[Diabetes-talk] Wow!!! Guess everyone is awake now???

Thu Oct 20 19:18:35 UTC 2011

Denise,

Diabetes has certain criteria that is across the board, but this disease
is very much an individual case type of disease. Different treatments
affect different people in various ways. And what works for some,
doesn't work for others.

Having no function of the pancreas isn't necessarily "severe" diabetes,
but it's type 1, and of course this means you will be insulin
independent. I've been type 1 for 27 years and on an insulin pump for
almost eight years now; about the same amount of time I've been blind.

As most of us, I've been on the gambit of insulin treatments. Before my
pump, I was on Lantis, and before that, I used NPH and a fast-acting
insulin. Some people, like me, love the pump and have had the best
regulation ever. The pump, though, isn't for everyone. How you describe
your insulin routine, though, is essentially how one uses an insulin
pump.

I'm not sensitive to bruising or pain with my pump, and I'm not
experiencing nueropathy either. If you experience this, a pump may not
be the best device, or you haven't used a pump that works for you. I
rarely, in eight years, have experienced issues with the tubing or
mechanics of my pump. And even when on other insulin routines, I
experienced lows and insulin reactions. In fact, since a child, I tend
to have lows and respond very quickly to insulin. This is one of the
reasons I like the pump because I can have certain rates that adjust
throughout the day. So during peak times when I tend to be low, my pump
has lower rates set.

Anyway, there are many ways to treat diabetes with insulin. We all have
to find what works best for us. Ultimately, it's about managing diabetes
the best we can.

Welcome.

Sincerely,
Bridgit Kuenning-Pollpeter
Read my blog at:
http://blogs.livewellnebraska.com/author/bpollpeter/

"History is not what happened; history is what was written down."
The Expected One- Kathleen McGowan

-----Original Message-----
From: diabetes-talk-bounces at nfbnet.org
[mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Dr. Denise M
Robinson
Sent: Thursday, October 20, 2011 8:11 AM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???

Just a quick note on pump using...They are painful to use and cause
brusing...at least on me and I have asked on others...so if you have a
tendency to be sensitive, well...you know. Yes the convenience is nice
to just pump insulin in at any time, but it needs to be working well all
the time and it does not.

If you have lots of neropathy, the pain of it might not bother you as
much, but here are some issues. The tubing, gets clogged or bubbles are
in the tube and it won't deliver the insulin well and thus your blood
sugar goes sky high. At night you can get severe lows...I have been down
to 30s and 40s, this happens during the day too even if I am a bit late
on eating--I experience more severe lows with the pump and many many too
many highs because of the delivery system issues. I had to go off it
because of these issues BUT, what I did learn is how to control my blood
sugar even better with needle injections...ok, I take about 7-10 shots a
day. I use lantus, long acting insulin in morning and small amount at
night to get me through the night to keep my blood sugar in check and
humlog for my fast acting...just lots of little shots throughout the day
to go with what I eat. My A1C is 6.5...I am considered a severe
diabetic...absolutely no function in the pancreas since I was 16.

I actually load my needle for the whole day. I am a 15 cc unit user for
1 day--I can't eat much, so it is easy to keep track. I know exactly how
much 2 cc units of delivery is so injection is easy and that is about
how much food I eat at a time, due to stomach cancer issues and almost
no stomach now. So it is easy to do delivery and I have the best A1C I
have ever had. So if you know how much you take for the day, load that
needle and it is easy to keep track of what is going on. At first you
have to be VERY deligent in checking blood sugar to go with how much
insulin you gave, but you get very good it this. Anyway...some side
notes--Oh yes, just joined you all...HI Denise Robinson

On Thu, Oct 20, 2011 at 5:28 AM, William and Bernadette Jacobs <
bandbjacobs at verizon.net> wrote:

> Greetings Veronica!
>
> So glad to hear from you!  Thank you also for your perception/comment 
> here! Great contribution to this!!  We've all got something here in 
> that no matter what Prodigy might or might not be guilty of, there are

> a whole lot of hands in this charade:  Prodigy, solo, Roch, all the 
> other meter/pump  makers out there, all under the rule of the 
> "almighty" FDA???  And unfortunately, we still don't have a pump that 
> we were promised from any of them.  Yet, they don't seem to give a rip

> because they aren't the consumers waiting for it. We're the ones 
> chomping at the bit for it.  I, myself am not a pumper but I'm not 
> sure I wouldn't be if there wasn't something out there worth my time 
> and energy.
>
> At this point Gang, I'd really like to take this time to thank you 
> again. I've learned so much from all of you; pumpers/non-pumpers 
> alike.  I have really enjoyed the comradory here from everyone!  Guess

> that's why I consider us family here!
>
> Have a great day gang!
>
> Bern
> ----- Original Message ----- From: "Veronica Elsea" < 
> veronica at laurelcreekmusic.com**>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Wednesday, October 19, 2011 11:31 PM
> Subject: Re: [Diabetes-talk] VoiceRx is Prodigy
>
>
>  Well, I have no connection to Prodigy or anyone else, but from the
>> conversations I had in August with Prodigy, other pump companies who 
>> were also held up, and the FDA representative, at this point I do 
>> believe that the FDA backlog is playing a part in the delay. There 
>> are several stages in which the FDA comes into play, some very early 
>> on in the pre-marketing approval. And given that nothing new is 
>> appearing anywhere right now, I'm willing to cut them some slack 
>> until I learn something different. But I'm not in the inner circle, 
>> just waiting like the rest of you. <grin.>
>>
>> Veronica
>> We Woof You A Merry Christmas! Diabetes Melodious! And more! Music 
>> CDs that will impact and entertain you forever! 
>> http://www.laurelcreekmusic.**com <http://www.laurelcreekmusic.com> 
>> Veronica Elsea, Owner Laurel Creek Music Designs
>> Santa Cruz, California
>> 877-607-6407
>>
>>
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>>
>>
>
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>

-- 
Denise

Denise M. Robinson, TVI, Ph.D.
CEO, TechVision
Specialist in blind technology/teaching/training
Email:  yourtechvision at gmail.com <deniserob at gmail.com>
Website with hundreds of lessons: yourtechvision.com
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