[Diabetes-talk] New York Chapter of DAN

cheryl echevarria cherylandmaxx at hotmail.com
Sun Apr 11 11:15:05 UTC 2010


Mindy Jacobsen called me last night and they are working on there charter 
for our chapter here in NY.  So we will have it all together for NY State 
Convention later this year, I am running as V.P.

Cheryl Echevarria
Independent Travel Consultant
C10-10646

http://Echevarriatravel.com
1-866-580-5574

http://blog.echevarriatravel.com
Reservations at echevarriatravel.com
Affiliated as an Independent Contractor with Montrose Travel CST-1018299-10


----- Original Message ----- 
From: "The Jacobs Family" <bandbjacobs at verizon.net>
To: <diabetes-talk at nfbnet.org>
Sent: Saturday, April 10, 2010 9:51 PM
Subject: [Diabetes-talk] Word of warning...


> Wow gang!!  Lots of stuff here I want to touch on today.
>
> Miss Deb:  I do go along here with Di, Cheryl, and Eileen on most all 
> points
> here.  If you must know the truth Miss Deb, your hostility/bitterness is
> like, real, real scary and if you don't do something relatively soon, it's
> going to ride you straight into your grave!  Not one of us here, first of
> all asked to be either blind, diabetic, or anything of the sort.  As a
> matter of fact, we didn't even ask to be born, now!  Did we?   Yah--I feel
> the same way a lot of folks do!!  Cure for diabetes, cancer, and AIDS, are
> you kidding?  That's right Honey!!  We all are the bread/butter for all
> sectors of the medical community: doctors, pharmaceutical companies!  We
> hold that whole snowball together and we're the reason for their being.
> I've forgotten who, now, but someone here was saying that if it weren't 
> for
> us, those folks might go under!!  Heaven forbid they might end up as poor 
> as
> many of us?  For shame, for shame, for shame!!  Travesty!!  Yah--I reak of
> cinicism!  Stuff happens!
>
> Now, since there isn't and probably never will be, a cure for diabetes, I
> think most of us here agree that we're all here to help, support and be
> there for each other through the bad as well as the good!  I've learned so
> much from a lot of you guys and I' grateful to all of you!!  Now, Deb,
> please know that it's pretty senseless to cry over spilled milk.  Doesn't 
> do
> anyone any good Honey!!  We all have to live with,manage,  and control our
> own diabetes.  I also know that it's our choice to do it!  When you can
> succeed in doing this Honey, coming to the realization that this can be
> reduced to  merely a nuicance, as opposed to letting it 
> debilitate,control,
> and kill you,  I'm sure you'll find much more peace with yourself.  In the
> meantime Honey, just know that we're always gonna be here!
>
> Bern
> ----- Original Message ----- 
> From: <diabetes-talk-request at nfbnet.org>
> To: <diabetes-talk at nfbnet.org>
> Sent: Saturday, April 10, 2010 1:00 PM
> Subject: Diabetes-talk Digest, Vol 33, Issue 10
>
>
> > Send Diabetes-talk mailing list submissions to
> > diabetes-talk at nfbnet.org
> >
> > To subscribe or unsubscribe via the World Wide Web, visit
> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> > or, via email, send a message with subject or body 'help' to
> > diabetes-talk-request at nfbnet.org
> >
> > You can reach the person managing the list at
> > diabetes-talk-owner at nfbnet.org
> >
> > When replying, please edit your Subject line so it is more specific
> > than "Re: Contents of Diabetes-talk digest..."
> >
> >
> > Today's Topics:
> >
> >   1. Re: solov2 (eileen scrivani)
> >   2. Re: solov2 (daniel strube)
> >   3. Re: solov2 (cheryl echevarria)
> >   4. Re: solov2 (cheryl echevarria)
> >   5. talking insulin pump remote: Pump Mate (Chanelle Hill)
> >   6. Re: talking insulin pump remote: Pump Mate (d m gina)
> >   7. Re: talking insulin pump remote: Pump Mate (Debbie Fredericks)
> >   8. Re: talking insulin pump remote: Pump Mate (Diane)
> >   9. Re: talking insulin pump remote: Pump Mate (cheryl echevarria)
> >  10. Re: talking insulin pump remote: Pump Mate (Debbie Fredericks)
> >  11. Re: solov2 (Mike Freeman)
> >  12. Re: talking insulin pump remote: Pump Mate (Mike Freeman)
> >  13. Re: talking insulin pump remote: Pump Mate (Mike Freeman)
> >  14. Re: talking insulin pump remote: Pump Mate (Debbie Fredericks)
> >  15. Re: talking insulin pump remote: Pump Mate (Diane)
> >  16. Re: talking insulin pump remote: Pump Mate (Chanelle Hill)
> >  17. Re: talking insulin pump remote: Pump Mate (cheryl echevarria)
> >  18. Re: talking insulin pump remote: Pump Mate (cheryl echevarria)
> >  19. Re: talking insulin pump remote: Pump Mate (Chanelle Hill)
> >  20. Re: talking insulin pump remote: Pump Mate (cheryl echevarria)
> >  21. Re: talking insulin pump remote: Pump Mate (eileen scrivani)
> >  22. Re: talking insulin pump remote: Pump Mate (eileen scrivani)
> >  23. Re: talking insulin pump remote: Pump Mate (Mike Freeman)
> >  24. Re: talking insulin pump remote: Pump Mate (Mike Freeman)
> >  25. Re: talking insulin pump remote: Pump Mate (cheryl echevarria)
> >  26. Re: talking insulin pump remote: Pump Mate (cheryl echevarria)
> >  27. Re: talking insulin pump remote: Pump Mate (Mike Freeman)
> >  28. Re: talking insulin pump remote: Pump Mate (eileen scrivani)
> >  29. Re: talking insulin pump remote: Pump Mate (Mike Freeman)
> >
> >
> > ----------------------------------------------------------------------
> >
> > Message: 1
> > Date: Fri, 09 Apr 2010 13:25:07 -0400
> > From: "eileen scrivani" <etscrivani at verizon.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] solov2
> > Message-ID: <66453B9E2BF44263B2EE10F11F51B0DC at EileenPC>
> > Content-Type: text/plain; format=flowed; charset=iso-8859-1;
> > reply-type=response
> >
> > Sorry about that.  I don't know what happened.  I was just mentioning,
> > which
> > you already did, that Daniel should go to www.solometers.com or even
> > better
> > call ADS and get live help.
> >
> > Eileen
> >
> >
> > ----- Original Message ----- 
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Friday, April 09, 2010 11:08 AM
> > Subject: Re: [Diabetes-talk] solov2
> >
> >
> >> nothing came through
> >>
> >> Cheryl Echevarria
> >> Independent Travel Consultant
> >> C10-10646
> >>
> >> http://Echevarriatravel.com
> >> 1-866-580-5574
> >>
> >> http://blog.echevarriatravel.com
> >> Reservations at echevarriatravel.com
> >> Affiliated as an Independent Contractor with Montrose Travel
> >> CST-1018299-10
> >>
> >>
> >> ----- Original Message ----- 
> >> From: "eileen scrivani" <etscrivani at verizon.net>
> >> To: "daniel strube" <daniel7047 at yahoo.com>; "Diabetes Talk for the 
> >> Blind"
> >> <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 10:44 AM
> >> Subject: Re: [Diabetes-talk] solov2
> >>
> >>
> >>> _______________________________________________
> >>> Diabetes-talk mailing list
> >>> Diabetes-talk at nfbnet.org
> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-talk:
> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> >>
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 2
> > Date: Fri, 9 Apr 2010 13:40:36 -0400
> > From: "daniel strube" <daniel7047 at yahoo.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] solov2
> > Message-ID: <610BC568D3034688AC2DAA76FB28C1E5 at compaq9789fc01>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=response
> >
> > like isaid in the last post when i went to the website saw no way to
> > contact
> > them even though i cliqued on the contact us link.  and filled out the
> > form
> > to see if i qualify but there was no check boxes it refered to one on 
> > the
> > next page. it didn't indicate if they'd received any information. so am
> > stuck i suppose.
> >
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 3
> > Date: Fri, 9 Apr 2010 14:09:18 -0400
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "daniel strube" <daniel7047 at yahoo.com>, "Diabetes Talk for the
> > Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] solov2
> > Message-ID: <BAY110-DS25039C37B94979C6CADA39A1150 at phx.gbl>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > what website are you talking about
> >
> > ADS or Solo Meter
> >
> > Cheryl Echevarria
> > Independent Travel Consultant
> > C10-10646
> >
> > http://Echevarriatravel.com
> > 1-866-580-5574
> >
> > http://blog.echevarriatravel.com
> > Reservations at echevarriatravel.com
> > Affiliated as an Independent Contractor with Montrose Travel
> > CST-1018299-10
> >
> >
> > ----- Original Message ----- 
> > From: "daniel strube" <daniel7047 at yahoo.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Friday, April 09, 2010 1:40 PM
> > Subject: Re: [Diabetes-talk] solov2
> >
> >
> >> like isaid in the last post when i went to the website saw no way to
> >> contact
> >> them even though i cliqued on the contact us link.  and filled out the
> >> form
> >> to see if i qualify but there was no check boxes it refered to one on 
> >> the
> >> next page. it didn't indicate if they'd received any information. so am
> >> stuck i suppose.
> >>
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>
> >
> >
> >
> > ------------------------------
> >
> > Message: 4
> > Date: Fri, 9 Apr 2010 14:10:39 -0400
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "daniel strube" <daniel7047 at yahoo.com>, "Diabetes Talk for the
> > Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] solov2
> > Message-ID: <BAY110-DS201C7B5A0343669EFE56CAA1150 at phx.gbl>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > phone no for solo meter is
> >
> >
> > 877.592.3922
> >
> > It is on the contact us page
> >
> > and their e-mail is
> > info at solometers.com
> >
> > Cheryl Echevarria
> > Independent Travel Consultant
> > C10-10646
> >
> > http://Echevarriatravel.com
> > 1-866-580-5574
> >
> > http://blog.echevarriatravel.com
> > Reservations at echevarriatravel.com
> > Affiliated as an Independent Contractor with Montrose Travel
> > CST-1018299-10
> >
> >
> > ----- Original Message ----- 
> > From: "daniel strube" <daniel7047 at yahoo.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Friday, April 09, 2010 1:40 PM
> > Subject: Re: [Diabetes-talk] solov2
> >
> >
> >> like isaid in the last post when i went to the website saw no way to
> >> contact
> >> them even though i cliqued on the contact us link.  and filled out the
> >> form
> >> to see if i qualify but there was no check boxes it refered to one on 
> >> the
> >> next page. it didn't indicate if they'd received any information. so am
> >> stuck i suppose.
> >>
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>
> >
> >
> >
> > ------------------------------
> >
> > Message: 5
> > Date: Fri, 9 Apr 2010 13:43:38 -0500
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <AB48F4249F8B4BCAB503FC6B91A5FEE8 at DBTOA000>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > Dear list,
> > I don't know if this information has been posted yet, but it is super
> > excited. A talking remote is being made for the insulin pump. The remote
> > is being made by a company called Access Solutions www.axsol.com. I just
> > spoke with James Kubel, the engineer who created the Pump Mate. He has 
> > had
> > diabetes for 40 years and was frustrated by the lack of a talking 
> > insulin
> > pump and the fact that there was no interest in producing one by insulin
> > pump companies. The website for the Pump Mate is www.pump-mate.com
> > James is trying to get Medtronic Minimed's cooperation and support in
> > developing and producing the Pump Mate. It would be great if those who 
> > are
> > interested could contact Minimed to express interest in the pump mate 
> > and
> > desire that Minimed would help to market and produce it.
> > With the Pump Mate, it is possible to program basal rates, use the Bolis
> > Wizzard, and hear test results from the meters that Minimed has
> > specifically designed to transfer data to and from the insulin pump. 
> > This
> > has amazing potential since the Pump Mate could someday be used in
> > conjunction with the continuous glucose monitoring system.
> > I have pasted James's contact information below, and I am sending him a
> > carbon copy of this message in case he would like to join the list or
> > provide feedback.
> >
> > Access Solutions
> > james at axsol.com
> > sales: (916) 481-3559
> >
> > Chanelle
> >
> > ------------------------------
> >
> > Message: 6
> > Date: Fri, 09 Apr 2010 15:29:40 -0400
> > From: d m gina <dmgina at samobile.net>
> > To: diabetes-talk at nfbnet.org
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <20100409192940.18289.75989 at web2>
> > Content-Type: text/plain; charset="us-ascii"; format="flowed"
> >
> > I do hope the gentleman will join the group.
> > Yes if there is a day I need the pump I would love to have all of the
> > talking features it can give me.
> > How exciting.
> >
> > -- 
> > --Dar
> > skype: dmgina23
> >  FB: dmgina
> > www.twitter.com/dmgina
> > every saint has a past
> > every sinner has a future
> >
> > Email services provided by the System Access Mobile Network.  Visit
> > www.serotek.com to learn more about accessibility anywhere.
> >
> >
> >
> > ------------------------------
> >
> > Message: 7
> > Date: Fri, 9 Apr 2010 13:30:40 -0700 (PDT)
> > From: Debbie Fredericks <catdancing at sbcglobal.net>
> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <573238.82494.qm at web81602.mail.mud.yahoo.com>
> > Content-Type: text/plain; charset=us-ascii
> >
> > is anyone producing a talking insulin pump that stops spitting out 
> > insulin
> > when the blood sugars hit 70???
> > Debbie
> >
> >
> >
> >
> > ________________________________
> > From: Chanelle Hill <chanellemh at gmail.com>
> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> > Sent: Fri, April 9, 2010 1:43:38 PM
> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> > Dear list,
> > I don't know if this information has been posted yet, but it is super
> > excited. A talking remote is being made for the insulin pump. The remote
> > is being made by a company called Access Solutions www.axsol.com. I just
> > spoke with James Kubel, the engineer who created the Pump Mate. He has 
> > had
> > diabetes for 40 years and was frustrated by the lack of a talking 
> > insulin
> > pump and the fact that there was no interest in producing one by insulin
> > pump companies. The website for the Pump Mate is www.pump-mate.com
> > James is trying to get Medtronic Minimed's cooperation and support in
> > developing and producing the Pump Mate. It would be great if those who 
> > are
> > interested could contact Minimed to express interest in the pump mate 
> > and
> > desire that Minimed would help to market and produce it.
> > With the Pump Mate, it is possible to program basal rates, use the Bolis
> > Wizzard, and hear test results from the meters that Minimed has
> > specifically designed to transfer data to and from the insulin pump. 
> > This
> > has amazing potential since the Pump Mate could someday be used in
> > conjunction with the continuous glucose monitoring system.
> > I have pasted James's contact information below, and I am sending him a
> > carbon copy of this message in case he would like to join the list or
> > provide feedback.
> >
> > Access Solutions
> > james at axsol.com
> > sales: (916) 481-3559
> >
> > Chanelle
> > _______________________________________________
> > Diabetes-talk mailing list
> > Diabetes-talk at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > Diabetes-talk:
> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >
> >
> > ------------------------------
> >
> > Message: 8
> > Date: Fri, 9 Apr 2010 16:22:04 -0600
> > From: "Diane" <dianefilipe at peoplepc.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <AF8092BB301B4FF790322DC5739D6417 at DianePC>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=original
> >
> > If your pomp is spitting out insulin, you had better call tech support 
> > for
> > the pump you have.
> > Di
> > ----- Original Message ----- 
> > From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Friday, April 09, 2010 2:30 PM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> is anyone producing a talking insulin pump that stops spitting out
> >> insulin
> >> when the blood sugars hit 70???
> >> Debbie
> >>
> >>
> >>
> >>
> >> ________________________________
> >> From: Chanelle Hill <chanellemh at gmail.com>
> >> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> Sent: Fri, April 9, 2010 1:43:38 PM
> >> Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >> Dear list,
> >> I don't know if this information has been posted yet, but it is super
> >> excited. A talking remote is being made for the insulin pump. The 
> >> remote
> >> is being made by a company called Access Solutions www.axsol.com. I 
> >> just
> >> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >> had
> >> diabetes for 40 years and was frustrated by the lack of a talking 
> >> insulin
> >> pump and the fact that there was no interest in producing one by 
> >> insulin
> >> pump companies. The website for the Pump Mate is www.pump-mate.com
> >> James is trying to get Medtronic Minimed's cooperation and support in
> >> developing and producing the Pump Mate. It would be great if those who
> >> are
> >> interested could contact Minimed to express interest in the pump mate 
> >> and
> >> desire that Minimed would help to market and produce it.
> >> With the Pump Mate, it is possible to program basal rates, use the 
> >> Bolis
> >> Wizzard, and hear test results from the meters that Minimed has
> >> specifically designed to transfer data to and from the insulin pump. 
> >> This
> >> has amazing potential since the Pump Mate could someday be used in
> >> conjunction with the continuous glucose monitoring system.
> >> I have pasted James's contact information below, and I am sending him a
> >> carbon copy of this message in case he would like to join the list or
> >> provide feedback.
> >>
> >> Access Solutions
> >> james at axsol.com
> >> sales: (916) 481-3559
> >>
> >> Chanelle
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dianefilipe%40peoplepc.com
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 9
> > Date: Fri, 9 Apr 2010 18:25:28 -0400
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <BAY110-DS16DE609BFB0D0E0653A8F0A1150 at phx.gbl>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > Yes, plus insulin smells really bad. Hi Diane, Miss you, e-mail or call 
> > me
> > when you can.
> >
> > Lots of love
> >
> > Cheryl Echevarria
> > Independent Travel Consultant
> > C10-10646
> >
> > http://Echevarriatravel.com
> > 1-866-580-5574
> >
> > http://blog.echevarriatravel.com
> > Reservations at echevarriatravel.com
> > Affiliated as an Independent Contractor with Montrose Travel
> > CST-1018299-10
> >
> >
> > ----- Original Message ----- 
> > From: "Diane" <dianefilipe at peoplepc.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Friday, April 09, 2010 6:22 PM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> If your pomp is spitting out insulin, you had better call tech support
> >> for
> >> the pump you have.
> >> Di
> >> ----- Original Message ----- 
> >> From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 2:30 PM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >> > is anyone producing a talking insulin pump that stops spitting out
> >> > insulin
> >> > when the blood sugars hit 70???
> >> > Debbie
> >> >
> >> >
> >> >
> >> >
> >> > ________________________________
> >> > From: Chanelle Hill <chanellemh at gmail.com>
> >> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> > Sent: Fri, April 9, 2010 1:43:38 PM
> >> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >
> >> > Dear list,
> >> > I don't know if this information has been posted yet, but it is super
> >> > excited. A talking remote is being made for the insulin pump. The
> >> > remote
> >> > is being made by a company called Access Solutions www.axsol.com. I
> >> > just
> >> > spoke with James Kubel, the engineer who created the Pump Mate. He 
> >> > has
> >> > had
> >> > diabetes for 40 years and was frustrated by the lack of a talking
> >> > insulin
> >> > pump and the fact that there was no interest in producing one by
> >> > insulin
> >> > pump companies. The website for the Pump Mate is www.pump-mate.com
> >> > James is trying to get Medtronic Minimed's cooperation and support in
> >> > developing and producing the Pump Mate. It would be great if those 
> >> > who
> >> > are
> >> > interested could contact Minimed to express interest in the pump mate
> >> > and
> >> > desire that Minimed would help to market and produce it.
> >> > With the Pump Mate, it is possible to program basal rates, use the
> >> > Bolis
> >> > Wizzard, and hear test results from the meters that Minimed has
> >> > specifically designed to transfer data to and from the insulin pump.
> >> > This
> >> > has amazing potential since the Pump Mate could someday be used in
> >> > conjunction with the continuous glucose monitoring system.
> >> > I have pasted James's contact information below, and I am sending him 
> >> > a
> >> > carbon copy of this message in case he would like to join the list or
> >> > provide feedback.
> >> >
> >> > Access Solutions
> >> > james at axsol.com
> >> > sales: (916) 481-3559
> >> >
> >> > Chanelle
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dianefilipe%40peoplepc.com
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>
> >
> >
> >
> > ------------------------------
> >
> > Message: 10
> > Date: Fri, 9 Apr 2010 16:46:52 -0700 (PDT)
> > From: Debbie Fredericks <catdancing at sbcglobal.net>
> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <524771.72412.qm at web81601.mail.mud.yahoo.com>
> > Content-Type: text/plain; charset=us-ascii
> >
> > from the sounds of things on this list. a cure for diabetes is not even 
> > a
> > desire here.
> > i don't want anything but a cure and the medical field can shove there
> > bull.
> > Debbie
> >
> >
> >
> >
> > ________________________________
> > From: Chanelle Hill <chanellemh at gmail.com>
> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> > Sent: Fri, April 9, 2010 1:43:38 PM
> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> > Dear list,
> > I don't know if this information has been posted yet, but it is super
> > excited. A talking remote is being made for the insulin pump. The remote
> > is being made by a company called Access Solutions www.axsol.com. I just
> > spoke with James Kubel, the engineer who created the Pump Mate. He has 
> > had
> > diabetes for 40 years and was frustrated by the lack of a talking 
> > insulin
> > pump and the fact that there was no interest in producing one by insulin
> > pump companies. The website for the Pump Mate is www.pump-mate.com
> > James is trying to get Medtronic Minimed's cooperation and support in
> > developing and producing the Pump Mate. It would be great if those who 
> > are
> > interested could contact Minimed to express interest in the pump mate 
> > and
> > desire that Minimed would help to market and produce it.
> > With the Pump Mate, it is possible to program basal rates, use the Bolis
> > Wizzard, and hear test results from the meters that Minimed has
> > specifically designed to transfer data to and from the insulin pump. 
> > This
> > has amazing potential since the Pump Mate could someday be used in
> > conjunction with the continuous glucose monitoring system.
> > I have pasted James's contact information below, and I am sending him a
> > carbon copy of this message in case he would like to join the list or
> > provide feedback.
> >
> > Access Solutions
> > james at axsol.com
> > sales: (916) 481-3559
> >
> > Chanelle
> > _______________________________________________
> > Diabetes-talk mailing list
> > Diabetes-talk at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > Diabetes-talk:
> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >
> >
> > ------------------------------
> >
> > Message: 11
> > Date: Fri, 09 Apr 2010 19:13:15 -0700
> > From: Mike Freeman <k7uij at panix.com>
> > To: diabetes-talk at nfbnet.org
> > Subject: Re: [Diabetes-talk] solov2
> > Message-ID: <20100410021315.k7uij at panix.com>
> > Content-Type: text/plain; charset=US-ASCII
> >
> > It did but it was in a MIME format that made it appear as an attachment.
> >
> > Mike
> >
> > ----- Original Message -----
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Date: Friday, Apr 9, 2010 9:27:47
> > Subject: Re: [Diabetes-talk] solov2
> >
> >>
> >>
> >> nothing came through
> >>
> >> Cheryl Echevarria
> >> Independent Travel Consultant
> >> C10-10646
> >>
> >> http://Echevarriatravel.com
> >> 1-866-580-5574
> >>
> >> http://blog.echevarriatravel.com
> >> Reservations at echevarriatravel.com
> >> Affiliated as an Independent Contractor with Montrose Travel
> >> CST-1018299-10
> >>
> >>
> >> ----- Original Message ----- 
> >> From: "eileen scrivani" <etscrivani at verizon.net>
> >> To: "daniel strube" <daniel7047 at yahoo.com>; "Diabetes Talk for the 
> >> Blind"
> >> <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 10:44 AM
> >> Subject: Re: [Diabetes-talk] solov2
> >>
> >>
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >> >
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >
> >
> >
> > ------------------------------
> >
> > Message: 12
> > Date: Fri, 09 Apr 2010 19:32:32 -0700
> > From: Mike Freeman <k7uij at panix.com>
> > To: diabetes-talk at nfbnet.org
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <20100410023232.k7uij at panix.com>
> > Content-Type: text/plain; charset=US-ASCII
> >
> > Chanelle:
> >
> > I am in contact with Access Solutions concerning this pump remote but
> > didn't think this was ready for prime time yet. I have informed NFB
> > President Dr. Marc Maurer of this possibility.
> >
> > I am virtually certain that I will get flamed for what I shall say next
> > and I mean no disrespect to you in saying it. But in my opinion, we can
> > write to Medtronics MiniMed till we're blue in the face and absolutely
> > nothing will come of it. Why? Because there aren't enough of us to make 
> > it
> > worthwhile for the company to make the investment to manufacture the 
> > pump
> > remote and secure FDA 510(k) cergification for it which would mean that
> > the company would have to certify the remote's accuracy and would take 
> > on
> > the risk of liability for flaws.
> >
> > However, this is not the end of the road. I have spoken with John Pare,
> > Director of NFB Strategic Initiatives and he believes that diabetes
> > equipment including BG meters and insulin pumps would be covered (the
> > Technology Bill of Rights for the Blind, HR-4533, introduced into 
> > Congress
> > this year. So we need to work like mad to get our representatives to 
> > sign
> > on to this legislation as cosponsors.
> >
> > Mike Freeman, President
> > Diabetes Action Network
> > National Federation of the Blind
> >
> >
> > ----- Original Message -----
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Date: Friday, Apr 9, 2010 12:27:55
> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >>
> >>
> >> Dear list,
> >> I don't know if this information has been posted yet, but it is super
> >> excited. A talking remote is being made for the insulin pump. The 
> >> remote
> >> is being made by a company called Access Solutions www.axsol.com. I 
> >> just
> >> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >> had diabetes for 40 years and was frustrated by the lack of a talking
> >> insulin pump and the fact that there was no interest in producing one 
> >> by
> >> insulin pump companies. The website for the Pump Mate is
> >> www.pump-mate.com
> >> James is trying to get Medtronic Minimed's cooperation and support in
> >> developing and producing the Pump Mate. It would be great if those who
> >> are interested could contact Minimed to express interest in the pump 
> >> mate
> >> and desire that Minimed would help to market and produce it.
> >> With the Pump Mate, it is possible to program basal rates, use the 
> >> Bolis
> >> Wizzard, and hear test results from the meters that Minimed has
> >> specifically designed to transfer data to and from the insulin pump. 
> >> This
> >> has amazing potential since the Pump Mate could someday be used in
> >> conjunction with the continuous glucose monitoring system.
> >> I have pasted James's contact information below, and I am sending him a
> >> carbon copy of this message in case he would like to join the list or
> >> provide feedback.
> >>
> >> Access Solutions
> >> james at axsol.com
> >> sales: (916) 481-3559
> >>
> >> Chanelle
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >
> >
> >
> > ------------------------------
> >
> > Message: 13
> > Date: Fri, 09 Apr 2010 19:39:02 -0700
> > From: Mike Freeman <k7uij at panix.com>
> > To: diabetes-talk at nfbnet.org
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <20100410023902.k7uij at panix.com>
> > Content-Type: text/plain; charset=US-ASCII
> >
> > I kinda like that chemical smell! (grin)
> >
> > Mike
> >
> >
> > ----- Original Message -----
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Date: Friday, Apr 9, 2010 16:43:00
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >>
> >>
> >> Yes, plus insulin smells really bad. Hi Diane, Miss you, e-mail or call
> >> me
> >> when you can.
> >>
> >> Lots of love
> >>
> >> Cheryl Echevarria
> >> Independent Travel Consultant
> >> C10-10646
> >>
> >> http://Echevarriatravel.com
> >> 1-866-580-5574
> >>
> >> http://blog.echevarriatravel.com
> >> Reservations at echevarriatravel.com
> >> Affiliated as an Independent Contractor with Montrose Travel
> >> CST-1018299-10
> >>
> >>
> >> ----- Original Message ----- 
> >> From: "Diane" <dianefilipe at peoplepc.com>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 6:22 PM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >> > If your pomp is spitting out insulin, you had better call tech 
> >> > support
> >> > for
> >> > the pump you have.
> >> > Di
> >> > ----- Original Message ----- 
> >> > From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> >> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> > Sent: Friday, April 09, 2010 2:30 PM
> >> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >
> >> >
> >> > > is anyone producing a talking insulin pump that stops spitting out
> >> > > insulin
> >> > > when the blood sugars hit 70???
> >> > > Debbie
> >> > >
> >> > >
> >> > >
> >> > >
> >> > > ________________________________
> >> > > From: Chanelle Hill <chanellemh at gmail.com>
> >> > > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> > > Sent: Fri, April 9, 2010 1:43:38 PM
> >> > > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> > >
> >> > > Dear list,
> >> > > I don't know if this information has been posted yet, but it is 
> >> > > super
> >> > > excited. A talking remote is being made for the insulin pump. The
> >> > > remote
> >> > > is being made by a company called Access Solutions www.axsol.com. I
> >> > > just
> >> > > spoke with James Kubel, the engineer who created the Pump Mate. He
> >> > > has
> >> > > had
> >> > > diabetes for 40 years and was frustrated by the lack of a talking
> >> > > insulin
> >> > > pump and the fact that there was no interest in producing one by
> >> > > insulin
> >> > > pump companies. The website for the Pump Mate is www.pump-mate.com
> >> > > James is trying to get Medtronic Minimed's cooperation and support 
> >> > > in
> >> > > developing and producing the Pump Mate. It would be great if those
> >> > > who
> >> > > are
> >> > > interested could contact Minimed to express interest in the pump 
> >> > > mate
> >> > > and
> >> > > desire that Minimed would help to market and produce it.
> >> > > With the Pump Mate, it is possible to program basal rates, use the
> >> > > Bolis
> >> > > Wizzard, and hear test results from the meters that Minimed has
> >> > > specifically designed to transfer data to and from the insulin 
> >> > > pump.
> >> > > This
> >> > > has amazing potential since the Pump Mate could someday be used in
> >> > > conjunction with the continuous glucose monitoring system.
> >> > > I have pasted James's contact information below, and I am sending 
> >> > > him
> >> > > a
> >> > > carbon copy of this message in case he would like to join the list 
> >> > > or
> >> > > provide feedback.
> >> > >
> >> > > Access Solutions
> >> > > james at axsol.com
> >> > > sales: (916) 481-3559
> >> > >
> >> > > Chanelle
> >> > > _______________________________________________
> >> > > Diabetes-talk mailing list
> >> > > Diabetes-talk at nfbnet.org
> >> > > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > > To unsubscribe, change your list options or get your account info 
> >> > > for
> >> > > Diabetes-talk:
> >> > > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >> > > _______________________________________________
> >> > > Diabetes-talk mailing list
> >> > > Diabetes-talk at nfbnet.org
> >> > > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > > To unsubscribe, change your list options or get your account info 
> >> > > for
> >> > > Diabetes-talk:
> >> > > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dianefilipe%40peoplepc.com
> >> >
> >> >
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >> >
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >
> >
> >
> > ------------------------------
> >
> > Message: 14
> > Date: Sat, 10 Apr 2010 06:41:57 -0700 (PDT)
> > From: Debbie Fredericks <catdancing at sbcglobal.net>
> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <17266.70690.qm at web81607.mail.mud.yahoo.com>
> > Content-Type: text/plain; charset=us-ascii
> >
> > Mike
> > How many makes enough?
> > Debbie
> >
> >
> >
> >
> > ________________________________
> > From: Mike Freeman <k7uij at panix.com>
> > To: diabetes-talk at nfbnet.org
> > Sent: Fri, April 9, 2010 9:32:32 PM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> > Chanelle:
> >
> > I am in contact with Access Solutions concerning this pump remote but
> > didn't think this was ready for prime time yet. I have informed NFB
> > President Dr. Marc Maurer of this possibility.
> >
> > I am virtually certain that I will get flamed for what I shall say next
> > and I mean no disrespect to you in saying it. But in my opinion, we can
> > write to Medtronics MiniMed till we're blue in the face and absolutely
> > nothing will come of it. Why? Because there aren't enough of us to make 
> > it
> > worthwhile for the company to make the investment to manufacture the 
> > pump
> > remote and secure FDA 510(k) cergification for it which would mean that
> > the company would have to certify the remote's accuracy and would take 
> > on
> > the risk of liability for flaws.
> >
> > However, this is not the end of the road. I have spoken with John Pare,
> > Director of NFB Strategic Initiatives and he believes that diabetes
> > equipment including BG meters and insulin pumps would be covered (the
> > Technology Bill of Rights for the Blind, HR-4533, introduced into 
> > Congress
> > this year. So we need to work like mad to get our representatives to 
> > sign
> > on to this legislation as cosponsors.
> >
> > Mike Freeman, President
> > Diabetes Action Network
> > National Federation of the Blind
> >
> >
> > ----- Original Message -----
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Date: Friday, Apr 9, 2010 12:27:55
> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >>
> >>
> >> Dear list,
> >> I don't know if this information has been posted yet, but it is super
> >> excited. A talking remote is being made for the insulin pump. The 
> >> remote
> >> is being made by a company called Access Solutions www.axsol.com. I 
> >> just
> >> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >> had diabetes for 40 years and was frustrated by the lack of a talking
> >> insulin pump and the fact that there was no interest in producing one 
> >> by
> >> insulin pump companies. The website for the Pump Mate is
> >> www.pump-mate.com
> >> James is trying to get Medtronic Minimed's cooperation and support in
> >> developing and producing the Pump Mate. It would be great if those who
> >> are interested could contact Minimed to express interest in the pump 
> >> mate
> >> and desire that Minimed would help to market and produce it.
> >> With the Pump Mate, it is possible to program basal rates, use the 
> >> Bolis
> >> Wizzard, and hear test results from the meters that Minimed has
> >> specifically designed to transfer data to and from the insulin pump. 
> >> This
> >> has amazing potential since the Pump Mate could someday be used in
> >> conjunction with the continuous glucose monitoring system.
> >> I have pasted James's contact information below, and I am sending him a
> >> carbon copy of this message in case he would like to join the list or
> >> provide feedback.
> >>
> >> Access Solutions
> >> james at axsol.com
> >> sales: (916) 481-3559
> >>
> >> Chanelle
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >
> > _______________________________________________
> > Diabetes-talk mailing list
> > Diabetes-talk at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > Diabetes-talk:
> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >
> >
> > ------------------------------
> >
> > Message: 15
> > Date: Sat, 10 Apr 2010 07:53:47 -0600
> > From: "Diane" <dianefilipe at peoplepc.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <1D3B854519284573AA1BB30BFE05C950 at DianePC>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=original
> >
> > Well Miss Deb,
> > I'm here to tell you,
> > you are 1,000,000% wrong.
> > do you think we enjoy having to have these conversations?
> > I would much happier if I could share my favorite peanut butter pie
> > recipe.
> > Di
> > ----- Original Message ----- 
> > From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Friday, April 09, 2010 5:46 PM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> from the sounds of things on this list. a cure for diabetes is not even 
> >> a
> >> desire here.
> >> i don't want anything but a cure and the medical field can shove there
> >> bull.
> >> Debbie
> >>
> >>
> >>
> >>
> >> ________________________________
> >> From: Chanelle Hill <chanellemh at gmail.com>
> >> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> Sent: Fri, April 9, 2010 1:43:38 PM
> >> Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >> Dear list,
> >> I don't know if this information has been posted yet, but it is super
> >> excited. A talking remote is being made for the insulin pump. The 
> >> remote
> >> is being made by a company called Access Solutions www.axsol.com. I 
> >> just
> >> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >> had
> >> diabetes for 40 years and was frustrated by the lack of a talking 
> >> insulin
> >> pump and the fact that there was no interest in producing one by 
> >> insulin
> >> pump companies. The website for the Pump Mate is www.pump-mate.com
> >> James is trying to get Medtronic Minimed's cooperation and support in
> >> developing and producing the Pump Mate. It would be great if those who
> >> are
> >> interested could contact Minimed to express interest in the pump mate 
> >> and
> >> desire that Minimed would help to market and produce it.
> >> With the Pump Mate, it is possible to program basal rates, use the 
> >> Bolis
> >> Wizzard, and hear test results from the meters that Minimed has
> >> specifically designed to transfer data to and from the insulin pump. 
> >> This
> >> has amazing potential since the Pump Mate could someday be used in
> >> conjunction with the continuous glucose monitoring system.
> >> I have pasted James's contact information below, and I am sending him a
> >> carbon copy of this message in case he would like to join the list or
> >> provide feedback.
> >>
> >> Access Solutions
> >> james at axsol.com
> >> sales: (916) 481-3559
> >>
> >> Chanelle
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dianefilipe%40peoplepc.com
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 16
> > Date: Sat, 10 Apr 2010 08:59:58 -0500
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <1C8079D4774741E48C488375BC7FE56E at DBTOA000>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=original
> >
> > Dear Mike,
> > Don't worry; I am not going to flame you. I don't know if the pump-mate 
> > is
> > ready for prime time as you say. I just happened to stumble upon the
> > website
> > yesterday, got really excited, contacted the developers, and posted to 
> > the
> > list. Maybe I am jumping ahead of things, but the developers encouraged 
> > me
> > to contact Minimed and to inform others.
> > You may be right that we are small in number and may not be heeded by
> > Minimed; however, it only takes a few minutes to write Medtronic or 
> > call.
> > If
> > we let friends, family, and healthcare workers know, they may even be
> > willing to contact Medtronic on our behalf if they have had knowledge of
> > what it is like for someone who is blind to use an insulin pump.
> > I am ignorant concerning the technology bill of rights. How exactly will
> > this help to make insulin pumps accessible? Would Medtronic and other
> > companies be ordered to make their products accessible once the bill is
> > passed? Would it not be better to get Medtronic's willing compliance if 
> > we
> > ever could? If this bill is the answer, how do we get our 
> > representatives
> > to
> > pass it? In terms of the general population, we are also a small part.
> > I am not trying to criticize you. Any information you may have for me to
> > educate myself about the Technology Bill of Rights or how it would 
> > pertain
> > to diabetes would be greatly appreciated.
> >
> > Chanelle
> > ----- Original Message ----- 
> > From: "Mike Freeman" <k7uij at panix.com>
> > To: <diabetes-talk at nfbnet.org>
> > Sent: Friday, April 09, 2010 9:32 PM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Chanelle:
> >>
> >> I am in contact with Access Solutions concerning this pump remote but
> >> didn't think this was ready for prime time yet. I have informed NFB
> >> President Dr. Marc Maurer of this possibility.
> >>
> >> I am virtually certain that I will get flamed for what I shall say next
> >> and I mean no disrespect to you in saying it. But in my opinion, we can
> >> write to Medtronics MiniMed till we're blue in the face and absolutely
> >> nothing will come of it. Why? Because there aren't enough of us to make
> >> it
> >> worthwhile for the company to make the investment to manufacture the 
> >> pump
> >> remote and secure FDA 510(k) cergification for it which would mean that
> >> the company would have to certify the remote's accuracy and would take 
> >> on
> >> the risk of liability for flaws.
> >>
> >> However, this is not the end of the road. I have spoken with John Pare,
> >> Director of NFB Strategic Initiatives and he believes that diabetes
> >> equipment including BG meters and insulin pumps would be covered (the
> >> Technology Bill of Rights for the Blind, HR-4533, introduced into
> >> Congress
> >> this year. So we need to work like mad to get our representatives to 
> >> sign
> >> on to this legislation as cosponsors.
> >>
> >> Mike Freeman, President
> >> Diabetes Action Network
> >> National Federation of the Blind
> >>
> >>
> >> ----- Original Message -----
> >> From: "Chanelle Hill" <chanellemh at gmail.com>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Date: Friday, Apr 9, 2010 12:27:55
> >> Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>>
> >>>
> >>> Dear list,
> >>> I don't know if this information has been posted yet, but it is super
> >>> excited. A talking remote is being made for the insulin pump. The 
> >>> remote
> >>> is being made by a company called Access Solutions www.axsol.com. I 
> >>> just
> >>> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >>> had diabetes for 40 years and was frustrated by the lack of a talking
> >>> insulin pump and the fact that there was no interest in producing one 
> >>> by
> >>> insulin pump companies. The website for the Pump Mate is
> >>> www.pump-mate.com
> >>> James is trying to get Medtronic Minimed's cooperation and support in
> >>> developing and producing the Pump Mate. It would be great if those who
> >>> are interested could contact Minimed to express interest in the pump
> >>> mate
> >>> and desire that Minimed would help to market and produce it.
> >>> With the Pump Mate, it is possible to program basal rates, use the 
> >>> Bolis
> >>> Wizzard, and hear test results from the meters that Minimed has
> >>> specifically designed to transfer data to and from the insulin pump.
> >>> This
> >>> has amazing potential since the Pump Mate could someday be used in
> >>> conjunction with the continuous glucose monitoring system.
> >>> I have pasted James's contact information below, and I am sending him 
> >>> a
> >>> carbon copy of this message in case he would like to join the list or
> >>> provide feedback.
> >>>
> >>> Access Solutions
> >>> james at axsol.com
> >>> sales: (916) 481-3559
> >>>
> >>> Chanelle
> >>> _______________________________________________
> >>> Diabetes-talk mailing list
> >>> Diabetes-talk at nfbnet.org
> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-talk:
> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40gmail.com
> >>
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 17
> > Date: Sat, 10 Apr 2010 10:07:11 -0400
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <BAY110-DS2082A6629AFE1FD6FD263BA1140 at phx.gbl>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > I totally agree with Diane:
> >
> > It is not the governments fault, the medical fields fault, etc.
> >
> > They are working hard at it, there are more things now then there was
> > almost
> > 50 years ago with Diabetes.  But a cure I don't think there will ever be 
> > a
> > cure.  There are preventative measures if you are an adult and a parent 
> > to
> > control what we eat and our kids eat, to prevent type 2, but type one is
> > another story, and it effects ever single muscle, nerve, all the systems
> > of
> > the body.
> >
> > I think that Debbie is just upset about diabetes.  I wasn't happy when 
> > it
> > took 80% of my vision in 2001 and my big toe and my kidneys, but I have
> > become a better more understanding person.  You can live with it, you 
> > just
> > have to take care of yourself and getting stressed over it will make it
> > worse.  We are here to support one another.
> >
> > Debbie, we will always disagree with something on this list or agree and
> > we
> > mostly agree then disagree.  To help those and educate those about
> > blindness
> > and diabetes.
> >
> > Diabetes in some form will always be hear, gestational which is during
> > pregnancy, adult onset and you got to remember we are not machines, and
> > that
> > parts break down when we abuse them.  We also cannot control our 
> > history.
> > We grandfather had it, his father had it.  I have it my daughter had it,
> > and
> > it is a characteristic in my family like blindness is a part of me now.
> >
> > God bless you Debbie, if you are stressed it raises your blood sugar and
> > your blood pressure.
> >
> > Peace.
> >
> > Cheryl Echevarria
> > Independent Travel Consultant
> > C10-10646
> >
> > http://Echevarriatravel.com
> > 1-866-580-5574
> >
> > http://blog.echevarriatravel.com
> > Reservations at echevarriatravel.com
> > Affiliated as an Independent Contractor with Montrose Travel
> > CST-1018299-10
> >
> >
> > ----- Original Message ----- 
> > From: "Diane" <dianefilipe at peoplepc.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 9:53 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Well Miss Deb,
> >> I'm here to tell you,
> >> you are 1,000,000% wrong.
> >> do you think we enjoy having to have these conversations?
> >> I would much happier if I could share my favorite peanut butter pie
> >> recipe.
> >> Di
> >> ----- Original Message ----- 
> >> From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 5:46 PM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >> > from the sounds of things on this list. a cure for diabetes is not 
> >> > even
> >> > a
> >> > desire here.
> >> > i don't want anything but a cure and the medical field can shove 
> >> > there
> >> > bull.
> >> > Debbie
> >> >
> >> >
> >> >
> >> >
> >> > ________________________________
> >> > From: Chanelle Hill <chanellemh at gmail.com>
> >> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> > Sent: Fri, April 9, 2010 1:43:38 PM
> >> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >
> >> > Dear list,
> >> > I don't know if this information has been posted yet, but it is super
> >> > excited. A talking remote is being made for the insulin pump. The
> >> > remote
> >> > is being made by a company called Access Solutions www.axsol.com. I
> >> > just
> >> > spoke with James Kubel, the engineer who created the Pump Mate. He 
> >> > has
> >> > had
> >> > diabetes for 40 years and was frustrated by the lack of a talking
> >> > insulin
> >> > pump and the fact that there was no interest in producing one by
> >> > insulin
> >> > pump companies. The website for the Pump Mate is www.pump-mate.com
> >> > James is trying to get Medtronic Minimed's cooperation and support in
> >> > developing and producing the Pump Mate. It would be great if those 
> >> > who
> >> > are
> >> > interested could contact Minimed to express interest in the pump mate
> >> > and
> >> > desire that Minimed would help to market and produce it.
> >> > With the Pump Mate, it is possible to program basal rates, use the
> >> > Bolis
> >> > Wizzard, and hear test results from the meters that Minimed has
> >> > specifically designed to transfer data to and from the insulin pump.
> >> > This
> >> > has amazing potential since the Pump Mate could someday be used in
> >> > conjunction with the continuous glucose monitoring system.
> >> > I have pasted James's contact information below, and I am sending him 
> >> > a
> >> > carbon copy of this message in case he would like to join the list or
> >> > provide feedback.
> >> >
> >> > Access Solutions
> >> > james at axsol.com
> >> > sales: (916) 481-3559
> >> >
> >> > Chanelle
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dianefilipe%40peoplepc.com
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>
> >
> >
> >
> > ------------------------------
> >
> > Message: 18
> > Date: Sat, 10 Apr 2010 10:09:34 -0400
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <BAY110-DS55712C4A32E30CD9F9443A1140 at phx.gbl>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > Chanelle:
> >
> > We need to know everything out there on anything from accessible meters
> > and
> > pumps, to new meds and other things.
> >
> > I had wanted to post things from the ADA itself on here when there is a
> > call
> > to congress and dlife  but I was told not to.  Maybe next time I will 
> > not
> > listen and just post it.
> >
> > Cheryl Echevarria
> > Independent Travel Consultant
> > C10-10646
> >
> > http://Echevarriatravel.com
> > 1-866-580-5574
> >
> > http://blog.echevarriatravel.com
> > Reservations at echevarriatravel.com
> > Affiliated as an Independent Contractor with Montrose Travel
> > CST-1018299-10
> >
> >
> > ----- Original Message ----- 
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 9:59 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Dear Mike,
> >> Don't worry; I am not going to flame you. I don't know if the pump-mate
> >> is
> >> ready for prime time as you say. I just happened to stumble upon the
> >> website
> >> yesterday, got really excited, contacted the developers, and posted to
> >> the
> >> list. Maybe I am jumping ahead of things, but the developers encouraged
> >> me
> >> to contact Minimed and to inform others.
> >> You may be right that we are small in number and may not be heeded by
> >> Minimed; however, it only takes a few minutes to write Medtronic or 
> >> call.
> >> If
> >> we let friends, family, and healthcare workers know, they may even be
> >> willing to contact Medtronic on our behalf if they have had knowledge 
> >> of
> >> what it is like for someone who is blind to use an insulin pump.
> >> I am ignorant concerning the technology bill of rights. How exactly 
> >> will
> >> this help to make insulin pumps accessible? Would Medtronic and other
> >> companies be ordered to make their products accessible once the bill is
> >> passed? Would it not be better to get Medtronic's willing compliance if
> >> we
> >> ever could? If this bill is the answer, how do we get our 
> >> representatives
> >> to
> >> pass it? In terms of the general population, we are also a small part.
> >> I am not trying to criticize you. Any information you may have for me 
> >> to
> >> educate myself about the Technology Bill of Rights or how it would
> >> pertain
> >> to diabetes would be greatly appreciated.
> >>
> >> Chanelle
> >> ----- Original Message ----- 
> >> From: "Mike Freeman" <k7uij at panix.com>
> >> To: <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 9:32 PM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >> > Chanelle:
> >> >
> >> > I am in contact with Access Solutions concerning this pump remote but
> >> > didn't think this was ready for prime time yet. I have informed NFB
> >> > President Dr. Marc Maurer of this possibility.
> >> >
> >> > I am virtually certain that I will get flamed for what I shall say 
> >> > next
> >> > and I mean no disrespect to you in saying it. But in my opinion, we 
> >> > can
> >> > write to Medtronics MiniMed till we're blue in the face and 
> >> > absolutely
> >> > nothing will come of it. Why? Because there aren't enough of us to 
> >> > make
> >> > it
> >> > worthwhile for the company to make the investment to manufacture the
> >> > pump
> >> > remote and secure FDA 510(k) cergification for it which would mean 
> >> > that
> >> > the company would have to certify the remote's accuracy and would 
> >> > take
> >> > on
> >> > the risk of liability for flaws.
> >> >
> >> > However, this is not the end of the road. I have spoken with John 
> >> > Pare,
> >> > Director of NFB Strategic Initiatives and he believes that diabetes
> >> > equipment including BG meters and insulin pumps would be covered (the
> >> > Technology Bill of Rights for the Blind, HR-4533, introduced into
> >> > Congress
> >> > this year. So we need to work like mad to get our representatives to
> >> > sign
> >> > on to this legislation as cosponsors.
> >> >
> >> > Mike Freeman, President
> >> > Diabetes Action Network
> >> > National Federation of the Blind
> >> >
> >> >
> >> > ----- Original Message -----
> >> > From: "Chanelle Hill" <chanellemh at gmail.com>
> >> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> > Date: Friday, Apr 9, 2010 12:27:55
> >> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >
> >> >>
> >> >>
> >> >> Dear list,
> >> >> I don't know if this information has been posted yet, but it is 
> >> >> super
> >> >> excited. A talking remote is being made for the insulin pump. The
> >> >> remote
> >> >> is being made by a company called Access Solutions www.axsol.com. I
> >> >> just
> >> >> spoke with James Kubel, the engineer who created the Pump Mate. He 
> >> >> has
> >> >> had diabetes for 40 years and was frustrated by the lack of a 
> >> >> talking
> >> >> insulin pump and the fact that there was no interest in producing 
> >> >> one
> >> >> by
> >> >> insulin pump companies. The website for the Pump Mate is
> >> >> www.pump-mate.com
> >> >> James is trying to get Medtronic Minimed's cooperation and support 
> >> >> in
> >> >> developing and producing the Pump Mate. It would be great if those 
> >> >> who
> >> >> are interested could contact Minimed to express interest in the pump
> >> >> mate
> >> >> and desire that Minimed would help to market and produce it.
> >> >> With the Pump Mate, it is possible to program basal rates, use the
> >> >> Bolis
> >> >> Wizzard, and hear test results from the meters that Minimed has
> >> >> specifically designed to transfer data to and from the insulin pump.
> >> >> This
> >> >> has amazing potential since the Pump Mate could someday be used in
> >> >> conjunction with the continuous glucose monitoring system.
> >> >> I have pasted James's contact information below, and I am sending 
> >> >> him
> >> >> a
> >> >> carbon copy of this message in case he would like to join the list 
> >> >> or
> >> >> provide feedback.
> >> >>
> >> >> Access Solutions
> >> >> james at axsol.com
> >> >> sales: (916) 481-3559
> >> >>
> >> >> Chanelle
> >> >> _______________________________________________
> >> >> Diabetes-talk mailing list
> >> >> Diabetes-talk at nfbnet.org
> >> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> >> To unsubscribe, change your list options or get your account info 
> >> >> for
> >> >> Diabetes-talk:
> >> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >> >
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40gmail.com
> >> >
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>
> >
> >
> >
> > ------------------------------
> >
> > Message: 19
> > Date: Sat, 10 Apr 2010 09:12:12 -0500
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <42592A1865A24F3E9AFF416B88C0621F at DBTOA000>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=response
> >
> > Dear Cheryl,
> > I am sorry if I have offended anyone on this list. That was certainly 
> > not
> > my
> > intent. Nor was it my intent to put down medical companies or the
> > government.
> >
> > Chanelle
> > ----- Original Message ----- 
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 9:09 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Chanelle:
> >>
> >> We need to know everything out there on anything from accessible meters
> >> and pumps, to new meds and other things.
> >>
> >> I had wanted to post things from the ADA itself on here when there is a
> >> call to congress and dlife  but I was told not to.  Maybe next time I
> >> will
> >> not listen and just post it.
> >>
> >> Cheryl Echevarria
> >> Independent Travel Consultant
> >> C10-10646
> >>
> >> http://Echevarriatravel.com
> >> 1-866-580-5574
> >>
> >> http://blog.echevarriatravel.com
> >> Reservations at echevarriatravel.com
> >> Affiliated as an Independent Contractor with Montrose Travel
> >> CST-1018299-10
> >>
> >>
> >> ----- Original Message ----- 
> >> From: "Chanelle Hill" <chanellemh at gmail.com>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Saturday, April 10, 2010 9:59 AM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >>> Dear Mike,
> >>> Don't worry; I am not going to flame you. I don't know if the 
> >>> pump-mate
> >>> is
> >>> ready for prime time as you say. I just happened to stumble upon the
> >>> website
> >>> yesterday, got really excited, contacted the developers, and posted to
> >>> the
> >>> list. Maybe I am jumping ahead of things, but the developers 
> >>> encouraged
> >>> me
> >>> to contact Minimed and to inform others.
> >>> You may be right that we are small in number and may not be heeded by
> >>> Minimed; however, it only takes a few minutes to write Medtronic or
> >>> call.
> >>> If
> >>> we let friends, family, and healthcare workers know, they may even be
> >>> willing to contact Medtronic on our behalf if they have had knowledge 
> >>> of
> >>> what it is like for someone who is blind to use an insulin pump.
> >>> I am ignorant concerning the technology bill of rights. How exactly 
> >>> will
> >>> this help to make insulin pumps accessible? Would Medtronic and other
> >>> companies be ordered to make their products accessible once the bill 
> >>> is
> >>> passed? Would it not be better to get Medtronic's willing compliance 
> >>> if
> >>> we
> >>> ever could? If this bill is the answer, how do we get our
> >>> representatives
> >>> to
> >>> pass it? In terms of the general population, we are also a small part.
> >>> I am not trying to criticize you. Any information you may have for me 
> >>> to
> >>> educate myself about the Technology Bill of Rights or how it would
> >>> pertain
> >>> to diabetes would be greatly appreciated.
> >>>
> >>> Chanelle
> >>> ----- Original Message ----- 
> >>> From: "Mike Freeman" <k7uij at panix.com>
> >>> To: <diabetes-talk at nfbnet.org>
> >>> Sent: Friday, April 09, 2010 9:32 PM
> >>> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>>
> >>>
> >>> > Chanelle:
> >>> >
> >>> > I am in contact with Access Solutions concerning this pump remote 
> >>> > but
> >>> > didn't think this was ready for prime time yet. I have informed NFB
> >>> > President Dr. Marc Maurer of this possibility.
> >>> >
> >>> > I am virtually certain that I will get flamed for what I shall say
> >>> > next
> >>> > and I mean no disrespect to you in saying it. But in my opinion, we
> >>> > can
> >>> > write to Medtronics MiniMed till we're blue in the face and 
> >>> > absolutely
> >>> > nothing will come of it. Why? Because there aren't enough of us to
> >>> > make
> >>> > it
> >>> > worthwhile for the company to make the investment to manufacture the
> >>> > pump
> >>> > remote and secure FDA 510(k) cergification for it which would mean
> >>> > that
> >>> > the company would have to certify the remote's accuracy and would 
> >>> > take
> >>> > on
> >>> > the risk of liability for flaws.
> >>> >
> >>> > However, this is not the end of the road. I have spoken with John
> >>> > Pare,
> >>> > Director of NFB Strategic Initiatives and he believes that diabetes
> >>> > equipment including BG meters and insulin pumps would be covered 
> >>> > (the
> >>> > Technology Bill of Rights for the Blind, HR-4533, introduced into
> >>> > Congress
> >>> > this year. So we need to work like mad to get our representatives to
> >>> > sign
> >>> > on to this legislation as cosponsors.
> >>> >
> >>> > Mike Freeman, President
> >>> > Diabetes Action Network
> >>> > National Federation of the Blind
> >>> >
> >>> >
> >>> > ----- Original Message -----
> >>> > From: "Chanelle Hill" <chanellemh at gmail.com>
> >>> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >>> > Date: Friday, Apr 9, 2010 12:27:55
> >>> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>> >
> >>> >>
> >>> >>
> >>> >> Dear list,
> >>> >> I don't know if this information has been posted yet, but it is 
> >>> >> super
> >>> >> excited. A talking remote is being made for the insulin pump. The
> >>> >> remote
> >>> >> is being made by a company called Access Solutions www.axsol.com. I
> >>> >> just
> >>> >> spoke with James Kubel, the engineer who created the Pump Mate. He
> >>> >> has
> >>> >> had diabetes for 40 years and was frustrated by the lack of a 
> >>> >> talking
> >>> >> insulin pump and the fact that there was no interest in producing 
> >>> >> one
> >>> >> by
> >>> >> insulin pump companies. The website for the Pump Mate is
> >>> >> www.pump-mate.com
> >>> >> James is trying to get Medtronic Minimed's cooperation and support 
> >>> >> in
> >>> >> developing and producing the Pump Mate. It would be great if those
> >>> >> who
> >>> >> are interested could contact Minimed to express interest in the 
> >>> >> pump
> >>> >> mate
> >>> >> and desire that Minimed would help to market and produce it.
> >>> >> With the Pump Mate, it is possible to program basal rates, use the
> >>> >> Bolis
> >>> >> Wizzard, and hear test results from the meters that Minimed has
> >>> >> specifically designed to transfer data to and from the insulin 
> >>> >> pump.
> >>> >> This
> >>> >> has amazing potential since the Pump Mate could someday be used in
> >>> >> conjunction with the continuous glucose monitoring system.
> >>> >> I have pasted James's contact information below, and I am sending 
> >>> >> him
> >>> >> a
> >>> >> carbon copy of this message in case he would like to join the list 
> >>> >> or
> >>> >> provide feedback.
> >>> >>
> >>> >> Access Solutions
> >>> >> james at axsol.com
> >>> >> sales: (916) 481-3559
> >>> >>
> >>> >> Chanelle
> >>> >> _______________________________________________
> >>> >> Diabetes-talk mailing list
> >>> >> Diabetes-talk at nfbnet.org
> >>> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> >> To unsubscribe, change your list options or get your account info 
> >>> >> for
> >>> >> Diabetes-talk:
> >>> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >>> >
> >>> > _______________________________________________
> >>> > Diabetes-talk mailing list
> >>> > Diabetes-talk at nfbnet.org
> >>> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> > To unsubscribe, change your list options or get your account info 
> >>> > for
> >>> > Diabetes-talk:
> >>> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40gmail.com
> >>> >
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-talk mailing list
> >>> Diabetes-talk at nfbnet.org
> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-talk:
> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40gmail.com
> >>
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 20
> > Date: Sat, 10 Apr 2010 10:22:02 -0400
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <BAY110-DS205241DFD6B10046E20D72A1140 at phx.gbl>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > I was agreeing with you not jumping on you.
> >
> > I said we need to know everything out there.
> >
> > I am sorry if it came across wrong please read again.
> >
> > No worries.
> >
> > Cheryl Echevarria
> > Independent Travel Consultant
> > C10-10646
> >
> > http://Echevarriatravel.com
> > 1-866-580-5574
> >
> > http://blog.echevarriatravel.com
> > Reservations at echevarriatravel.com
> > Affiliated as an Independent Contractor with Montrose Travel
> > CST-1018299-10
> >
> >
> > ----- Original Message ----- 
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 10:12 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Dear Cheryl,
> >> I am sorry if I have offended anyone on this list. That was certainly 
> >> not
> >> my
> >> intent. Nor was it my intent to put down medical companies or the
> >> government.
> >>
> >> Chanelle
> >> ----- Original Message ----- 
> >> From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Saturday, April 10, 2010 9:09 AM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >> > Chanelle:
> >> >
> >> > We need to know everything out there on anything from accessible 
> >> > meters
> >> > and pumps, to new meds and other things.
> >> >
> >> > I had wanted to post things from the ADA itself on here when there is 
> >> > a
> >> > call to congress and dlife  but I was told not to.  Maybe next time I
> >> > will
> >> > not listen and just post it.
> >> >
> >> > Cheryl Echevarria
> >> > Independent Travel Consultant
> >> > C10-10646
> >> >
> >> > http://Echevarriatravel.com
> >> > 1-866-580-5574
> >> >
> >> > http://blog.echevarriatravel.com
> >> > Reservations at echevarriatravel.com
> >> > Affiliated as an Independent Contractor with Montrose Travel
> >> > CST-1018299-10
> >> >
> >> >
> >> > ----- Original Message ----- 
> >> > From: "Chanelle Hill" <chanellemh at gmail.com>
> >> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> > Sent: Saturday, April 10, 2010 9:59 AM
> >> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >
> >> >
> >> >> Dear Mike,
> >> >> Don't worry; I am not going to flame you. I don't know if the
> >> >> pump-mate
> >> >> is
> >> >> ready for prime time as you say. I just happened to stumble upon the
> >> >> website
> >> >> yesterday, got really excited, contacted the developers, and posted 
> >> >> to
> >> >> the
> >> >> list. Maybe I am jumping ahead of things, but the developers
> >> >> encouraged
> >> >> me
> >> >> to contact Minimed and to inform others.
> >> >> You may be right that we are small in number and may not be heeded 
> >> >> by
> >> >> Minimed; however, it only takes a few minutes to write Medtronic or
> >> >> call.
> >> >> If
> >> >> we let friends, family, and healthcare workers know, they may even 
> >> >> be
> >> >> willing to contact Medtronic on our behalf if they have had 
> >> >> knowledge
> >> >> of
> >> >> what it is like for someone who is blind to use an insulin pump.
> >> >> I am ignorant concerning the technology bill of rights. How exactly
> >> >> will
> >> >> this help to make insulin pumps accessible? Would Medtronic and 
> >> >> other
> >> >> companies be ordered to make their products accessible once the bill
> >> >> is
> >> >> passed? Would it not be better to get Medtronic's willing compliance
> >> >> if
> >> >> we
> >> >> ever could? If this bill is the answer, how do we get our
> >> >> representatives
> >> >> to
> >> >> pass it? In terms of the general population, we are also a small 
> >> >> part.
> >> >> I am not trying to criticize you. Any information you may have for 
> >> >> me
> >> >> to
> >> >> educate myself about the Technology Bill of Rights or how it would
> >> >> pertain
> >> >> to diabetes would be greatly appreciated.
> >> >>
> >> >> Chanelle
> >> >> ----- Original Message ----- 
> >> >> From: "Mike Freeman" <k7uij at panix.com>
> >> >> To: <diabetes-talk at nfbnet.org>
> >> >> Sent: Friday, April 09, 2010 9:32 PM
> >> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >>
> >> >>
> >> >> > Chanelle:
> >> >> >
> >> >> > I am in contact with Access Solutions concerning this pump remote
> >> >> > but
> >> >> > didn't think this was ready for prime time yet. I have informed 
> >> >> > NFB
> >> >> > President Dr. Marc Maurer of this possibility.
> >> >> >
> >> >> > I am virtually certain that I will get flamed for what I shall say
> >> >> > next
> >> >> > and I mean no disrespect to you in saying it. But in my opinion, 
> >> >> > we
> >> >> > can
> >> >> > write to Medtronics MiniMed till we're blue in the face and
> >> >> > absolutely
> >> >> > nothing will come of it. Why? Because there aren't enough of us to
> >> >> > make
> >> >> > it
> >> >> > worthwhile for the company to make the investment to manufacture 
> >> >> > the
> >> >> > pump
> >> >> > remote and secure FDA 510(k) cergification for it which would mean
> >> >> > that
> >> >> > the company would have to certify the remote's accuracy and would
> >> >> > take
> >> >> > on
> >> >> > the risk of liability for flaws.
> >> >> >
> >> >> > However, this is not the end of the road. I have spoken with John
> >> >> > Pare,
> >> >> > Director of NFB Strategic Initiatives and he believes that 
> >> >> > diabetes
> >> >> > equipment including BG meters and insulin pumps would be covered
> >> >> > (the
> >> >> > Technology Bill of Rights for the Blind, HR-4533, introduced into
> >> >> > Congress
> >> >> > this year. So we need to work like mad to get our representatives 
> >> >> > to
> >> >> > sign
> >> >> > on to this legislation as cosponsors.
> >> >> >
> >> >> > Mike Freeman, President
> >> >> > Diabetes Action Network
> >> >> > National Federation of the Blind
> >> >> >
> >> >> >
> >> >> > ----- Original Message -----
> >> >> > From: "Chanelle Hill" <chanellemh at gmail.com>
> >> >> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> >> > Date: Friday, Apr 9, 2010 12:27:55
> >> >> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >> >
> >> >> >>
> >> >> >>
> >> >> >> Dear list,
> >> >> >> I don't know if this information has been posted yet, but it is
> >> >> >> super
> >> >> >> excited. A talking remote is being made for the insulin pump. The
> >> >> >> remote
> >> >> >> is being made by a company called Access Solutions www.axsol.com. 
> >> >> >> I
> >> >> >> just
> >> >> >> spoke with James Kubel, the engineer who created the Pump Mate. 
> >> >> >> He
> >> >> >> has
> >> >> >> had diabetes for 40 years and was frustrated by the lack of a
> >> >> >> talking
> >> >> >> insulin pump and the fact that there was no interest in producing
> >> >> >> one
> >> >> >> by
> >> >> >> insulin pump companies. The website for the Pump Mate is
> >> >> >> www.pump-mate.com
> >> >> >> James is trying to get Medtronic Minimed's cooperation and 
> >> >> >> support
> >> >> >> in
> >> >> >> developing and producing the Pump Mate. It would be great if 
> >> >> >> those
> >> >> >> who
> >> >> >> are interested could contact Minimed to express interest in the
> >> >> >> pump
> >> >> >> mate
> >> >> >> and desire that Minimed would help to market and produce it.
> >> >> >> With the Pump Mate, it is possible to program basal rates, use 
> >> >> >> the
> >> >> >> Bolis
> >> >> >> Wizzard, and hear test results from the meters that Minimed has
> >> >> >> specifically designed to transfer data to and from the insulin
> >> >> >> pump.
> >> >> >> This
> >> >> >> has amazing potential since the Pump Mate could someday be used 
> >> >> >> in
> >> >> >> conjunction with the continuous glucose monitoring system.
> >> >> >> I have pasted James's contact information below, and I am sending
> >> >> >> him
> >> >> >> a
> >> >> >> carbon copy of this message in case he would like to join the 
> >> >> >> list
> >> >> >> or
> >> >> >> provide feedback.
> >> >> >>
> >> >> >> Access Solutions
> >> >> >> james at axsol.com
> >> >> >> sales: (916) 481-3559
> >> >> >>
> >> >> >> Chanelle
> >> >> >> _______________________________________________
> >> >> >> Diabetes-talk mailing list
> >> >> >> Diabetes-talk at nfbnet.org
> >> >> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> >> >> To unsubscribe, change your list options or get your account info
> >> >> >> for
> >> >> >> Diabetes-talk:
> >> >> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >> >> >
> >> >> > _______________________________________________
> >> >> > Diabetes-talk mailing list
> >> >> > Diabetes-talk at nfbnet.org
> >> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> >> > To unsubscribe, change your list options or get your account info
> >> >> > for
> >> >> > Diabetes-talk:
> >> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40gmail.com
> >> >> >
> >> >>
> >> >>
> >> >> _______________________________________________
> >> >> Diabetes-talk mailing list
> >> >> Diabetes-talk at nfbnet.org
> >> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> >> To unsubscribe, change your list options or get your account info 
> >> >> for
> >> >> Diabetes-talk:
> >> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >> >>
> >> >
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40gmail.com
> >> >
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>
> >
> >
> >
> > ------------------------------
> >
> > Message: 21
> > Date: Sat, 10 Apr 2010 10:50:35 -0400
> > From: "eileen scrivani" <etscrivani at verizon.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <263B84512C2C401AB18942F6161CF001 at EileenPC>
> > Content-Type: text/plain; format=flowed; charset=iso-8859-1;
> > reply-type=original
> >
> > Hi Chanelle:
> >
> > Thanks for sharing this.  Always good to hear about new developments 
> > that
> > can help us as blind diabetics.  My only concern with this type of 
> > device
> > is
> > that it's not being made by the pump manufacturers.  I'm wondering if 
> > down
> > the road changes get made to a pump of any brand will a device like the
> > Pumpmate continue to work correctly with updated/altered pumps.  A few
> > years
> > ago, we had one of those talking remotes to help operate the VCR more
> > easily, once we upgraded to a VCR/DVD player the accessible remote no
> > longer
> > continued to work.  So, I'm thinking its the same type of set up ... 
> > there
> > could be negative results down the road if this is the only 
> > accessibility
> > option for us.  .  I'm not a pump user but do have interest in them.  It
> > has
> > been the lack of accessibility that has prevented me into investigating
> > further into them.
> >
> > Don't get me wrong, this is a good thing, one of those better than 
> > nothing
> > being done things, so in that respect I'm happy to hear about it.  On 
> > the
> > other hand it would be so much better if pump manufacturers would get on
> > the
> > ball with this stuff.
> >
> > Thanks again for the information.  Please keep us posted if you get any
> > other pieces of good information like this one.
> >
> > Eileen
> >
> > ----- Original Message ----- 
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Friday, April 09, 2010 2:43 PM
> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Dear list,
> >> I don't know if this information has been posted yet, but it is super
> >> excited. A talking remote is being made for the insulin pump. The 
> >> remote
> >> is being made by a company called Access Solutions www.axsol.com. I 
> >> just
> >> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >> had
> >> diabetes for 40 years and was frustrated by the lack of a talking 
> >> insulin
> >> pump and the fact that there was no interest in producing one by 
> >> insulin
> >> pump companies. The website for the Pump Mate is www.pump-mate.com
> >> James is trying to get Medtronic Minimed's cooperation and support in
> >> developing and producing the Pump Mate. It would be great if those who
> >> are
> >> interested could contact Minimed to express interest in the pump mate 
> >> and
> >> desire that Minimed would help to market and produce it.
> >> With the Pump Mate, it is possible to program basal rates, use the 
> >> Bolis
> >> Wizzard, and hear test results from the meters that Minimed has
> >> specifically designed to transfer data to and from the insulin pump. 
> >> This
> >> has amazing potential since the Pump Mate could someday be used in
> >> conjunction with the continuous glucose monitoring system.
> >> I have pasted James's contact information below, and I am sending him a
> >> carbon copy of this message in case he would like to join the list or
> >> provide feedback.
> >>
> >> Access Solutions
> >> james at axsol.com
> >> sales: (916) 481-3559
> >>
> >> Chanelle
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> >>
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 22
> > Date: Sat, 10 Apr 2010 10:59:27 -0400
> > From: "eileen scrivani" <etscrivani at verizon.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <AFE02DFA8B7244FFBB67D0E60495852C at EileenPC>
> > Content-Type: text/plain; format=flowed; charset=iso-8859-1;
> > reply-type=original
> >
> > Debbie:
> >
> > I'll be the first to say diabetes "SUCKS!" But, we're stuck with it and
> > have
> > to do our best to live with it and manage it.  I'd love a cure to come
> > along
> > and rid me of the disease that took my eyesight and was the cause of a
> > brothers death.  I think most all of us on the list would like a cure, 
> > but
> > its just not in the cards right now so we all have to deal with the
> > disease
> > and its complications and frustrations.
> >
> > I don't believe there will be a cure, there's too much money in the
> > business
> > of treating diabetes rather than curing it. I know it can be very
> > stressful,
> > try to hang tough and not give up on living a life to the best and 
> > fullest
> > you can even with all the crappy parts of diabetes.
> >
> > Lacking a cure, we still need ways as blind/visually impaired diabetics 
> > to
> > help us manage our control.
> >
> > Eileen
> > ----- Original Message ----- 
> > From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Friday, April 09, 2010 7:46 PM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> from the sounds of things on this list. a cure for diabetes is not even 
> >> a
> >> desire here.
> >> i don't want anything but a cure and the medical field can shove there
> >> bull.
> >> Debbie
> >>
> >>
> >>
> >>
> >> ________________________________
> >> From: Chanelle Hill <chanellemh at gmail.com>
> >> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> Sent: Fri, April 9, 2010 1:43:38 PM
> >> Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >> Dear list,
> >> I don't know if this information has been posted yet, but it is super
> >> excited. A talking remote is being made for the insulin pump. The 
> >> remote
> >> is being made by a company called Access Solutions www.axsol.com. I 
> >> just
> >> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >> had
> >> diabetes for 40 years and was frustrated by the lack of a talking 
> >> insulin
> >> pump and the fact that there was no interest in producing one by 
> >> insulin
> >> pump companies. The website for the Pump Mate is www.pump-mate.com
> >> James is trying to get Medtronic Minimed's cooperation and support in
> >> developing and producing the Pump Mate. It would be great if those who
> >> are
> >> interested could contact Minimed to express interest in the pump mate 
> >> and
> >> desire that Minimed would help to market and produce it.
> >> With the Pump Mate, it is possible to program basal rates, use the 
> >> Bolis
> >> Wizzard, and hear test results from the meters that Minimed has
> >> specifically designed to transfer data to and from the insulin pump. 
> >> This
> >> has amazing potential since the Pump Mate could someday be used in
> >> conjunction with the continuous glucose monitoring system.
> >> I have pasted James's contact information below, and I am sending him a
> >> carbon copy of this message in case he would like to join the list or
> >> provide feedback.
> >>
> >> Access Solutions
> >> james at axsol.com
> >> sales: (916) 481-3559
> >>
> >> Chanelle
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> >>
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 23
> > Date: Sat, 10 Apr 2010 08:13:58 -0700
> > From: "Mike Freeman" <k7uij at panix.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <05764602422B44E9A2AD47B2F812B675 at owner1e06aeb63>
> > Content-Type: text/plain; charset="iso-8859-1"; Format="flowed"
> >
> > Chanelle:
> >
> > You ask reasoned questions and they deserve reasoned answers.
> >
> > First, Access Solutions is rightly desperate to get Medtronics to even
> > give
> > them the time of day, let alone make a commitment to assist in
> > development/manufacturing costs and assuming the burden of legal
> > liability.
> > In fact, in a very minimal sense, as you say, the device is already 
> > being
> > successfully used by one blind diabetic although, in fairness, we only
> > have
> > his word for it, not that of his endo or CDE. And please don't construe
> > this
> > last proviso as saying he's a liar. I'm just stating facts with no
> > judgment
> > involved.
> >
> > Be that as it may, Access Solutions' problem is the same one as the late
> > David Anspach encountered and, in truth, anyone encounters when dealing
> > with
> > these large medical corporations: trying to figure out whom to contact
> > that
> > cares *and* has sufficient influence to translate goodwill into action.
> > This
> > is the same problem we, the blindness organizations (and I mean both ACB
> > and
> > NFB here) face: getting to the real string-pullers at Medtronics and
> > giving
> > them sufficiently valid reasons (in terms of their stockholders) to 
> > assist
> > Access Solutions.
> >
> > If I may be a bit cynical for a moment, it would help if Medtronics' CEO
> > had
> > a blind parent or child. That usually gets action (think the Optacon and
> > its
> > inventor, Dr. Linville, who had a blind daughter Candy). Since we don't
> > know
> > this and it would be crass in the extreme to make such an inquiry, we 
> > must
> > think of other methods.
> >
> > David Anspach dealt with his local sales reps who, he says, were very
> > enthusiastic about the possibility of building accessibility features 
> > into
> > Medtronics' pumps (and he wasn't necessarily even speaking of making 
> > them
> > talk although he did mention the subject). But that's as far as it went.
> > He
> > (Mr. Anspach) never heard from anyone higher-up in the company nor did 
> > the
> > sales reps.
> >
> > What tends to happen (and this happens with insulin pen manufacturers 
> > whom
> > I've contacted about getting those infernal warnings about using pens by
> > the
> > visually impaired without sighted supervision) is that we, both blind
> > individuals and organizations of the blind, get shunted off to the
> > companies' PR departments and it's like punching a feather pillow --  
> > lots
> > of
> > agreement and promises to listen and then nothing happens.
> >
> > I'm attaching a text version of the Technology Bill of Rights for the
> > Blind,
> > H.R. 4533. AS you will see from the bill, one of the classes of covered
> > devices (along with kiosks at airports, point-of-sale machines, home
> > electronics and consumer appliances such as dishwashers, stoves and the
> > like) are "consumer devices". A commission is set up by the bill that
> > would
> > promulgate standards of accessibility for these devices and these would
> > have
> > to be implemented by all consumer device manufacturers by a mandated
> > deadline. WE of NFB would argue strenuously before the standards
> > commission
> > that *all* diabetic devices intended for consumers would have to be made
> > accessible ipso facto, right out of the box.
> >
> > You ask if it would not be better to get Medtronics willing support. You
> > bet
> > your sweet life it would! But corporation law in this country (or
> > everywhere
> > else, to my knowledge) doesn't mandate that corporations hue to 
> > standards
> > of
> > morality other than prohibiting things like peculation and fraud. So
> > unless
> > someone at a corporation has a compelling moral reason to produce 
> > devices
> > "because it's right", litigation is about the only way to get things 
> > done.
> >
> > Before members of ACB remind me that Major League Baseball and some 
> > retail
> > establishments have engaged in what is called "structured negotiation"
> > with
> > ACB to implement accessibility in their point-of-sale machines or web
> > sites,
> > I happily acknowledge this and commend ACB for its action. However, I
> > maintain that without the "big stick" in the background, these
> > corporations
> > wouldn't have been nearly as anxious to work toward accessibility. Same
> > goes
> > for Apple with VoiceOver and its accessible iPhone.
> >
> > This takes nothing away from Apple or MLB or Safeway or any of the other
> > firms that are working with Lainey Feingold et al. It's just my educated
> > hunch. And it's what a Sony rep once told one of our (NFB's)
> > representatives
> > on a trip to the far East; he (the Sony rep) claimed his company 
> > wouldn't
> > do
> > anything unless it were sued.
> >
> > But litigation isn't the only way. If we were to cause HR-4533 to get
> > enough
> > votes to become law, we would have the law behind us in pointing out the
> > facts of life to recalcitrant medical firms. One starts the process of a
> > bill becoming law by calling up one's representative (this is to the
> > Federal
> > Congress) and urging him/her to cosponsor HR-4533 and getting one's
> > friends,
> > colleagues, social acquaintances etc. etc. also to call. And you'd be
> > surprised how well this often actually works. Both ACB and NFB use this
> > strategy. Yu can find yur representative by going to 
> > http://www.house.gov
> > and using the combo boxs to select your state and district.
> >
> > With enough cosponsors (I forget the exact number), the bills's sponsor
> > has
> > enough leverage to get a committee hearing on the bill and it would be
> > easy
> > to get enough blind folks (diabetic or not) to testify to occupy 
> > Congress
> > for a year!
> >
> > It's worth a try. And lest you think that I'm just trying to push a NFB
> > agenda, please remember that this was/is the ACB strategy to get its
> > "Video
> > Description Restoration Act" or whatever it's called now passed.
> >
> > WE, the blind, are a small minority within society and blind persons who
> > have diabetes are an even smaller number (and yes, I know, diabetes is 
> > the
> > leading cause of blindness/visual impairment but those folks have to
> > *admit*
> > they're blind or visually impaired before they care much about
> > accessibility). So although petitions (both on-line and off-line) are 
> > all
> > the rage these days, they, like economic boycotts, only work if there 
> > are
> > a
> > sufficient number of people in the pressure group to make folks sit up 
> > and
> > take notice.
> >
> > As a practical example, remember the bus boycott in Montgomery, 
> > Alabama --
> > the one where Rosa Parks wouldn't sit at the back of the bus? The
> > African-americans won that one because most of the bus riders were 
> > black.
> > Had blind bus-riders boycotted, I suspect there would have been merely a
> > big
> > yawn.
> >
> > But we do have power if we exercise it intelligently.
> >
> > I know this is long but perhaps list participants may thereby get a bit
> > better idea of what my experience tells me works.
> >
> > Mike Freeman
> >
> > ----- Original Message ----- 
> > From: "Chanelle Hill" <chanellemh at gmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 6:59 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Dear Mike,
> >> Don't worry; I am not going to flame you. I don't know if the pump-mate
> >> is
> >> ready for prime time as you say. I just happened to stumble upon the
> >> website yesterday, got really excited, contacted the developers, and
> >> posted to the list. Maybe I am jumping ahead of things, but the
> >> developers
> >> encouraged me to contact Minimed and to inform others.
> >> You may be right that we are small in number and may not be heeded by
> >> Minimed; however, it only takes a few minutes to write Medtronic or 
> >> call.
> >> If we let friends, family, and healthcare workers know, they may even 
> >> be
> >> willing to contact Medtronic on our behalf if they have had knowledge 
> >> of
> >> what it is like for someone who is blind to use an insulin pump.
> >> I am ignorant concerning the technology bill of rights. How exactly 
> >> will
> >> this help to make insulin pumps accessible? Would Medtronic and other
> >> companies be ordered to make their products accessible once the bill is
> >> passed? Would it not be better to get Medtronic's willing compliance if
> >> we
> >> ever could? If this bill is the answer, how do we get our 
> >> representatives
> >> to pass it? In terms of the general population, we are also a small 
> >> part.
> >> I am not trying to criticize you. Any information you may have for me 
> >> to
> >> educate myself about the Technology Bill of Rights or how it would
> >> pertain
> >> to diabetes would be greatly appreciated.
> >>
> >> Chanelle
> >> ----- Original Message ----- 
> >> From: "Mike Freeman" <k7uij at panix.com>
> >> To: <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 9:32 PM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >>> Chanelle:
> >>>
> >>> I am in contact with Access Solutions concerning this pump remote but
> >>> didn't think this was ready for prime time yet. I have informed NFB
> >>> President Dr. Marc Maurer of this possibility.
> >>>
> >>> I am virtually certain that I will get flamed for what I shall say 
> >>> next
> >>> and I mean no disrespect to you in saying it. But in my opinion, we 
> >>> can
> >>> write to Medtronics MiniMed till we're blue in the face and absolutely
> >>> nothing will come of it. Why? Because there aren't enough of us to 
> >>> make
> >>> it worthwhile for the company to make the investment to manufacture 
> >>> the
> >>> pump remote and secure FDA 510(k) cergification for it which would 
> >>> mean
> >>> that the company would have to certify the remote's accuracy and would
> >>> take on the risk of liability for flaws.
> >>>
> >>> However, this is not the end of the road. I have spoken with John 
> >>> Pare,
> >>> Director of NFB Strategic Initiatives and he believes that diabetes
> >>> equipment including BG meters and insulin pumps would be covered (the
> >>> Technology Bill of Rights for the Blind, HR-4533, introduced into
> >>> Congress this year. So we need to work like mad to get our
> >>> representatives to sign on to this legislation as cosponsors.
> >>>
> >>> Mike Freeman, President
> >>> Diabetes Action Network
> >>> National Federation of the Blind
> >>>
> >>>
> >>> ----- Original Message -----
> >>> From: "Chanelle Hill" <chanellemh at gmail.com>
> >>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >>> Date: Friday, Apr 9, 2010 12:27:55
> >>> Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>>
> >>>>
> >>>>
> >>>> Dear list,
> >>>> I don't know if this information has been posted yet, but it is super
> >>>> excited. A talking remote is being made for the insulin pump. The
> >>>> remote
> >>>> is being made by a company called Access Solutions www.axsol.com. I
> >>>> just
> >>>> spoke with James Kubel, the engineer who created the Pump Mate. He 
> >>>> has
> >>>> had diabetes for 40 years and was frustrated by the lack of a talking
> >>>> insulin pump and the fact that there was no interest in producing one
> >>>> by
> >>>> insulin pump companies. The website for the Pump Mate is
> >>>> www.pump-mate.com
> >>>> James is trying to get Medtronic Minimed's cooperation and support in
> >>>> developing and producing the Pump Mate. It would be great if those 
> >>>> who
> >>>> are interested could contact Minimed to express interest in the pump
> >>>> mate and desire that Minimed would help to market and produce it.
> >>>> With the Pump Mate, it is possible to program basal rates, use the
> >>>> Bolis
> >>>> Wizzard, and hear test results from the meters that Minimed has
> >>>> specifically designed to transfer data to and from the insulin pump.
> >>>> This has amazing potential since the Pump Mate could someday be used 
> >>>> in
> >>>> conjunction with the continuous glucose monitoring system.
> >>>> I have pasted James's contact information below, and I am sending him 
> >>>> a
> >>>> carbon copy of this message in case he would like to join the list or
> >>>> provide feedback.
> >>>>
> >>>> Access Solutions
> >>>> james at axsol.com
> >>>> sales: (916) 481-3559
> >>>>
> >>>> Chanelle
> >>>> _______________________________________________
> >>>> Diabetes-talk mailing list
> >>>> Diabetes-talk at nfbnet.org
> >>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for
> >>>> Diabetes-talk:
> >>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >>>
> >>> _______________________________________________
> >>> Diabetes-talk mailing list
> >>> Diabetes-talk at nfbnet.org
> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-talk:
> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40gmail.com
> >>>
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> > -------------- next part --------------
> > An embedded and charset-unspecified text was scrubbed...
> > Name: HR-4533.txt
> > URL:
> > <http://www.nfbnet.org/pipermail/diabetes-talk_nfbnet.org/attachments/20100410/407ffa8f/attachment-0001.txt>
> >
> > ------------------------------
> >
> > Message: 24
> > Date: Sat, 10 Apr 2010 08:16:15 -0700
> > From: "Mike Freeman" <k7uij at panix.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <15954B7D1CFA4DA68B10DB8A3E8E018E at owner1e06aeb63>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=original
> >
> > How about half a milion? And bear in mind that if the Independence 
> > Market
> > sells 20,000 of *anything,* it's done a land-office business.
> >
> > Mike
> >
> > ----- Original Message ----- 
> > From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 6:41 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Mike
> >> How many makes enough?
> >> Debbie
> >>
> >>
> >>
> >>
> >> ________________________________
> >> From: Mike Freeman <k7uij at panix.com>
> >> To: diabetes-talk at nfbnet.org
> >> Sent: Fri, April 9, 2010 9:32:32 PM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >> Chanelle:
> >>
> >> I am in contact with Access Solutions concerning this pump remote but
> >> didn't think this was ready for prime time yet. I have informed NFB
> >> President Dr. Marc Maurer of this possibility.
> >>
> >> I am virtually certain that I will get flamed for what I shall say next
> >> and I mean no disrespect to you in saying it. But in my opinion, we can
> >> write to Medtronics MiniMed till we're blue in the face and absolutely
> >> nothing will come of it. Why? Because there aren't enough of us to make
> >> it
> >> worthwhile for the company to make the investment to manufacture the 
> >> pump
> >> remote and secure FDA 510(k) cergification for it which would mean that
> >> the company would have to certify the remote's accuracy and would take 
> >> on
> >> the risk of liability for flaws.
> >>
> >> However, this is not the end of the road. I have spoken with John Pare,
> >> Director of NFB Strategic Initiatives and he believes that diabetes
> >> equipment including BG meters and insulin pumps would be covered (the
> >> Technology Bill of Rights for the Blind, HR-4533, introduced into
> >> Congress
> >> this year. So we need to work like mad to get our representatives to 
> >> sign
> >> on to this legislation as cosponsors.
> >>
> >> Mike Freeman, President
> >> Diabetes Action Network
> >> National Federation of the Blind
> >>
> >>
> >> ----- Original Message -----
> >> From: "Chanelle Hill" <chanellemh at gmail.com>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Date: Friday, Apr 9, 2010 12:27:55
> >> Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>>
> >>>
> >>> Dear list,
> >>> I don't know if this information has been posted yet, but it is super
> >>> excited. A talking remote is being made for the insulin pump. The 
> >>> remote
> >>> is being made by a company called Access Solutions www.axsol.com. I 
> >>> just
> >>> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >>> had diabetes for 40 years and was frustrated by the lack of a talking
> >>> insulin pump and the fact that there was no interest in producing one 
> >>> by
> >>> insulin pump companies. The website for the Pump Mate is
> >>> www.pump-mate.com
> >>> James is trying to get Medtronic Minimed's cooperation and support in
> >>> developing and producing the Pump Mate. It would be great if those who
> >>> are interested could contact Minimed to express interest in the pump
> >>> mate
> >>> and desire that Minimed would help to market and produce it.
> >>> With the Pump Mate, it is possible to program basal rates, use the 
> >>> Bolis
> >>> Wizzard, and hear test results from the meters that Minimed has
> >>> specifically designed to transfer data to and from the insulin pump.
> >>> This
> >>> has amazing potential since the Pump Mate could someday be used in
> >>> conjunction with the continuous glucose monitoring system.
> >>> I have pasted James's contact information below, and I am sending him 
> >>> a
> >>> carbon copy of this message in case he would like to join the list or
> >>> provide feedback.
> >>>
> >>> Access Solutions
> >>> james at axsol.com
> >>> sales: (916) 481-3559
> >>>
> >>> Chanelle
> >>> _______________________________________________
> >>> Diabetes-talk mailing list
> >>> Diabetes-talk at nfbnet.org
> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-talk:
> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 25
> > Date: Sat, 10 Apr 2010 11:26:59 -0400
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <BAY110-DS241EFFD6D675F35A3A9DD8A1140 at phx.gbl>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > well the same then goes for cancer and aids.
> >
> > Cheryl Echevarria
> > Independent Travel Consultant
> > C10-10646
> >
> > http://Echevarriatravel.com
> > 1-866-580-5574
> >
> > http://blog.echevarriatravel.com
> > Reservations at echevarriatravel.com
> > Affiliated as an Independent Contractor with Montrose Travel
> > CST-1018299-10
> >
> >
> > ----- Original Message ----- 
> > From: "eileen scrivani" <etscrivani at verizon.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 10:59 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Debbie:
> >>
> >> I'll be the first to say diabetes "SUCKS!" But, we're stuck with it and
> >> have
> >> to do our best to live with it and manage it.  I'd love a cure to come
> >> along
> >> and rid me of the disease that took my eyesight and was the cause of a
> >> brothers death.  I think most all of us on the list would like a cure,
> >> but
> >> its just not in the cards right now so we all have to deal with the
> >> disease
> >> and its complications and frustrations.
> >>
> >> I don't believe there will be a cure, there's too much money in the
> >> business
> >> of treating diabetes rather than curing it. I know it can be very
> >> stressful,
> >> try to hang tough and not give up on living a life to the best and
> >> fullest
> >> you can even with all the crappy parts of diabetes.
> >>
> >> Lacking a cure, we still need ways as blind/visually impaired diabetics
> >> to
> >> help us manage our control.
> >>
> >> Eileen
> >> ----- Original Message ----- 
> >> From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 7:46 PM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >> > from the sounds of things on this list. a cure for diabetes is not 
> >> > even
> >> > a
> >> > desire here.
> >> > i don't want anything but a cure and the medical field can shove 
> >> > there
> >> > bull.
> >> > Debbie
> >> >
> >> >
> >> >
> >> >
> >> > ________________________________
> >> > From: Chanelle Hill <chanellemh at gmail.com>
> >> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> > Sent: Fri, April 9, 2010 1:43:38 PM
> >> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >
> >> > Dear list,
> >> > I don't know if this information has been posted yet, but it is super
> >> > excited. A talking remote is being made for the insulin pump. The
> >> > remote
> >> > is being made by a company called Access Solutions www.axsol.com. I
> >> > just
> >> > spoke with James Kubel, the engineer who created the Pump Mate. He 
> >> > has
> >> > had
> >> > diabetes for 40 years and was frustrated by the lack of a talking
> >> > insulin
> >> > pump and the fact that there was no interest in producing one by
> >> > insulin
> >> > pump companies. The website for the Pump Mate is www.pump-mate.com
> >> > James is trying to get Medtronic Minimed's cooperation and support in
> >> > developing and producing the Pump Mate. It would be great if those 
> >> > who
> >> > are
> >> > interested could contact Minimed to express interest in the pump mate
> >> > and
> >> > desire that Minimed would help to market and produce it.
> >> > With the Pump Mate, it is possible to program basal rates, use the
> >> > Bolis
> >> > Wizzard, and hear test results from the meters that Minimed has
> >> > specifically designed to transfer data to and from the insulin pump.
> >> > This
> >> > has amazing potential since the Pump Mate could someday be used in
> >> > conjunction with the continuous glucose monitoring system.
> >> > I have pasted James's contact information below, and I am sending him 
> >> > a
> >> > carbon copy of this message in case he would like to join the list or
> >> > provide feedback.
> >> >
> >> > Access Solutions
> >> > james at axsol.com
> >> > sales: (916) 481-3559
> >> >
> >> > Chanelle
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> >> >
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >>
> >
> >
> >
> > ------------------------------
> >
> > Message: 26
> > Date: Sat, 10 Apr 2010 11:30:30 -0400
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <BAY110-DS16DB0821940DC7693E98D5A1140 at phx.gbl>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > Okay, why are we worried about who wants what from who, don't you think
> > that
> > other corporations want time of day from other corporations look what
> > Cablevision is doing to us here on Long island, taking off channels 
> > until
> > corporate nonsense is taken care of until they have gotten ton of money
> > and
> > then still raise the rates of there clients, in the meantime who suffers
> > to
> > paying customers of cablevision.
> >
> > In this case, these companies want to fight to put these items on the
> > market, good for them, makes competition and lowers the rate for the
> > client.
> >
> > We need companies working with us, and we need to work with them to help
> > educate them on what is needed to run them.
> >
> > It shouldn't make a hill of beans.
> >
> > Cheryl Echevarria
> > Independent Travel Consultant
> > C10-10646
> >
> > http://Echevarriatravel.com
> > 1-866-580-5574
> >
> > http://blog.echevarriatravel.com
> > Reservations at echevarriatravel.com
> > Affiliated as an Independent Contractor with Montrose Travel
> > CST-1018299-10
> >
> >
> > ----- Original Message ----- 
> > From: "Mike Freeman" <k7uij at panix.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 11:13 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Chanelle:
> >>
> >> You ask reasoned questions and they deserve reasoned answers.
> >>
> >> First, Access Solutions is rightly desperate to get Medtronics to even
> >> give
> >> them the time of day, let alone make a commitment to assist in
> >> development/manufacturing costs and assuming the burden of legal
> >> liability.
> >> In fact, in a very minimal sense, as you say, the device is already 
> >> being
> >> successfully used by one blind diabetic although, in fairness, we only
> >> have
> >> his word for it, not that of his endo or CDE. And please don't construe
> >> this
> >> last proviso as saying he's a liar. I'm just stating facts with no
> >> judgment
> >> involved.
> >>
> >> Be that as it may, Access Solutions' problem is the same one as the 
> >> late
> >> David Anspach encountered and, in truth, anyone encounters when dealing
> >> with
> >> these large medical corporations: trying to figure out whom to contact
> >> that
> >> cares *and* has sufficient influence to translate goodwill into action.
> >> This
> >> is the same problem we, the blindness organizations (and I mean both 
> >> ACB
> >> and
> >> NFB here) face: getting to the real string-pullers at Medtronics and
> >> giving
> >> them sufficiently valid reasons (in terms of their stockholders) to
> >> assist
> >> Access Solutions.
> >>
> >> If I may be a bit cynical for a moment, it would help if Medtronics' 
> >> CEO
> >> had
> >> a blind parent or child. That usually gets action (think the Optacon 
> >> and
> >> its
> >> inventor, Dr. Linville, who had a blind daughter Candy). Since we don't
> >> know
> >> this and it would be crass in the extreme to make such an inquiry, we
> >> must
> >> think of other methods.
> >>
> >> David Anspach dealt with his local sales reps who, he says, were very
> >> enthusiastic about the possibility of building accessibility features
> >> into
> >> Medtronics' pumps (and he wasn't necessarily even speaking of making 
> >> them
> >> talk although he did mention the subject). But that's as far as it 
> >> went.
> >> He
> >> (Mr. Anspach) never heard from anyone higher-up in the company nor did
> >> the
> >> sales reps.
> >>
> >> What tends to happen (and this happens with insulin pen manufacturers
> >> whom
> >> I've contacted about getting those infernal warnings about using pens 
> >> by
> >> the
> >> visually impaired without sighted supervision) is that we, both blind
> >> individuals and organizations of the blind, get shunted off to the
> >> companies' PR departments and it's like punching a feather pillow --  
> >> lots
> >> of
> >> agreement and promises to listen and then nothing happens.
> >>
> >> I'm attaching a text version of the Technology Bill of Rights for the
> >> Blind,
> >> H.R. 4533. AS you will see from the bill, one of the classes of covered
> >> devices (along with kiosks at airports, point-of-sale machines, home
> >> electronics and consumer appliances such as dishwashers, stoves and the
> >> like) are "consumer devices". A commission is set up by the bill that
> >> would
> >> promulgate standards of accessibility for these devices and these would
> >> have
> >> to be implemented by all consumer device manufacturers by a mandated
> >> deadline. WE of NFB would argue strenuously before the standards
> >> commission
> >> that *all* diabetic devices intended for consumers would have to be 
> >> made
> >> accessible ipso facto, right out of the box.
> >>
> >> You ask if it would not be better to get Medtronics willing support. 
> >> You
> >> bet
> >> your sweet life it would! But corporation law in this country (or
> >> everywhere
> >> else, to my knowledge) doesn't mandate that corporations hue to 
> >> standards
> >> of
> >> morality other than prohibiting things like peculation and fraud. So
> >> unless
> >> someone at a corporation has a compelling moral reason to produce 
> >> devices
> >> "because it's right", litigation is about the only way to get things
> >> done.
> >>
> >> Before members of ACB remind me that Major League Baseball and some
> >> retail
> >> establishments have engaged in what is called "structured negotiation"
> >> with
> >> ACB to implement accessibility in their point-of-sale machines or web
> >> sites,
> >> I happily acknowledge this and commend ACB for its action. However, I
> >> maintain that without the "big stick" in the background, these
> >> corporations
> >> wouldn't have been nearly as anxious to work toward accessibility. Same
> >> goes
> >> for Apple with VoiceOver and its accessible iPhone.
> >>
> >> This takes nothing away from Apple or MLB or Safeway or any of the 
> >> other
> >> firms that are working with Lainey Feingold et al. It's just my 
> >> educated
> >> hunch. And it's what a Sony rep once told one of our (NFB's)
> >> representatives
> >> on a trip to the far East; he (the Sony rep) claimed his company 
> >> wouldn't
> >> do
> >> anything unless it were sued.
> >>
> >> But litigation isn't the only way. If we were to cause HR-4533 to get
> >> enough
> >> votes to become law, we would have the law behind us in pointing out 
> >> the
> >> facts of life to recalcitrant medical firms. One starts the process of 
> >> a
> >> bill becoming law by calling up one's representative (this is to the
> >> Federal
> >> Congress) and urging him/her to cosponsor HR-4533 and getting one's
> >> friends,
> >> colleagues, social acquaintances etc. etc. also to call. And you'd be
> >> surprised how well this often actually works. Both ACB and NFB use this
> >> strategy. Yu can find yur representative by going to 
> >> http://www.house.gov
> >> and using the combo boxs to select your state and district.
> >>
> >> With enough cosponsors (I forget the exact number), the bills's sponsor
> >> has
> >> enough leverage to get a committee hearing on the bill and it would be
> >> easy
> >> to get enough blind folks (diabetic or not) to testify to occupy 
> >> Congress
> >> for a year!
> >>
> >> It's worth a try. And lest you think that I'm just trying to push a NFB
> >> agenda, please remember that this was/is the ACB strategy to get its
> >> "Video
> >> Description Restoration Act" or whatever it's called now passed.
> >>
> >> WE, the blind, are a small minority within society and blind persons 
> >> who
> >> have diabetes are an even smaller number (and yes, I know, diabetes is
> >> the
> >> leading cause of blindness/visual impairment but those folks have to
> >> *admit*
> >> they're blind or visually impaired before they care much about
> >> accessibility). So although petitions (both on-line and off-line) are 
> >> all
> >> the rage these days, they, like economic boycotts, only work if there 
> >> are
> >> a
> >> sufficient number of people in the pressure group to make folks sit up
> >> and
> >> take notice.
> >>
> >> As a practical example, remember the bus boycott in Montgomery,
> >> Alabama --
> >> the one where Rosa Parks wouldn't sit at the back of the bus? The
> >> African-americans won that one because most of the bus riders were 
> >> black.
> >> Had blind bus-riders boycotted, I suspect there would have been merely 
> >> a
> >> big
> >> yawn.
> >>
> >> But we do have power if we exercise it intelligently.
> >>
> >> I know this is long but perhaps list participants may thereby get a bit
> >> better idea of what my experience tells me works.
> >>
> >> Mike Freeman
> >>
> >> ----- Original Message ----- 
> >> From: "Chanelle Hill" <chanellemh at gmail.com>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Saturday, April 10, 2010 6:59 AM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >> > Dear Mike,
> >> > Don't worry; I am not going to flame you. I don't know if the 
> >> > pump-mate
> >> > is
> >> > ready for prime time as you say. I just happened to stumble upon the
> >> > website yesterday, got really excited, contacted the developers, and
> >> > posted to the list. Maybe I am jumping ahead of things, but the
> >> > developers
> >> > encouraged me to contact Minimed and to inform others.
> >> > You may be right that we are small in number and may not be heeded by
> >> > Minimed; however, it only takes a few minutes to write Medtronic or
> >> > call.
> >> > If we let friends, family, and healthcare workers know, they may even
> >> > be
> >> > willing to contact Medtronic on our behalf if they have had knowledge
> >> > of
> >> > what it is like for someone who is blind to use an insulin pump.
> >> > I am ignorant concerning the technology bill of rights. How exactly
> >> > will
> >> > this help to make insulin pumps accessible? Would Medtronic and other
> >> > companies be ordered to make their products accessible once the bill 
> >> > is
> >> > passed? Would it not be better to get Medtronic's willing compliance 
> >> > if
> >> > we
> >> > ever could? If this bill is the answer, how do we get our
> >> > representatives
> >> > to pass it? In terms of the general population, we are also a small
> >> > part.
> >> > I am not trying to criticize you. Any information you may have for me
> >> > to
> >> > educate myself about the Technology Bill of Rights or how it would
> >> > pertain
> >> > to diabetes would be greatly appreciated.
> >> >
> >> > Chanelle
> >> > ----- Original Message ----- 
> >> > From: "Mike Freeman" <k7uij at panix.com>
> >> > To: <diabetes-talk at nfbnet.org>
> >> > Sent: Friday, April 09, 2010 9:32 PM
> >> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >
> >> >
> >> >> Chanelle:
> >> >>
> >> >> I am in contact with Access Solutions concerning this pump remote 
> >> >> but
> >> >> didn't think this was ready for prime time yet. I have informed NFB
> >> >> President Dr. Marc Maurer of this possibility.
> >> >>
> >> >> I am virtually certain that I will get flamed for what I shall say
> >> >> next
> >> >> and I mean no disrespect to you in saying it. But in my opinion, we
> >> >> can
> >> >> write to Medtronics MiniMed till we're blue in the face and 
> >> >> absolutely
> >> >> nothing will come of it. Why? Because there aren't enough of us to
> >> >> make
> >> >> it worthwhile for the company to make the investment to manufacture
> >> >> the
> >> >> pump remote and secure FDA 510(k) cergification for it which would
> >> >> mean
> >> >> that the company would have to certify the remote's accuracy and 
> >> >> would
> >> >> take on the risk of liability for flaws.
> >> >>
> >> >> However, this is not the end of the road. I have spoken with John
> >> >> Pare,
> >> >> Director of NFB Strategic Initiatives and he believes that diabetes
> >> >> equipment including BG meters and insulin pumps would be covered 
> >> >> (the
> >> >> Technology Bill of Rights for the Blind, HR-4533, introduced into
> >> >> Congress this year. So we need to work like mad to get our
> >> >> representatives to sign on to this legislation as cosponsors.
> >> >>
> >> >> Mike Freeman, President
> >> >> Diabetes Action Network
> >> >> National Federation of the Blind
> >> >>
> >> >>
> >> >> ----- Original Message -----
> >> >> From: "Chanelle Hill" <chanellemh at gmail.com>
> >> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> >> Date: Friday, Apr 9, 2010 12:27:55
> >> >> Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >> >>
> >> >>>
> >> >>>
> >> >>> Dear list,
> >> >>> I don't know if this information has been posted yet, but it is 
> >> >>> super
> >> >>> excited. A talking remote is being made for the insulin pump. The
> >> >>> remote
> >> >>> is being made by a company called Access Solutions www.axsol.com. I
> >> >>> just
> >> >>> spoke with James Kubel, the engineer who created the Pump Mate. He
> >> >>> has
> >> >>> had diabetes for 40 years and was frustrated by the lack of a 
> >> >>> talking
> >> >>> insulin pump and the fact that there was no interest in producing 
> >> >>> one
> >> >>> by
> >> >>> insulin pump companies. The website for the Pump Mate is
> >> >>> www.pump-mate.com
> >> >>> James is trying to get Medtronic Minimed's cooperation and support 
> >> >>> in
> >> >>> developing and producing the Pump Mate. It would be great if those
> >> >>> who
> >> >>> are interested could contact Minimed to express interest in the 
> >> >>> pump
> >> >>> mate and desire that Minimed would help to market and produce it.
> >> >>> With the Pump Mate, it is possible to program basal rates, use the
> >> >>> Bolis
> >> >>> Wizzard, and hear test results from the meters that Minimed has
> >> >>> specifically designed to transfer data to and from the insulin 
> >> >>> pump.
> >> >>> This has amazing potential since the Pump Mate could someday be 
> >> >>> used
> >> >>> in
> >> >>> conjunction with the continuous glucose monitoring system.
> >> >>> I have pasted James's contact information below, and I am sending 
> >> >>> him
> >> >>> a
> >> >>> carbon copy of this message in case he would like to join the list 
> >> >>> or
> >> >>> provide feedback.
> >> >>>
> >> >>> Access Solutions
> >> >>> james at axsol.com
> >> >>> sales: (916) 481-3559
> >> >>>
> >> >>> Chanelle
> >> >>> _______________________________________________
> >> >>> Diabetes-talk mailing list
> >> >>> Diabetes-talk at nfbnet.org
> >> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> >>> To unsubscribe, change your list options or get your account info 
> >> >>> for
> >> >>> Diabetes-talk:
> >> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >> >>
> >> >> _______________________________________________
> >> >> Diabetes-talk mailing list
> >> >> Diabetes-talk at nfbnet.org
> >> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> >> To unsubscribe, change your list options or get your account info 
> >> >> for
> >> >> Diabetes-talk:
> >> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40gmail.com
> >> >>
> >> >
> >> >
> >> > _______________________________________________
> >> > Diabetes-talk mailing list
> >> > Diabetes-talk at nfbnet.org
> >> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> > To unsubscribe, change your list options or get your account info for
> >> > Diabetes-talk:
> >> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >>
> >
> >
> >
> > ------------------------------
> >
> > Message: 27
> > Date: Sat, 10 Apr 2010 08:38:19 -0700
> > From: "Mike Freeman" <k7uij at panix.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <3C81F260026442D4B36073B7D66C63EA at owner1e06aeb63>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=response
> >
> > Eileen:
> >
> > Your concerns are valid. In fact, that's why Access Solutions
> > (incidentally,
> > this is the manufacturer of the DECtalk USB hardware synthesizers; I 
> > have
> > one) is so anxious to get Medtronics' blessing and active support on the
> > project, not to mention that Access Solutions probably doesn't have the
> > big
> > bucks to go thru an ADA 510(k) certification process.
> >
> > Mike
> >
> > ----- Original Message ----- 
> > From: "eileen scrivani" <etscrivani at verizon.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 7:50 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Hi Chanelle:
> >>
> >> Thanks for sharing this.  Always good to hear about new developments 
> >> that
> >> can help us as blind diabetics.  My only concern with this type of 
> >> device
> >> is that it's not being made by the pump manufacturers.  I'm wondering 
> >> if
> >> down the road changes get made to a pump of any brand will a device 
> >> like
> >> the Pumpmate continue to work correctly with updated/altered pumps.  A
> >> few
> >> years ago, we had one of those talking remotes to help operate the VCR
> >> more easily, once we upgraded to a VCR/DVD player the accessible remote
> >> no
> >> longer continued to work.  So, I'm thinking its the same type of set up
> >> ... there could be negative results down the road if this is the only
> >> accessibility option for us.  .  I'm not a pump user but do have 
> >> interest
> >> in them.  It has been the lack of accessibility that has prevented me
> >> into
> >> investigating further into them.
> >>
> >> Don't get me wrong, this is a good thing, one of those better than
> >> nothing
> >> being done things, so in that respect I'm happy to hear about it.  On 
> >> the
> >> other hand it would be so much better if pump manufacturers would get 
> >> on
> >> the ball with this stuff.
> >>
> >> Thanks again for the information.  Please keep us posted if you get any
> >> other pieces of good information like this one.
> >>
> >> Eileen
> >>
> >> ----- Original Message ----- 
> >> From: "Chanelle Hill" <chanellemh at gmail.com>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 2:43 PM
> >> Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >>> Dear list,
> >>> I don't know if this information has been posted yet, but it is super
> >>> excited. A talking remote is being made for the insulin pump. The 
> >>> remote
> >>> is being made by a company called Access Solutions www.axsol.com. I 
> >>> just
> >>> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >>> had diabetes for 40 years and was frustrated by the lack of a talking
> >>> insulin pump and the fact that there was no interest in producing one 
> >>> by
> >>> insulin pump companies. The website for the Pump Mate is
> >>> www.pump-mate.com
> >>> James is trying to get Medtronic Minimed's cooperation and support in
> >>> developing and producing the Pump Mate. It would be great if those who
> >>> are interested could contact Minimed to express interest in the pump
> >>> mate
> >>> and desire that Minimed would help to market and produce it.
> >>> With the Pump Mate, it is possible to program basal rates, use the 
> >>> Bolis
> >>> Wizzard, and hear test results from the meters that Minimed has
> >>> specifically designed to transfer data to and from the insulin pump.
> >>> This
> >>> has amazing potential since the Pump Mate could someday be used in
> >>> conjunction with the continuous glucose monitoring system.
> >>> I have pasted James's contact information below, and I am sending him 
> >>> a
> >>> carbon copy of this message in case he would like to join the list or
> >>> provide feedback.
> >>>
> >>> Access Solutions
> >>> james at axsol.com
> >>> sales: (916) 481-3559
> >>>
> >>> Chanelle
> >>> _______________________________________________
> >>> Diabetes-talk mailing list
> >>> Diabetes-talk at nfbnet.org
> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-talk:
> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> >>>
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 28
> > Date: Sat, 10 Apr 2010 12:08:19 -0400
> > From: "eileen scrivani" <etscrivani at verizon.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <93E3C067401B489089B168A18E138052 at EileenPC>
> > Content-Type: text/plain; format=flowed; charset=iso-8859-1;
> > reply-type=response
> >
> > Yes, I believe that to.  And let's not forget heart disease.  All these
> > "big" diseases that get lots of publicity and do fund-raising orgs take 
> > in
> > hundreds of millions of dollars.  If we start looking at the doctor's,
> > hospitals, drug companies, testing facilities they are all multibillion
> > dollar businesses.  If cures were found they would all go pretty much
> > under
> > and the country would have a huge economic problem.  Yes, on this I am
> > very
> > synical, but that's my personal belief.
> >
> > If we go back to the time when insulin was first discovered, it was done
> > by
> > what we would now probably consider very "primitive" conditions.  Yet, 
> > it
> > was discovered and purified enough to start treatments.  The folks who
> > discovered it were not given millions/billions of research dollars in 
> > the
> > most modern, sophisticated labs, yet they did it because I believe it 
> > was
> > in
> > their hearts and they had the drive to get to it.  Today, I do think its
> > all
> > about the green back and if a few of us drop dead hear and there, well
> > then
> > no biggy.  Again, only my own personal belief and I know others will
> > disagree with me.
> >
> > Eileen
> > ----- Original Message ----- 
> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 11:26 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> well the same then goes for cancer and aids.
> >>
> >> Cheryl Echevarria
> >> Independent Travel Consultant
> >> C10-10646
> >>
> >> http://Echevarriatravel.com
> >> 1-866-580-5574
> >>
> >> http://blog.echevarriatravel.com
> >> Reservations at echevarriatravel.com
> >> Affiliated as an Independent Contractor with Montrose Travel
> >> CST-1018299-10
> >>
> >>
> >> ----- Original Message ----- 
> >> From: "eileen scrivani" <etscrivani at verizon.net>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Saturday, April 10, 2010 10:59 AM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >>> Debbie:
> >>>
> >>> I'll be the first to say diabetes "SUCKS!" But, we're stuck with it 
> >>> and
> >>> have
> >>> to do our best to live with it and manage it.  I'd love a cure to come
> >>> along
> >>> and rid me of the disease that took my eyesight and was the cause of a
> >>> brothers death.  I think most all of us on the list would like a cure,
> >>> but
> >>> its just not in the cards right now so we all have to deal with the
> >>> disease
> >>> and its complications and frustrations.
> >>>
> >>> I don't believe there will be a cure, there's too much money in the
> >>> business
> >>> of treating diabetes rather than curing it. I know it can be very
> >>> stressful,
> >>> try to hang tough and not give up on living a life to the best and
> >>> fullest
> >>> you can even with all the crappy parts of diabetes.
> >>>
> >>> Lacking a cure, we still need ways as blind/visually impaired 
> >>> diabetics
> >>> to
> >>> help us manage our control.
> >>>
> >>> Eileen
> >>> ----- Original Message ----- 
> >>> From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> >>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >>> Sent: Friday, April 09, 2010 7:46 PM
> >>> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>>
> >>>
> >>> > from the sounds of things on this list. a cure for diabetes is not
> >>> > even
> >>> > a
> >>> > desire here.
> >>> > i don't want anything but a cure and the medical field can shove 
> >>> > there
> >>> > bull.
> >>> > Debbie
> >>> >
> >>> >
> >>> >
> >>> >
> >>> > ________________________________
> >>> > From: Chanelle Hill <chanellemh at gmail.com>
> >>> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >>> > Sent: Fri, April 9, 2010 1:43:38 PM
> >>> > Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>> >
> >>> > Dear list,
> >>> > I don't know if this information has been posted yet, but it is 
> >>> > super
> >>> > excited. A talking remote is being made for the insulin pump. The
> >>> > remote
> >>> > is being made by a company called Access Solutions www.axsol.com. I
> >>> > just
> >>> > spoke with James Kubel, the engineer who created the Pump Mate. He 
> >>> > has
> >>> > had
> >>> > diabetes for 40 years and was frustrated by the lack of a talking
> >>> > insulin
> >>> > pump and the fact that there was no interest in producing one by
> >>> > insulin
> >>> > pump companies. The website for the Pump Mate is www.pump-mate.com
> >>> > James is trying to get Medtronic Minimed's cooperation and support 
> >>> > in
> >>> > developing and producing the Pump Mate. It would be great if those 
> >>> > who
> >>> > are
> >>> > interested could contact Minimed to express interest in the pump 
> >>> > mate
> >>> > and
> >>> > desire that Minimed would help to market and produce it.
> >>> > With the Pump Mate, it is possible to program basal rates, use the
> >>> > Bolis
> >>> > Wizzard, and hear test results from the meters that Minimed has
> >>> > specifically designed to transfer data to and from the insulin pump.
> >>> > This
> >>> > has amazing potential since the Pump Mate could someday be used in
> >>> > conjunction with the continuous glucose monitoring system.
> >>> > I have pasted James's contact information below, and I am sending 
> >>> > him
> >>> > a
> >>> > carbon copy of this message in case he would like to join the list 
> >>> > or
> >>> > provide feedback.
> >>> >
> >>> > Access Solutions
> >>> > james at axsol.com
> >>> > sales: (916) 481-3559
> >>> >
> >>> > Chanelle
> >>> > _______________________________________________
> >>> > Diabetes-talk mailing list
> >>> > Diabetes-talk at nfbnet.org
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> >>>
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> >>
> >> _______________________________________________
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> >>
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 29
> > Date: Sat, 10 Apr 2010 09:58:59 -0700
> > From: "Mike Freeman" <k7uij at panix.com>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> > Message-ID: <C99594B5BB584DF88411E50BF97AABBC at owner1e06aeb63>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=response
> >
> > Eileen:
> >
> > All I can say is "amen" to your diabetes philosophy. However, I strongly
> > disagree with your opinion that we won't find a cure for diabetes in the
> > immediate future because there's too much money to be made from diabetes
> > treatment. I know this view is quite widespread; I'm sure Debby would
> > subscribe to it also. But, in my opinion, it is wide of the mark and
> > exhibits a basic fallacy in thinking.
> >
> > The purpose of drug companies -- those ogres making all that ill-gotten
> > money off of us diabetics -- is to make a prophet for their 
> > stockholders.
> > Put more simply, their purpose is to make money by developing and
> > manufacturing drugs and devices to ameliorate or cure pain and other
> > vexing
> > side-effects of diseases and, in some instances, to cure them. Their
> > purpose
> > is not, as some would have it, to do basic research to find cures for
> > disease. That is the province of academia. There is no hidden agenda to
> > keep
> > a cure for diabetes from us; it's just that basic research takes time,
> > effort and money (and Federal subsidies for basic research have been cut
> > back by Congress of late). And diabetes, be it Type 1 or Type 2, is a 
> > very
> > complex disease (or, more accurately, is a whole slew of complex 
> > diseases
> > which may or may not interact and whose cures may have wider 
> > consequences,
> > at least in terms of what we currently know of Type 1 which affects the
> > immune system).
> >
> > Please read Gretchen Becker's article at:
> >
> > http://www.healthcentral.com/diabetes/c/5068/106677/cure
> >
> > Mike
> >
> > ----- Original Message ----- 
> > From: "eileen scrivani" <etscrivani at verizon.net>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> > Sent: Saturday, April 10, 2010 7:59 AM
> > Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >
> >
> >> Debbie:
> >>
> >> I'll be the first to say diabetes "SUCKS!" But, we're stuck with it and
> >> have to do our best to live with it and manage it.  I'd love a cure to
> >> come along and rid me of the disease that took my eyesight and was the
> >> cause of a brothers death.  I think most all of us on the list would 
> >> like
> >> a cure, but its just not in the cards right now so we all have to deal
> >> with the disease and its complications and frustrations.
> >>
> >> I don't believe there will be a cure, there's too much money in the
> >> business of treating diabetes rather than curing it. I know it can be
> >> very
> >> stressful, try to hang tough and not give up on living a life to the 
> >> best
> >> and fullest you can even with all the crappy parts of diabetes.
> >>
> >> Lacking a cure, we still need ways as blind/visually impaired diabetics
> >> to
> >> help us manage our control.
> >>
> >> Eileen
> >> ----- Original Message ----- 
> >> From: "Debbie Fredericks" <catdancing at sbcglobal.net>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Friday, April 09, 2010 7:46 PM
> >> Subject: Re: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>
> >>
> >>> from the sounds of things on this list. a cure for diabetes is not 
> >>> even
> >>> a
> >>> desire here.
> >>> i don't want anything but a cure and the medical field can shove there
> >>> bull.
> >>> Debbie
> >>>
> >>>
> >>>
> >>>
> >>> ________________________________
> >>> From: Chanelle Hill <chanellemh at gmail.com>
> >>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >>> Sent: Fri, April 9, 2010 1:43:38 PM
> >>> Subject: [Diabetes-talk] talking insulin pump remote: Pump Mate
> >>>
> >>> Dear list,
> >>> I don't know if this information has been posted yet, but it is super
> >>> excited. A talking remote is being made for the insulin pump. The 
> >>> remote
> >>> is being made by a company called Access Solutions www.axsol.com. I 
> >>> just
> >>> spoke with James Kubel, the engineer who created the Pump Mate. He has
> >>> had diabetes for 40 years and was frustrated by the lack of a talking
> >>> insulin pump and the fact that there was no interest in producing one 
> >>> by
> >>> insulin pump companies. The website for the Pump Mate is
> >>> www.pump-mate.com
> >>> James is trying to get Medtronic Minimed's cooperation and support in
> >>> developing and producing the Pump Mate. It would be great if those who
> >>> are interested could contact Minimed to express interest in the pump
> >>> mate
> >>> and desire that Minimed would help to market and produce it.
> >>> With the Pump Mate, it is possible to program basal rates, use the 
> >>> Bolis
> >>> Wizzard, and hear test results from the meters that Minimed has
> >>> specifically designed to transfer data to and from the insulin pump.
> >>> This
> >>> has amazing potential since the Pump Mate could someday be used in
> >>> conjunction with the continuous glucose monitoring system.
> >>> I have pasted James's contact information below, and I am sending him 
> >>> a
> >>> carbon copy of this message in case he would like to join the list or
> >>> provide feedback.
> >>>
> >>> Access Solutions
> >>> james at axsol.com
> >>> sales: (916) 481-3559
> >>>
> >>> Chanelle
> >>> _______________________________________________
> >>> Diabetes-talk mailing list
> >>> Diabetes-talk at nfbnet.org
> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-talk:
> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdancing%40sbcglobal.net
> >>> _______________________________________________
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> >>> Diabetes-talk at nfbnet.org
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> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-talk:
> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> >>>
> >>
> >>
> >> _______________________________________________
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> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> >
> >
> >
> >
> > ------------------------------
> >
> > _______________________________________________
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> > Diabetes-talk at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >
> >
> > End of Diabetes-talk Digest, Vol 33, Issue 10
> > *********************************************
>
>
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