[Diabetes-talk] Wow!!! Guess everyone is awake now???

Thu Oct 20 19:41:45 UTC 2011

Firstly, I'm Bernadette Jacobs, (Bernie or "Bern" for short.  I've actually 
been saying I've learned much from you guys and thought if I could find 
something useable for me, I might actually consider it.  many, many of my 
close friends use them and love them as much as you do, I'm sure.  I would 
just like something that truly is completely accessible so I wouldn't have 
to worry about waking my husband early in the morning, or during the night, 
for that matter to take care of my pump.  My husband actually works at the 
Center and sometimes works very, very long hours.  He's always one of the 
drivers for the trucks for the supplies for the annual national conventions 
and has been since 1998 before we ever got married.  Therefore, hecan be 
gone for several days and I really don't have any other close sighted help. 
And, yes, my dear.  I do read your blog often.  I've learned a lot from you, 
Veronica, Diane, my friend Krissy, and countless others.  and I consider 
what I've learned to be invaluable and don't worry.  When I can get 
something I like, don't worry.  I'm not shy, by any means.  I'll ask! 
Promise!

Bern
----- Original Message ----- 
From: "Bridgit Pollpeter" <bpollpeter at hotmail.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Sent: Thursday, October 20, 2011 3:18 PM
Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???

> Denise,
>
> Diabetes has certain criteria that is across the board, but this disease
> is very much an individual case type of disease. Different treatments
> affect different people in various ways. And what works for some,
> doesn't work for others.
>
> Having no function of the pancreas isn't necessarily "severe" diabetes,
> but it's type 1, and of course this means you will be insulin
> independent. I've been type 1 for 27 years and on an insulin pump for
> almost eight years now; about the same amount of time I've been blind.
>
> As most of us, I've been on the gambit of insulin treatments. Before my
> pump, I was on Lantis, and before that, I used NPH and a fast-acting
> insulin. Some people, like me, love the pump and have had the best
> regulation ever. The pump, though, isn't for everyone. How you describe
> your insulin routine, though, is essentially how one uses an insulin
> pump.
>
> I'm not sensitive to bruising or pain with my pump, and I'm not
> experiencing nueropathy either. If you experience this, a pump may not
> be the best device, or you haven't used a pump that works for you. I
> rarely, in eight years, have experienced issues with the tubing or
> mechanics of my pump. And even when on other insulin routines, I
> experienced lows and insulin reactions. In fact, since a child, I tend
> to have lows and respond very quickly to insulin. This is one of the
> reasons I like the pump because I can have certain rates that adjust
> throughout the day. So during peak times when I tend to be low, my pump
> has lower rates set.
>
> Anyway, there are many ways to treat diabetes with insulin. We all have
> to find what works best for us. Ultimately, it's about managing diabetes
> the best we can.
>
> Welcome.
>
> Sincerely,
> Bridgit Kuenning-Pollpeter
> Read my blog at:
> http://blogs.livewellnebraska.com/author/bpollpeter/
>
> "History is not what happened; history is what was written down."
> The Expected One- Kathleen McGowan
>
>
> -----Original Message-----
> From: diabetes-talk-bounces at nfbnet.org
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Dr. Denise M
> Robinson
> Sent: Thursday, October 20, 2011 8:11 AM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???
>
>
> Just a quick note on pump using...They are painful to use and cause
> brusing...at least on me and I have asked on others...so if you have a
> tendency to be sensitive, well...you know. Yes the convenience is nice
> to just pump insulin in at any time, but it needs to be working well all
> the time and it does not.
>
> If you have lots of neropathy, the pain of it might not bother you as
> much, but here are some issues. The tubing, gets clogged or bubbles are
> in the tube and it won't deliver the insulin well and thus your blood
> sugar goes sky high. At night you can get severe lows...I have been down
> to 30s and 40s, this happens during the day too even if I am a bit late
> on eating--I experience more severe lows with the pump and many many too
> many highs because of the delivery system issues. I had to go off it
> because of these issues BUT, what I did learn is how to control my blood
> sugar even better with needle injections...ok, I take about 7-10 shots a
> day. I use lantus, long acting insulin in morning and small amount at
> night to get me through the night to keep my blood sugar in check and
> humlog for my fast acting...just lots of little shots throughout the day
> to go with what I eat. My A1C is 6.5...I am considered a severe
> diabetic...absolutely no function in the pancreas since I was 16.
>
> I actually load my needle for the whole day. I am a 15 cc unit user for
> 1 day--I can't eat much, so it is easy to keep track. I know exactly how
> much 2 cc units of delivery is so injection is easy and that is about
> how much food I eat at a time, due to stomach cancer issues and almost
> no stomach now. So it is easy to do delivery and I have the best A1C I
> have ever had. So if you know how much you take for the day, load that
> needle and it is easy to keep track of what is going on. At first you
> have to be VERY deligent in checking blood sugar to go with how much
> insulin you gave, but you get very good it this. Anyway...some side
> notes--Oh yes, just joined you all...HI Denise Robinson
>
>
> On Thu, Oct 20, 2011 at 5:28 AM, William and Bernadette Jacobs <
> bandbjacobs at verizon.net> wrote:
>
>> Greetings Veronica!
>>
>> So glad to hear from you!  Thank you also for your perception/comment
>> here! Great contribution to this!!  We've all got something here in
>> that no matter what Prodigy might or might not be guilty of, there are
>
>> a whole lot of hands in this charade:  Prodigy, solo, Roch, all the
>> other meter/pump  makers out there, all under the rule of the
>> "almighty" FDA???  And unfortunately, we still don't have a pump that
>> we were promised from any of them.  Yet, they don't seem to give a rip
>
>> because they aren't the consumers waiting for it. We're the ones
>> chomping at the bit for it.  I, myself am not a pumper but I'm not
>> sure I wouldn't be if there wasn't something out there worth my time
>> and energy.
>>
>> At this point Gang, I'd really like to take this time to thank you
>> again. I've learned so much from all of you; pumpers/non-pumpers
>> alike.  I have really enjoyed the comradory here from everyone!  Guess
>
>> that's why I consider us family here!
>>
>> Have a great day gang!
>>
>> Bern
>> ----- Original Message ----- From: "Veronica Elsea" <
>> veronica at laurelcreekmusic.com**>
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Sent: Wednesday, October 19, 2011 11:31 PM
>> Subject: Re: [Diabetes-talk] VoiceRx is Prodigy
>>
>>
>>  Well, I have no connection to Prodigy or anyone else, but from the
>>> conversations I had in August with Prodigy, other pump companies who
>>> were also held up, and the FDA representative, at this point I do
>>> believe that the FDA backlog is playing a part in the delay. There
>>> are several stages in which the FDA comes into play, some very early
>>> on in the pre-marketing approval. And given that nothing new is
>>> appearing anywhere right now, I'm willing to cut them some slack
>>> until I learn something different. But I'm not in the inner circle,
>>> just waiting like the rest of you. <grin.>
>>>
>>> Veronica
>>> We Woof You A Merry Christmas! Diabetes Melodious! And more! Music
>>> CDs that will impact and entertain you forever!
>>> http://www.laurelcreekmusic.**com <http://www.laurelcreekmusic.com>
>>> Veronica Elsea, Owner Laurel Creek Music Designs
>>> Santa Cruz, California
>>> 877-607-6407
>>>
>>>
>>> ______________________________**_________________
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>>>
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> -talk_nfbnet.org/bandbjacobs%40verizon.net>
>>>
>>>
>>
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> k_nfbnet.org/deniserob%40gmail.com>
>>
>
>
>
> -- 
> Denise
>
> Denise M. Robinson, TVI, Ph.D.
> CEO, TechVision
> Specialist in blind technology/teaching/training
> Email:  yourtechvision at gmail.com <deniserob at gmail.com>
> Website with hundreds of lessons: yourtechvision.com
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