[Diabetes-talk] Braille Reading Ability after diagnosis

William and Bernadette Jacobs bandbjacobs at verizon.net
Wed Jan 5 19:42:49 UTC 2011


Hey Julie and everyone else!

I've been a Braille reader all my life--since dirt. I too, was extremely 
concerned about Braille Reading Ability after diagnosis.  However, I too, 
have always used the sides of my fingers.  That's where you get the best 
capillary action.  Secondly, I've done everything but have my husband build 
me a wooden sign saying: "STAY AWAY FROM MY BRAILLE FINGERS!"  I've made 
that "Commandment #11!":  Thou shalt never, ever, stick BRAILLE-READING 
FINGERS!!!"  When I've ever been taken to the hospital with a bad reaction 
during my one and only pregnancy, my husband has forewarned just about the 
entire hospital staff and/or whoever wouldn't listen!  I'm pretty anal about 
those Braille fingers and haven't budged since 1985 upon my diagnosis!

I would also agree to the rest of the consensus here that it is usually 
neuropathy that affects the Braille-reading.  However, even that appears to 
do different things with different folk.  My neuropathy is primarily in my 
feet.  Ya know, I never took care of my feet as a kid--always, forever 
barefoot!  Whoever heard of shoes?  Way, way too confining!  After all, what 
could ever happen to them?  Oh, boy!  Was I ever in for a rude awakening! 
Praise God, except for very dry skin, my hands are in phantabulous shape. 
Happy New Year everyone!  And, of course, have a great day!

Bern
----- Original Message ----- 
From: <diabetes-talk-request at nfbnet.org>
To: <diabetes-talk at nfbnet.org>
Sent: Wednesday, January 05, 2011 1:00 PM
Subject: Diabetes-talk Digest, Vol 42, Issue 3


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> Today's Topics:
>
>   1. Braille reading ability after diagnosis (Julie Kline)
>   2. Re: Braille reading ability after diagnosis (Alan Wheeler)
>   3. Re: Braille reading ability after diagnosis (LeAnne Mayne)
>   4. Re: Braille reading ability after diagnosis (Veronica Elsea)
>   5. Checking Sugar (Steve Cook)
>   6. Re: Braille reading ability after diagnosis (d m gina)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Tue, 4 Jan 2011 20:22:40 -0500
> From: "Julie Kline" <julie.kline at rochester.rr.com>
> To: <diabetes-talk at nfbnet.org>
> Subject: [Diabetes-talk] Braille reading ability after diagnosis
> Message-ID: <60.05.04612.0E7C32D4 at hrndva-omtalb.mail.rr.com>
> Content-Type: text/plain; charset="us-ascii"
>
> Good evening,
>
> I mentioned in my intro that I had quite a few questions, so here's the
> first one out of the plethora of them.  It figures I'd pick the one that 
> has
> been weighing on me the most.  My doctor nor the person doing the diabetes
> education can't seem to answer this, so here goes.
>
> I've been totally blind all my life.  I was born that way and as a result 
> I
> grew up reading Braille, which I do very well.  Now that I have diabetes, 
> am
> I going to lose that ability?  I know of a few people who are blind and 
> have
> diabetes who say that they can't read Braille, and that prospect kind of
> scares me.  Is the reason they can't read it because of neuropathy in 
> their
> fingers and you just can't feel the dots?  Or is the issue more that when
> you stick your finger for testing, that the calluses from this build up so
> much that you can't feel the dots anymore.  So far I have avoided sticking
> my fingers where I use them to feel the dots, but I recognize this 
> approach
> limits where I can do my testing from, and I'm nervous about repeatedly
> sticking myself and not giving the area a chance to heal because I used it
> too frequently.
>
> I'd be interested in feedback from other people who are Braille readers or
> anyone who has insight on this.
> Thanks.
> Julie
>
>
>
>
>
> ------------------------------
>
> Message: 2
> Date: Tue, 4 Jan 2011 19:36:07 -0600
> From: "Alan Wheeler" <awheeler at neb.rr.com>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-talk] Braille reading ability after diagnosis
> Message-ID: <6CB1F3722C2D4C0DA03E7F74BFAB4F9C at OwnerPC>
> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> reply-type=original
>
> Julie,
> I think, more often than not, the big issue with braille reading is the
> neuropathy. While the finger sticking callouses may also be a factor, I
> think the bigger issue is the neuropathy.
>
> ----- Original Message ----- 
> From: "Julie Kline" <julie.kline at rochester.rr.com>
> To: <diabetes-talk at nfbnet.org>
> Sent: Tuesday, January 04, 2011 7:22 PM
> Subject: [Diabetes-talk] Braille reading ability after diagnosis
>
>
>> Good evening,
>>
>> I mentioned in my intro that I had quite a few questions, so here's the
>> first one out of the plethora of them.  It figures I'd pick the one that
>> has
>> been weighing on me the most.  My doctor nor the person doing the 
>> diabetes
>> education can't seem to answer this, so here goes.
>>
>> I've been totally blind all my life.  I was born that way and as a result
>> I
>> grew up reading Braille, which I do very well.  Now that I have diabetes,
>> am
>> I going to lose that ability?  I know of a few people who are blind and
>> have
>> diabetes who say that they can't read Braille, and that prospect kind of
>> scares me.  Is the reason they can't read it because of neuropathy in
>> their
>> fingers and you just can't feel the dots?  Or is the issue more that when
>> you stick your finger for testing, that the calluses from this build up 
>> so
>> much that you can't feel the dots anymore.  So far I have avoided 
>> sticking
>> my fingers where I use them to feel the dots, but I recognize this
>> approach
>> limits where I can do my testing from, and I'm nervous about repeatedly
>> sticking myself and not giving the area a chance to heal because I used 
>> it
>> too frequently.
>>
>> I'd be interested in feedback from other people who are Braille readers 
>> or
>> anyone who has insight on this.
>> Thanks.
>> Julie
>>
>>
>>
>> _______________________________________________
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>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
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>
>
>
>
> ------------------------------
>
> Message: 3
> Date: Tue, 04 Jan 2011 19:48:27 -0600
> From: LeAnne Mayne <leanne at uddle.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-talk] Braille reading ability after diagnosis
> Message-ID: <3.0.3.32.20110104194827.0100e7b8 at uddle.com>
> Content-Type: text/plain; charset="us-ascii"
>
> At 07:36 PM 1/4/2011 -0600, Alan
> more often than not, the big issue with braille reading is the neuropathy.
> While the finger sticking callouses may also be a factor, I think the
> bigger issue is the neuropathy.
>
> I just never stick my index fingers that way my braille reading is kind of
> protected.
> LeAnne Mayne
>
>  LeAnne Mayne     KB9ZEF      leanne at uddle.com
>            Listen  to:   LIFE  THE  UNIVERSE  &
>                                     EVERYTHING  w/Blair Alper
>     Sundays 7pm CST HTTP://cband.info/rfd2.m3u
>            When he is Motivated to do a SHOW
>
>
>
>
>
> ------------------------------
>
> Message: 4
> Date: Tue, 04 Jan 2011 19:04:19 -0800
> From: Veronica Elsea <veronica at laurelcreekmusic.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-talk] Braille reading ability after diagnosis
> Message-ID:
> <mailman.48.1294250408.11279.diabetes-talk_nfbnet.org at nfbnet.org>
> Content-Type: text/plain; charset="us-ascii"; format=flowed
>
> Julie, the best way to get blood out of your fingers is supposed to
> be by pricking the side of the finger, not the flat part. It took me
> a long time to get the nerve to prick my index fingers because I too
> was worried about braille reading. But now I've beat up on my other
> fingers for so long that suddenly those index fingers are looking
> awfully attractive. And there has been no damage to my
> braille-reading ability. It is definitely the neuropathy that messes
> with the ability to read braille, something which I have avoided so
> far, thank goodness. So relax and enjoy yourself and do the best you can.
> Veronica
> We Woof You A Merry Christmas! Diabetes Melodious! And more!
> Music CDs that will impact and entertain you forever!
> http://www.laurelcreekmusic.com
> Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> 877-607-6407
>
>
>
>
> ------------------------------
>
> Message: 5
> Date: Wed, 5 Jan 2011 08:44:45 -0500
> From: Steve Cook <STCook at sccb.sc.gov>
> To: "diabetes-talk at nfbnet.org" <diabetes-talk at nfbnet.org>
> Subject: [Diabetes-talk] Checking Sugar
> Message-ID:
> <347999B4B3D2414CA269D4F8C3E790A44CA90613D1 at sccb-exch2.SCCB.Local>
> Content-Type: text/plain; charset="us-ascii"
>
> Hi All,
>
> What different machines does everyone use to check their sugar levels that 
> has speech?  I am doing some research on which one to purchase for myself.
>
> Steve Cook
> SC Commission for the Blind
> 1430 Confederate Avenue
> Columbia, SC 29201
> Office: (803) 898-8788
> Fax: (803) 898-8882
> E-Mail: stcook at sccb.sc.gov
>
>
>
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> ------------------------------
>
> Message: 6
> Date: Wed, 05 Jan 2011 09:52:40 -0500
> From: d m gina <dmgina at samobile.net>
> To: diabetes-talk at nfbnet.org
> Subject: Re: [Diabetes-talk] Braille reading ability after diagnosis
> Message-ID:
> <20110105145240.4577.76713 at domU-12-31-38-00-AD-3E.compute-1.internal>
> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>
> Hi there
> It is both, I find days when I can read braille just fine, and other days 
> not.
> Or if the fingers are sore the dots sting.
> I don't give up, and we read at mass so want to keep Braille skills up.
> Hope this helps.
> I also have been blind all of my life, and trust me I have more life to 
> go.
> Lots of grief to give everyone giggle.
>
> Original message:
>> Good evening,
>
>> I mentioned in my intro that I had quite a few questions, so here's the
>> first one out of the plethora of them.  It figures I'd pick the one that 
>> has
>> been weighing on me the most.  My doctor nor the person doing the 
>> diabetes
>> education can't seem to answer this, so here goes.
>
>> I've been totally blind all my life.  I was born that way and as a result 
>> I
>> grew up reading Braille, which I do very well.  Now that I have diabetes, 
>> am
>> I going to lose that ability?  I know of a few people who are blind and 
>> have
>> diabetes who say that they can't read Braille, and that prospect kind of
>> scares me.  Is the reason they can't read it because of neuropathy in 
>> their
>> fingers and you just can't feel the dots?  Or is the issue more that when
>> you stick your finger for testing, that the calluses from this build up 
>> so
>> much that you can't feel the dots anymore.  So far I have avoided 
>> sticking
>> my fingers where I use them to feel the dots, but I recognize this 
>> approach
>> limits where I can do my testing from, and I'm nervous about repeatedly
>> sticking myself and not giving the area a chance to heal because I used 
>> it
>> too frequently.
>
>> I'd be interested in feedback from other people who are Braille readers 
>> or
>> anyone who has insight on this.
>> Thanks.
>> Julie
>
>
>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40samobile.net
>
> -- 
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
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