[Diabetes-talk] ScriptTalker, another discouraging development
Debbie Wunder
debbiewunder at centurytel.net
Fri May 13 14:07:05 UTC 2011
Hello, can you please tell me what is the most accessible meter that can be
purchased?
----- Original Message -----
From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Friday, May 13, 2011 6:55 AM
Subject: Re: [Diabetes-talk] ScriptTalker, another discouraging development
> There is something called HIPAA, a reader is nice, but let us remember you
> are talking to the choir and like my husband always says, not everyone is
> Cheryl, so not everyone if Mike Freeman.
>
> Leading the Way in Independent Travel
>
> Cheryl Echevarria
> http://www.Echevarriatravel.com<http://www.echevarriatravel.com/>
> 631-456-5394
> reservations at echevarriatravel.com<mailto:reservations at echevarriatravel.com>
>
>
>
> Affiliated as an Independent Contractor with Montrose Travel
> CST-1018299-10
> Affiliated as an Independent Contractor with Absolute Cruise and Travel,
> Inc.
> ----- Original Message -----
> From: Mike Freeman<mailto:k7uij at panix.com>
> To: 'Diabetes Talk for the Blind'<mailto:diabetes-talk at nfbnet.org>
> Sent: Thursday, May 12, 2011 11:34 PM
> Subject: Re: [Diabetes-talk] ScriptTalker, another discouraging
> development
>
>
> Tamera:
>
> When I lived alone, I paid a reader to come once or twice a week for an
> hour
> or so and read mail, fill out documents etc. I had her read order
> numbers,
> medication administration directions etc. Now that I am again married, I
> have my sighted wife read that stuff. I also have an Optacon but unless
> there's absolutely no one around, the sighted reader/amanuensis is the
> faster way to go.
>
> Perhaps the distinguishing factor is that I'm not hung up on information
> being "personal"; I don't give a rat's posterior who knows what about my
> prescriptions etc.; I have nothing to be ashamed of. But, in fact, were a
> reader to disclose information I did not wish disclosed, I would
> immediately
> fire him/her. I realize that reliance on readers is not in fashion
> anymore
> but, frankly, it's still the most efficient way to go most of the time.
>
> I'm not hung up on using an amanuensis to fill out my ballot, either. If
> we
> start down the road of saying we can't trust readers, then we can't
> expect
> to be able to be blind foreign service workers, blind lawyers or any
> number
> of other professions that handle sensitive information in a sighted
> world.
>
> Admittedly, one must be systematic about this sort of thing. But that's
> one
> of the little annoyances of blindness.
>
> Peace!
>
> Mike
>
>
> -----Original Message-----
> From:
> diabetes-talk-bounces at nfbnet.org<mailto:diabetes-talk-bounces at nfbnet.org>
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Tamera
> Sent: Thursday, May 12, 2011 8:11 PM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] ScriptTalker, another discouraging
> development
>
> Mike,
> would you please share with us how you keep track of your prescriptions,
> the reorder number etc.?
> I do have a sighted husband but find I'd much prefer to take care of my
> own
>
> meds myself.. reorder, reading script, the pamphlet etc.
> I know certain readers do OK for pamphlets, but the roundness of script
> bottles makes it difficult to get a good read on that info.
> It would be great to know how you successfully do this?
> Thanks so much!
> Tamera
>
> --------------------------------------------------
> From: "Mike Freeman" <k7uij at panix.com<mailto:k7uij at panix.com>>
> Sent: Thursday, May 12, 2011 6:26 PM
> To: "'Diabetes Talk for the Blind'"
> <diabetes-talk at nfbnet.org<mailto:diabetes-talk at nfbnet.org>>
> Subject: Re: [Diabetes-talk] ScriptTalker, another discouraging
> development
>
> > Julie:
> >
> > I realize that many on this list will disagree with me. However, that
> > never
> > stopped me, so ...
> >
> > I never quite fathomed why so many folks find this such a problem. In
> > general, we, the blind, must learn to handle printed material in our
> daily
> > lives. Why? Because the world is structured for the sighted. The
> sighted
> > use
> > print. Therefore, in order to function satisfactorily in the real
> world,
> > we,
> > the blind, must find a way to deal with print. This means finding a way
> to
> > read documents such as our mail and legal documents that come our way.
> To
> > my
> > way of thinking, this also means that we should find a way to get
> > prescription information read to us and then find a way to mark the
> > bottles
> > (as with your PenFriend) so that you can have the information at your
> > fingertips.
> >
> > It doesn't surprise me that Envision America suddenly discovered that
> it
> > had
> > to make money to survive and thus had to increase prices. I also don't
> > blame
> > your pharmacist.
> >
> > There is this: if enough people find it impractical to return the
> > ScripTalk
> > bottles, Envision America will not get many new orders and the product
> > will
> > die no matter what.
> >
> > No one ever said blindness wasn't a nuisance.
> >
> > Mike Freeman
> >
> >
> > -----Original Message-----
> > From:
> diabetes-talk-bounces at nfbnet.org<mailto:diabetes-talk-bounces at nfbnet.org>
> > [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Julie Kline
> > Sent: Thursday, May 12, 2011 6:07 PM
> > To: 'Diabetes Talk for the Blind'
> > Subject: [Diabetes-talk] ScriptTalker, another discouraging development
> >
> > Good evening,
> >
> > I'd like to add my two cents to the topic of resolutions. It's
> > discouraging
> > that we have to deal with such a battle to get basic medical access
> taken
> > care of. There's a device that was being recommended by both consumer
> > groups called the ScriptTalk prescription reader. You had to use it at
> a
> > participating pharmacy, but the nice thing about the machine was that
> you
> > could read what was on your medication label independently and make
> sure
> > you
> > were given the right medications at the right dosages. There never was
> a
> > local pharmacy in my area that participated in this program, but I did
> > find
> > one here in New York state that did. The arrangement worked out nicely
> > for
> > a year or so and my medicines were mailed out.
> >
> > However, a couple of days ago, I learned that the company who makes the
> > chips that the machine reads about tripled the costs for what
> pharmacies
> > pay
> > to participate in this program. My person I work with said that the
> > company
> > chose to subsidize the machines for people who couldn't afford them,
> and
> > in
> > doing the subsidy, the company decided to make up for the cost by
> charging
> > the pharmacies more to participate in the program. Now instead of 75
> > cents
> > per chip, per bottle, the pharmacist now has to pay $3.75 per chip, per
> > bottle. My pharmacist talked to me about this and I was asked to ship
> my
> > bottles back to him every few months so he could reuse the chips. He
> said
> > that was the only way he could afford to keep the program going, and
> even
> > now he's considering dropping it. In looking at this, I realized that
> I'd
> > be paying a lot to ship the bottles back to him, not to mention the
> time
> > involved in waiting for rides since there isn't a post office nor UPS
> > store
> > on the way to anywhere for us. I recognized I'd be spending more on
> > shipping than my costs for what I'd pay at my local store (not to
> mention
> > my
> > time), so now I'm forced to rely on a local pharmacy. I have a pen
> friend
> > system with the dots you can record information onto, but I just have
> to
> > pray I'm given the right medicine in the right dose. And I have to
> pray
> > too
> > that the pharmacy will have the patience to read me that information
> month
> > after month. To tell the truth, it makes me nervous. I have no way to
> > check the bottles on my own now as we are both blind and have no
> available
> > sighted assistance from friends or family.
> >
> > Not to bring anyone down, but I think if you are going to look at
> writing
> > resolutions, this is another issue that really needs to be addressed.
> At
> > the least it's a discouraging development. At most, for people who
> take
> > high volumes of different medications, not knowing about dosages,
> > interactions, or even mistaking which pill is what, could be life
> > threatening.
> >
> > Julie
> >
> >
> > _______________________________________________
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> >
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