
> >
> > We need to know everything out there on anything from accessible meters
> > and pumps, to new meds and other things.
> >
> > I had wanted to post things from the ADA itself on here when there is a
> > call to congress and dlife  but I was told not to.  Maybe next time I 
> > will
> > not listen and just post it.
> >
> > Cheryl Echevarria
> > Independent Travel Consultant
> > C10-10646
> >
> > http://Echevarriatravel.com
> > 1-866-580-5574
> >
> > http://blog.echevarriatravel.com
> > Reservations at echevarriatravel.com
> > Affiliated as an Independent Contractor with Montrose Travel
> > CST-1018299-10
> >
> >
> > ----- Original Message ----- 
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 9:59 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Dear Mike,
> >> Don't worry; I am not going to flame you. I don't know if the pump-mate
> >> is
> >> ready for prime time as you say. I just happened to stumble upon the
> >> website
> >> yesterday, got really excited, contacted the developers, and posted to
> >> the
> >> list. Maybe I am jumping ahead of things, but the developers encouraged
> >> me
> >> to contact Minimed and to inform others.
> >> You may be right that we are small in number and may not be heeded by
> >> Minimed; however, it only takes a few minutes to write Medtronic or 
> >> call.
> >> If
> >> we let friends, family, and healthcare workers know, they may even be
> >> willing to contact Medtronic on our behalf if they have had knowledge 
> >> of
> >> what it is like for someone who is blind to use an insulin pump.
> >> I am ignorant concerning the technology bill of rights. How exactly 
> >> will
> >> this help to make insulin pumps accessible? Would Medtronic and other
> >> companies be ordered to make their products accessible once the bill is
> >> passed? Would it not be better to get Medtronic's willing compliance if
> >> we
> >> ever could? If this bill is the answer, how do we get our 
> >> representatives
> >> to
> >> pass it? In terms of the general population, we are also a small part.
> >> I am not trying to criticize you. Any information you may have for me 
> >> to
> >> educate myself about the Technology Bill of Rights or how it would
> >> pertain
> >> to diabetes would be greatly appreciated.
> >>
> >> Chanelle
> >> ----- Original Message ----- 
> >> From: "Mike Freeman" <k7uij at panix.com>
> >> To: <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 9:32 PM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >> > Chanelle:
> >> >
> >> > I am in contact with Access Solutions concerning this pump remote but
> >> > didn't think this was ready for prime time yet. I have informed NFB
> >> > President Dr. Marc Maurer of this possibility.
> >> >
> >> > I am virtually certain that I will get flamed for what I shall say 
> >> > next
> >> > and I mean no disrespect to you in saying it. But in my opinion, we 
> >> > can
> >> > write to Medtronics MiniMed till we're blue in the face and 
> >> > absolutely
> >> > nothing will come of it. Why? Because there aren't enough of us to 
> >> > make
> >> > it
> >> > worthwhile for the company to make the investment to manufacture the
> >> > pump
> >> > remote and secure FDA 510(k) cergification for it which would mean 
> >> > that
> >> > the company would have to certify the remote's accuracy and would 
> >> > take
> >> > on
> >> > the risk of liability for flaws.
> >> >
> >> > However, this is not the end of the road. I have spoken with John 
> >> > Pare,
> >> > Director of NFB Strategic Initiatives and he believes that diabetes
> >> > equipment including BG meters and insulin pumps would be covered (the
> >> > Technology Bill of Rights for the Blind, HR-4533, introduced into
> >> > Congress
> >> > this year. So we need to work like mad to get our representatives to
> >> > sign
> >> > on to this legislation as cosponsors.
> >> >
> >> > Mike Freeman, President
> >> > Diabetes Action Network
> >> > National Federation of the Blind
> >> >
> >> >
> >> > ----- Original Message -----
> >> > From: "Chanelle Hill" <chanellemh at gmail.com>
> >> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> > Date: Friday, Apr 9, 2010 12:27:55
> >> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >
> >> >>
> >> >>
> >> >> Dear list,
> >> >> I don't know if this information has been posted yet, but it is 
> >> >> super
> >> >> excited. A talking remote is being made for the insulin pump. The
> >> >> remote
> >> >> is being made by a company called Access Solutions www.axsol.com. I
> >> >> just
> >> >> spoke with James Kubel, the engineer who created the Pump Mate. He 
> >> >> has
> >> >> had diabetes for 40 years and was frustrated by the lack of a 
> >> >> talking
> >> >> insulin pump and the fact that there was no interest in producing 
> >> >> one
> >> >> by
> >> >> insulin pump companies. The website for the Pump Mate is
> >> >> www.pump-mate.com
> >> >> James is trying to get Medtronic Minimed's cooperation and support 
> >> >> in
> >> >> developing and producing the Pump Mate. It would be great if those 
> >> >> who
> >> >> are interested could contact Minimed to express interest in the pump
> >> >> mate
> >> >> and desire that Minimed would help to market and produce it.
> >> >> With the Pump Mate, it is possible to program basal rates, use the
> >> >> Bolis
> >> >> Wizzard, and hear test results from the meters that Minimed has
> >> >> specifically designed to transfer data to and from the insulin pump.
> >> >> This
> >> >> has amazing potential since the Pump Mate could someday be used in
> >> >> conjunction with the continuous glucose monitoring system.
> >> >> I have pasted James's contact information below, and I am sending 
> >> >> him
> >> >> a
> >> >> carbon copy of this message in case he would like to join the list 
> >> >> or
> >> >> provide feedback.
> >> >>
> >> >> Access Solutions
> >> >> james at axsol.com
> >> >> sales: (916) 481-3559
> >> >>
> >> >> Chanelle
> >> >> _______________________________________________
> >> >> Diabetes-talk mailing list
> >> >> Diabetes-talk at nfbnet.org
> >> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> >> To unsubscribe, change your list options or get your account info 
> >> >> for
> >> >> Diabetes-talk:
> >> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >> >
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40gmail.com
> >> >
> >>
> >>
> >> _______________________________________________
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> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>
> >
> > _______________________________________________
> > Diabetes-talk mailing list
> > Diabetes-talk at nfbnet.org
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> >
>
>
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